Testing Baby: The Transformation of Newborn Screening, Parenting, and Policymaking
Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also ch...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
New Brunswick, NJ
Rutgers University Press
[2011]
|
| Schriftenreihe: | Critical Issues in Health and Medicine
|
| Schlagworte: | |
| Online-Zugang: | FAW01 FHA01 FKE01 FLA01 UPA01 FAB01 FCO01 Volltext |
| Zusammenfassung: | Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates |
| Beschreibung: | Description based on online resource; title from PDF title page (publisher's Web site, viewed 26. Mai 2020) |
| Beschreibung: | 1 online resource (290 pages) 20 |
| ISBN: | 9780813552026 |
Internformat
MARC
| LEADER | 00000nmm a2200000zc 4500 | ||
|---|---|---|---|
| 001 | BV046761068 | ||
| 003 | DE-604 | ||
| 005 | 00000000000000.0 | ||
| 007 | cr|uuu---uuuuu | ||
| 008 | 200615s2011 |||| o||u| ||||||eng d | ||
| 020 | |a 9780813552026 |9 978-0-8135-5202-6 | ||
| 024 | 7 | |a 10.36019/9780813552026 |2 doi | |
| 035 | |a (ZDB-23-DGG)9780813552026 | ||
| 035 | |a (OCoLC)1164654014 | ||
| 035 | |a (DE-599)BVBBV046761068 | ||
| 040 | |a DE-604 |b ger |e rda | ||
| 041 | 0 | |a eng | |
| 049 | |a DE-1046 |a DE-Aug4 |a DE-859 |a DE-860 |a DE-739 |a DE-1043 |a DE-858 | ||
| 082 | 0 | |a 362.198/9201 |2 22 | |
| 100 | 1 | |a Grob, Rachel |e Verfasser |4 aut | |
| 245 | 1 | 0 | |a Testing Baby |b The Transformation of Newborn Screening, Parenting, and Policymaking |c Rachel Grob |
| 264 | 1 | |a New Brunswick, NJ |b Rutgers University Press |c [2011] | |
| 264 | 4 | |c © 2011 | |
| 300 | |a 1 online resource (290 pages) |b 20 | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b c |2 rdamedia | ||
| 338 | |b cr |2 rdacarrier | ||
| 490 | 0 | |a Critical Issues in Health and Medicine | |
| 500 | |a Description based on online resource; title from PDF title page (publisher's Web site, viewed 26. Mai 2020) | ||
| 520 | |a Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates | ||
| 546 | |a In English | ||
| 650 | 7 | |a MEDICAL / General |2 bisacsh | |
| 650 | 4 | |a Medical screening | |
| 650 | 4 | |a Newborn infants |x Diseases |x Diagnosis | |
| 856 | 4 | 0 | |u https://www.degruyter.com/isbn/9780813552026 |x Verlag |z URL des Erstveröffentlichers |3 Volltext |
| 912 | |a ZDB-23-DGG | ||
| 999 | |a oai:aleph.bib-bvb.de:BVB01-032170604 | ||
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FAW01 |p ZDB-23-DGG |q FAW_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FHA01 |p ZDB-23-DGG |q FHA_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FKE01 |p ZDB-23-DGG |q FKE_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FLA01 |p ZDB-23-DGG |q FLA_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l UPA01 |p ZDB-23-DGG |q UPA_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FAB01 |p ZDB-23-DGG |q FAB_PDA_DGG |x Verlag |3 Volltext | |
| 966 | e | |u https://www.degruyter.com/isbn/9780813552026 |l FCO01 |p ZDB-23-DGG |q FCO_PDA_DGG |x Verlag |3 Volltext | |
Datensatz im Suchindex
| _version_ | 1804181527106420736 |
|---|---|
| adam_txt | |
| any_adam_object | |
| any_adam_object_boolean | |
| author | Grob, Rachel |
| author_facet | Grob, Rachel |
| author_role | aut |
| author_sort | Grob, Rachel |
| author_variant | r g rg |
| building | Verbundindex |
| bvnumber | BV046761068 |
| collection | ZDB-23-DGG |
| ctrlnum | (ZDB-23-DGG)9780813552026 (OCoLC)1164654014 (DE-599)BVBBV046761068 |
| dewey-full | 362.198/9201 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
| dewey-raw | 362.198/9201 |
| dewey-search | 362.198/9201 |
| dewey-sort | 3362.198 49201 |
| dewey-tens | 360 - Social problems and services; associations |
| discipline | Soziologie |
| discipline_str_mv | Soziologie |
| format | Electronic eBook |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>03230nmm a2200493zc 4500</leader><controlfield tag="001">BV046761068</controlfield><controlfield tag="003">DE-604</controlfield><controlfield tag="005">00000000000000.0</controlfield><controlfield tag="007">cr|uuu---uuuuu</controlfield><controlfield tag="008">200615s2011 |||| o||u| ||||||eng d</controlfield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9780813552026</subfield><subfield code="9">978-0-8135-5202-6</subfield></datafield><datafield tag="024" ind1="7" ind2=" "><subfield code="a">10.36019/9780813552026</subfield><subfield code="2">doi</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(ZDB-23-DGG)9780813552026</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)1164654014</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)BVBBV046761068</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-604</subfield><subfield code="b">ger</subfield><subfield code="e">rda</subfield></datafield><datafield tag="041" ind1="0" ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-1046</subfield><subfield code="a">DE-Aug4</subfield><subfield code="a">DE-859</subfield><subfield code="a">DE-860</subfield><subfield code="a">DE-739</subfield><subfield code="a">DE-1043</subfield><subfield code="a">DE-858</subfield></datafield><datafield tag="082" ind1="0" ind2=" "><subfield code="a">362.198/9201</subfield><subfield code="2">22</subfield></datafield><datafield tag="100" ind1="1" ind2=" "><subfield code="a">Grob, Rachel</subfield><subfield code="e">Verfasser</subfield><subfield code="4">aut</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">Testing Baby</subfield><subfield code="b">The Transformation of Newborn Screening, Parenting, and Policymaking</subfield><subfield code="c">Rachel Grob</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">New Brunswick, NJ</subfield><subfield code="b">Rutgers University Press</subfield><subfield code="c">[2011]</subfield></datafield><datafield tag="264" ind1=" " ind2="4"><subfield code="c">© 2011</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 online resource (290 pages)</subfield><subfield code="b">20</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="490" ind1="0" ind2=" "><subfield code="a">Critical Issues in Health and Medicine</subfield></datafield><datafield tag="500" ind1=" " ind2=" "><subfield code="a">Description based on online resource; title from PDF title page (publisher's Web site, viewed 26. Mai 2020)</subfield></datafield><datafield tag="520" ind1=" " ind2=" "><subfield code="a">Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates</subfield></datafield><datafield tag="546" ind1=" " ind2=" "><subfield code="a">In English</subfield></datafield><datafield tag="650" ind1=" " ind2="7"><subfield code="a">MEDICAL / General</subfield><subfield code="2">bisacsh</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Medical screening</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Newborn infants</subfield><subfield code="x">Diseases</subfield><subfield code="x">Diagnosis</subfield></datafield><datafield tag="856" ind1="4" ind2="0"><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="x">Verlag</subfield><subfield code="z">URL des Erstveröffentlichers</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ZDB-23-DGG</subfield></datafield><datafield tag="999" ind1=" " ind2=" "><subfield code="a">oai:aleph.bib-bvb.de:BVB01-032170604</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FAW01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FAW_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FHA01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FHA_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FKE01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FKE_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FLA01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FLA_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">UPA01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">UPA_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FAB01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FAB_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://www.degruyter.com/isbn/9780813552026</subfield><subfield code="l">FCO01</subfield><subfield code="p">ZDB-23-DGG</subfield><subfield code="q">FCO_PDA_DGG</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield></record></collection> |
| id | DE-604.BV046761068 |
| illustrated | Not Illustrated |
| index_date | 2024-07-03T14:44:35Z |
| indexdate | 2024-07-10T08:53:04Z |
| institution | BVB |
| isbn | 9780813552026 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-032170604 |
| oclc_num | 1164654014 |
| open_access_boolean | |
| owner | DE-1046 DE-Aug4 DE-859 DE-860 DE-739 DE-1043 DE-858 |
| owner_facet | DE-1046 DE-Aug4 DE-859 DE-860 DE-739 DE-1043 DE-858 |
| physical | 1 online resource (290 pages) 20 |
| psigel | ZDB-23-DGG ZDB-23-DGG FAW_PDA_DGG ZDB-23-DGG FHA_PDA_DGG ZDB-23-DGG FKE_PDA_DGG ZDB-23-DGG FLA_PDA_DGG ZDB-23-DGG UPA_PDA_DGG ZDB-23-DGG FAB_PDA_DGG ZDB-23-DGG FCO_PDA_DGG |
| publishDate | 2011 |
| publishDateSearch | 2011 |
| publishDateSort | 2011 |
| publisher | Rutgers University Press |
| record_format | marc |
| series2 | Critical Issues in Health and Medicine |
| spelling | Grob, Rachel Verfasser aut Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking Rachel Grob New Brunswick, NJ Rutgers University Press [2011] © 2011 1 online resource (290 pages) 20 txt rdacontent c rdamedia cr rdacarrier Critical Issues in Health and Medicine Description based on online resource; title from PDF title page (publisher's Web site, viewed 26. Mai 2020) Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates In English MEDICAL / General bisacsh Medical screening Newborn infants Diseases Diagnosis https://www.degruyter.com/isbn/9780813552026 Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Grob, Rachel Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking MEDICAL / General bisacsh Medical screening Newborn infants Diseases Diagnosis |
| title | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking |
| title_auth | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking |
| title_exact_search | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking |
| title_exact_search_txtP | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking |
| title_full | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking Rachel Grob |
| title_fullStr | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking Rachel Grob |
| title_full_unstemmed | Testing Baby The Transformation of Newborn Screening, Parenting, and Policymaking Rachel Grob |
| title_short | Testing Baby |
| title_sort | testing baby the transformation of newborn screening parenting and policymaking |
| title_sub | The Transformation of Newborn Screening, Parenting, and Policymaking |
| topic | MEDICAL / General bisacsh Medical screening Newborn infants Diseases Diagnosis |
| topic_facet | MEDICAL / General Medical screening Newborn infants Diseases Diagnosis |
| url | https://www.degruyter.com/isbn/9780813552026 |
| work_keys_str_mv | AT grobrachel testingbabythetransformationofnewbornscreeningparentingandpolicymaking |