Living with Alzheimer's :: managing memory loss, identity, and illness /
News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't s...
Gespeichert in:
| 1. Verfasser: | |
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| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
New York :
New York University Press,
[2016]
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| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives. |
| Beschreibung: | 1 online resource |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 9781479855377 1479855375 |
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| 100 | 1 | |a Beard, Renée L., |e author. |1 https://id.oclc.org/worldcat/entity/E39PCjDxTxHrw849ckMtHmVhDy |0 http://id.loc.gov/authorities/names/n2015065690 | |
| 245 | 1 | 0 | |a Living with Alzheimer's : |b managing memory loss, identity, and illness / |c Renée L. Beard. |
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| 520 | |a News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives. | ||
| 505 | 0 | 0 | |g 1. |t The Meaning of Memory Loss: Illness, Identity, and Biography -- |g 2. |t History and Technoscience: From Senility to Alzheimer's -- |g 3. |t Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- |g 4. |t Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- |g 5. |t Hearing "the A Word": The Road to Becoming an Alzheimer's Patient -- |g 6. |t Everyday Life with Diagnosis: The New Normal -- |g 7. |t Advocating Alzheimer's: Biomedical Structures and Social Movements -- |g 8. |t Forget Me Not: The Future of Alzheimer's. |
| 650 | 0 | |a Alzheimer's disease. |0 http://id.loc.gov/authorities/subjects/sh85004080 | |
| 650 | 0 | |a Alzheimer's disease |x Patients |x Care. |0 http://id.loc.gov/authorities/subjects/sh91003917 | |
| 650 | 2 | |a Alzheimer Disease |0 https://id.nlm.nih.gov/mesh/D000544 | |
| 650 | 6 | |a Maladie d'Alzheimer. | |
| 650 | 6 | |a Maladie d'Alzheimer |x Patients |x Soins. | |
| 650 | 7 | |a HEALTH & FITNESS |x Diseases |x General. |2 bisacsh | |
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| 758 | |i has work: |a Living with Alzheimer's (Text) |1 https://id.oclc.org/worldcat/entity/E39PCGQVqHc3cgGthKP6CDV9Qm |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |a Beard, Renée L. |t Living with Alzheimer's. |d New York : New York University Press, [2016] |z 9781479800117 |w (DLC) 2015043570 |w (OCoLC)926743416 |
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Datensatz im Suchindex
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| adam_text | |
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| author | Beard, Renée L. |
| author_GND | http://id.loc.gov/authorities/names/n2015065690 |
| author_facet | Beard, Renée L. |
| author_role | aut |
| author_sort | Beard, Renée L. |
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| callnumber-search | RC523 .B396 2016eb |
| callnumber-sort | RC 3523 B396 42016EB |
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| contents | The Meaning of Memory Loss: Illness, Identity, and Biography -- History and Technoscience: From Senility to Alzheimer's -- Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- Hearing "the A Word": The Road to Becoming an Alzheimer's Patient -- Everyday Life with Diagnosis: The New Normal -- Advocating Alzheimer's: Biomedical Structures and Social Movements -- Forget Me Not: The Future of Alzheimer's. |
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| dewey-search | 616.8/31 |
| dewey-sort | 3616.8 231 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| format | Electronic eBook |
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| indexdate | 2024-11-27T13:27:06Z |
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| publisher | New York University Press, |
| record_format | marc |
| spelling | Beard, Renée L., author. https://id.oclc.org/worldcat/entity/E39PCjDxTxHrw849ckMtHmVhDy http://id.loc.gov/authorities/names/n2015065690 Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard. New York : New York University Press, [2016] ©2016 1 online resource text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references and index. Print version record. News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives. 1. The Meaning of Memory Loss: Illness, Identity, and Biography -- 2. History and Technoscience: From Senility to Alzheimer's -- 3. Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- 4. Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- 5. Hearing "the A Word": The Road to Becoming an Alzheimer's Patient -- 6. Everyday Life with Diagnosis: The New Normal -- 7. Advocating Alzheimer's: Biomedical Structures and Social Movements -- 8. Forget Me Not: The Future of Alzheimer's. Alzheimer's disease. http://id.loc.gov/authorities/subjects/sh85004080 Alzheimer's disease Patients Care. http://id.loc.gov/authorities/subjects/sh91003917 Alzheimer Disease https://id.nlm.nih.gov/mesh/D000544 Maladie d'Alzheimer. Maladie d'Alzheimer Patients Soins. HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Alzheimer's disease fast Alzheimer's disease Patients Care fast has work: Living with Alzheimer's (Text) https://id.oclc.org/worldcat/entity/E39PCGQVqHc3cgGthKP6CDV9Qm https://id.oclc.org/worldcat/ontology/hasWork Print version: Beard, Renée L. Living with Alzheimer's. New York : New York University Press, [2016] 9781479800117 (DLC) 2015043570 (OCoLC)926743416 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1084135 Volltext |
| spellingShingle | Beard, Renée L. Living with Alzheimer's : managing memory loss, identity, and illness / The Meaning of Memory Loss: Illness, Identity, and Biography -- History and Technoscience: From Senility to Alzheimer's -- Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- Hearing "the A Word": The Road to Becoming an Alzheimer's Patient -- Everyday Life with Diagnosis: The New Normal -- Advocating Alzheimer's: Biomedical Structures and Social Movements -- Forget Me Not: The Future of Alzheimer's. Alzheimer's disease. http://id.loc.gov/authorities/subjects/sh85004080 Alzheimer's disease Patients Care. http://id.loc.gov/authorities/subjects/sh91003917 Alzheimer Disease https://id.nlm.nih.gov/mesh/D000544 Maladie d'Alzheimer. Maladie d'Alzheimer Patients Soins. HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Alzheimer's disease fast Alzheimer's disease Patients Care fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85004080 http://id.loc.gov/authorities/subjects/sh91003917 https://id.nlm.nih.gov/mesh/D000544 |
| title | Living with Alzheimer's : managing memory loss, identity, and illness / |
| title_alt | The Meaning of Memory Loss: Illness, Identity, and Biography -- History and Technoscience: From Senility to Alzheimer's -- Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- Hearing "the A Word": The Road to Becoming an Alzheimer's Patient -- Everyday Life with Diagnosis: The New Normal -- Advocating Alzheimer's: Biomedical Structures and Social Movements -- Forget Me Not: The Future of Alzheimer's. |
| title_auth | Living with Alzheimer's : managing memory loss, identity, and illness / |
| title_exact_search | Living with Alzheimer's : managing memory loss, identity, and illness / |
| title_full | Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard. |
| title_fullStr | Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard. |
| title_full_unstemmed | Living with Alzheimer's : managing memory loss, identity, and illness / Renée L. Beard. |
| title_short | Living with Alzheimer's : |
| title_sort | living with alzheimer s managing memory loss identity and illness |
| title_sub | managing memory loss, identity, and illness / |
| topic | Alzheimer's disease. http://id.loc.gov/authorities/subjects/sh85004080 Alzheimer's disease Patients Care. http://id.loc.gov/authorities/subjects/sh91003917 Alzheimer Disease https://id.nlm.nih.gov/mesh/D000544 Maladie d'Alzheimer. Maladie d'Alzheimer Patients Soins. HEALTH & FITNESS Diseases General. bisacsh MEDICAL Clinical Medicine. bisacsh MEDICAL Diseases. bisacsh MEDICAL Evidence-Based Medicine. bisacsh MEDICAL Internal Medicine. bisacsh Alzheimer's disease fast Alzheimer's disease Patients Care fast |
| topic_facet | Alzheimer's disease. Alzheimer's disease Patients Care. Alzheimer Disease Maladie d'Alzheimer. Maladie d'Alzheimer Patients Soins. HEALTH & FITNESS Diseases General. MEDICAL Clinical Medicine. MEDICAL Diseases. MEDICAL Evidence-Based Medicine. MEDICAL Internal Medicine. Alzheimer's disease Alzheimer's disease Patients Care |
| url | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1084135 |
| work_keys_str_mv | AT beardreneel livingwithalzheimersmanagingmemorylossidentityandillness |