Genetic testing and the governance of risk in the contemporary economy: comparative reflections in the insurance and employment law contexts
This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to prov...
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| Weitere Verfasser: | , , |
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| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cham
Springer International Publishing
2020
|
| Ausgabe: | 1st ed. 2020 |
| Schriftenreihe: | Ius Comparatum - Global Studies in Comparative Law
Volume 34 |
| Schlagworte: | |
| Online-Zugang: | DE-29 DE-634 Volltext |
| Zusammenfassung: | This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. The respective texts cover a broad range of topics, including the prevalence of genetic testing in the contexts of insurance and employment, and policy factors that might affect this prevalence, such as the design of national health or social insurance systems, of private insurance schemes or the availability of low-cost direct-to-consumer genetic testing. Further, the field of genetics is gaining in importance at the international and regional levels. Relevant concepts - mainly genetic tests and genetic data/information - have been internationally defined, and these definitions have influenced definitions adopted nationally. International law also recognizes a "special status" for human genetic data. The authors therefore also consider these definitions and the recognition of the special status of human genetic data within regional and national legal orders. They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources - including human rights norms - that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes' approaches - specific and generalist - to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments |
| Beschreibung: | Introduction -- Part I Questionnaire and General Report / Questionnaire et rapport général -- Questionnaire -- General Report / Rapport général -- Part II National Reports from Asia / Rapports nationaux de l'Asie -- Genetic Testing in Employment and Insurance in Japan -- Part III National Reports from Europe / Rapports nationaux de l'Europe -- Genetic Testing in Employment and Insurance in Belgium -- Genetic Testing in Employment and Insurance in Cyprus -- Genetic Testing in Employment and Insurance in Czech Republic -- L'utilisation des tests génétiques dans le domaine de l'assurance en droit français et européen : une affaire d'assurance et de politique publique -- Genetic Testing in Employment and Insurance in Italy -- Genetic Testing in Employment and Insurance in Poland -- Genetic Testing in Employment and Insurance in Greece -- Genetic Testing in Employment and Insurance in the United Kingdom -- Part IV National Reports from The Americas / Rapports nationaux des Amériques -- Genetic Testing in Employment and Insurance in Brazil -- Genetic Testing in Employment and Insurance in Canada -- Genetic Testing in Employment and Insurance in the Canadian Province of Quebec |
| Beschreibung: | 1 Online-Ressource (X, 354 Seiten) Illustrationen |
| ISBN: | 9783030436995 |
| DOI: | 10.1007/978-3-030-43699-5 |
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| 520 | |a This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. | ||
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| 520 | |a They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources - including human rights norms - that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes' approaches - specific and generalist - to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments | ||
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| isbn | 9783030436995 |
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| spelling | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts Lara Khoury, Adelle Blackett, Lukas Vanhonnaeker (editors) 1st ed. 2020 Cham Springer International Publishing 2020 ©2020 1 Online-Ressource (X, 354 Seiten) Illustrationen txt rdacontent c rdamedia cr rdacarrier Ius Comparatum - Global Studies in Comparative Law Volume 34 Introduction -- Part I Questionnaire and General Report / Questionnaire et rapport général -- Questionnaire -- General Report / Rapport général -- Part II National Reports from Asia / Rapports nationaux de l'Asie -- Genetic Testing in Employment and Insurance in Japan -- Part III National Reports from Europe / Rapports nationaux de l'Europe -- Genetic Testing in Employment and Insurance in Belgium -- Genetic Testing in Employment and Insurance in Cyprus -- Genetic Testing in Employment and Insurance in Czech Republic -- L'utilisation des tests génétiques dans le domaine de l'assurance en droit français et européen : une affaire d'assurance et de politique publique -- Genetic Testing in Employment and Insurance in Italy -- Genetic Testing in Employment and Insurance in Poland -- Genetic Testing in Employment and Insurance in Greece -- Genetic Testing in Employment and Insurance in the United Kingdom -- Part IV National Reports from The Americas / Rapports nationaux des Amériques -- Genetic Testing in Employment and Insurance in Brazil -- Genetic Testing in Employment and Insurance in Canada -- Genetic Testing in Employment and Insurance in the Canadian Province of Quebec This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. The respective texts cover a broad range of topics, including the prevalence of genetic testing in the contexts of insurance and employment, and policy factors that might affect this prevalence, such as the design of national health or social insurance systems, of private insurance schemes or the availability of low-cost direct-to-consumer genetic testing. Further, the field of genetics is gaining in importance at the international and regional levels. Relevant concepts - mainly genetic tests and genetic data/information - have been internationally defined, and these definitions have influenced definitions adopted nationally. International law also recognizes a "special status" for human genetic data. The authors therefore also consider these definitions and the recognition of the special status of human genetic data within regional and national legal orders. They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources - including human rights norms - that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes' approaches - specific and generalist - to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments Private international law Conflict of laws Labor law Human rights Biomedical engineering Genetic engineering Khoury, Lara 1971- (DE-588)133941663 edt Blackett, Adelle 1967- (DE-588)1079360875 edt Vanhonnaeker, Lukas ca. 20./21. Jh. (DE-588)1078282994 edt Erscheint auch als Druck-Ausgabe 978-3-030-43698-8 Erscheint auch als Druck-Ausgabe 978-3-030-43700-8 Erscheint auch als Druck-Ausgabe 978-3-030-43701-5 Ius Comparatum - Global Studies in Comparative Law Volume 34 (DE-604)BV041746333 34 https://doi.org/10.1007/978-3-030-43699-5 Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts Ius Comparatum - Global Studies in Comparative Law Private international law Conflict of laws Labor law Human rights Biomedical engineering Genetic engineering |
| title | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts |
| title_auth | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts |
| title_exact_search | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts |
| title_exact_search_txtP | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts |
| title_full | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts Lara Khoury, Adelle Blackett, Lukas Vanhonnaeker (editors) |
| title_fullStr | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts Lara Khoury, Adelle Blackett, Lukas Vanhonnaeker (editors) |
| title_full_unstemmed | Genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts Lara Khoury, Adelle Blackett, Lukas Vanhonnaeker (editors) |
| title_short | Genetic testing and the governance of risk in the contemporary economy |
| title_sort | genetic testing and the governance of risk in the contemporary economy comparative reflections in the insurance and employment law contexts |
| title_sub | comparative reflections in the insurance and employment law contexts |
| topic | Private international law Conflict of laws Labor law Human rights Biomedical engineering Genetic engineering |
| topic_facet | Private international law Conflict of laws Labor law Human rights Biomedical engineering Genetic engineering |
| url | https://doi.org/10.1007/978-3-030-43699-5 |
| volume_link | (DE-604)BV041746333 |
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