Consumer genetic technologies: ethical and legal considerations
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing re...
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| Format: | Elektronisch E-Book |
| Sprache: | English |
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Cambridge
Cambridge University Press
[2021]
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| Online-Zugang: | BSB01 UBG01 UPA01 Volltext |
| Zusammenfassung: | For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation |
| Beschreibung: | 1 Online-Ressource (x, 291 Seiten) |
| ISBN: | 9781108874106 |
| DOI: | 10.1017/9781108874106 |
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| spelling | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Nita A. Farahany, Henry T. Greely, Carmel Shachar Cambridge Cambridge University Press [2021] © 2021 1 Online-Ressource (x, 291 Seiten) txt rdacontent c rdamedia cr rdacarrier For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation Human chromosome abnormalities / Diagnosis / Law and legislation Data protection / Law and legislation Privacy, Right of Medical genetics / Law and legislation Human genetics / Law and legislation Human chromosome abnormalities / Diagnosis / Moral and ethical aspects Cohen, I. Glenn 1978- (DE-588)1035815990 edt Farahany, Nita A. 1976- (DE-588)1242096698 edt Greely, Henry T. 1952- (DE-588)1176131753 edt Shachar, Carmel 1985- (DE-588)1206606169 edt Erscheint auch als Druck-Ausgabe, Hardcover 978-1-108-83661-6 Erscheint auch als Druck-Ausgabe, Paperback 978-1-108-81267-2 https://doi.org/10.1017/9781108874106 Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Consumer genetic technologies ethical and legal considerations Human chromosome abnormalities / Diagnosis / Law and legislation Data protection / Law and legislation Privacy, Right of Medical genetics / Law and legislation Human genetics / Law and legislation Human chromosome abnormalities / Diagnosis / Moral and ethical aspects |
| title | Consumer genetic technologies ethical and legal considerations |
| title_auth | Consumer genetic technologies ethical and legal considerations |
| title_exact_search | Consumer genetic technologies ethical and legal considerations |
| title_exact_search_txtP | Consumer genetic technologies ethical and legal considerations |
| title_full | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Nita A. Farahany, Henry T. Greely, Carmel Shachar |
| title_fullStr | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Nita A. Farahany, Henry T. Greely, Carmel Shachar |
| title_full_unstemmed | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Nita A. Farahany, Henry T. Greely, Carmel Shachar |
| title_short | Consumer genetic technologies |
| title_sort | consumer genetic technologies ethical and legal considerations |
| title_sub | ethical and legal considerations |
| topic | Human chromosome abnormalities / Diagnosis / Law and legislation Data protection / Law and legislation Privacy, Right of Medical genetics / Law and legislation Human genetics / Law and legislation Human chromosome abnormalities / Diagnosis / Moral and ethical aspects |
| topic_facet | Human chromosome abnormalities / Diagnosis / Law and legislation Data protection / Law and legislation Privacy, Right of Medical genetics / Law and legislation Human genetics / Law and legislation Human chromosome abnormalities / Diagnosis / Moral and ethical aspects |
| url | https://doi.org/10.1017/9781108874106 |
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