The ethics of uncertainty: entangled ethical and epistemic risks in disorders of consciousness
"Consciousness isn't a thing you can poke a stick at. It's not a natural kind, like a bit of quartz, or quarks, or water. Like "life," which can be attributed to many entities, but is not a thing with reality apart from living entities, consciousness can be attributed to con...
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Format: | Buch |
Sprache: | English |
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New York
Oxford University Press
[2022]
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Online-Zugang: | Inhaltsverzeichnis |
Zusammenfassung: | "Consciousness isn't a thing you can poke a stick at. It's not a natural kind, like a bit of quartz, or quarks, or water. Like "life," which can be attributed to many entities, but is not a thing with reality apart from living entities, consciousness can be attributed to conscious entities without being some further thing or fact, some mysterious, mentalizing "force" that can exist without conscious entities. It is manifested in conscious states and creatures, but isn't a thing in and of itself. One of the enduring puzzles about consciousness and conscious states is how they, as apparently mental, nonphysical states, can manifest in a physical entity like a brain. We can point to a physical bit of brain, to a neuron, or a structure like the thalamus, but we can't locate the consciousness within that bit of brain or its neural cells"-- |
Beschreibung: | XVIi, 284 Seiten |
ISBN: | 9780190943646 |
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adam_text | Contents Preface xi PART I LAYING THE GROUNDWORK 1. Consciousness 1.1 Questions about Consciousness 1.2 A Side Note about Other Minds 1.3 The Lay of the Land: An Incomplete Sketch of Theories of Consciousness 1.4 Consciousness, Disordered 1.5 A Funny Thing about Conscious Creatures 2. Unconsciousness 2.1 The Disorders of Consciousness 2.1.1 Behavioral Distinctions 2.1.2 Coma 2.1.3 The Vegetative State/Unresponsive Wakefulness Syndrome 2.1.4 The Minimally Conscious State 2.1.5 Cognitive Motor Dissociation 2.1.6 Behavior Without Awareness 2.2 From Epistemic Certainty to Uncertainty 2.3 The Vegetative State: The Fateful Label 2.3.1 A Fate Worse Than Death? The Vegetative State and the Right to Die 2.4 From Ethical Certainty to Uncertainty 2.5 What’s in a Name? 2.6 By Any Other Name 2.7 “Progress is the mother of problems” 3. Uncertainty 3.1 The Problem of Progress 3 3 8 9 14 16 19 19 20 21 21 24 25 27 28 29 30 34 36 39 43 44 47
viii CONTENTS 3.2 A Neuroscientific Revolution 3.2.1 Kate Bainbridge 3.2.2 Behaving Brains 3.2.3 The Epistemic Limits of Behavioral Evidence 3.3 Subtle Distinctions: Brain Death and the VS/UWS 3.4 After the Revolution: The Persistence of Diagnostic and Prognostic Uncertainty 3.4.1 Diagnostic Uncertainty 3.4.2 Prognostic Uncertainty 3.5 Think Globally, Act Locally 49 49 53 54 59 64 64 66 67 PARTII THE ETHICS OF UNCERTAINTY 4. Inference and Inductive Risk 4.1 Inferences 4.2 Prognostic Inferences and Brain Injury 4.2.1 Acute Brain Injuries and Coma 4.2.2 Disorders of Consciousness 4.2.3 Inferences about Quality of Life 4.3 Self-fulfilling Prophecies as an Epistemic Confound 4.4 Inductive Risk ֊ 4.4.1 The First Principle of Inductive Risk 4.4.2 False Negatives and False Positives 4.4.3 The Second Principle of Inductive Risk 5. Upstream/Downstream 5.1 The Window of Opportunity 5.1.1 Slow Closure in DoCs 5.2 Withdrawal of Life-Sustaining Treatment in Neurointensive Care 5.3 Withdrawal of Life-Sustaining Treatment and Disorders of Consciousness 5.4 Risk Inversion: Downstream Risks and Upstream Risks 5.5 Futility 5.5.1 Mann Ki Lee 5.5.2 Potentially Inappropriate Interventions 5.5.3 Michael Hickson 5.6 Wicked Problems 75 75 78 78 80 82 85 86 87 89 91 93 96 97 98 99 102 103 104 105 107 110
CONTENTS 5.7 Reinverting the Risks: Choosing Between Rocks and Hard Places 6. The Ethics of Uncertainty 6.1 Ethical Load Bearing: The Weight of Inference 6.2 Universal Moral Prescriptions 6.3 Moral Prescriptions 6.3.1 Autonomy and Respect for Persons 6.3.1.1 Robert Wendland 6.3.2 Beneficence, Nonmaleficence, and Best Interests 6.3.2.1 M 6.3.2.2 Persistent Uncertainties 6.3.3 Justice 6.3.4 Epistemic Duties 6.3.4.1 Distributive Epistemic Justice 6.3.4.2 Amy Reed and the Duty to Inform 6.3.4.3 Antidotes to Injustice 6.4 The Ethics of Uncertainty 6.5 Disorders of Consciousness and All Things Considered ЇХ 114 118 121 123 125 126 128 130 134 143 144 150 153 156 162 163 166 PART III SOME APPLICATIONS 7. Moral Status and the Consciousness Criterion 7.1 The Consciousness Criterion 7.2 Metaphysical Personhood, Moral Agency, and Consciousness 7.2.1 The General Consciousness Criterion 7.2.2 The Particular Consciousness Criterion 7.3 Consciousness Criterion or Capacities Criterion? 7.4 Moral Agents and Moral Patients 7.4.1 Interests, Harms, and Rights 7.4.2 The Burdens of Moral Agents 7.5 The Epistemic Challenge 7.5.1 Reducing the Risks 7.6 Pluralism about Persons 8. Disorders of Consciousness and the Disability Critique 8.1 Impairment and Disability 171 173 176 177 180 187 193 198 202 203 205 208 214 214
X CONTENTS 8.2 Are Patients with DoCs Disabled? 8.3 Withdrawing LST and DoCs: The Disability Rights Critique 8.3.1 Denial of Treatment or Treatment Refusal? 8.3.2 Between a Rock and a Hard Place Again: Paternalism v. Paternalism 8.4 Who Has the Epistemic Authority to Speak for DoC Patients? 8.5 Upstream Ableism 8.5.1 Implicit and Explicit Bias in Decision-Making on Behalf of Brain-Injured Patients 8.5.2 Implicit Bias Among Medical Staff 8.5.3 Implicit Bias and Willful Ignorance 8.6 Withdrawal of LST as Prevention of Disability 8.6.1 All Things Considered, Again 8.7 Upstream/Downstream Revisited: Reinverting the Risks 8.8 Holding the Tension 9. Responding to Uncertainty: Beyond Disorders of Consciousness 9.1 9.2 9.3 9.4 Pain Medical Research: Vaccine Development Nonhuman Animals Untangling Bibliography Index 216 217 219 224 228 234 235 236 239 239 246 247 249 251 252 254 256 259 261 281
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Contents Preface xi PART I LAYING THE GROUNDWORK 1. Consciousness 1.1 Questions about Consciousness 1.2 A Side Note about Other Minds 1.3 The Lay of the Land: An Incomplete Sketch of Theories of Consciousness 1.4 Consciousness, Disordered 1.5 A Funny Thing about Conscious Creatures 2. Unconsciousness 2.1 The Disorders of Consciousness 2.1.1 Behavioral Distinctions 2.1.2 Coma 2.1.3 The Vegetative State/Unresponsive Wakefulness Syndrome 2.1.4 The Minimally Conscious State 2.1.5 Cognitive Motor Dissociation 2.1.6 Behavior Without Awareness 2.2 From Epistemic Certainty to Uncertainty 2.3 The Vegetative State: The Fateful Label 2.3.1 A Fate Worse Than Death? The Vegetative State and the Right to Die 2.4 From Ethical Certainty to Uncertainty 2.5 What’s in a Name? 2.6 By Any Other Name 2.7 “Progress is the mother of problems” 3. Uncertainty 3.1 The Problem of Progress 3 3 8 9 14 16 19 19 20 21 21 24 25 27 28 29 30 34 36 39 43 44 47
viii CONTENTS 3.2 A Neuroscientific Revolution 3.2.1 Kate Bainbridge 3.2.2 Behaving Brains 3.2.3 The Epistemic Limits of Behavioral Evidence 3.3 Subtle Distinctions: Brain Death and the VS/UWS 3.4 After the Revolution: The Persistence of Diagnostic and Prognostic Uncertainty 3.4.1 Diagnostic Uncertainty 3.4.2 Prognostic Uncertainty 3.5 Think Globally, Act Locally 49 49 53 54 59 64 64 66 67 PARTII THE ETHICS OF UNCERTAINTY 4. Inference and Inductive Risk 4.1 Inferences 4.2 Prognostic Inferences and Brain Injury 4.2.1 Acute Brain Injuries and Coma 4.2.2 Disorders of Consciousness 4.2.3 Inferences about Quality of Life 4.3 Self-fulfilling Prophecies as an Epistemic Confound 4.4 Inductive Risk ֊ 4.4.1 The First Principle of Inductive Risk 4.4.2 False Negatives and False Positives 4.4.3 The Second Principle of Inductive Risk 5. Upstream/Downstream 5.1 The Window of Opportunity 5.1.1 Slow Closure in DoCs 5.2 Withdrawal of Life-Sustaining Treatment in Neurointensive Care 5.3 Withdrawal of Life-Sustaining Treatment and Disorders of Consciousness 5.4 Risk Inversion: Downstream Risks and Upstream Risks 5.5 Futility 5.5.1 Mann Ki Lee 5.5.2 Potentially Inappropriate Interventions 5.5.3 Michael Hickson 5.6 Wicked Problems 75 75 78 78 80 82 85 86 87 89 91 93 96 97 98 99 102 103 104 105 107 110
CONTENTS 5.7 Reinverting the Risks: Choosing Between Rocks and Hard Places 6. The Ethics of Uncertainty 6.1 Ethical Load Bearing: The Weight of Inference 6.2 Universal Moral Prescriptions 6.3 Moral Prescriptions 6.3.1 Autonomy and Respect for Persons 6.3.1.1 Robert Wendland 6.3.2 Beneficence, Nonmaleficence, and Best Interests 6.3.2.1 M 6.3.2.2 Persistent Uncertainties 6.3.3 Justice 6.3.4 Epistemic Duties 6.3.4.1 Distributive Epistemic Justice 6.3.4.2 Amy Reed and the Duty to Inform 6.3.4.3 Antidotes to Injustice 6.4 The Ethics of Uncertainty 6.5 Disorders of Consciousness and All Things Considered ЇХ 114 118 121 123 125 126 128 130 134 143 144 150 153 156 162 163 166 PART III SOME APPLICATIONS 7. Moral Status and the Consciousness Criterion 7.1 The Consciousness Criterion 7.2 Metaphysical Personhood, Moral Agency, and Consciousness 7.2.1 The General Consciousness Criterion 7.2.2 The Particular Consciousness Criterion 7.3 Consciousness Criterion or Capacities Criterion? 7.4 Moral Agents and Moral Patients 7.4.1 Interests, Harms, and Rights 7.4.2 The Burdens of Moral Agents 7.5 The Epistemic Challenge 7.5.1 Reducing the Risks 7.6 Pluralism about Persons 8. Disorders of Consciousness and the Disability Critique 8.1 Impairment and Disability 171 173 176 177 180 187 193 198 202 203 205 208 214 214
X CONTENTS 8.2 Are Patients with DoCs Disabled? 8.3 Withdrawing LST and DoCs: The Disability Rights Critique 8.3.1 Denial of Treatment or Treatment Refusal? 8.3.2 Between a Rock and a Hard Place Again: Paternalism v. Paternalism 8.4 Who Has the Epistemic Authority to Speak for DoC Patients? 8.5 Upstream Ableism 8.5.1 Implicit and Explicit Bias in Decision-Making on Behalf of Brain-Injured Patients 8.5.2 Implicit Bias Among Medical Staff 8.5.3 Implicit Bias and Willful Ignorance 8.6 Withdrawal of LST as Prevention of Disability 8.6.1 All Things Considered, Again 8.7 Upstream/Downstream Revisited: Reinverting the Risks 8.8 Holding the Tension 9. Responding to Uncertainty: Beyond Disorders of Consciousness 9.1 9.2 9.3 9.4 Pain Medical Research: Vaccine Development Nonhuman Animals Untangling Bibliography Index 216 217 219 224 228 234 235 236 239 239 246 247 249 251 252 254 256 259 261 281 |
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spelling | Johnson, L. Syd M. Verfasser (DE-588)1219540897 aut The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness L. Syd M Johnson New York Oxford University Press [2022] © 2022 XVIi, 284 Seiten txt rdacontent n rdamedia nc rdacarrier "Consciousness isn't a thing you can poke a stick at. It's not a natural kind, like a bit of quartz, or quarks, or water. Like "life," which can be attributed to many entities, but is not a thing with reality apart from living entities, consciousness can be attributed to conscious entities without being some further thing or fact, some mysterious, mentalizing "force" that can exist without conscious entities. It is manifested in conscious states and creatures, but isn't a thing in and of itself. One of the enduring puzzles about consciousness and conscious states is how they, as apparently mental, nonphysical states, can manifest in a physical entity like a brain. We can point to a physical bit of brain, to a neuron, or a structure like the thalamus, but we can't locate the consciousness within that bit of brain or its neural cells"-- Erkenntnistheorie (DE-588)4070914-0 gnd rswk-swf Ungewissheit (DE-588)4137198-7 gnd rswk-swf Bewusstsein (DE-588)4006349-5 gnd rswk-swf Ethik (DE-588)4015602-3 gnd rswk-swf Consciousness Disorders Uncertainty Risk Management / ethics Ungewissheit (DE-588)4137198-7 s Bewusstsein (DE-588)4006349-5 s Erkenntnistheorie (DE-588)4070914-0 s Ethik (DE-588)4015602-3 s DE-604 Erscheint auch als Online-Ausgabe 978-0-19-094367-7 Digitalisierung BSB München - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=033091520&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
spellingShingle | Johnson, L. Syd M. The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness Erkenntnistheorie (DE-588)4070914-0 gnd Ungewissheit (DE-588)4137198-7 gnd Bewusstsein (DE-588)4006349-5 gnd Ethik (DE-588)4015602-3 gnd |
subject_GND | (DE-588)4070914-0 (DE-588)4137198-7 (DE-588)4006349-5 (DE-588)4015602-3 |
title | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness |
title_auth | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness |
title_exact_search | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness |
title_exact_search_txtP | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness |
title_full | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness L. Syd M Johnson |
title_fullStr | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness L. Syd M Johnson |
title_full_unstemmed | The ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness L. Syd M Johnson |
title_short | The ethics of uncertainty |
title_sort | the ethics of uncertainty entangled ethical and epistemic risks in disorders of consciousness |
title_sub | entangled ethical and epistemic risks in disorders of consciousness |
topic | Erkenntnistheorie (DE-588)4070914-0 gnd Ungewissheit (DE-588)4137198-7 gnd Bewusstsein (DE-588)4006349-5 gnd Ethik (DE-588)4015602-3 gnd |
topic_facet | Erkenntnistheorie Ungewissheit Bewusstsein Ethik |
url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=033091520&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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