Ethics in palliative care: a complete guide
Saved in:
| Main Author: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
New York, NY
Oxford University Press
[2018]
|
| Subjects: | |
| Online Access: | Inhaltsverzeichnis Inhaltsverzeichnis |
| Item Description: | Includes bibliographical references and index |
| Physical Description: | xx, 548 Seiten Illustrationen, Diagramme |
| ISBN: | 9780199313945 |
Staff View
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| adam_text | ETHICS IN PALLIATIVE CARE
/ MACAULEY, ROBERT C.YYEAUTHOR
: 2018
TABLE OF CONTENTS / INHALTSVERZEICHNIS
ETHICS AND PALLIATIVE CARE
OVERVIEW OF ETHICAL APPROACHES
ADVANCE CARE PLANNING AND SURROGATE DECISION MAKING
SPECIFIC ETHICAL ISSUES AT THE END OF LIFE
THE RIGHT TO DIE
FORGOING LIFE-SUSTAINING MEDICAL TREATMENT
PAIN AND SYMPTOM MANAGEMENT AT THE END OF LIFE
PHYSICIAN ASSISTED DEATH
PALLIATIVE SEDATION
OVERVIEW OF PEDIATRIC ETHICS AND PALLIATIVE CARE
ETHICS OF PRENATAL PALLIATIVE CARE
NEONATAL
ETHICS OF CHILD AND ADOLESCENT PALLIATIVE CARE
REQUESTS FOR NON-BENEFICIAL TREATMENT
NEURO-PALLIATIVE CARE
DEATH AND ORGAN DONATION
RESEARCH IN PALLIATIVE CARE
FINAL THOUGHTS
DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT.
Contents
Preface xv
Acknowledgments xix
section I Overview and Introduction
1. Ethics and Palliative Care 3
Evolution of the Fields 4
Ethics 4
Palliative Care 12
Relationship of Ethics and Palliative Care 16
Summary Points 19
2. Overview of Ethical Approaches 25
Clarify and Classify the Dilemma 28
Review Existing Information 29
Acquire Additional Relevant Information 31
Analyze the Ethical Issue 32
Relevant Legal and Professional Considerations 34
Formulate Response» Consider Criticisms, and Identify
Lessons Learned 42
Next Steps in the Absence of Resolution 43
Conclusion 45
Summary Points 45
section II Ethical Issues in Determining the Plan of Care
3. Advance Care Planning and Surrogate Decision-Making 53
Hierarchy of Ethical Decision-Making 54
viii j Contents
Autonomy 54
Substituted Judgment 61
Best Interests 67
Advance Care Planning 70
Treatment Directives 72
Proxy Directives 77
POLST Paradigm 78
Prognostication 84
Accuracy 85
Communication 87
Application 89
Summary Points 90
4. Specific Ethical Issues at the End of Life 101
Determining Code Status 101
Case Study 101
Terminology 103
How to Determine Code Status 107
Code Status in the Operating Room 111
Return to the Case 113
Patients Who Want “Everything” 114
Case Study 114
Time-Limited Trials 118
No Escalation of Treatment 120
Return to the Case 122
Overriding Patient Refusal 123
Case Study 123
Return to the Case 126
Summary Points 127
section in Death and Dying
5. The “Right to Die” 135
Gradual Acceptance of a Right to Die 136
Forgoing LSMT 137
Intensive Symptom Management 140
Physician-Assisted Dying 142
Euthanasia 143
Historicolegal Evolution 144
Ethical 147
Voluntarily Stopping Eating and Drinking 152
Clinical 153
Ethical 154
Contents j ix
Relationship of Withdrawing and Withholding
Summary Points ^6
6. Forgoing Life-Sustaining Medical Treatment 160
Respiratory -*65
Compassionate Extubation of the Alert Patient 166
Compassionate Extubation of the Paralyzed Patient 168
Cardiac 170
Case Study 174
Return to the Case *74
Renal 179
Case Study
Return to the Case 189
Nutrition and Hydration *****
Enteral
Parenteral *^7
Summary Points * 92
7. Pain and Symptom Management at the End of Life 195
Case Study 29-*
Historicolegal Background 293
Clinical 29^
Ethical 29**
Rule of Double Effect 29**
Patient or Surrogate Refusal of Symptom Management ??
Justice Concerns ^14
Return to the Case 2***
Summary Points 22 ^
8. Physician-Assisted Dying 229
Case Study 22^
Terminology 22 ^
Historicolegal Background 223
Global Perspective 22^
Clinical 2***
Ethical 232
Arguments in Favor of PAD 234
Arguments Against PAD 234
Conclusions ^38
Return to the Case 2^2
Summary Points 2^
9. Palliative Sedation 2 *6
Case Study 2^*
Historical Background 2^*
251
x | Contents
Legal and Professional 253
Clinical 254
Ethical 256
Minimum Requirements 256
Inability to Participate in Decision-Making 258
The Quality of an Unconscious Life 259
Impact on Life Expectancy 260
Return to the Case 265
Special Considerations 265
Palliative Sedation for Existential Distress 265
Pediatric Implications 268
Risk of Heightened Suffering 269
Summary Points 270
SECTION iv Pediatric Ethics and Palliative Care
10. Overview of Pediatric Ethics and Palliative Care 277
Differences between Pediatric and Adult Palliative Care 278
Distinct Diagnoses 278
Trajectory and Nature of Illness 279
Unique Aspects of Treatment of Children 279
Unique Social Contexts and Constructs 280
Children Aren’t Supposed to Die 281
End-of-Life Decision-Making in Pediatrics 281
Differences between Pediatric Ethics and Adult Ethics 283
In General, the Patient Is Not the Decision-Maker 283
The Decision-Maker Is Not Chosen by the Patient 284
Best Interest Standard 285
The Decision-Maker May Have Specific Divided Loyalties 287
The Clinical Relationship Is a Triad 287
Summary Points 288
11. Ethics of Prenatal Palliative Care 291
Case Study 291
Historicolegal Background 292
Clinical 293
Ethical 294
Invasive Testing 294
Continue or Terminate the Pregnancy? 295
Caesarian Section 296
Terminalogy 298
Perinatal Hospice 299
Return to the Case 300
Summary Points 301
Contents | xi
12. Ethics of Neonatal Palliative Care 305
Case Study 305
Historicolegal Background 305
Clinical 310
Ethical 312
Prognostic Accuracy and Communication of Information 312
Window of Opportunity 317
Medically Administered Nutrition and Hydration 318
Are Newborns Treated Differently than Other Patients? 320
When Parents and Physicians Disagree 322
Groningen Protocol (Netherlands) 326
Return to the Case 328
Summary Points 329
13. Ethics of Child and Adolescent Palliative Care 335
Case Study 335
Historicolegal Background 336
Clinical 339
Ethical 342
Disclosure 342
Case, Continued 345
Refusal of Medical Treatment 346
Advance Care Planning 353
Return to the Case 355
Summary Points 355
section v Other Topics
14. Requests for Nonbeneficial Treatment 363
Case Study 363
Historicolegal Background 364
Clinical 368
Ethical 372
The Special Case of CPR 378
Return to the Case 384
Summary Points 384
15. Neuropalliative Care 391
Clinical 391
Dementia 394
Case Study 394
Prior Advance Directives 395
Spoon-Feeding 399
xii | Contents
Medically Administered Nutrition and Hydration in Dementia 401
Return to the Case 403
Disorders of Consciousness 404
Case Study 404
Return to the Case 408
Amyotrophic Lateral Sclerosis 408
Case Study 408
Return to the Case 410
Acute Spinal Cord Injury 411
Case Study 411
Return to the Case 414
Stroke 414
Case Study 414
Return to the Case 417
Summary Points 418
16. Death and Organ Donation 425
Case Study 425
Historicolegal Background 425
Clinical 429
Death by Neurologic Criteria 429
Death by Circulatory Criteria 430
Ethical 431
Death by Neurologic Criteria 431
Death by Circulatory Criteria 439
Return to the Case 444
Summary Points 445
17. Research in Palliative Care 449
Case Study 449
Historicolegal Background 449
Clinical 451
Ethical 454
Informed Consent 454
Scientific and Social Value 456
Fair Selection 457
Risk/Benefit Ratio 458
The Limits of Evidence-Based Medicine 460
Clinical Trials and Hospice Enrollment 463
The Ethics of Compassionate Use 464
Return to the Case 467
Summary Points 468
Contents | xiii
18. Clinical Practice of Palliative Care 475
Role of Communication in Palliative Care 476
Case Study 476
Historicolegal Evolution 476
Disclosure 478
Return to the Case 481
Role of Culture in Palliative Care 481
Case Study 481
Communication of Prognosis 483
Locus of Decision-Making 484
Attitudes toward End-of-Life Care and Advance Care Planning 486
Return to the Case 488
Role of Spirituality in Palliative Care 488
Case Study 488
Miracles 490
Religious “Mandates” for Continuing Life Sustaining
Medical Treatment 494
Concepts of Suffering 496
Return to the Case 498
Summary Points 499
19. Final Thoughts 505
Access to Palliative Care 506
In the Developed World 507
In the Developing World 511
Maintaining Highly Functioning Teams 512
Moral Distress 514
Frequently Used Abbreviations 523
Glossary 525
Legal Cases 529
Index 531
|
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| publisher | Oxford University Press |
| record_format | marc |
| spelling | Macauley, Robert C. Verfasser aut Ethics in palliative care a complete guide Robert C. Macauley New York, NY Oxford University Press [2018] xx, 548 Seiten Illustrationen, Diagramme txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references and index Palliative Care Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Palliativpflege (DE-588)7730204-7 gnd rswk-swf Palliativmedizin (DE-588)7730202-3 gnd rswk-swf Sterbebegleitung (DE-588)4466515-5 gnd rswk-swf Christliche Ethik (DE-588)4069994-8 gnd rswk-swf Sterbehilfe (DE-588)4077877-0 gnd rswk-swf Hospizbewegung (DE-588)4212785-3 gnd rswk-swf Palliativpflege (DE-588)7730204-7 s Sterbebegleitung (DE-588)4466515-5 s Medizinische Ethik (DE-588)4074672-0 s Christliche Ethik (DE-588)4069994-8 s DE-604 Palliativmedizin (DE-588)7730202-3 s Sterbehilfe (DE-588)4077877-0 s Hospizbewegung (DE-588)4212785-3 s Erscheint auch als Online-Ausgabe, PDF 978-0-19-065233-3 Erscheint auch als Online-Ausgabe, EPUB 978-0-19-065234-0 LoC Fremddatenuebernahme application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Macauley, Robert C. Ethics in palliative care a complete guide Palliative Care Medizinische Ethik (DE-588)4074672-0 gnd Palliativpflege (DE-588)7730204-7 gnd Palliativmedizin (DE-588)7730202-3 gnd Sterbebegleitung (DE-588)4466515-5 gnd Christliche Ethik (DE-588)4069994-8 gnd Sterbehilfe (DE-588)4077877-0 gnd Hospizbewegung (DE-588)4212785-3 gnd |
| subject_GND | (DE-588)4074672-0 (DE-588)7730204-7 (DE-588)7730202-3 (DE-588)4466515-5 (DE-588)4069994-8 (DE-588)4077877-0 (DE-588)4212785-3 |
| title | Ethics in palliative care a complete guide |
| title_auth | Ethics in palliative care a complete guide |
| title_exact_search | Ethics in palliative care a complete guide |
| title_full | Ethics in palliative care a complete guide Robert C. Macauley |
| title_fullStr | Ethics in palliative care a complete guide Robert C. Macauley |
| title_full_unstemmed | Ethics in palliative care a complete guide Robert C. Macauley |
| title_short | Ethics in palliative care |
| title_sort | ethics in palliative care a complete guide |
| title_sub | a complete guide |
| topic | Palliative Care Medizinische Ethik (DE-588)4074672-0 gnd Palliativpflege (DE-588)7730204-7 gnd Palliativmedizin (DE-588)7730202-3 gnd Sterbebegleitung (DE-588)4466515-5 gnd Christliche Ethik (DE-588)4069994-8 gnd Sterbehilfe (DE-588)4077877-0 gnd Hospizbewegung (DE-588)4212785-3 gnd |
| topic_facet | Palliative Care Medizinische Ethik Palliativpflege Palliativmedizin Sterbebegleitung Christliche Ethik Sterbehilfe Hospizbewegung |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT macauleyrobertc ethicsinpalliativecareacompleteguide |
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