Spastic diplegia bilateral cerebral palsy: understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families
Gespeichert in:
| 1. Verfasser: | |
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| Weitere Verfasser: | , , , |
| Format: | Buch |
| Sprache: | English |
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St Paul, MN
Gilette Children's Healthcare Press
[2020]
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| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Klappentext |
| Beschreibung: | xxiv, 339 Seiten Illustrationen, Diagramme 24 cm x 17 cm |
| ISBN: | 9781952181009 |
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| adam_text | Contents Author and Editors............................................................................. xi Foreword by Dr. Tom F. Novacheck................................................ xiii Preface............................................................................................... xv 1 CEREBRAL PALSY (CP)................................................................. 1 1.1 1.2 1.3 1.4 1.5 1.6 Introduction............................................................................................. 2 Causes, risk factors, and prevalence...................................................... 7 Diagnosis................................................................................................ 12 The International Classification of Functioning, Disability and Health (ICF)...................................................................... 16 Motor function, gross motor milestones............................................ 22 Classification of CP............................................................................... 27 Key points Chapter 1...................................................................................... 44 2 SPASTIC DIPLEGIA—BILATERAL CP.................................... 47 2.1 2.2 2.3 Introduction...........................................................................................48 The brain injury......................................................................................53 Growth...................................................................................................56 2.4 Bones, muscles,
joints, and movements..............................................62 Normal walking..................................................................................... 69 Primary abnormalities........................................................................... 72 2.5 2.6 1J 2.8 2.9 Secondary abnormalities..................................................................... 80 Tertiary abnormalities........................................................................... 94 Walking in individuals with spastic diplegia........................................ 96 Key points Chapter 2................................................................................. 104
3 MANAGEMENT AND TREATMENT OF SPASTIC DIPLEGIA—BILATERAL CP TO AGE 20.......... 107 3.1 3.2 3.3 3.4 3.5 Introduction......................................................................................... 108 What does best practice look like?...................................................... 111 Therapies..............................................................................................123 The home program............................................................................. 144 Orthoses.............................................................................................. 158 Tone reduction.................................................................................... 166 Orthopedic surgery............................................................................. 178 The overall musculoskeletal management plan to age 20............... 193 Alternative and complementary treatments...................................... 197 What the parent can do to help the child, what the adolescent can do to help themselves...................................... 201 Key points Chapter 3................................................................................... 214 3.6 3.7 3.8 3.9 3.10 4 THE ADULT WITH SPASTIC DIPLEGIA—BILATERAL CP-2V 4.1 4.2 4.3 4.4 Key Introduction......................................................................................... 218 Aging in the typical population......................................................... 222 Aging with spastic diplegia............................................................... 228
Management and treatment of spastic diplegia in adulthood....... 240 points Chapter 4................................................................................ 253 5 LIVING WITH SPASTIC DIPLEGIA—BILATERAL CP....... 255 6 FURTHER READING............................................................... 269 Epilogue by Tommy Collison......................................................... 277 Acknowledgments......................................................................... 281
APPENDICES ................................................................................285 Appendix 1 Appendix 2 Appendix 3 Appendix 4 Appendix 5 Appendix 6 Appendix 7 Dealing with a diagnosis................................................... 286 Gross motor function....................................................... 290 Measurement tools........................................................... 291 Positioning........................................................................ 293 Exercise and physical activity............................................297 Rehabilitation post-selective dorsal rhizotomy (SDR)......300 Gait analysis.................................................................. online Glossary.......................................................................................... 303 References...................................................................................... 309 Index................................................................................................ 335
“I highly recommend this book to people who have CP, parents, family members, and medical professionals.” — HANK CHAMBERS, MD “This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap. ” — LORI POLISKI, PARENT “A must-read for parents of children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their particular child reaches maturity with an optimal outcome. ” — JAMES R. GAGE, MD erebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia—also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems—problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indi cates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia. C The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to
become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation—living life to its fullest. Health care profession als, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia. Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children’s Specialty Healthcare—a world-renowned center of excellence for CP treatment—this is an excellent, long-needed resource for spastic diplegia.
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| adam_txt |
Contents Author and Editors. xi Foreword by Dr. Tom F. Novacheck. xiii Preface. xv 1 CEREBRAL PALSY (CP). 1 1.1 1.2 1.3 1.4 1.5 1.6 Introduction. 2 Causes, risk factors, and prevalence. 7 Diagnosis. 12 The International Classification of Functioning, Disability and Health (ICF). 16 Motor function, gross motor milestones. 22 Classification of CP. 27 Key points Chapter 1. 44 2 SPASTIC DIPLEGIA—BILATERAL CP. 47 2.1 2.2 2.3 Introduction.48 The brain injury.53 Growth.56 2.4 Bones, muscles,
joints, and movements.62 Normal walking. 69 Primary abnormalities. 72 2.5 2.6 1J 2.8 2.9 Secondary abnormalities. 80 Tertiary abnormalities. 94 Walking in individuals with spastic diplegia. 96 Key points Chapter 2. 104
3 MANAGEMENT AND TREATMENT OF SPASTIC DIPLEGIA—BILATERAL CP TO AGE 20. 107 3.1 3.2 3.3 3.4 3.5 Introduction. 108 What does best practice look like?. 111 Therapies.123 The home program. 144 Orthoses. 158 Tone reduction. 166 Orthopedic surgery. 178 The overall musculoskeletal management plan to age 20. 193 Alternative and complementary treatments. 197 What the parent can do to help the child, what the adolescent can do to help themselves. 201 Key points Chapter 3. 214 3.6 3.7 3.8 3.9 3.10 4 THE ADULT WITH SPASTIC DIPLEGIA—BILATERAL CP-2V 4.1 4.2 4.3 4.4 Key Introduction. 218 Aging in the typical population. 222 Aging with spastic diplegia. 228
Management and treatment of spastic diplegia in adulthood. 240 points Chapter 4. 253 5 LIVING WITH SPASTIC DIPLEGIA—BILATERAL CP. 255 6 FURTHER READING. 269 Epilogue by Tommy Collison. 277 Acknowledgments. 281
APPENDICES .285 Appendix 1 Appendix 2 Appendix 3 Appendix 4 Appendix 5 Appendix 6 Appendix 7 Dealing with a diagnosis. 286 Gross motor function. 290 Measurement tools. 291 Positioning. 293 Exercise and physical activity.297 Rehabilitation post-selective dorsal rhizotomy (SDR).300 Gait analysis. online Glossary. 303 References. 309 Index. 335
“I highly recommend this book to people who have CP, parents, family members, and medical professionals.” — HANK CHAMBERS, MD “This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap. ” — LORI POLISKI, PARENT “A must-read for parents of children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their particular child reaches maturity with an optimal outcome. ” — JAMES R. GAGE, MD erebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia—also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems—problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indi cates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia. C The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to
become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation—living life to its fullest. Health care profession als, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia. Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children’s Specialty Healthcare—a world-renowned center of excellence for CP treatment—this is an excellent, long-needed resource for spastic diplegia. |
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| spelling | Collison, Lily ca. 20./21. Jh. Verfasser (DE-588)1312895098 aut Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families Lily Collison, parent ; edited by Jean Stout, Amy Schulz, Candice Johnson, Tom F. Novacheck, Gillette Children's Speciality Healthcare St Paul, MN Gilette Children's Healthcare Press [2020] 2020 xxiv, 339 Seiten Illustrationen, Diagramme 24 cm x 17 cm txt rdacontent n rdamedia nc rdacarrier Spastische Lähmung (DE-588)4508281-9 gnd rswk-swf Cerebrale Bewegungsstörung (DE-588)4147488-0 gnd rswk-swf Cerebrale Bewegungsstörung (DE-588)4147488-0 s Spastische Lähmung (DE-588)4508281-9 s DE-604 Stout, Jean edt Schulz, Amy edt Johnson, Candice edt Novacheck, Tom F. edt Erscheint auch als Online-Ausgabe 978-1-952181-01-6 Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=033289511&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=033289511&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
| spellingShingle | Collison, Lily ca. 20./21. Jh Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families Spastische Lähmung (DE-588)4508281-9 gnd Cerebrale Bewegungsstörung (DE-588)4147488-0 gnd |
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| title | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families |
| title_auth | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families |
| title_exact_search | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families |
| title_exact_search_txtP | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families |
| title_full | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families Lily Collison, parent ; edited by Jean Stout, Amy Schulz, Candice Johnson, Tom F. Novacheck, Gillette Children's Speciality Healthcare |
| title_fullStr | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families Lily Collison, parent ; edited by Jean Stout, Amy Schulz, Candice Johnson, Tom F. Novacheck, Gillette Children's Speciality Healthcare |
| title_full_unstemmed | Spastic diplegia bilateral cerebral palsy understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families Lily Collison, parent ; edited by Jean Stout, Amy Schulz, Candice Johnson, Tom F. Novacheck, Gillette Children's Speciality Healthcare |
| title_short | Spastic diplegia bilateral cerebral palsy |
| title_sort | spastic diplegia bilateral cerebral palsy understanding the motor problems their impact on walking and management throught life a pratical guide for families |
| title_sub | understanding the motor problems, their impact on walking, and management throught life: a pratical guide for families |
| topic | Spastische Lähmung (DE-588)4508281-9 gnd Cerebrale Bewegungsstörung (DE-588)4147488-0 gnd |
| topic_facet | Spastische Lähmung Cerebrale Bewegungsstörung |
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