The decision trap :: genetic education and its social consequences /
The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes cli...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Weitere Verfasser: | , |
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Exeter, England :
Imprint Academic,
2015.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the ""gene"" as it is commonly understood ... |
| Beschreibung: | 1 online resource (191 pages) : illustrations, tables |
| Bibliographie: | Includes bibliographical references. |
| ISBN: | 9781845408312 1845408314 9781845408305 1845408306 |
Internformat
MARC
| LEADER | 00000cam a2200000 i 4500 | ||
|---|---|---|---|
| 001 | ZDB-4-EBA-ocn961625183 | ||
| 003 | OCoLC | ||
| 005 | 20241004212047.0 | ||
| 006 | m o d | ||
| 007 | cr cn||||||||| | ||
| 008 | 160815t20152015enka ob 000 0 eng d | ||
| 040 | |a AZK |b eng |e rda |e pn |c AZK |d OCLCO |d YDXCP |d EBLCP |d IDEBK |d DHA |d N$T |d OCLCF |d D6H |d OCLCQ |d K6U |d AGLDB |d UAB |d ICA |d OCLCQ |d CCO |d PIFFA |d FVL |d OCLCQ |d MERUC |d OCLCQ |d ZCU |d OCL |d U3W |d COCUF |d STF |d OCLCQ |d VTS |d ICG |d OCLCQ |d G3B |d TKN |d DKC |d AU@ |d OCLCQ |d M8D |d OCLCQ |d AJS |d TUHNV |d OCLCO |d OCLCA |d OCLCO |d OCL |d INARC |d OCLCQ |d QGK |d OCLCO |d OCLCL |d TMA |d OCLCQ |d UEJ |d OCLCQ | ||
| 019 | |a 915154308 |a 915311688 |a 921279484 |a 962625939 |a 1259115234 | ||
| 020 | |a 9781845408312 |q (e-book) | ||
| 020 | |a 1845408314 | ||
| 020 | |a 9781845408305 | ||
| 020 | |a 1845408306 | ||
| 020 | |z 9781845407766 | ||
| 020 | |z 1845407768 | ||
| 035 | |a (OCoLC)961625183 |z (OCoLC)915154308 |z (OCoLC)915311688 |z (OCoLC)921279484 |z (OCoLC)962625939 |z (OCoLC)1259115234 | ||
| 050 | 4 | |a RB155.7 | |
| 060 | 4 | |a QZ 50 |b S264 2015eb | |
| 072 | 7 | |a HEA |x 039000 |2 bisacsh | |
| 072 | 7 | |a MED |x 014000 |2 bisacsh | |
| 072 | 7 | |a MED |x 022000 |2 bisacsh | |
| 072 | 7 | |a MED |x 112000 |2 bisacsh | |
| 072 | 7 | |a MED |x 045000 |2 bisacsh | |
| 082 | 7 | |a 616.123689 | |
| 049 | |a MAIN | ||
| 100 | 1 | |a Samerski, Silja, |e author. | |
| 245 | 1 | 4 | |a The decision trap : |b genetic education and its social consequences / |c Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce. |
| 264 | 1 | |a Exeter, England : |b Imprint Academic, |c 2015. | |
| 264 | 2 | |a La Vergne, Tennessee : |b Ingram Book Company, |c [date of distribution not identified] | |
| 264 | 4 | |c ©2015 | |
| 300 | |a 1 online resource (191 pages) : |b illustrations, tables | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a computer |b c |2 rdamedia | ||
| 338 | |a online resource |b cr |2 rdacarrier | ||
| 504 | |a Includes bibliographical references. | ||
| 588 | 0 | |a Online resource; title from PDF title page (ebrary, viewed August 8, 2015). | |
| 505 | 0 | |a Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics. | |
| 505 | 8 | |a 2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information. | |
| 505 | 8 | |a 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management. | |
| 505 | 8 | |a 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available. | |
| 520 | |a The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the ""gene"" as it is commonly understood ... | ||
| 546 | |a English. | ||
| 650 | 0 | |a Genetic counseling |x Decision making. | |
| 650 | 0 | |a Decision making. |0 http://id.loc.gov/authorities/subjects/sh85036199 | |
| 650 | 1 | 2 | |a Genetic Counseling |x psychology |
| 650 | 2 | 2 | |a Decision Making |
| 650 | 2 | 2 | |a Personal Autonomy |0 https://id.nlm.nih.gov/mesh/D026684 |
| 650 | 2 | 2 | |a Social Control, Informal |0 https://id.nlm.nih.gov/mesh/D012927 |
| 650 | 6 | |a Conseil génétique |x Prise de décision. | |
| 650 | 6 | |a Prise de décision. | |
| 650 | 7 | |a decision making. |2 aat | |
| 650 | 7 | |a HEALTH & FITNESS |x Diseases |x General. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x Clinical Medicine. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x Diseases. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x Evidence-Based Medicine. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x Internal Medicine. |2 bisacsh | |
| 650 | 7 | |a Decision making |2 fast | |
| 650 | 7 | |a Genetic counseling |x Decision making |2 fast | |
| 700 | 1 | |a Rothman, Barbara Katz, |e author of introduction, etc. | |
| 700 | 1 | |a Joyce, Nancy, |e translator. | |
| 758 | |i has work: |a The decision trap (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGryQGJypVWtXwpwhrhHyd |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |t Decision trap : genetic education and its social consequences. |d Exeter, England : Imprint Academic, ©2015 |h approximately 191 pages |z 9781845407766 |
| 856 | 4 | 0 | |l FWS01 |p ZDB-4-EBA |q FWS_PDA_EBA |u https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1044480 |3 Volltext |
| 936 | |a BATCHLOAD | ||
| 938 | |a ProQuest Ebook Central |b EBLB |n EBL2110941 | ||
| 938 | |a EBSCOhost |b EBSC |n 1044480 | ||
| 938 | |a ProQuest MyiLibrary Digital eBook Collection |b IDEB |n cis32249305 | ||
| 938 | |a Internet Archive |b INAR |n decisiontrapgene0000same | ||
| 938 | |a YBP Library Services |b YANK |n 12545127 | ||
| 938 | |a YBP Library Services |b YANK |n 12548587 | ||
| 994 | |a 92 |b GEBAY | ||
| 912 | |a ZDB-4-EBA | ||
| 049 | |a DE-863 | ||
Datensatz im Suchindex
| DE-BY-FWS_katkey | ZDB-4-EBA-ocn961625183 |
|---|---|
| _version_ | 1816882367490424832 |
| adam_text | |
| any_adam_object | |
| author | Samerski, Silja |
| author2 | Rothman, Barbara Katz Joyce, Nancy |
| author2_role | aui trl |
| author2_variant | b k r bk bkr n j nj |
| author_facet | Samerski, Silja Rothman, Barbara Katz Joyce, Nancy |
| author_role | aut |
| author_sort | Samerski, Silja |
| author_variant | s s ss |
| building | Verbundindex |
| bvnumber | localFWS |
| callnumber-first | R - Medicine |
| callnumber-label | RB155 |
| callnumber-raw | RB155.7 |
| callnumber-search | RB155.7 |
| callnumber-sort | RB 3155.7 |
| callnumber-subject | RB - Pathology |
| collection | ZDB-4-EBA |
| contents | Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics. 2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information. 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management. 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available. |
| ctrlnum | (OCoLC)961625183 |
| dewey-full | 616.123689 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 616 - Diseases |
| dewey-raw | 616.123689 |
| dewey-search | 616.123689 |
| dewey-sort | 3616.123689 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| format | Electronic eBook |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>06552cam a2200865 i 4500</leader><controlfield tag="001">ZDB-4-EBA-ocn961625183</controlfield><controlfield tag="003">OCoLC</controlfield><controlfield tag="005">20241004212047.0</controlfield><controlfield tag="006">m o d </controlfield><controlfield tag="007">cr cn|||||||||</controlfield><controlfield tag="008">160815t20152015enka ob 000 0 eng d</controlfield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">AZK</subfield><subfield code="b">eng</subfield><subfield code="e">rda</subfield><subfield code="e">pn</subfield><subfield code="c">AZK</subfield><subfield code="d">OCLCO</subfield><subfield code="d">YDXCP</subfield><subfield code="d">EBLCP</subfield><subfield code="d">IDEBK</subfield><subfield code="d">DHA</subfield><subfield code="d">N$T</subfield><subfield code="d">OCLCF</subfield><subfield code="d">D6H</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">K6U</subfield><subfield code="d">AGLDB</subfield><subfield code="d">UAB</subfield><subfield code="d">ICA</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">CCO</subfield><subfield code="d">PIFFA</subfield><subfield code="d">FVL</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">MERUC</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">ZCU</subfield><subfield code="d">OCL</subfield><subfield code="d">U3W</subfield><subfield code="d">COCUF</subfield><subfield code="d">STF</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">VTS</subfield><subfield code="d">ICG</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">G3B</subfield><subfield code="d">TKN</subfield><subfield code="d">DKC</subfield><subfield code="d">AU@</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">M8D</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">AJS</subfield><subfield code="d">TUHNV</subfield><subfield code="d">OCLCO</subfield><subfield code="d">OCLCA</subfield><subfield code="d">OCLCO</subfield><subfield code="d">OCL</subfield><subfield code="d">INARC</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">QGK</subfield><subfield code="d">OCLCO</subfield><subfield code="d">OCLCL</subfield><subfield code="d">TMA</subfield><subfield code="d">OCLCQ</subfield><subfield code="d">UEJ</subfield><subfield code="d">OCLCQ</subfield></datafield><datafield tag="019" ind1=" " ind2=" "><subfield code="a">915154308</subfield><subfield code="a">915311688</subfield><subfield code="a">921279484</subfield><subfield code="a">962625939</subfield><subfield code="a">1259115234</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9781845408312</subfield><subfield code="q">(e-book)</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">1845408314</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9781845408305</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">1845408306</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="z">9781845407766</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="z">1845407768</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)961625183</subfield><subfield code="z">(OCoLC)915154308</subfield><subfield code="z">(OCoLC)915311688</subfield><subfield code="z">(OCoLC)921279484</subfield><subfield code="z">(OCoLC)962625939</subfield><subfield code="z">(OCoLC)1259115234</subfield></datafield><datafield tag="050" ind1=" " ind2="4"><subfield code="a">RB155.7</subfield></datafield><datafield tag="060" ind1=" " ind2="4"><subfield code="a">QZ 50</subfield><subfield code="b">S264 2015eb</subfield></datafield><datafield tag="072" ind1=" " ind2="7"><subfield code="a">HEA</subfield><subfield code="x">039000</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="072" ind1=" " ind2="7"><subfield code="a">MED</subfield><subfield code="x">014000</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="072" ind1=" " ind2="7"><subfield code="a">MED</subfield><subfield code="x">022000</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="072" ind1=" " ind2="7"><subfield code="a">MED</subfield><subfield code="x">112000</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="072" ind1=" " ind2="7"><subfield code="a">MED</subfield><subfield code="x">045000</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="082" ind1="7" ind2=" "><subfield code="a">616.123689</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">MAIN</subfield></datafield><datafield tag="100" ind1="1" ind2=" "><subfield code="a">Samerski, Silja,</subfield><subfield code="e">author.</subfield></datafield><datafield tag="245" ind1="1" ind2="4"><subfield code="a">The decision trap :</subfield><subfield code="b">genetic education and its social consequences /</subfield><subfield code="c">Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce.</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Exeter, England :</subfield><subfield code="b">Imprint Academic,</subfield><subfield code="c">2015.</subfield></datafield><datafield tag="264" ind1=" " ind2="2"><subfield code="a">La Vergne, Tennessee :</subfield><subfield code="b">Ingram Book Company,</subfield><subfield code="c">[date of distribution not identified]</subfield></datafield><datafield tag="264" ind1=" " ind2="4"><subfield code="c">©2015</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 online resource (191 pages) :</subfield><subfield code="b">illustrations, tables</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="a">text</subfield><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="a">computer</subfield><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="a">online resource</subfield><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="504" ind1=" " ind2=" "><subfield code="a">Includes bibliographical references.</subfield></datafield><datafield tag="588" ind1="0" ind2=" "><subfield code="a">Online resource; title from PDF title page (ebrary, viewed August 8, 2015).</subfield></datafield><datafield tag="505" ind1="0" ind2=" "><subfield code="a">Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics.</subfield></datafield><datafield tag="505" ind1="8" ind2=" "><subfield code="a">2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information.</subfield></datafield><datafield tag="505" ind1="8" ind2=" "><subfield code="a">3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management.</subfield></datafield><datafield tag="505" ind1="8" ind2=" "><subfield code="a">3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available.</subfield></datafield><datafield tag="520" ind1=" " ind2=" "><subfield code="a">The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the ""gene"" as it is commonly understood ...</subfield></datafield><datafield tag="546" ind1=" " ind2=" "><subfield code="a">English.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Genetic counseling</subfield><subfield code="x">Decision making.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Decision making.</subfield><subfield code="0">http://id.loc.gov/authorities/subjects/sh85036199</subfield></datafield><datafield tag="650" ind1="1" ind2="2"><subfield code="a">Genetic Counseling</subfield><subfield code="x">psychology</subfield></datafield><datafield tag="650" ind1="2" ind2="2"><subfield code="a">Decision Making</subfield></datafield><datafield tag="650" ind1="2" ind2="2"><subfield code="a">Personal Autonomy</subfield><subfield code="0">https://id.nlm.nih.gov/mesh/D026684</subfield></datafield><datafield tag="650" ind1="2" ind2="2"><subfield code="a">Social Control, Informal</subfield><subfield code="0">https://id.nlm.nih.gov/mesh/D012927</subfield></datafield><datafield tag="650" ind1=" " ind2="6"><subfield code="a">Conseil génétique</subfield><subfield code="x">Prise de décision.</subfield></datafield><datafield tag="650" ind1=" " ind2="6"><subfield code="a">Prise de décision.</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">decision making.</subfield><subfield code="2">aat</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">HEALTH & FITNESS</subfield><subfield code="x">Diseases</subfield><subfield code="x">General.</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">MEDICAL</subfield><subfield code="x">Clinical Medicine.</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">MEDICAL</subfield><subfield code="x">Diseases.</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">MEDICAL</subfield><subfield code="x">Evidence-Based Medicine.</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">MEDICAL</subfield><subfield code="x">Internal Medicine.</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">Decision making</subfield><subfield code="2">fast</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">Genetic counseling</subfield><subfield code="x">Decision making</subfield><subfield code="2">fast</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Rothman, Barbara Katz,</subfield><subfield code="e">author of introduction, etc.</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Joyce, Nancy,</subfield><subfield code="e">translator.</subfield></datafield><datafield tag="758" ind1=" " ind2=" "><subfield code="i">has work:</subfield><subfield code="a">The decision trap (Text)</subfield><subfield code="1">https://id.oclc.org/worldcat/entity/E39PCGryQGJypVWtXwpwhrhHyd</subfield><subfield code="4">https://id.oclc.org/worldcat/ontology/hasWork</subfield></datafield><datafield tag="776" ind1="0" ind2="8"><subfield code="i">Print version:</subfield><subfield code="t">Decision trap : genetic education and its social consequences.</subfield><subfield code="d">Exeter, England : Imprint Academic, ©2015</subfield><subfield code="h">approximately 191 pages</subfield><subfield code="z">9781845407766</subfield></datafield><datafield tag="856" ind1="4" ind2="0"><subfield code="l">FWS01</subfield><subfield code="p">ZDB-4-EBA</subfield><subfield code="q">FWS_PDA_EBA</subfield><subfield code="u">https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1044480</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="936" ind1=" " ind2=" "><subfield code="a">BATCHLOAD</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">ProQuest Ebook Central</subfield><subfield code="b">EBLB</subfield><subfield code="n">EBL2110941</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">EBSCOhost</subfield><subfield code="b">EBSC</subfield><subfield code="n">1044480</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">ProQuest MyiLibrary Digital eBook Collection</subfield><subfield code="b">IDEB</subfield><subfield code="n">cis32249305</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">Internet Archive</subfield><subfield code="b">INAR</subfield><subfield code="n">decisiontrapgene0000same</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">YBP Library Services</subfield><subfield code="b">YANK</subfield><subfield code="n">12545127</subfield></datafield><datafield tag="938" ind1=" " ind2=" "><subfield code="a">YBP Library Services</subfield><subfield code="b">YANK</subfield><subfield code="n">12548587</subfield></datafield><datafield tag="994" ind1=" " ind2=" "><subfield code="a">92</subfield><subfield code="b">GEBAY</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ZDB-4-EBA</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-863</subfield></datafield></record></collection> |
| id | ZDB-4-EBA-ocn961625183 |
| illustrated | Illustrated |
| indexdate | 2024-11-27T13:27:29Z |
| institution | BVB |
| isbn | 9781845408312 1845408314 9781845408305 1845408306 |
| language | English |
| oclc_num | 961625183 |
| open_access_boolean | |
| owner | MAIN DE-863 DE-BY-FWS |
| owner_facet | MAIN DE-863 DE-BY-FWS |
| physical | 1 online resource (191 pages) : illustrations, tables |
| psigel | ZDB-4-EBA |
| publishDate | 2015 |
| publishDateSearch | 2015 |
| publishDateSort | 2015 |
| publisher | Imprint Academic, |
| record_format | marc |
| spelling | Samerski, Silja, author. The decision trap : genetic education and its social consequences / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce. Exeter, England : Imprint Academic, 2015. La Vergne, Tennessee : Ingram Book Company, [date of distribution not identified] ©2015 1 online resource (191 pages) : illustrations, tables text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references. Online resource; title from PDF title page (ebrary, viewed August 8, 2015). Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics. 2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information. 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management. 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available. The Decision Trap questions a dogma of our time: the assumption that genetic education empowers citizens and increases their autonomy. It argues that professional instructions about genes, genetic risks, and genetic test options convey a genetic worldview which destroys self-confidence and makes clients dependent on genetic experts and technologies. Part one of the book introduces the reader to the idea of genetic education. It clarifies the notion of the ""gene"" as it is commonly understood ... English. Genetic counseling Decision making. Decision making. http://id.loc.gov/authorities/subjects/sh85036199 Genetic Counseling psychology Decision Making Personal Autonomy https://id.nlm.nih.gov/mesh/D026684 Social Control, Informal https://id.nlm.nih.gov/mesh/D012927 Conseil génétique Prise de décision. Prise de décision. decision making. aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Decision making fast Genetic counseling Decision making fast Rothman, Barbara Katz, author of introduction, etc. Joyce, Nancy, translator. has work: The decision trap (Text) https://id.oclc.org/worldcat/entity/E39PCGryQGJypVWtXwpwhrhHyd https://id.oclc.org/worldcat/ontology/hasWork Print version: Decision trap : genetic education and its social consequences. Exeter, England : Imprint Academic, ©2015 approximately 191 pages 9781845407766 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1044480 Volltext |
| spellingShingle | Samerski, Silja The decision trap : genetic education and its social consequences / Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics. 2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information. 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management. 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available. Genetic counseling Decision making. Decision making. http://id.loc.gov/authorities/subjects/sh85036199 Genetic Counseling psychology Decision Making Personal Autonomy https://id.nlm.nih.gov/mesh/D026684 Social Control, Informal https://id.nlm.nih.gov/mesh/D012927 Conseil génétique Prise de décision. Prise de décision. decision making. aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Decision making fast Genetic counseling Decision making fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85036199 https://id.nlm.nih.gov/mesh/D026684 https://id.nlm.nih.gov/mesh/D012927 |
| title | The decision trap : genetic education and its social consequences / |
| title_auth | The decision trap : genetic education and its social consequences / |
| title_exact_search | The decision trap : genetic education and its social consequences / |
| title_full | The decision trap : genetic education and its social consequences / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce. |
| title_fullStr | The decision trap : genetic education and its social consequences / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce. |
| title_full_unstemmed | The decision trap : genetic education and its social consequences / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce. |
| title_short | The decision trap : |
| title_sort | decision trap genetic education and its social consequences |
| title_sub | genetic education and its social consequences / |
| topic | Genetic counseling Decision making. Decision making. http://id.loc.gov/authorities/subjects/sh85036199 Genetic Counseling psychology Decision Making Personal Autonomy https://id.nlm.nih.gov/mesh/D026684 Social Control, Informal https://id.nlm.nih.gov/mesh/D012927 Conseil génétique Prise de décision. Prise de décision. decision making. aat HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Decision making fast Genetic counseling Decision making fast |
| topic_facet | Genetic counseling Decision making. Decision making. Genetic Counseling psychology Decision Making Personal Autonomy Social Control, Informal Conseil génétique Prise de décision. Prise de décision. decision making. HEALTH & FITNESS Diseases General. MEDICAL Clinical Medicine. MEDICAL Diseases. MEDICAL Evidence-Based Medicine. MEDICAL Internal Medicine. Decision making Genetic counseling Decision making |
| url | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1044480 |
| work_keys_str_mv | AT samerskisilja thedecisiontrapgeneticeducationanditssocialconsequences AT rothmanbarbarakatz thedecisiontrapgeneticeducationanditssocialconsequences AT joycenancy thedecisiontrapgeneticeducationanditssocialconsequences AT samerskisilja decisiontrapgeneticeducationanditssocialconsequences AT rothmanbarbarakatz decisiontrapgeneticeducationanditssocialconsequences AT joycenancy decisiontrapgeneticeducationanditssocialconsequences |