Achieving justice in genomic translation :: re-thinking the pathway to benefit /
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce.
Gespeichert in:
| Weitere Verfasser: | , , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Oxford :
Oxford University Press, USA,
2011.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce. |
| Beschreibung: | 1 online resource (223 pages) |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 9780199909742 0199909741 1283427931 9781283427937 9786613427939 6613427934 |
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| 245 | 0 | 0 | |a Achieving justice in genomic translation : |b re-thinking the pathway to benefit / |c edited by Wylie Burke [and others]. |
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| 520 | |a This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce. | ||
| 505 | 0 | |a Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing. | |
| 504 | |a Includes bibliographical references and index. | ||
| 546 | |a English. | ||
| 650 | 0 | |a Human genetics |x Research |x Moral and ethical aspects. | |
| 650 | 0 | |a Genomics |x Research |x Moral and ethical aspects. | |
| 650 | 0 | |a Genetic screening |x Moral and ethical aspects. | |
| 650 | 6 | |a Génétique humaine |x Recherche |x Aspect moral. | |
| 650 | 6 | |a Génomique |x Recherche |x Aspect moral. | |
| 650 | 6 | |a Dépistage génétique |x Aspect moral. | |
| 650 | 7 | |a MEDICAL |x Ethics. |2 bisacsh | |
| 650 | 7 | |a Genetic screening |x Moral and ethical aspects |2 fast | |
| 650 | 7 | |a Human genetics |x Research |x Moral and ethical aspects |2 fast | |
| 700 | 1 | |a Burke, Wylie. |1 https://id.oclc.org/worldcat/entity/E39PCjyTFgTc8bB4w6TFwHBPpP |0 http://id.loc.gov/authorities/names/n99803164 | |
| 700 | 1 | |a Edwards, Kelly A. | |
| 700 | 1 | |a Goering, Sara. | |
| 758 | |i has work: |a Achieving justice in genomic translation (Text) |1 https://id.oclc.org/worldcat/entity/E39PCH67wjxP3MYkx3WwM7JRXb |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
| 776 | 0 | 8 | |i Print version: |a Burke, Wylie. |t Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit. |d Oxford : Oxford University Press, USA, ©2011 |z 9780195390384 |
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| contents | Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing. |
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| discipline | Philosophie |
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| indexdate | 2024-11-27T13:18:10Z |
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| isbn | 9780199909742 0199909741 1283427931 9781283427937 9786613427939 6613427934 |
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| spelling | Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke [and others]. Oxford : Oxford University Press, USA, 2011. 1 online resource (223 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier Print version record. This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce. Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing. Includes bibliographical references and index. English. Human genetics Research Moral and ethical aspects. Genomics Research Moral and ethical aspects. Genetic screening Moral and ethical aspects. Génétique humaine Recherche Aspect moral. Génomique Recherche Aspect moral. Dépistage génétique Aspect moral. MEDICAL Ethics. bisacsh Genetic screening Moral and ethical aspects fast Human genetics Research Moral and ethical aspects fast Burke, Wylie. https://id.oclc.org/worldcat/entity/E39PCjyTFgTc8bB4w6TFwHBPpP http://id.loc.gov/authorities/names/n99803164 Edwards, Kelly A. Goering, Sara. has work: Achieving justice in genomic translation (Text) https://id.oclc.org/worldcat/entity/E39PCH67wjxP3MYkx3WwM7JRXb https://id.oclc.org/worldcat/ontology/hasWork Print version: Burke, Wylie. Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit. Oxford : Oxford University Press, USA, ©2011 9780195390384 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=414050 Volltext |
| spellingShingle | Achieving justice in genomic translation : re-thinking the pathway to benefit / Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing. Human genetics Research Moral and ethical aspects. Genomics Research Moral and ethical aspects. Genetic screening Moral and ethical aspects. Génétique humaine Recherche Aspect moral. Génomique Recherche Aspect moral. Dépistage génétique Aspect moral. MEDICAL Ethics. bisacsh Genetic screening Moral and ethical aspects fast Human genetics Research Moral and ethical aspects fast |
| title | Achieving justice in genomic translation : re-thinking the pathway to benefit / |
| title_auth | Achieving justice in genomic translation : re-thinking the pathway to benefit / |
| title_exact_search | Achieving justice in genomic translation : re-thinking the pathway to benefit / |
| title_full | Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke [and others]. |
| title_fullStr | Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke [and others]. |
| title_full_unstemmed | Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke [and others]. |
| title_short | Achieving justice in genomic translation : |
| title_sort | achieving justice in genomic translation re thinking the pathway to benefit |
| title_sub | re-thinking the pathway to benefit / |
| topic | Human genetics Research Moral and ethical aspects. Genomics Research Moral and ethical aspects. Genetic screening Moral and ethical aspects. Génétique humaine Recherche Aspect moral. Génomique Recherche Aspect moral. Dépistage génétique Aspect moral. MEDICAL Ethics. bisacsh Genetic screening Moral and ethical aspects fast Human genetics Research Moral and ethical aspects fast |
| topic_facet | Human genetics Research Moral and ethical aspects. Genomics Research Moral and ethical aspects. Genetic screening Moral and ethical aspects. Génétique humaine Recherche Aspect moral. Génomique Recherche Aspect moral. Dépistage génétique Aspect moral. MEDICAL Ethics. Genetic screening Moral and ethical aspects Human genetics Research Moral and ethical aspects |
| url | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=414050 |
| work_keys_str_mv | AT burkewylie achievingjusticeingenomictranslationrethinkingthepathwaytobenefit AT edwardskellya achievingjusticeingenomictranslationrethinkingthepathwaytobenefit AT goeringsara achievingjusticeingenomictranslationrethinkingthepathwaytobenefit |