Ethical Issues in Governing Biobanks :: Global Perspectives.
Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empir...
Gespeichert in:
| 1. Verfasser: | |
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| Weitere Verfasser: | , |
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Farnham :
Ashgate Pub.,
2008.
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| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. |
| Beschreibung: | 1 online resource (268 pages) |
| Bibliographie: | Includes bibliographical references and index. |
| ISBN: | 9780754689287 075468928X 1281834106 9781281834102 |
Internformat
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| 245 | 1 | 0 | |a Ethical Issues in Governing Biobanks : |b Global Perspectives. |
| 260 | |a Farnham : |b Ashgate Pub., |c 2008. | ||
| 300 | |a 1 online resource (268 pages) | ||
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| 505 | 0 | |a Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index. | |
| 520 | |a Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. | ||
| 588 | 0 | |a Print version record. | |
| 504 | |a Includes bibliographical references and index. | ||
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| 650 | 0 | |a Human genetics |x Databases |x Moral and ethical aspects. | |
| 650 | 0 | |a Human genome. |0 http://id.loc.gov/authorities/subjects/sh94002900 | |
| 650 | 0 | |a Confidential communications. |0 http://id.loc.gov/authorities/subjects/sh85030929 | |
| 650 | 1 | 2 | |a Genome, Human |
| 650 | 2 | 2 | |a Confidentiality |
| 650 | 2 | 2 | |a Databases, Genetic |x ethics |
| 650 | 2 | 2 | |a Databases, Genetic |x legislation & jurisprudence |
| 650 | 2 | 2 | |a Genetic Research |x ethics |
| 650 | 2 | 2 | |a Genetics, Population |x ethics |
| 650 | 6 | |a Génétique humaine |x Bases de données |x Aspect moral. | |
| 650 | 6 | |a Génome humain. | |
| 650 | 6 | |a Secret professionnel. | |
| 650 | 7 | |a BUSINESS & ECONOMICS |x Business Ethics. |2 bisacsh | |
| 650 | 7 | |a Confidential communications |2 fast | |
| 650 | 7 | |a Human genome |2 fast | |
| 700 | 1 | |a Biller-Andorno, Nikola. |0 http://id.loc.gov/authorities/names/nr2005025826 | |
| 700 | 1 | |a Capron, Alexander M. | |
| 758 | |i has work: |a Ethical issues in governing biobanks (Text) |1 https://id.oclc.org/worldcat/entity/E39PCFRxgCHMymy9g7MmrVMRjy |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
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| adam_text | |
| any_adam_object | |
| author | Elger, Bernice S., 1964- |
| author2 | Biller-Andorno, Nikola Capron, Alexander M. |
| author2_role | |
| author2_variant | n b a nba a m c am amc |
| author_GND | http://id.loc.gov/authorities/names/no98126054 http://id.loc.gov/authorities/names/nr2005025826 |
| author_facet | Elger, Bernice S., 1964- Biller-Andorno, Nikola Capron, Alexander M. |
| author_role | |
| author_sort | Elger, Bernice S., 1964- |
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| contents | Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index. |
| ctrlnum | (OCoLC)437133546 |
| dewey-full | 174.2 174.2'8 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 174 - Occupational ethics |
| dewey-raw | 174.2 174.2'8 |
| dewey-search | 174.2 174.2'8 |
| dewey-sort | 3174.2 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie |
| format | Electronic eBook |
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| indexdate | 2024-10-25T16:17:12Z |
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| publisher | Ashgate Pub., |
| record_format | marc |
| spelling | Elger, Bernice S., 1964- https://id.oclc.org/worldcat/entity/E39PBJfrGkYqwfqMfJmbKDckjC http://id.loc.gov/authorities/names/no98126054 Ethical Issues in Governing Biobanks : Global Perspectives. Farnham : Ashgate Pub., 2008. 1 online resource (268 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index. Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Print version record. Includes bibliographical references and index. Human genetics Databases Law and legislation. Human genetics Databases Moral and ethical aspects. Human genome. http://id.loc.gov/authorities/subjects/sh94002900 Confidential communications. http://id.loc.gov/authorities/subjects/sh85030929 Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Génétique humaine Bases de données Aspect moral. Génome humain. Secret professionnel. BUSINESS & ECONOMICS Business Ethics. bisacsh Confidential communications fast Human genome fast Biller-Andorno, Nikola. http://id.loc.gov/authorities/names/nr2005025826 Capron, Alexander M. has work: Ethical issues in governing biobanks (Text) https://id.oclc.org/worldcat/entity/E39PCFRxgCHMymy9g7MmrVMRjy https://id.oclc.org/worldcat/ontology/hasWork 9780754672555 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=270889 Volltext CBO01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=270889 Volltext |
| spellingShingle | Elger, Bernice S., 1964- Ethical Issues in Governing Biobanks : Global Perspectives. Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research--A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; Index. Human genetics Databases Law and legislation. Human genetics Databases Moral and ethical aspects. Human genome. http://id.loc.gov/authorities/subjects/sh94002900 Confidential communications. http://id.loc.gov/authorities/subjects/sh85030929 Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Génétique humaine Bases de données Aspect moral. Génome humain. Secret professionnel. BUSINESS & ECONOMICS Business Ethics. bisacsh Confidential communications fast Human genome fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh94002900 http://id.loc.gov/authorities/subjects/sh85030929 |
| title | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_auth | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_exact_search | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_full | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_fullStr | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_full_unstemmed | Ethical Issues in Governing Biobanks : Global Perspectives. |
| title_short | Ethical Issues in Governing Biobanks : |
| title_sort | ethical issues in governing biobanks global perspectives |
| title_sub | Global Perspectives. |
| topic | Human genetics Databases Law and legislation. Human genetics Databases Moral and ethical aspects. Human genome. http://id.loc.gov/authorities/subjects/sh94002900 Confidential communications. http://id.loc.gov/authorities/subjects/sh85030929 Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Génétique humaine Bases de données Aspect moral. Génome humain. Secret professionnel. BUSINESS & ECONOMICS Business Ethics. bisacsh Confidential communications fast Human genome fast |
| topic_facet | Human genetics Databases Law and legislation. Human genetics Databases Moral and ethical aspects. Human genome. Confidential communications. Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Génétique humaine Bases de données Aspect moral. Génome humain. Secret professionnel. BUSINESS & ECONOMICS Business Ethics. Confidential communications Human genome |
| url | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=270889 |
| work_keys_str_mv | AT elgerbernices ethicalissuesingoverningbiobanksglobalperspectives AT billerandornonikola ethicalissuesingoverningbiobanksglobalperspectives AT capronalexanderm ethicalissuesingoverningbiobanksglobalperspectives |