Cancer on the margins :: method and meaning in participatory research /
Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with brea...
Gespeichert in:
| Weitere Verfasser: | , , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Toronto [Ont.] :
University of Toronto Press,
[2009]
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public. |
| Beschreibung: | 1 online resource (xii, 291 pages) |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 9781442687516 1442687517 |
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| 245 | 0 | 0 | |a Cancer on the margins : |b method and meaning in participatory research / |c edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. |
| 264 | 1 | |a Toronto [Ont.] : |b University of Toronto Press, |c [2009] | |
| 264 | 4 | |c ©2009 | |
| 300 | |a 1 online resource (xii, 291 pages) | ||
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| 504 | |a Includes bibliographical references and index. | ||
| 588 | 0 | |a Online resource; title from PDF title page (JSTOR, viewed December 10, 2018). | |
| 505 | 0 | |a Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch. | |
| 546 | |a English. | ||
| 520 | |a Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public. | ||
| 650 | 0 | |a Breast |x Cancer |x Patients |x Social conditions |x Research |z Ontario. | |
| 650 | 0 | |a Cancer in women |x Social aspects |x Research |z Ontario. | |
| 650 | 0 | |a Marginality, Social. |0 http://id.loc.gov/authorities/subjects/sh85081057 | |
| 650 | 0 | |a Participant observation. |0 http://id.loc.gov/authorities/subjects/sh85098354 | |
| 650 | 0 | |a Women |x Health and hygiene |x Research |z Ontario. | |
| 650 | 0 | |a Women's health services |x Research |z Ontario. | |
| 650 | 0 | |a Social history. |0 http://id.loc.gov/authorities/subjects/sh85123948 | |
| 650 | 0 | |a Women. |0 http://id.loc.gov/authorities/subjects/sh85147274 | |
| 650 | 1 | 2 | |a Breast Neoplasms |
| 650 | 2 | 2 | |a Empirical Research |
| 650 | 2 | 2 | |a Social Conditions |
| 650 | 2 | 2 | |a Women |
| 651 | 2 | |a Ontario | |
| 650 | 6 | |a Sein |x Cancer |x Patientes |x Conditions sociales |x Recherche |z Ontario. | |
| 650 | 6 | |a Cancer chez la femme |x Aspect social |x Recherche |z Ontario. | |
| 650 | 6 | |a Femmes |x Santé et hygiène |x Recherche |z Ontario. | |
| 650 | 6 | |a Femmes |x Soins médicaux |x Recherche |z Ontario. | |
| 650 | 6 | |a Observation participante. | |
| 650 | 6 | |a Marginaux. | |
| 650 | 6 | |a Sein |x Cancer |x Patients |x Conditions sociales |x Recherche |z Ontario. | |
| 650 | 6 | |a Histoire sociale. | |
| 650 | 6 | |a Femmes. | |
| 650 | 7 | |a social history. |2 aat | |
| 650 | 7 | |a women (female humans) |2 aat | |
| 650 | 7 | |a HEALTH & FITNESS |x Diseases |x Cancer. |2 bisacsh | |
| 650 | 7 | |a MEDICAL |x General. |2 bisacsh | |
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| 650 | 7 | |a Social history |2 fast | |
| 650 | 7 | |a Marginality, Social |2 fast | |
| 650 | 7 | |a Participant observation |2 fast | |
| 650 | 7 | |a Women |x Health and hygiene |x Research |2 fast | |
| 650 | 7 | |a Women's health services |x Research |2 fast | |
| 651 | 7 | |a Ontario |2 fast |1 https://id.oclc.org/worldcat/entity/E39QbtfRpxgHMDVfYpYYqvRBmM | |
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| 700 | 1 | |a Keller-Olaman, Sue, |e editor. | |
| 700 | 1 | |a Nelson, Jennifer J. |q (Jennifer Jill), |d 1972- |e editor. |0 http://id.loc.gov/authorities/names/no2008046650 | |
| 776 | 0 | 8 | |i Print version: |t Cancer on the margins. |d Toronto ; Buffalo : University of Toronto Press, 2009 |z 9780802091697 |w (DLC) 2009288116 |w (OCoLC)298135425 |
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| adam_text | |
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| author2 | Gould, Judy, 1966- Keller-Olaman, Sue Nelson, Jennifer J. (Jennifer Jill), 1972- |
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| author_facet | Gould, Judy, 1966- Keller-Olaman, Sue Nelson, Jennifer J. (Jennifer Jill), 1972- |
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| contents | Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch. |
| ctrlnum | (OCoLC)632170540 |
| dewey-full | 362.196/9944900720713 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
| dewey-raw | 362.196/9944900720713 |
| dewey-search | 362.196/9944900720713 |
| dewey-sort | 3362.196 139944900720713 |
| dewey-tens | 360 - Social problems and services; associations |
| discipline | Soziologie |
| format | Electronic eBook |
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Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. 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| illustrated | Not Illustrated |
| indexdate | 2024-11-27T13:17:13Z |
| institution | BVB |
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| spelling | Cancer on the margins : method and meaning in participatory research / edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. Toronto [Ont.] : University of Toronto Press, [2009] ©2009 1 online resource (xii, 291 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references and index. Online resource; title from PDF title page (JSTOR, viewed December 10, 2018). Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch. English. Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public. Breast Cancer Patients Social conditions Research Ontario. Cancer in women Social aspects Research Ontario. Marginality, Social. http://id.loc.gov/authorities/subjects/sh85081057 Participant observation. http://id.loc.gov/authorities/subjects/sh85098354 Women Health and hygiene Research Ontario. Women's health services Research Ontario. Social history. http://id.loc.gov/authorities/subjects/sh85123948 Women. http://id.loc.gov/authorities/subjects/sh85147274 Breast Neoplasms Empirical Research Social Conditions Women Ontario Sein Cancer Patientes Conditions sociales Recherche Ontario. Cancer chez la femme Aspect social Recherche Ontario. Femmes Santé et hygiène Recherche Ontario. Femmes Soins médicaux Recherche Ontario. Observation participante. Marginaux. Sein Cancer Patients Conditions sociales Recherche Ontario. Histoire sociale. Femmes. social history. aat women (female humans) aat HEALTH & FITNESS Diseases Cancer. bisacsh MEDICAL General. bisacsh Women fast Social history fast Marginality, Social fast Participant observation fast Women Health and hygiene Research fast Women's health services Research fast Ontario fast https://id.oclc.org/worldcat/entity/E39QbtfRpxgHMDVfYpYYqvRBmM Gould, Judy, 1966- editor. http://id.loc.gov/authorities/names/n2009183262 Keller-Olaman, Sue, editor. Nelson, Jennifer J. (Jennifer Jill), 1972- editor. http://id.loc.gov/authorities/names/no2008046650 Print version: Cancer on the margins. Toronto ; Buffalo : University of Toronto Press, 2009 9780802091697 (DLC) 2009288116 (OCoLC)298135425 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=468786 Volltext |
| spellingShingle | Cancer on the margins : method and meaning in participatory research / Foreword / Heather Maclean -- Introduction / Jennifer J. Nelson, Judy Gould and Sue Keller-Olaman -- pt. 1. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations / Sue Keller-Olaman and Stephanie Austin -- 2. Ethical Considerations in Participatory Breast Cancer Research / Stephanie Austin -- 3. Community-Building versus Career-Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities / Terry Mitchell and Emerance Baker -- pt. 2. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care / Judy Gould, Chris Sinding, Terry Mitchell and Margaret I. Fitch -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers / Chris Sinding -- pt. 3. Politics of Representation -- 6. Stories We Tell: Processes and Politics of Representation / Chris Sinding, Lisa Barnoff, Pamela Grassau, Fran Odette and Patti McGillicuddy -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority / Jennifer J. Nelson -- pt. 4. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change / Jennifer J. Nelson and Judy Gould -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways / Pamela Grassau and Kara Griffin -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles / Patti McGillicuddy, Falia Damianakis, Ann Wray Hampson and Judy Gould -- pt. 5. Implications and Impacts of Knowledge -- 11. Making a Difference with Research / Chris Sinding, Judy Gould and Ross Gray -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research / Margaret I. Fitch. Breast Cancer Patients Social conditions Research Ontario. Cancer in women Social aspects Research Ontario. Marginality, Social. http://id.loc.gov/authorities/subjects/sh85081057 Participant observation. http://id.loc.gov/authorities/subjects/sh85098354 Women Health and hygiene Research Ontario. Women's health services Research Ontario. Social history. http://id.loc.gov/authorities/subjects/sh85123948 Women. http://id.loc.gov/authorities/subjects/sh85147274 Breast Neoplasms Empirical Research Social Conditions Women Sein Cancer Patientes Conditions sociales Recherche Ontario. Cancer chez la femme Aspect social Recherche Ontario. Femmes Santé et hygiène Recherche Ontario. Femmes Soins médicaux Recherche Ontario. Observation participante. Marginaux. Sein Cancer Patients Conditions sociales Recherche Ontario. Histoire sociale. Femmes. social history. aat women (female humans) aat HEALTH & FITNESS Diseases Cancer. bisacsh MEDICAL General. bisacsh Women fast Social history fast Marginality, Social fast Participant observation fast Women Health and hygiene Research fast Women's health services Research fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh85081057 http://id.loc.gov/authorities/subjects/sh85098354 http://id.loc.gov/authorities/subjects/sh85123948 http://id.loc.gov/authorities/subjects/sh85147274 |
| title | Cancer on the margins : method and meaning in participatory research / |
| title_auth | Cancer on the margins : method and meaning in participatory research / |
| title_exact_search | Cancer on the margins : method and meaning in participatory research / |
| title_full | Cancer on the margins : method and meaning in participatory research / edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. |
| title_fullStr | Cancer on the margins : method and meaning in participatory research / edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. |
| title_full_unstemmed | Cancer on the margins : method and meaning in participatory research / edited by Jennifer J. Nelson, Judy Gould, and Sue Keller-Olaman. |
| title_short | Cancer on the margins : |
| title_sort | cancer on the margins method and meaning in participatory research |
| title_sub | method and meaning in participatory research / |
| topic | Breast Cancer Patients Social conditions Research Ontario. Cancer in women Social aspects Research Ontario. Marginality, Social. http://id.loc.gov/authorities/subjects/sh85081057 Participant observation. http://id.loc.gov/authorities/subjects/sh85098354 Women Health and hygiene Research Ontario. Women's health services Research Ontario. Social history. http://id.loc.gov/authorities/subjects/sh85123948 Women. http://id.loc.gov/authorities/subjects/sh85147274 Breast Neoplasms Empirical Research Social Conditions Women Sein Cancer Patientes Conditions sociales Recherche Ontario. Cancer chez la femme Aspect social Recherche Ontario. Femmes Santé et hygiène Recherche Ontario. Femmes Soins médicaux Recherche Ontario. Observation participante. Marginaux. Sein Cancer Patients Conditions sociales Recherche Ontario. Histoire sociale. Femmes. social history. aat women (female humans) aat HEALTH & FITNESS Diseases Cancer. bisacsh MEDICAL General. bisacsh Women fast Social history fast Marginality, Social fast Participant observation fast Women Health and hygiene Research fast Women's health services Research fast |
| topic_facet | Breast Cancer Patients Social conditions Research Ontario. Cancer in women Social aspects Research Ontario. Marginality, Social. Participant observation. Women Health and hygiene Research Ontario. Women's health services Research Ontario. Social history. Women. Breast Neoplasms Empirical Research Social Conditions Women Ontario Sein Cancer Patientes Conditions sociales Recherche Ontario. Cancer chez la femme Aspect social Recherche Ontario. Femmes Santé et hygiène Recherche Ontario. Femmes Soins médicaux Recherche Ontario. Observation participante. Marginaux. Sein Cancer Patients Conditions sociales Recherche Ontario. Histoire sociale. Femmes. social history. women (female humans) HEALTH & FITNESS Diseases Cancer. MEDICAL General. Social history Marginality, Social Participant observation Women Health and hygiene Research Women's health services Research |
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