Breathe, Baby, Breathe! Neonatal Intensive Care, Prematurity, and Complicated Pregnancies
Breathe, Baby, Breathe!: Neonatal Intensive Care, Prematurity, and Complicated Pregnancies

Every year in the United States, 12% of all births are preterm births, 5% of all babies need help to breathe at birth, and 3% of neonates are born with at least one severe malformation. Many of these babies are hospitalized in a neonatal intensive care unit. Annie Janvier and her husband, Keith Barr...

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Bibliographische Detailangaben
1. Verfasser: Janvier, Annie (VerfasserIn)
Format: Elektronisch E-Book
Sprache:English
Veröffentlicht: Toronto University of Toronto Press [2020]
Schlagworte:
bioethics
clinical
critical
end-of-life decisions
family-centered
integrated care
intensive
narrative ethics
neonatal
neonatology
obstetrics
paediatrics
palliative
pediatric
perinatology
prematurity
MEDICAL / Pediatric Emergencies
Neonatologists > Biography
Premature infants > Biography
Premature infants > Care
Premature labor
Online-Zugang:FAW01
FHA01
FKE01
FLA01
UPA01
FAB01
FCO01
Volltext
Zusammenfassung:Every year in the United States, 12% of all births are preterm births, 5% of all babies need help to breathe at birth, and 3% of neonates are born with at least one severe malformation. Many of these babies are hospitalized in a neonatal intensive care unit. Annie Janvier and her husband, Keith Barrington, are both pediatricians who specialize in the care of these sick babies and are internationally known for their research in this area. In 2005, when their daughter Violette was born extremely prematurely, 4 months before her due date, they faced the situation "from the other side," as parents. Despite knowing the scientific facts, they knew nothing about the experience itself. "Knowing how a respirator works did not help me be the mother of a baby on a respirator," writes Annie. She did not know how to navigate the guilt, the uncertainty, the fears, the predictions of providers, and the responses of friends and family. In a society obsessed with goals, performance, efficiency, and high percentages, she discovered that the daily lack of control that new parents of sick babies face changes their lives. And that, for physician parents, it also changes the way they practice medicine. Most of the articles and books written about premature babies and neonatal intensive care units examine the technological and medical aspects of neonatology. Breathe, Baby, Breathe, however, is written in the voice of a parent-doctor and tells the story of Violette and her parents, alongside the stories of other fragile babies and their families with different journeys and different outcomes. With the story of Violette at the core of the book, the interwoven stories and empirical articles provide essential insights into the medical world of premature birth. This original clever blend of narratives and evidence provides a new, experiential view of the way forward during a parental crisis. The book ends with practical recommendations for clinicians, parents, and families
Beschreibung:Description based on online resource; title from PDF title page (publisher's Web site, viewed 29. Feb 2020)
Beschreibung:1 online resource (280 pages)
ISBN:9781487519261
DOI:10.3138/9781487519261

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