Big Data for Advancing Dementia Research: An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases
Dementia is increasing in prevalence, and to date has no cure or treatment. One element in improving this situation is using and sharing data more widely to increase the power of research. Further, moving beyond established medical data into big data offers the potential to tap into routinely collec...
Gespeichert in:
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| Weitere Verfasser: | , |
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Paris
OECD Publishing
2015
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| Schriftenreihe: | OECD Digital Economy Papers
no.246 |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Dementia is increasing in prevalence, and to date has no cure or treatment. One element in improving this situation is using and sharing data more widely to increase the power of research. Further, moving beyond established medical data into big data offers the potential to tap into routinely collected data from both within and outside the health system. In this report, we examine four exemplar data sharing initiatives to better understand data sharing practices in dementia research and recommend the next steps required to move forward, which will require addressing structural issues including aligning incentives and mindsets toward data sharing. |
| Beschreibung: | 1 Online-Ressource (120 p.) 21 x 29.7cm. |
| DOI: | 10.1787/5js4sbddf7jk-en |
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| spelling | Deetjen, Ulrike VerfasserIn aut Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases Ulrike, Deetjen, Eric T., Meyer and Ralph, Schroeder Paris OECD Publishing 2015 1 Online-Ressource (120 p.) 21 x 29.7cm. Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier OECD Digital Economy Papers no.246 Dementia is increasing in prevalence, and to date has no cure or treatment. One element in improving this situation is using and sharing data more widely to increase the power of research. Further, moving beyond established medical data into big data offers the potential to tap into routinely collected data from both within and outside the health system. In this report, we examine four exemplar data sharing initiatives to better understand data sharing practices in dementia research and recommend the next steps required to move forward, which will require addressing structural issues including aligning incentives and mindsets toward data sharing. Social Issues/Migration/Health Science and Technology Meyer, Eric T... MitwirkendeR ctb Schroeder, Ralph MitwirkendeR ctb FWS01 ZDB-13-SOC FWS_PDA_SOC https://doi.org/10.1787/5js4sbddf7jk-en Volltext |
| spellingShingle | Deetjen, Ulrike Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases Social Issues/Migration/Health Science and Technology |
| title | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases |
| title_auth | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases |
| title_exact_search | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases |
| title_full | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases Ulrike, Deetjen, Eric T., Meyer and Ralph, Schroeder |
| title_fullStr | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases Ulrike, Deetjen, Eric T., Meyer and Ralph, Schroeder |
| title_full_unstemmed | Big Data for Advancing Dementia Research An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases Ulrike, Deetjen, Eric T., Meyer and Ralph, Schroeder |
| title_short | Big Data for Advancing Dementia Research |
| title_sort | big data for advancing dementia research an evaluation of data sharing practices in research on age related neurodegenerative diseases |
| title_sub | An Evaluation of Data Sharing Practices in Research on Age-related Neurodegenerative Diseases |
| topic | Social Issues/Migration/Health Science and Technology |
| topic_facet | Social Issues/Migration/Health Science and Technology |
| url | https://doi.org/10.1787/5js4sbddf7jk-en |
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