Participatory research for health and social well-being:
Gespeichert in:
| Hauptverfasser: | , , , , , , |
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| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Cham
Springer Natur
[2019]
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| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Klappentext |
| Beschreibung: | xxxiii, 249 Seiten, C1 Illustrationen |
| ISBN: | 9783319931906 |
Internformat
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| 245 | 1 | 0 | |a Participatory research for health and social well-being |c Tineke Abma, Sarah Banks, Tina Cook, Sónia Dias, Wendy Madsen, Jane Springett, Michael T. Wright |
| 264 | 1 | |a Cham |b Springer Natur |c [2019] | |
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Datensatz im Suchindex
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| adam_text | Contents 1 Making the Case: The Arguments for Participatory Research.......... 1 1.1 Introduction: The Fictional Case of Hilda in Liverpool.................... 2 1.2 About Us: Coming to Participatory Research in Different Ways ... 3 1.2.1 Through Health Promotion.................................................. 3 1.2.2 Through Action Research.................................................... 5 1.2.3 Through Community Development...................................... 5 1.2.4 Through Responsive Evaluation.......................................... 6 1.3 So What Is Participatory Research?.................................................. 7 1.4 The Main Underlying Values and Principles of the Approach.......... 8 1.4.1 To Maximize Participation.................................................... 8 1.4.2 To Enable People to Take Action.......................................... 8 1.4.3 To Add Local Value.............................................................. 9 1.5 Where Does the Approach Come From?.......................................... 10 1.5.1 Building on a Rich History.................................................. 10 1.5.2 Participatory Research in the Fields of Health and Social Well-Being.......................................................... 12 1.6 How Do We Make the Case for a Different Approach to Research and Why Is It Important to Do So?.............................. 13 1.7 “Beware the Greeks Bearing Gifts” or Participatory “Green Wash”.................................................................................... 15 1.8 What to Expect in This
Book............................................................ 16 1.9 Change Through Participatory Research: So What Happened to Hilda?............................................................ 17 1.10 Finally: This Comes with a Gentle Warning.................................... 18 1.11 Questions for Reflection and Discussion.......................................... 19 Further Reading and Sources for Inspiration............................................ 20 References.................................................................................................. 20 2 Framing: The Search for a Lens of Understanding.............................. 2.1 The Framing Process and Its Importance in Participatory Research.................................................................. 23 24
xxiv Contents, 2.2 Making the Unconscious Conscious Through Critical Questioning.......................................................................... 25. 2.3 So, What Are Frameworks and Where Do They Come From?........ 25 2.4 Becoming Aware of Frameworks-in-Use.......................................... 28 2.5 New Perspectives and Flermeneutic Dialogue.................................. 30 2.6 Freirían Pedagogy............................................................................ 31 2.7 Stumbling Blocks in the Process of Framing and Reframing.......... 32 2.7.1 Dominant Frames and Resistance........................................ 33 2.7.2 False Consciousness.............................................................. 33 2.7.3 Stigmatization and Self-Stigmatization................................ 34 2.7.4 Colonized Mind.................................................................... 35 2.7.5 Dominance of Abstract Models over Life-world Experiences................................................ 36 2.8 Ways of Exploring Various, Sometimes Unarticulated Frameworks................................................................ 38 2.8.1 Practical Tool: 5 W’s............................................................ 38 2.9 Social Change Begins with Reframing............................................ 40 2.10 Questions for Reflection and Discussion.......................................... 41 Further Reading and Sources of Inspiration.............................................. 41
References.................................................................................................. 41 3 Getting Started: The Initiation of a Partnership.................................. 3.1 Introduction: Starting Carefully........................................................ 3.2 How Does Participatory Research Start?.......................................... 3.2.1 A Small Community-Based Organization or Group............ 3.2.2 A Large Organization............................................................ 3.2.3 A PhD Student or Academic Researcher.............................. 3.2.4 Practitioners in an Organization............................................ 3.3 Building Trust and Developing Ideas................................................ 3.3.1 Sharing Motivations, Values, Ideas, Concerns and Possibilities.................................................................... 3.3.2 Clarifying Understandings of Research, Types of Research, the Issues to Be Researched and the Goals of Each Partner.............................................. 3.3.3 Agreeing Broad Aims and Objectives of theResearch......... 3.4 Is a Participatory Research Approach Suitable or Possible?............ 3.4.1 Do the Respective Partners Have Sufficient Time, Commitment and Resources?.................................... 3.4.2 What Organizational Supports and Barriers Exist?.............. 3.5 Considering What Ethical Issues May Arise and How They Can Be Overcome.................................................... 3.6 Ethical Principles for Participatory
Research.................................. 3.7 Using the Ethical Principles as a Focus for Discussion.................... 3.8 Developing a Working Agreement.................................................... 43 44 45 45 46 46 47 47 48 48 49 50 50 51 52 53 55 55
Contents How Will Researchers Handle Information and Treat People Who Provide It?....................................................... 3 10 Anticipating the Later Stages of the Research.................................... 3.11 Concluding Comments........................................................................... 3.12 Questions for Reflection and Discussion............................................. Further Reading and Sources of Inspiration................................................. References........................................................................................................ xxv դ9 4 5 Shaping: The Co-creation of a Research Design.................................... 4.1 When Research Can Help: The Role of Information in Creating Change............................................................................... 4.1.1 Documenting a Need................................................................ 4.1.2 Building and Empowering Communities................................ 4.1.3 Making One’s Own Situation Visible.................................... 4.1.4 Improving a Care System........................................................... 4.2 Moving from a Topic to a Research Question.................................... 4.2.1 Types of Research Questions................................................... 4.2.2 What Makes for a Good Research Question?........................ 4.3 Setting the Research Goal.................................................................... 4.3.1 Harmonizing the Question with the
Goals............................... 4.4 Challenges and Stumbling Blocks in Shaping a Participatory Research Project.......................................................... 4.4.1 Boundaries Set by Others.......................................................... 4.4.2 Boundaries Set by Limited Resources.................................... 4.4.3 Working with the People Who Are There.............................. 4.4.4 Working with the Skills of the Research Team..................... 4.4.5 Difficulty Defining Common Questions and Goals............... 4.4.6 Loosely Defined Questions and Goals.................................... 4.4.7 Losing Sight of the Questions and Goals................................ 4.5 Summary................................................................................................ 4.6 Questions for Reflection and Discussion............................................. Further Reading and Sources of Inspiration................................................. References.. /v................................................................................................ Organizing: Making Plans Together......................................................... 5.1 The Myth that Participatory Research Doesn’t Need to Be Organized........................................................................... 5.2 Setting Up a Structure........................................................................... 5.2.1 Organizing a Research Team................................................... 5.2.2 Forming an Advisory
Board..................................................... 5.2.3 Negotiating Agreements............................................................ 5.3 Identifying Resources........................................................................... 5.4 Clarifying Roles and Decision-Making............................................... 5.5 Planning for Sustainability.................................................................... 5.6 Challenges and Stumbling Blocks........................................................ 57 60 60 61 61 61 63 64 65 65 66 67 67 69 71 74 75 78 78 79 79 79 80 80 81 81 81 82 82 85 86 86 87 90 91 91 93 94 94
XXVI Contents 5.6.1 Lack of Organization............................................................ 5.6.2 Lack of Accountability.......................................................... 5.6.3 Lack of a Clear Agreement on Central Processes................ 5.6.4 People Taking on More than They Can Do.......................... 5.6.5 Hesitating to Seek Help........................................................ 5.6.6 Insisting that Everyone Be Involved in Everything.............. 5.6.7 Underestimating People’s Abilities...................................... 5.6.8 Managing the Unexpected.................................................... 5.7 Questions for Reflection and Discussion........................................... Further Reading and Sources of Inspiration.............................................. References.................................................................................................. 94 95 95 95 96 96 96 97 97 97 97 6 Acting for Change: The Generation of Transformative Action.......... 99 6.1 Introduction........................................................................................ 100 6.2 What Does Action for Change Look Like in Participatory Research?.................................................................. 101 6.3 What Counts as Action for Change?.................................................. 103 6.4 Where Might Change Be Found?...................................................... 104 6.5 Planning for Change.......................................................................... 106 6.6 Principles for
Facilitating Acting for Change in Participatory Research.................................................................... 108 6.6.1 Empowerment........................................................................ 108 6.6.2 Ownership, Roles and Responsibilities.................................. Ill 6.6.3 Make Space for Relational, Democratic, Dialectical Processes.............................................................. 112 6.6.4 Spaces for Recognizing the “Human”ness of Working Together.............................................................. 113 6.6.5 Planning for “Mess”................................................................ 114 6.6.6 Creativity................................................................................ 114 6.6.7 Building Networks................................................................ 116 6.7 Stumbling Blocks.............................................................................. 117 6.8 Activism, Advocacy and Change.........................................................119 6.9 Transformation or Transition.............................................................. 121 6.10 Questions for Reflection and Discussion............................................ 121 References.................................................................................................... 122 7 Engaging: The Choice and Use of Participatory Methods.................... 125 7.1 What is Method in Participatory Research and Why Do We Use It?...................................................................... 126 7.2 Data Collection
in a Participatory Way.............................................. 128 7.3 Data Generation.................................................................................. 129 7.4 Starting Point for Data Generation: Communicative Space............129 7.5 Telling Our Stories to Jointly Generate Data...................................... 133 7.6 Power Issues........................................................................................ 134 7.7 Examples of Participatory Ways for Collection and Generating Data.......................................................................... 134
7.7.1 Gaining a Voice, Forming a Group and Co-laboring............... 135 7.7.2 Working in a Cyclical and Iterative Way...................................136 7.7.3 Interviews Used in a Participatory Way.....................................139 7.7.4 Focus-Groups Used in a Participatory Way.............................. 141 7.7.5 Mixed Groups Used in a Participatory Way.............................. 143 7.7.6 Creative Ways of Engaging........................................................144 7.7.7 Quantitative Methods in a Participatory Way.......................... 147 7.8 Facilitation and Roles of the Facilitator................................................. 148 7.9 Stumbling Blocks in the Process of Engaging.......................................149 7.9.1 Conflict and Strategic Behavior................................................. 150 7.9.2 Power Asymmetries in Communication.................................. 150 7.9.3 Epistemic Injustice.................................................................... 151 7.9.4 Hermeneutic Injustice................................................................ 152 7.9.5 Expecting the Unexpected..........................................................152 7.10 Questions for Reflection and Discussion............................................... 154 Further Reading and Sources of Inspiration................................................... 154 References........................................................................................................... 154 8 Sense Making: The Process of Data Analysis and Interpretation
.... 157 8.1 How Participation Enriches Sense Making........................................... 158 8.2 General Principles for Making Sense Out of the Data..........................159 8.2.1 The Importance of Credibility and Meaningfulness.............159 8.2.2 Valuing the Different Skills of the Various Partners.............160 8.2.3 The Usual Methods of Data Analysis in the Context of Participatory Research............................................................ 161 8.2.4 The Importance of Adapting Conventional Methods............... 162 8.2.5 Round and Round We Go! (Iterative Process).......................... 163 8.3 Bringing Together the Data.................................................................... 163 8.3.1 Identifying the Sources of Data................................................. 163 8.3.2 Ordering the Data by Type..........................................................164 8.4 Deciding on a Strategy............................................................................. 166 8.4.1 Making Sense out of Numbers................................................... 166 8.4.2 Making Sense Out of Conversations.........................................168 8.4.3 Making Sense Out of Stories......................................................170 8.4.4 Making Sense Out of Pictures and Other Visualizations.... 172 8.4.5 Making Sense Out of Performances.........................................173 8.4.6 Making Sense Out of Documents............................................. 174 8.5 Being
Critical............................................................................................ 175 8.5.1 Being Aware of Assumptions......................................................175 8.5.2 Bringing in Different Perspectives............................................. 176 8.5.3 Comparing to Outside Sources................................................. 176 8.5.4 Reflexivity................................................................................... 176 8.5.5 Journaling......................................................................................177 8.5.6 Consulting with Critical Friends............................................... 177 8.5.7 Playing Devil’s Advocate............................................................ 177
xxviii Conte 8.6 8.7 8.8 Checking the Quality of the Process.................................................. 1781 Answering the Research Questions Based on the Sense Making ... 17R; Stumbling Blocks and Possible Solutions.......................................... 17p 8.8.1 Reconciling Multiple Understandings.................................... I7p 8.8.2 Overly Complex Methods of Analysis.................................. 17f 8.8.3 Not Being Critical.................................................................. 1801 8.8.4 Being Measured Against “The Standard”.............................. 180 8.8.5 Not Being Transparent............................................................ 180 8.8.6 Not Being Consistent and Systematic.................................... 18P 8.9 Questions for Reflection and Discussion............................................ 18P Further Reading and Sources of Inspiration.............................................. 181 References.................................................................................................... 18 9 Telling and Showing: The Shared Decisions About Dissemination ... 183^ 9.1 The Importance of Sharing Knowledge for Change.......................... 1841 9.2 Case Stories from the Field.............................................................. 183*. 9.3 Formulating the Message.................................................................... 193* 9.4 Whom Do We Want to Reach?............................................................ 195 9.5 What Types of Knowledge Do We Want to
Share?............................ 197 9.6 Creative Ways.................................................................................... 200 9.7 In What Kind of Form Do We Want to Present Our Findings?........ 202 9.8 Stumbling Blocks in the Process of Telling and Showing.................. 203 9.9 Concluding Comments........................................................................ 204 9.10 Questions for Further Reflection and Discussion.............................. 205 Further Reading and Sources of Inspiration................................................ 205 References.................................................................................................... 205 10 Capturing and Reflecting for Change: The Generation of Impact ... 207 10.1 Introduction.................................................................................... 208 10.2 Opening Up Communicative Spaces for CriticalReflection........... 208 10.3 Being Critical.................................................................................. 209 10.4 Moving Through Resistance and Engaging withEmotion.............212 10.5 Evaluation and Evidence: Participatory Evaluation in Participatory Research........................................... 214 10.6 Participatory, Dialogical, Embedded and Dynamic........................ 217 10.7 Process Driven Evaluation: The Challenge for Participatory Researchers....................................................... 221 10.7.1 Outputs and Outcomes...................................................... 221 10.7.2 Demonstrating Impact: Working in
the Spaces Around and In Between.................................................... 221 10.7.3 Legacy and Attribution...................................................... 224 10.8 Conclusion...................................................................................... 225 10.9 Questions for Reflection and Discussion........................................ 225
contents XXIX Further Reading and Sources of Inspiration..................................................... 225 References................................................................................................................. 226 ļļ Continuing the Journey: The Quest for Sustainable Partnerships ... 229 11.1 Introduction: Projects and Partners................................................... 230 11.2 Projects as Discrete Entities................................................................233 լ 1.3 Funding Tied to Specific Projects......................................................234 ] 1.4 The Context for the Project.................................................................235 11.5 Previous Relationships.........................................................................235 11.6 Boundaries Around a Co-researcher Group....................................... 237 11.7 Evaluation and Celebration: Deepening the Relationship............. 239 11.8 Developing as a Participatory Researcher: Learning About the Role of Being a Partner................................... 240 11.9 Being Transformed.............................................................................242 11.10 Questions for Reflection and Discussion...........................................242 Further Reading and Sources of Inspiration..................................................... 243 References.............................................................................................................243 12 Epilogue: Bringing the Threads
Together................................................... 245 12.1 Reminding Ourselves of Why We Do Participatory Research ... 248 Reference.......................................................................................................... 249 Correction to: Participatory Research for Health and Social Well-Being............................................................................................ Cl
This textbook is a comprehensive guide for students interested in using participatory research to improve people’s health and well-being. It is especially designed for those working in the fields of health and social welfare who are embarking on participatory research for the first time. It covers all phases in participatory research from “getting started,” to “acting for change,” “continuing the journey” and “articulating impact.” Its unique format helps readers understand the essence of participatory research as a com prehensive approach for doing research which is underpinned by a set of fundamental values. The many real life examples of participatory research projects from around the world inspire readers to find creative ways to manage their own research while opening up new horizons in their work.
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| author | Abma, Tineke 1964- Banks, Sarah ca. 20./21. Jh Cook, Tina Dias, Sónia Madsen, Wendy 1963- Springett, Jane Wright, Michael T. 1962- |
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| author_facet | Abma, Tineke 1964- Banks, Sarah ca. 20./21. Jh Cook, Tina Dias, Sónia Madsen, Wendy 1963- Springett, Jane Wright, Michael T. 1962- |
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| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 300 - Social sciences |
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| id | DE-604.BV045566008 |
| illustrated | Illustrated |
| indexdate | 2024-07-10T08:21:41Z |
| institution | BVB |
| isbn | 9783319931906 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-030949675 |
| oclc_num | 1099483035 |
| open_access_boolean | |
| owner | DE-384 DE-1050 DE-29T DE-11 |
| owner_facet | DE-384 DE-1050 DE-29T DE-11 |
| physical | xxxiii, 249 Seiten, C1 Illustrationen |
| publishDate | 2019 |
| publishDateSearch | 2019 |
| publishDateSort | 2019 |
| publisher | Springer Natur |
| record_format | marc |
| spelling | Abma, Tineke 1964- Verfasser (DE-588)1186736119 aut Participatory research for health and social well-being Tineke Abma, Sarah Banks, Tina Cook, Sónia Dias, Wendy Madsen, Jane Springett, Michael T. Wright Cham Springer Natur [2019] © 2019 xxxiii, 249 Seiten, C1 Illustrationen txt rdacontent n rdamedia nc rdacarrier Methodology of the Social Sciences Quality of Life Research Nursing Social sciences / Methodology Quality of Life / Research Gesundheit (DE-588)4020754-7 gnd rswk-swf Wohlbefinden (DE-588)4124481-3 gnd rswk-swf Forschungsmethode (DE-588)4155046-8 gnd rswk-swf Gesundheit (DE-588)4020754-7 s Wohlbefinden (DE-588)4124481-3 s Forschungsmethode (DE-588)4155046-8 s DE-604 Banks, Sarah ca. 20./21. Jh. (DE-588)1168479916 aut Cook, Tina (DE-588)1249188253 aut Dias, Sónia (DE-588)124918844X aut Madsen, Wendy 1963- (DE-588)107612576X aut Springett, Jane (DE-588)143408224 aut Wright, Michael T. 1962- (DE-588)12118482X aut Erscheint auch als Online-Ausgabe 978-3-319-93191-3 Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030949675&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030949675&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
| spellingShingle | Abma, Tineke 1964- Banks, Sarah ca. 20./21. Jh Cook, Tina Dias, Sónia Madsen, Wendy 1963- Springett, Jane Wright, Michael T. 1962- Participatory research for health and social well-being Methodology of the Social Sciences Quality of Life Research Nursing Social sciences / Methodology Quality of Life / Research Gesundheit (DE-588)4020754-7 gnd Wohlbefinden (DE-588)4124481-3 gnd Forschungsmethode (DE-588)4155046-8 gnd |
| subject_GND | (DE-588)4020754-7 (DE-588)4124481-3 (DE-588)4155046-8 |
| title | Participatory research for health and social well-being |
| title_auth | Participatory research for health and social well-being |
| title_exact_search | Participatory research for health and social well-being |
| title_full | Participatory research for health and social well-being Tineke Abma, Sarah Banks, Tina Cook, Sónia Dias, Wendy Madsen, Jane Springett, Michael T. Wright |
| title_fullStr | Participatory research for health and social well-being Tineke Abma, Sarah Banks, Tina Cook, Sónia Dias, Wendy Madsen, Jane Springett, Michael T. Wright |
| title_full_unstemmed | Participatory research for health and social well-being Tineke Abma, Sarah Banks, Tina Cook, Sónia Dias, Wendy Madsen, Jane Springett, Michael T. Wright |
| title_short | Participatory research for health and social well-being |
| title_sort | participatory research for health and social well being |
| topic | Methodology of the Social Sciences Quality of Life Research Nursing Social sciences / Methodology Quality of Life / Research Gesundheit (DE-588)4020754-7 gnd Wohlbefinden (DE-588)4124481-3 gnd Forschungsmethode (DE-588)4155046-8 gnd |
| topic_facet | Methodology of the Social Sciences Quality of Life Research Nursing Social sciences / Methodology Quality of Life / Research Gesundheit Wohlbefinden Forschungsmethode |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030949675&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030949675&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
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