The ethics of research with children and young people: a practical handbook
A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary resear...
Gespeichert in:
1. Verfasser: | |
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Format: | Buch |
Sprache: | English |
Veröffentlicht: |
Los Angeles
SAGE
2020
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Ausgabe: | 2nd edition |
Schlagworte: | |
Online-Zugang: | Inhaltsverzeichnis |
Zusammenfassung: | A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty. Including: A showcase of the best practice on a range of topics including data protection Practical guidance for responding to recent global changes in policy and practice in ethics and law Discussion of the challenges and opportunities of digital research with children The updated second edition continues to provide an excellent resource for those exploring the old, current and new consensuses on the ethics of researching with children. Quelle: Internet. |
Beschreibung: | viii, 225 Seiten Illustrationen 25 cm |
ISBN: | 9781526477866 9781526477859 |
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520 | |a A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty. Including: A showcase of the best practice on a range of topics including data protection Practical guidance for responding to recent global changes in policy and practice in ethics and law Discussion of the challenges and opportunities of digital research with children The updated second edition continues to provide an excellent resource for those exploring the old, current and new consensuses on the ethics of researching with children. Quelle: Internet. | ||
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adam_text | Contents ix Acknowledgements About the authors x Introduction: why ethics matters Defining some terms Research ethics The purpose of this book: starting from uncertainty, and a questioning approach Researchers as insiders or outsiders The contents of this book 1 3 6 6 8 9 Part 1 The planning stages 11 1 Planning the research: purpose and methods 13 Two basic questions Questions about purpose and methods Is the research worth doing? Do theories matter? Do viewpoints matter? Do methods matter? Three phases in the growing awareness of research ethics Three ethics frameworks for assessing research Limitations and advantages of the three frameworks Can ethics standards work in every country? Uncertainty - the basis of ethical research Summary of questions 2 13 13 13 14 14 15 16 19 21 23 23 25 Assessing harms and benefits 26 Harms and risks Benefits - how can research be beneficial ? Risk, cost, harm and benefit assessments Confusion in risk-benefit assessments Risk of distress or humiliation Welfare and rights Summary of questions 26 27 31 32 33 35 36
THE ETHICS OF RESEARCH WITH CHILDREN AND YOUNG PEOPLE 3 4 5 Respect for rights: privacy and confidentiality 37 Legal rights to confidentiality Opt-in or opt-out access Practical respect Privacy rights Data protection rules and laws Children s consent in relation to personal data: processing of data Confidentiality or acknowledgement? Intimacy between strangers: one-to-one interviews Ethics, safety and privacy in digital and online research Respecting local and personal values Summary of the advantages and disadvantages of online research Does traditional ethics cover today s research relationships? Summary of questions 37 39 39 43 43 45 47 47 49 52 52 54 56 Designing research: selection and participation 57 Framing the topics and extent of the research Advantages and disadvantages of exclusion criteria: research with children last? Combining respect, inclusion and protection Does traditional ethics cover social exclusion? Images and symbols Beyond inclusion to participation: co-production with children and young people as researchers UN-related work Respecting young researchers own qualities Summary of questions 57 58 62 63 63 64 67 68 69 Money matters: contracts, funding research and paying participants Planning, budgeting and research agendas Funding sources and contracts Freedom to publish Paying children and young people as researchers and participants Payments in context Ethics, research and the climate crisis: eco ethics? Summary of questions 71 71 72 74 74 76 79 80 ------------------------------------------ -------------------------------------------------
CONTENTS 6 Reviewing aims and methods: ethics guidance and committees 81 Ethics guidelines International standards Review and revision of research aims and methods 81 83 85 Advantages of RECs/IRBs 87 88 95 97 102 Criticisms of bioethics and RECs/IRBs Alternatives to formal research ethics Social research theories Summary of questions Part 2 The data-collecting stage 103 7 Information 105 Spoken and written information Research information leaflets GDPR and information sheets Leaflet layout Conveying complex information Leaflets in other languages Beneficial and relevant research? Two-way information exchanged throughout the research study Reporting back and saying goodbye Summary of questions 106 107 115 119 120 121 122 8 123 124 125 Consent 127 Consent and rights The meaning of consent Consent and the law Assent Complications in parental consent Capacity or competence to consent Levels of involvement in decision-making Respecting consent and refusal in different cultures The consent form Consent beyond speaking and writing Consent as a process Consent and sensitive topics Is research without consent ever ethical? Consent to longitudinal research Consent and secondary data analysis 128 129 132 134 139 139 142 142 146 149 151 152 153 155 156 ------------------------------------ vii ------------------ --------------- -
TH ETHICS OF RESEARCH WITH CHILDREN AND YOUNG PEOPLE Why respect children s consent? General questions about children s consent Summary of questions 159 159 160 Part 3 The writing, reporting and follow-up stages 161 9 Disseminating and implementing the findings Dealing with data Involving children and young people in dissemination: getting to the heart of debate and change Disseminating research to promote good practice Promoting dissemination Dissemination, social media and the news media Ethical questions for critical viewers and readers Summary of questions 163 163 164 168 170 172 175 175 10 The impact on children and young people Underlying attitudes to childhood and youth:the 3 Ps Individual and collective impact of research reports on children and young people Impact and the internet Decades of work Sharing power with children and young people Critical questions for researchers to ask aboutimpact And finally Summary of questions Appendix: Ten topics in ethical research References Index viii 176 176 177 180 183 186 187 188 189 190 195 216
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Contents ix Acknowledgements About the authors x Introduction: why ethics matters Defining some terms Research ethics The purpose of this book: starting from uncertainty, and a questioning approach Researchers as insiders or outsiders The contents of this book 1 3 6 6 8 9 Part 1 The planning stages 11 1 Planning the research: purpose and methods 13 Two basic questions Questions about purpose and methods Is the research worth doing? Do theories matter? Do viewpoints matter? Do methods matter? Three phases in the growing awareness of research ethics Three ethics frameworks for assessing research Limitations and advantages of the three frameworks Can ethics standards work in every country? Uncertainty - the basis of ethical research Summary of questions 2 13 13 13 14 14 15 16 19 21 23 23 25 Assessing harms and benefits 26 Harms and risks Benefits - how can research be 'beneficial'? Risk, cost, harm and benefit assessments Confusion in risk-benefit assessments Risk of distress or humiliation Welfare and rights Summary of questions 26 27 31 32 33 35 36
THE ETHICS OF RESEARCH WITH CHILDREN AND YOUNG PEOPLE 3 4 5 Respect for rights: privacy and confidentiality 37 Legal rights to confidentiality Opt-in or opt-out access Practical respect Privacy rights Data protection rules and laws Children's consent in relation to personal data: processing of data Confidentiality or acknowledgement? Intimacy between strangers: one-to-one interviews Ethics, safety and privacy in digital and online research Respecting local and personal values Summary of the advantages and disadvantages of online research Does traditional ethics cover today's research relationships? Summary of questions 37 39 39 43 43 45 47 47 49 52 52 54 56 Designing research: selection and participation 57 Framing the topics and extent of the research Advantages and disadvantages of exclusion criteria: research with children last? Combining respect, inclusion and protection Does traditional ethics cover social exclusion? Images and symbols Beyond inclusion to participation: co-production with children and young people as researchers UN-related work Respecting young researchers' own qualities Summary of questions 57 58 62 63 63 64 67 68 69 Money matters: contracts, funding research and paying participants Planning, budgeting and research agendas Funding sources and contracts Freedom to publish Paying children and young people as researchers and participants Payments in context Ethics, research and the climate crisis: eco ethics? Summary of questions 71 71 72 74 74 76 79 80 ------------------------------------------ -------------------------------------------------
CONTENTS 6 Reviewing aims and methods: ethics guidance and committees 81 Ethics guidelines International standards Review and revision of research aims and methods 81 83 85 Advantages of RECs/IRBs 87 88 95 97 102 Criticisms of bioethics and RECs/IRBs Alternatives to formal research ethics Social research theories Summary of questions Part 2 The data-collecting stage 103 7 Information 105 Spoken and written information Research information leaflets GDPR and information sheets Leaflet layout Conveying complex information Leaflets in other languages Beneficial and relevant research? Two-way information exchanged throughout the research study Reporting back and saying goodbye Summary of questions 106 107 115 119 120 121 122 8 123 124 125 Consent 127 Consent and rights The meaning of consent Consent and the law 'Assent' Complications in parental consent Capacity or competence to consent Levels of involvement in decision-making Respecting consent and refusal in different cultures The consent form Consent beyond speaking and writing Consent as a process Consent and sensitive topics Is research without consent ever ethical? Consent to longitudinal research Consent and secondary data analysis 128 129 132 134 139 139 142 142 146 149 151 152 153 155 156 ------------------------------------ vii ------------------ --------------- -
TH ETHICS OF RESEARCH WITH CHILDREN AND YOUNG PEOPLE Why respect children's consent? General questions about children's consent Summary of questions 159 159 160 Part 3 The writing, reporting and follow-up stages 161 9 Disseminating and implementing the findings Dealing with data Involving children and young people in dissemination: getting to the heart of debate and change Disseminating research to promote good practice Promoting dissemination Dissemination, social media and the news media Ethical questions for critical viewers and readers Summary of questions 163 163 164 168 170 172 175 175 10 The impact on children and young people Underlying attitudes to childhood and youth:the 3 Ps Individual and collective impact of research reports on children and young people Impact and the internet Decades of work Sharing power with children and young people Critical questions for researchers to ask aboutimpact And finally Summary of questions Appendix: Ten topics in ethical research References Index viii 176 176 177 180 183 186 187 188 189 190 195 216 |
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spelling | Alderson, Priscilla 1945- Verfasser (DE-588)1035441713 aut The ethics of research with children and young people a practical handbook Priscilla Alderson, Virginia Morrow 2nd edition Los Angeles SAGE 2020 viii, 225 Seiten Illustrationen 25 cm txt rdacontent n rdamedia nc rdacarrier A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty. Including: A showcase of the best practice on a range of topics including data protection Practical guidance for responding to recent global changes in policy and practice in ethics and law Discussion of the challenges and opportunities of digital research with children The updated second edition continues to provide an excellent resource for those exploring the old, current and new consensuses on the ethics of researching with children. Quelle: Internet. Ethik Jugend Kind Sozialwissenschaften Children Research Moral and ethical aspects Youth Research Moral and ethical aspects Social sciences Research Moral and ethical aspects Ethics, Research Social Sciences Adolescent Child Morals Kind idszbz Forschung idszbz Sozialwissenschaften idszbz Ethik idszbz Forschung (DE-588)4017894-8 gnd rswk-swf Ethik (DE-588)4015602-3 gnd rswk-swf Kind (DE-588)4030550-8 gnd rswk-swf Kind (DE-588)4030550-8 s Forschung (DE-588)4017894-8 s Ethik (DE-588)4015602-3 s DE-604 Morrow, Virginia Sonstige (DE-588)1014191246 oth Digitalisierung UB Regensburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=032521054&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
spellingShingle | Alderson, Priscilla 1945- The ethics of research with children and young people a practical handbook Ethik Jugend Kind Sozialwissenschaften Children Research Moral and ethical aspects Youth Research Moral and ethical aspects Social sciences Research Moral and ethical aspects Ethics, Research Social Sciences Adolescent Child Morals Kind idszbz Forschung idszbz Sozialwissenschaften idszbz Ethik idszbz Forschung (DE-588)4017894-8 gnd Ethik (DE-588)4015602-3 gnd Kind (DE-588)4030550-8 gnd |
subject_GND | (DE-588)4017894-8 (DE-588)4015602-3 (DE-588)4030550-8 |
title | The ethics of research with children and young people a practical handbook |
title_auth | The ethics of research with children and young people a practical handbook |
title_exact_search | The ethics of research with children and young people a practical handbook |
title_exact_search_txtP | The ethics of research with children and young people a practical handbook |
title_full | The ethics of research with children and young people a practical handbook Priscilla Alderson, Virginia Morrow |
title_fullStr | The ethics of research with children and young people a practical handbook Priscilla Alderson, Virginia Morrow |
title_full_unstemmed | The ethics of research with children and young people a practical handbook Priscilla Alderson, Virginia Morrow |
title_short | The ethics of research with children and young people |
title_sort | the ethics of research with children and young people a practical handbook |
title_sub | a practical handbook |
topic | Ethik Jugend Kind Sozialwissenschaften Children Research Moral and ethical aspects Youth Research Moral and ethical aspects Social sciences Research Moral and ethical aspects Ethics, Research Social Sciences Adolescent Child Morals Kind idszbz Forschung idszbz Sozialwissenschaften idszbz Ethik idszbz Forschung (DE-588)4017894-8 gnd Ethik (DE-588)4015602-3 gnd Kind (DE-588)4030550-8 gnd |
topic_facet | Ethik Jugend Kind Sozialwissenschaften Children Research Moral and ethical aspects Youth Research Moral and ethical aspects Social sciences Research Moral and ethical aspects Ethics, Research Social Sciences Adolescent Child Morals Forschung |
url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=032521054&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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