The beautiful unwanted :: Down syndrome in myth, memoir, and bioethics /
"Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents' choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Montreal ; Chicago :
McGill-Queen's University Press,
[2023]
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | "Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents' choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who has a son with Down syndrome, reflects on parenting his son in the midst of this supposed disappearance. Writing from a pro-choice, disability-positive perspective, Kaposy presents some of the decades-old bioethical controversies involving children with Down syndrome, illustrating a prehistory of disappearance that has shaped current attitudes toward intellectual disability. Layered throughout this history are elements of Kaposy's personal experience with his son and family. Transcending monograph and memoir, The Beautiful Unwanted draws creatively upon the past and the present, upon myth, history, science, and personal stories, to present the world of families that include children with Down syndrome from a series of uncommon perspectives. This account encompasses the changeling myths of Newfoundland, the "discovery" of Down syndrome by John Langdon Down and Jérôme Lejeune, and the twentieth-century experience of institutionalization, as well as recent advances in reproductive technology. We must recognize that we have some control over the future, Kaposy argues, and we must ask what kind of future we want for those who have intellectual disabilities. The Beautiful Unwanted poses this question in a way that is engaging, often bewildering, and always fascinating."-- |
| Beschreibung: | 1 online resource (196 pages). |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 0228019680 9780228019671 0228019672 9780228019688 |
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| 246 | 3 | 0 | |a Down syndrome in myth, memoir, and bioethics |
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| 300 | |a 1 online resource (196 pages). | ||
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| 520 | |a "Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents' choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who has a son with Down syndrome, reflects on parenting his son in the midst of this supposed disappearance. Writing from a pro-choice, disability-positive perspective, Kaposy presents some of the decades-old bioethical controversies involving children with Down syndrome, illustrating a prehistory of disappearance that has shaped current attitudes toward intellectual disability. Layered throughout this history are elements of Kaposy's personal experience with his son and family. Transcending monograph and memoir, The Beautiful Unwanted draws creatively upon the past and the present, upon myth, history, science, and personal stories, to present the world of families that include children with Down syndrome from a series of uncommon perspectives. This account encompasses the changeling myths of Newfoundland, the "discovery" of Down syndrome by John Langdon Down and Jérôme Lejeune, and the twentieth-century experience of institutionalization, as well as recent advances in reproductive technology. We must recognize that we have some control over the future, Kaposy argues, and we must ask what kind of future we want for those who have intellectual disabilities. The Beautiful Unwanted poses this question in a way that is engaging, often bewildering, and always fascinating."-- |c Provided by publisher. | ||
| 588 | |a Description based on online resource; title from digital title page (viewed on September 15, 2023). | ||
| 650 | 0 | |a Down syndrome. |0 http://id.loc.gov/authorities/subjects/sh85039232 | |
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| 650 | 0 | |a Parents of children with disabilities. |0 http://id.loc.gov/authorities/subjects/sh85098023 | |
| 650 | 0 | |a Bioethics. |0 http://id.loc.gov/authorities/subjects/sh85014136 | |
| 650 | 2 | |a Down Syndrome |0 https://id.nlm.nih.gov/mesh/D004314 | |
| 650 | 2 | |a Parent-Child Relations |0 https://id.nlm.nih.gov/mesh/D010287 | |
| 650 | 6 | |a Syndrome de Down. | |
| 650 | 6 | |a Parents et enfants. | |
| 650 | 6 | |a Parents d'enfants handicapés. | |
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| contents | Progress -- Life Decisions -- Making Predictions -- Don't Talk about Eugenics -- Philosophers -- Hidden versus Normal -- Down -- Bourgeois -- Portraits -- Baby Doe -- Deployments -- Lineage. |
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| id | ZDB-4-EBA-on1378793426 |
| illustrated | Not Illustrated |
| indexdate | 2024-11-27T13:30:42Z |
| institution | BVB |
| isbn | 0228019680 9780228019671 0228019672 9780228019688 |
| language | English |
| oclc_num | 1378793426 |
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| spelling | Kaposy, Chris, author. http://id.loc.gov/authorities/names/n2017043564 The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / Chris Kaposy. Down syndrome in myth, memoir, and bioethics Montreal ; Chicago : McGill-Queen's University Press, [2023] 1 online resource (196 pages). text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references and index. Progress -- Life Decisions -- Making Predictions -- Don't Talk about Eugenics -- Philosophers -- Hidden versus Normal -- Down -- Bourgeois -- Portraits -- Baby Doe -- Deployments -- Lineage. "Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents' choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who has a son with Down syndrome, reflects on parenting his son in the midst of this supposed disappearance. Writing from a pro-choice, disability-positive perspective, Kaposy presents some of the decades-old bioethical controversies involving children with Down syndrome, illustrating a prehistory of disappearance that has shaped current attitudes toward intellectual disability. Layered throughout this history are elements of Kaposy's personal experience with his son and family. Transcending monograph and memoir, The Beautiful Unwanted draws creatively upon the past and the present, upon myth, history, science, and personal stories, to present the world of families that include children with Down syndrome from a series of uncommon perspectives. This account encompasses the changeling myths of Newfoundland, the "discovery" of Down syndrome by John Langdon Down and Jérôme Lejeune, and the twentieth-century experience of institutionalization, as well as recent advances in reproductive technology. We must recognize that we have some control over the future, Kaposy argues, and we must ask what kind of future we want for those who have intellectual disabilities. The Beautiful Unwanted poses this question in a way that is engaging, often bewildering, and always fascinating."-- Provided by publisher. Description based on online resource; title from digital title page (viewed on September 15, 2023). Down syndrome. http://id.loc.gov/authorities/subjects/sh85039232 Parent and child. http://id.loc.gov/authorities/subjects/sh85097980 Parents of children with disabilities. http://id.loc.gov/authorities/subjects/sh85098023 Bioethics. http://id.loc.gov/authorities/subjects/sh85014136 Down Syndrome https://id.nlm.nih.gov/mesh/D004314 Parent-Child Relations https://id.nlm.nih.gov/mesh/D010287 Syndrome de Down. Parents et enfants. Parents d'enfants handicapés. FAMILY & RELATIONSHIPS / Children with Special Needs. bisacsh Bioethics fast Down syndrome fast Parent and child fast Parents of children with disabilities fast Print version: Kaposy, Chris. Beautiful unwanted. Montreal ; Kingston ; London ; Chicago : McGill-Queen's University Press, 2023 0228019001 9780228019008 (OCoLC)1373337995 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=3666022 Volltext |
| spellingShingle | Kaposy, Chris The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / Progress -- Life Decisions -- Making Predictions -- Don't Talk about Eugenics -- Philosophers -- Hidden versus Normal -- Down -- Bourgeois -- Portraits -- Baby Doe -- Deployments -- Lineage. Down syndrome. http://id.loc.gov/authorities/subjects/sh85039232 Parent and child. http://id.loc.gov/authorities/subjects/sh85097980 Parents of children with disabilities. http://id.loc.gov/authorities/subjects/sh85098023 Bioethics. http://id.loc.gov/authorities/subjects/sh85014136 Down Syndrome https://id.nlm.nih.gov/mesh/D004314 Parent-Child Relations https://id.nlm.nih.gov/mesh/D010287 Syndrome de Down. Parents et enfants. Parents d'enfants handicapés. FAMILY & RELATIONSHIPS / Children with Special Needs. bisacsh Bioethics fast Down syndrome fast Parent and child fast Parents of children with disabilities fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85039232 http://id.loc.gov/authorities/subjects/sh85097980 http://id.loc.gov/authorities/subjects/sh85098023 http://id.loc.gov/authorities/subjects/sh85014136 https://id.nlm.nih.gov/mesh/D004314 https://id.nlm.nih.gov/mesh/D010287 |
| title | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / |
| title_alt | Down syndrome in myth, memoir, and bioethics |
| title_auth | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / |
| title_exact_search | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / |
| title_full | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / Chris Kaposy. |
| title_fullStr | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / Chris Kaposy. |
| title_full_unstemmed | The beautiful unwanted : Down syndrome in myth, memoir, and bioethics / Chris Kaposy. |
| title_short | The beautiful unwanted : |
| title_sort | beautiful unwanted down syndrome in myth memoir and bioethics |
| title_sub | Down syndrome in myth, memoir, and bioethics / |
| topic | Down syndrome. http://id.loc.gov/authorities/subjects/sh85039232 Parent and child. http://id.loc.gov/authorities/subjects/sh85097980 Parents of children with disabilities. http://id.loc.gov/authorities/subjects/sh85098023 Bioethics. http://id.loc.gov/authorities/subjects/sh85014136 Down Syndrome https://id.nlm.nih.gov/mesh/D004314 Parent-Child Relations https://id.nlm.nih.gov/mesh/D010287 Syndrome de Down. Parents et enfants. Parents d'enfants handicapés. FAMILY & RELATIONSHIPS / Children with Special Needs. bisacsh Bioethics fast Down syndrome fast Parent and child fast Parents of children with disabilities fast |
| topic_facet | Down syndrome. Parent and child. Parents of children with disabilities. Bioethics. Down Syndrome Parent-Child Relations Syndrome de Down. Parents et enfants. Parents d'enfants handicapés. FAMILY & RELATIONSHIPS / Children with Special Needs. Bioethics Down syndrome Parent and child Parents of children with disabilities |
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