Genomics and public health :: legal and socio-ethical perspectives /
Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both re...
Gespeichert in:
| Weitere Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Leiden ; Boston :
Martinus Nijhoff,
©2007.
|
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state. |
| Beschreibung: | 1 online resource (xi, 329 pages :) |
| Bibliographie: | Includes bibliographical references. |
| ISBN: | 9789047411710 9047411714 |
Internformat
MARC
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| 245 | 0 | 0 | |a Genomics and public health : |b legal and socio-ethical perspectives / |c edited by Bartha Maria Knoppers. |
| 260 | |a Leiden ; |a Boston : |b Martinus Nijhoff, |c ©2007. | ||
| 300 | |a 1 online resource (xi, 329 pages :) | ||
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| 504 | |a Includes bibliographical references. | ||
| 505 | 0 | |a pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. | |
| 588 | 0 | |a Print version record. | |
| 520 | |a Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state. | ||
| 650 | 0 | |a Genetic screening |x Law and legislation. |0 http://id.loc.gov/authorities/subjects/sh2003010545 | |
| 650 | 0 | |a Genomics. |0 http://id.loc.gov/authorities/subjects/sh2002000809 | |
| 650 | 0 | |a Genomics |x Moral and ethical aspects. | |
| 650 | 0 | |a Public health. |0 http://id.loc.gov/authorities/subjects/sh85108638 | |
| 650 | 0 | |a Human rights. |0 http://id.loc.gov/authorities/subjects/sh85026379 | |
| 650 | 1 | 2 | |a Genomics |x ethics |
| 650 | 2 | |a Genomics |0 https://id.nlm.nih.gov/mesh/D023281 | |
| 650 | 2 | |a Public Health |0 https://id.nlm.nih.gov/mesh/D011634 | |
| 650 | 2 | 2 | |a Human Rights |
| 650 | 2 | 2 | |a Mass Screening |
| 650 | 2 | 2 | |a Public Health |x ethics |
| 650 | 6 | |a Dépistage génétique |x Droit. | |
| 650 | 6 | |a Génomique. | |
| 650 | 6 | |a Génomique |x Aspect moral. | |
| 650 | 6 | |a Santé publique. | |
| 650 | 6 | |a Droits de l'homme (Droit international) | |
| 650 | 7 | |a public health. |2 aat | |
| 650 | 7 | |a LAW |x Medical Law & Legislation. |2 bisacsh | |
| 650 | 7 | |a Human rights |2 fast | |
| 650 | 7 | |a Genomics |x Moral and ethical aspects |2 fast | |
| 650 | 7 | |a Genetic screening |x Law and legislation |2 fast | |
| 650 | 7 | |a Genomics |2 fast | |
| 650 | 7 | |a Public health |2 fast | |
| 700 | 1 | |a Knoppers, Bartha Maria. |0 http://id.loc.gov/authorities/names/n84081135 | |
| 758 | |i has work: |a Genomics and public health (Text) |1 https://id.oclc.org/worldcat/entity/E39PCH4rBHpgQ7MVDdJmDhFWKq |4 https://id.oclc.org/worldcat/ontology/hasWork | ||
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| contents | pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. |
| ctrlnum | (OCoLC)238518855 |
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| dewey-ones | 344 - Labor, social, education & cultural law |
| dewey-raw | 344.04/196 |
| dewey-search | 344.04/196 |
| dewey-sort | 3344.04 3196 |
| dewey-tens | 340 - Law |
| discipline | Rechtswissenschaft |
| format | Electronic eBook |
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| id | ZDB-4-EBA-ocn238518855 |
| illustrated | Illustrated |
| indexdate | 2024-10-25T16:16:48Z |
| institution | BVB |
| isbn | 9789047411710 9047411714 |
| language | English |
| oclc_num | 238518855 |
| open_access_boolean | |
| owner | MAIN |
| owner_facet | MAIN |
| physical | 1 online resource (xi, 329 pages :) |
| psigel | ZDB-4-EBA |
| publishDate | 2007 |
| publishDateSearch | 2006 |
| publishDateSort | 2006 |
| publisher | Martinus Nijhoff, |
| record_format | marc |
| spelling | Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. Leiden ; Boston : Martinus Nijhoff, ©2007. 1 online resource (xi, 329 pages :) text txt rdacontent computer c rdamedia online resource cr rdacarrier Includes bibliographical references. pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. Print version record. Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state. Genetic screening Law and legislation. http://id.loc.gov/authorities/subjects/sh2003010545 Genomics. http://id.loc.gov/authorities/subjects/sh2002000809 Genomics Moral and ethical aspects. Public health. http://id.loc.gov/authorities/subjects/sh85108638 Human rights. http://id.loc.gov/authorities/subjects/sh85026379 Genomics ethics Genomics https://id.nlm.nih.gov/mesh/D023281 Public Health https://id.nlm.nih.gov/mesh/D011634 Human Rights Mass Screening Public Health ethics Dépistage génétique Droit. Génomique. Génomique Aspect moral. Santé publique. Droits de l'homme (Droit international) public health. aat LAW Medical Law & Legislation. bisacsh Human rights fast Genomics Moral and ethical aspects fast Genetic screening Law and legislation fast Genomics fast Public health fast Knoppers, Bartha Maria. http://id.loc.gov/authorities/names/n84081135 has work: Genomics and public health (Text) https://id.oclc.org/worldcat/entity/E39PCH4rBHpgQ7MVDdJmDhFWKq https://id.oclc.org/worldcat/ontology/hasWork Print version: Genomics and public health. Leiden ; Boston : Martinus Nijhoff, ©2007 9789004155596 9004155597 (DLC) 2007271360 (OCoLC)82673721 FWS01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=232358 Volltext CBO01 ZDB-4-EBA FWS_PDA_EBA https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=232358 Volltext |
| spellingShingle | Genomics and public health : legal and socio-ethical perspectives / pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. Genetic screening Law and legislation. http://id.loc.gov/authorities/subjects/sh2003010545 Genomics. http://id.loc.gov/authorities/subjects/sh2002000809 Genomics Moral and ethical aspects. Public health. http://id.loc.gov/authorities/subjects/sh85108638 Human rights. http://id.loc.gov/authorities/subjects/sh85026379 Genomics ethics Genomics https://id.nlm.nih.gov/mesh/D023281 Public Health https://id.nlm.nih.gov/mesh/D011634 Human Rights Mass Screening Public Health ethics Dépistage génétique Droit. Génomique. Génomique Aspect moral. Santé publique. Droits de l'homme (Droit international) public health. aat LAW Medical Law & Legislation. bisacsh Human rights fast Genomics Moral and ethical aspects fast Genetic screening Law and legislation fast Genomics fast Public health fast |
| subject_GND | http://id.loc.gov/authorities/subjects/sh2003010545 http://id.loc.gov/authorities/subjects/sh2002000809 http://id.loc.gov/authorities/subjects/sh85108638 http://id.loc.gov/authorities/subjects/sh85026379 https://id.nlm.nih.gov/mesh/D023281 https://id.nlm.nih.gov/mesh/D011634 |
| title | Genomics and public health : legal and socio-ethical perspectives / |
| title_auth | Genomics and public health : legal and socio-ethical perspectives / |
| title_exact_search | Genomics and public health : legal and socio-ethical perspectives / |
| title_full | Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
| title_fullStr | Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
| title_full_unstemmed | Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
| title_short | Genomics and public health : |
| title_sort | genomics and public health legal and socio ethical perspectives |
| title_sub | legal and socio-ethical perspectives / |
| topic | Genetic screening Law and legislation. http://id.loc.gov/authorities/subjects/sh2003010545 Genomics. http://id.loc.gov/authorities/subjects/sh2002000809 Genomics Moral and ethical aspects. Public health. http://id.loc.gov/authorities/subjects/sh85108638 Human rights. http://id.loc.gov/authorities/subjects/sh85026379 Genomics ethics Genomics https://id.nlm.nih.gov/mesh/D023281 Public Health https://id.nlm.nih.gov/mesh/D011634 Human Rights Mass Screening Public Health ethics Dépistage génétique Droit. Génomique. Génomique Aspect moral. Santé publique. Droits de l'homme (Droit international) public health. aat LAW Medical Law & Legislation. bisacsh Human rights fast Genomics Moral and ethical aspects fast Genetic screening Law and legislation fast Genomics fast Public health fast |
| topic_facet | Genetic screening Law and legislation. Genomics. Genomics Moral and ethical aspects. Public health. Human rights. Genomics ethics Genomics Public Health Human Rights Mass Screening Public Health ethics Dépistage génétique Droit. Génomique. Génomique Aspect moral. Santé publique. Droits de l'homme (Droit international) public health. LAW Medical Law & Legislation. Human rights Genomics Moral and ethical aspects Genetic screening Law and legislation Public health |
| url | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=232358 |
| work_keys_str_mv | AT knoppersbarthamaria genomicsandpublichealthlegalandsocioethicalperspectives |