The disability bioethics reader:
Gespeichert in:
| Weitere Verfasser: | , |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
New York ; London
Routledge, Taylor & Francis Group
2022
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Inhaltsverzeichnis Klappentext |
| Beschreibung: | xvii, 399 Seiten |
| ISBN: | 9780367220037 9780367220020 |
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Datensatz im Suchindex
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CONTENTS List of Tables List of Figures Notes on Contributors Disability Bioethics: Introduction to The Disability Bioethics Reader Joel Michael Reynolds and Christine Wieseler ix x xi 1 PART I History, Medicine, and Disability 9 1 A Short History of Modern Medicine and Disability Michael Rembis 11 2 Eugenics, Disability, and Bioethics Robert A. Wilson 21 3 Theories of Disability Joel Michael Reynolds 30 PART II Bioethics: Past and Present 39 4 A Critical History of Bioethics John H. Evans 41 5 Methods of Bioethics Alison Reiheld 50
vi Contents 6 Disability Bioethics: From Theory to Practice Rosemarie Garland-Thomson 61 PART III Philosophy of Medicine and Phenomenology 71 7 Disability and the Definition of Health Sean Aas 73 8 The Lived Experiences of Illness and Disability Havi Carel 82 PART IV Prenatal Testing and Abortion 9 Abortion, Disability Rights, and Reproductive Justice Elizabeth Dietz 10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning Anita Silvers 11 Being Disabled and Contemplating Disabled Children Jackie Leach Scully 12 The Wrongs of‘Wrongful Birth’: Disability, Race, and Reproductive Justice Desiree Valentine 93 95 103 116 125 PARTV Disability, the Life Course, and Well-Being 135 13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics Ron Amundson 137 14 The Case of Chronic Pain Emma Sheppard 147 15 Chronic Illness, Well-Being, and Social Values Lydia Nunez Landry 156 16 Disability and Age Studies: Obstacles and Opportunities Erin Gentry Lamb 170
Contents vH PART VI Issues at the Edge and End of Life 17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 Yolonda Wilson 18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias Joseph J. Fins 181 183 191 19 Bioethical Issues in Dementia and Alzheimer’s Disease Tia Powell 203 20 Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die 212 Harold Braswell 21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidisrn in Suicide and Physician-Assisted Death Debates Alexandre Baril 221 PART VII Disability, Difference, and Health Care 233 22 Disability Bioethics and Race Andrea J. Pitts 235 23 Bioethics and the Deaf Community Teresa Blankmeyer Burke 243 24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies Anna Mollow 254 25 Trans Care within and against the Medical-Industrial Complex Hil Malatino 263 PART VIII Intellectual and Mental Disabilities 271 26 Defining Mental Illness and Psychiatric Disability Laura Guidry-Grimes 273
viii Contents 27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion Kevin Mintz and David Wasserman 282 28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework Erica Hua Fletcher 292 29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments Christine Wieseler 301 PART IX Disability Bioethics: Connections and New Directions 313 30 Feminist Theorizing and Disability Bioethics Lauren Guilmette 315 31 Disability Bioethics and Epistemic Injustice Anita Ho 324 32 Disability Studies Meets Animal Studies David Μ. Peña-Guzman 333 PARTX The Ends of Medicine: Caring, Curing, and Justice 343 33 Improving Access within the Clinic Nicole D. Agaronnik and Lisa I. lezzoni 345 34 The Goals of Biomedical Technology Joseph A. Straniando 358 35 “Why Insist on Justice, Why Not Settle for Kindness?” Kindness, Justice, and Cognitive Disability Eva Feder Kittay 36 Selections of Brilliant Imperfection Eli Clare Index 367 ΎΠ 391
The Disability Bioethics Header is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: • • • • • • • • • • state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Beader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies— scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism. |
| adam_txt |
CONTENTS List of Tables List of Figures Notes on Contributors Disability Bioethics: Introduction to The Disability Bioethics Reader Joel Michael Reynolds and Christine Wieseler ix x xi 1 PART I History, Medicine, and Disability 9 1 A Short History of Modern Medicine and Disability Michael Rembis 11 2 Eugenics, Disability, and Bioethics Robert A. Wilson 21 3 Theories of Disability Joel Michael Reynolds 30 PART II Bioethics: Past and Present 39 4 A Critical History of Bioethics John H. Evans 41 5 Methods of Bioethics Alison Reiheld 50
vi Contents 6 Disability Bioethics: From Theory to Practice Rosemarie Garland-Thomson 61 PART III Philosophy of Medicine and Phenomenology 71 7 Disability and the Definition of Health Sean Aas 73 8 The Lived Experiences of Illness and Disability Havi Carel 82 PART IV Prenatal Testing and Abortion 9 Abortion, Disability Rights, and Reproductive Justice Elizabeth Dietz 10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning Anita Silvers 11 Being Disabled and Contemplating Disabled Children Jackie Leach Scully 12 The Wrongs of‘Wrongful Birth’: Disability, Race, and Reproductive Justice Desiree Valentine 93 95 103 116 125 PARTV Disability, the Life Course, and Well-Being 135 13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics Ron Amundson 137 14 The Case of Chronic Pain Emma Sheppard 147 15 Chronic Illness, Well-Being, and Social Values Lydia Nunez Landry 156 16 Disability and Age Studies: Obstacles and Opportunities Erin Gentry Lamb 170
Contents vH PART VI Issues at the Edge and End of Life 17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 Yolonda Wilson 18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias Joseph J. Fins 181 183 191 19 Bioethical Issues in Dementia and Alzheimer’s Disease Tia Powell 203 20 Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die 212 Harold Braswell 21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidisrn in Suicide and Physician-Assisted Death Debates Alexandre Baril 221 PART VII Disability, Difference, and Health Care 233 22 Disability Bioethics and Race Andrea J. Pitts 235 23 Bioethics and the Deaf Community Teresa Blankmeyer Burke 243 24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies Anna Mollow 254 25 Trans Care within and against the Medical-Industrial Complex Hil Malatino 263 PART VIII Intellectual and Mental Disabilities 271 26 Defining Mental Illness and Psychiatric Disability Laura Guidry-Grimes 273
viii Contents 27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion Kevin Mintz and David Wasserman 282 28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework Erica Hua Fletcher 292 29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments Christine Wieseler 301 PART IX Disability Bioethics: Connections and New Directions 313 30 Feminist Theorizing and Disability Bioethics Lauren Guilmette 315 31 Disability Bioethics and Epistemic Injustice Anita Ho 324 32 Disability Studies Meets Animal Studies David Μ. Peña-Guzman 333 PARTX The Ends of Medicine: Caring, Curing, and Justice 343 33 Improving Access within the Clinic Nicole D. Agaronnik and Lisa I. lezzoni 345 34 The Goals of Biomedical Technology Joseph A. Straniando 358 35 “Why Insist on Justice, Why Not Settle for Kindness?” Kindness, Justice, and Cognitive Disability Eva Feder Kittay 36 Selections of Brilliant Imperfection Eli Clare Index 367 ΎΠ 391
The Disability Bioethics Header is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: • • • • • • • • • • state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Beader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies— scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism. |
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| title | The disability bioethics reader |
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