Haemophilia in Aotearoa New Zealand: more than a bleeding nuisance
Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Abingdon, Oxon
Routledge
2019
|
| Schriftenreihe: | Routledge studies in health and medical anthropology
Routledge studies in health and medical anthropology |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Zusammenfassung: | Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions |
| Beschreibung: | Description based on online resource; title from digital title page (viewed on January 30, 2019) |
| Beschreibung: | 1 online resource (xx, 218 pages) |
| ISBN: | 0429026528 9780429026522 9780429649073 042964907X 9780429651717 0429651716 9780429646430 0429646437 |
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| 520 | |a Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions | ||
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Datensatz im Suchindex
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| dewey-ones | 616 - Diseases |
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| dewey-search | 616.1/57200993 |
| dewey-sort | 3616.1 857200993 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| discipline_str_mv | Medizin |
| format | Electronic eBook |
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| id | DE-604.BV047005522 |
| illustrated | Not Illustrated |
| index_date | 2024-07-03T15:58:01Z |
| indexdate | 2024-07-10T08:59:54Z |
| institution | BVB |
| isbn | 0429026528 9780429026522 9780429649073 042964907X 9780429651717 0429651716 9780429646430 0429646437 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-032413059 |
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| physical | 1 online resource (xx, 218 pages) |
| psigel | ZDB-7-TFC |
| publishDate | 2019 |
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| publisher | Routledge |
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| series2 | Routledge studies in health and medical anthropology |
| spelling | Park, Julie 1947- Verfasser aut Haemophilia in Aotearoa New Zealand more than a bleeding nuisance Julie Park, Kathryn M. Scott, Deon York, and Michael Carnahan Abingdon, Oxon Routledge 2019 © 2019 1 online resource (xx, 218 pages) txt rdacontent c rdamedia cr rdacarrier Routledge studies in health and medical anthropology Description based on online resource; title from digital title page (viewed on January 30, 2019) Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions Hemophilia / New Zealand Hemophiliacs / New Zealand https://www.taylorfrancis.com/books/9780429026522 Verlag URL des Erstveroeffentlichers Volltext |
| spellingShingle | Park, Julie 1947- Haemophilia in Aotearoa New Zealand more than a bleeding nuisance Hemophilia / New Zealand Hemophiliacs / New Zealand |
| title | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance |
| title_auth | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance |
| title_exact_search | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance |
| title_exact_search_txtP | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance |
| title_full | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance Julie Park, Kathryn M. Scott, Deon York, and Michael Carnahan |
| title_fullStr | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance Julie Park, Kathryn M. Scott, Deon York, and Michael Carnahan |
| title_full_unstemmed | Haemophilia in Aotearoa New Zealand more than a bleeding nuisance Julie Park, Kathryn M. Scott, Deon York, and Michael Carnahan |
| title_short | Haemophilia in Aotearoa New Zealand |
| title_sort | haemophilia in aotearoa new zealand more than a bleeding nuisance |
| title_sub | more than a bleeding nuisance |
| topic | Hemophilia / New Zealand Hemophiliacs / New Zealand |
| topic_facet | Hemophilia / New Zealand Hemophiliacs / New Zealand |
| url | https://www.taylorfrancis.com/books/9780429026522 |
| work_keys_str_mv | AT parkjulie haemophiliainaotearoanewzealandmorethanableedingnuisance |