The woman who walked into the sea :: Huntington's and the making of a genetic disease /
When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St. Vitus's dance. Doctors later spoke of Huntington's chorea, and tod...
Gespeichert in:
| 1. Verfasser: | |
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| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
New Haven :
Yale University Press,
©2008.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St. Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. |
| Beschreibung: | 1 online resource (xxiv, 253 pages) : illustrations, map, portraits |
| Bibliographie: | Includes bibliographical references (pages 189-241) and index. |
| ISBN: | 9780300151770 0300151772 9780300158618 0300158610 9786612351778 6612351772 |
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| 245 | 1 | 4 | |a The woman who walked into the sea : |b Huntington's and the making of a genetic disease / |c Alice Wexler. |
| 260 | |a New Haven : |b Yale University Press, |c ©2008. | ||
| 300 | |a 1 online resource (xxiv, 253 pages) : |b illustrations, map, portraits | ||
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| 504 | |a Includes bibliographical references (pages 189-241) and index. | ||
| 505 | 0 | |a The death of Phebe Hedges -- The social course of St. Vitus's dance -- Inventing hereditary chorea -- Chorea and the clinical gaze -- The eyes of Elizabeth B. Muncey, M.D. -- Myths of origins and endings. | |
| 588 | 0 | |a Print version record. | |
| 520 | |a When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St. Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. | ||
| 546 | |a English. | ||
| 600 | 1 | 0 | |a Hedges, Phebe, |d 1764-1806. |0 http://id.loc.gov/authorities/names/n2008180670 |
| 600 | 1 | 0 | |a Huntington, George, |d 1850-1916. |0 http://id.loc.gov/authorities/names/n2008180669 |
| 600 | 1 | 0 | |a Muncey, E. B. |
| 600 | 1 | 2 | |a Hedges, Phebe, |d 1764-1806 |
| 600 | 1 | 2 | |a Huntington, George, |d 1850-1916 |
| 600 | 1 | 2 | |a Muncey, E. B |
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| 650 | 0 | |a Huntington's disease |z New York (State) |x History |y 20th century. | |
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| 650 | 2 | 2 | |a History, 20th Century |
| 651 | 2 | |a New York | |
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| 650 | 6 | |a Chorée de Huntington |z New York (État) |x Histoire |y 20e siècle. | |
| 650 | 6 | |a Médecine |x Histoire |y 19e siècle. | |
| 650 | 6 | |a Médecine |x Histoire |y 20e siècle. | |
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| 650 | 7 | |a HISTORY |x Social History. |2 bisacsh | |
| 650 | 7 | |a Huntington's disease |2 fast | |
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Datensatz im Suchindex
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| contents | The death of Phebe Hedges -- The social course of St. Vitus's dance -- Inventing hereditary chorea -- Chorea and the clinical gaze -- The eyes of Elizabeth B. Muncey, M.D. -- Myths of origins and endings. |
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| genre | History fast |
| genre_facet | History |
| geographic | New York New York (State) fast https://id.oclc.org/worldcat/entity/E39QbtfRjXPrf4BDHgVmQ8kx9c |
| geographic_facet | New York New York (State) |
| id | ZDB-4-EBA-ocn593242110 |
| illustrated | Illustrated |
| indexdate | 2024-11-27T13:17:04Z |
| institution | BVB |
| isbn | 9780300151770 0300151772 9780300158618 0300158610 9786612351778 6612351772 |
| language | English |
| lccn | 2008006389 |
| oclc_num | 593242110 |
| open_access_boolean | |
| owner | MAIN DE-863 DE-BY-FWS |
| owner_facet | MAIN DE-863 DE-BY-FWS |
| physical | 1 online resource (xxiv, 253 pages) : illustrations, map, portraits |
| psigel | ZDB-4-EBA |
| publishDate | 2008 |
| publishDateSearch | 2008 |
| publishDateSort | 2008 |
| publisher | Yale University Press, |
| record_format | marc |
| spelling | Wexler, Alice, 1942- https://id.oclc.org/worldcat/entity/E39PBJhhwxxMCq7mt7br8F9dQq http://id.loc.gov/authorities/names/n83173733 The woman who walked into the sea : Huntington's and the making of a genetic disease / Alice Wexler. New Haven : Yale University Press, ©2008. 1 online resource (xxiv, 253 pages) : illustrations, map, portraits text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references (pages 189-241) and index. The death of Phebe Hedges -- The social course of St. Vitus's dance -- Inventing hereditary chorea -- Chorea and the clinical gaze -- The eyes of Elizabeth B. Muncey, M.D. -- Myths of origins and endings. Print version record. When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St. Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. English. Hedges, Phebe, 1764-1806. http://id.loc.gov/authorities/names/n2008180670 Huntington, George, 1850-1916. http://id.loc.gov/authorities/names/n2008180669 Muncey, E. B. Hedges, Phebe, 1764-1806 Huntington, George, 1850-1916 Muncey, E. B Hedges, Phebe, 1764-1806 fast Huntington, George, 1850-1916 fast https://id.oclc.org/worldcat/entity/E39PBJw8TC3JtrtrP4Pq6FKPQq Muncey, E. B. fast https://id.oclc.org/worldcat/entity/E39PBJvcYKCpX3P7WrCBff3G73 Huntington's disease New York (State) History 19th century. Huntington's disease New York (State) History 20th century. Eugenics history Huntington Disease history History, 19th Century History, 20th Century New York Chorée de Huntington New York (État) Histoire 19e siècle. Chorée de Huntington New York (État) Histoire 20e siècle. Médecine Histoire 19e siècle. Médecine Histoire 20e siècle. PSYCHOLOGY Neuropsychology. bisacsh HISTORY Social History. bisacsh Huntington's disease fast New York (State) fast https://id.oclc.org/worldcat/entity/E39QbtfRjXPrf4BDHgVmQ8kx9c 1800-1999 fast History fast has work: The woman who walked into the sea (Text) https://id.oclc.org/worldcat/entity/E39PCG4HfWGF9QyDTQ9FygT6jy https://id.oclc.org/worldcat/ontology/hasWork Print version: Wexler, Alice, 1942- Woman who walked into the sea. New Haven : Yale University Press, ©2008 9780300105025 (DLC) 2008006389 (OCoLC)192042294 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=302163 Volltext |
| spellingShingle | Wexler, Alice, 1942- The woman who walked into the sea : Huntington's and the making of a genetic disease / The death of Phebe Hedges -- The social course of St. Vitus's dance -- Inventing hereditary chorea -- Chorea and the clinical gaze -- The eyes of Elizabeth B. Muncey, M.D. -- Myths of origins and endings. Hedges, Phebe, 1764-1806. http://id.loc.gov/authorities/names/n2008180670 Huntington, George, 1850-1916. http://id.loc.gov/authorities/names/n2008180669 Muncey, E. B. Hedges, Phebe, 1764-1806 Huntington, George, 1850-1916 Muncey, E. B Hedges, Phebe, 1764-1806 fast Huntington, George, 1850-1916 fast https://id.oclc.org/worldcat/entity/E39PBJw8TC3JtrtrP4Pq6FKPQq Muncey, E. B. fast https://id.oclc.org/worldcat/entity/E39PBJvcYKCpX3P7WrCBff3G73 Huntington's disease New York (State) History 19th century. Huntington's disease New York (State) History 20th century. Eugenics history Huntington Disease history History, 19th Century History, 20th Century Chorée de Huntington New York (État) Histoire 19e siècle. Chorée de Huntington New York (État) Histoire 20e siècle. Médecine Histoire 19e siècle. Médecine Histoire 20e siècle. PSYCHOLOGY Neuropsychology. bisacsh HISTORY Social History. bisacsh Huntington's disease fast |
| subject_GND | http://id.loc.gov/authorities/names/n2008180670 http://id.loc.gov/authorities/names/n2008180669 |
| title | The woman who walked into the sea : Huntington's and the making of a genetic disease / |
| title_auth | The woman who walked into the sea : Huntington's and the making of a genetic disease / |
| title_exact_search | The woman who walked into the sea : Huntington's and the making of a genetic disease / |
| title_full | The woman who walked into the sea : Huntington's and the making of a genetic disease / Alice Wexler. |
| title_fullStr | The woman who walked into the sea : Huntington's and the making of a genetic disease / Alice Wexler. |
| title_full_unstemmed | The woman who walked into the sea : Huntington's and the making of a genetic disease / Alice Wexler. |
| title_short | The woman who walked into the sea : |
| title_sort | woman who walked into the sea huntington s and the making of a genetic disease |
| title_sub | Huntington's and the making of a genetic disease / |
| topic | Hedges, Phebe, 1764-1806. http://id.loc.gov/authorities/names/n2008180670 Huntington, George, 1850-1916. http://id.loc.gov/authorities/names/n2008180669 Muncey, E. B. Hedges, Phebe, 1764-1806 Huntington, George, 1850-1916 Muncey, E. B Hedges, Phebe, 1764-1806 fast Huntington, George, 1850-1916 fast https://id.oclc.org/worldcat/entity/E39PBJw8TC3JtrtrP4Pq6FKPQq Muncey, E. B. fast https://id.oclc.org/worldcat/entity/E39PBJvcYKCpX3P7WrCBff3G73 Huntington's disease New York (State) History 19th century. Huntington's disease New York (State) History 20th century. Eugenics history Huntington Disease history History, 19th Century History, 20th Century Chorée de Huntington New York (État) Histoire 19e siècle. Chorée de Huntington New York (État) Histoire 20e siècle. Médecine Histoire 19e siècle. Médecine Histoire 20e siècle. PSYCHOLOGY Neuropsychology. bisacsh HISTORY Social History. bisacsh Huntington's disease fast |
| topic_facet | Hedges, Phebe, 1764-1806. Huntington, George, 1850-1916. Muncey, E. B. Hedges, Phebe, 1764-1806 Huntington, George, 1850-1916 Muncey, E. B Huntington's disease New York (State) History 19th century. Huntington's disease New York (State) History 20th century. Eugenics history Huntington Disease history History, 19th Century History, 20th Century New York Chorée de Huntington New York (État) Histoire 19e siècle. Chorée de Huntington New York (État) Histoire 20e siècle. Médecine Histoire 19e siècle. Médecine Histoire 20e siècle. PSYCHOLOGY Neuropsychology. HISTORY Social History. Huntington's disease New York (State) History |
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