Verfügbarkeit: Ethics in palliative care

Ethics in palliative care: a complete guide

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Bibliographische Detailangaben
1. Verfasser:	Macauley, Robert C. (VerfasserIn)
Format:	Buch
Sprache:	English
Veröffentlicht:	New York, NY Oxford University Press [2018]
Schlagworte:	Palliative Care Medizinische Ethik Palliativpflege Palliativmedizin Sterbebegleitung Christliche Ethik Sterbehilfe Hospizbewegung
Online-Zugang:	Inhaltsverzeichnis Inhaltsverzeichnis
Beschreibung:	Includes bibliographical references and index
Beschreibung:	xx, 548 Seiten Illustrationen, Diagramme
ISBN:	9780199313945

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Datensatz im Suchindex

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adam_text	ETHICS IN PALLIATIVE CARE / MACAULEY, ROBERT C.YYEAUTHOR : 2018 TABLE OF CONTENTS / INHALTSVERZEICHNIS ETHICS AND PALLIATIVE CARE OVERVIEW OF ETHICAL APPROACHES ADVANCE CARE PLANNING AND SURROGATE DECISION MAKING SPECIFIC ETHICAL ISSUES AT THE END OF LIFE THE RIGHT TO DIE FORGOING LIFE-SUSTAINING MEDICAL TREATMENT PAIN AND SYMPTOM MANAGEMENT AT THE END OF LIFE PHYSICIAN ASSISTED DEATH PALLIATIVE SEDATION OVERVIEW OF PEDIATRIC ETHICS AND PALLIATIVE CARE ETHICS OF PRENATAL PALLIATIVE CARE NEONATAL ETHICS OF CHILD AND ADOLESCENT PALLIATIVE CARE REQUESTS FOR NON-BENEFICIAL TREATMENT NEURO-PALLIATIVE CARE DEATH AND ORGAN DONATION RESEARCH IN PALLIATIVE CARE FINAL THOUGHTS DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT. Contents Preface xv Acknowledgments xix section I Overview and Introduction 1. Ethics and Palliative Care 3 Evolution of the Fields 4 Ethics 4 Palliative Care 12 Relationship of Ethics and Palliative Care 16 Summary Points 19 2. Overview of Ethical Approaches 25 Clarify and Classify the Dilemma 28 Review Existing Information 29 Acquire Additional Relevant Information 31 Analyze the Ethical Issue 32 Relevant Legal and Professional Considerations 34 Formulate Response» Consider Criticisms, and Identify Lessons Learned 42 Next Steps in the Absence of Resolution 43 Conclusion 45 Summary Points 45 section II Ethical Issues in Determining the Plan of Care 3. Advance Care Planning and Surrogate Decision-Making 53 Hierarchy of Ethical Decision-Making 54 viii j Contents Autonomy 54 Substituted Judgment 61 Best Interests 67 Advance Care Planning 70 Treatment Directives 72 Proxy Directives 77 POLST Paradigm 78 Prognostication 84 Accuracy 85 Communication 87 Application 89 Summary Points 90 4. Specific Ethical Issues at the End of Life 101 Determining Code Status 101 Case Study 101 Terminology 103 How to Determine Code Status 107 Code Status in the Operating Room 111 Return to the Case 113 Patients Who Want “Everything” 114 Case Study 114 Time-Limited Trials 118 No Escalation of Treatment 120 Return to the Case 122 Overriding Patient Refusal 123 Case Study 123 Return to the Case 126 Summary Points 127 section in Death and Dying 5. The “Right to Die” 135 Gradual Acceptance of a Right to Die 136 Forgoing LSMT 137 Intensive Symptom Management 140 Physician-Assisted Dying 142 Euthanasia 143 Historicolegal Evolution 144 Ethical 147 Voluntarily Stopping Eating and Drinking 152 Clinical 153 Ethical 154 Contents j ix Relationship of Withdrawing and Withholding Summary Points ^6 6. Forgoing Life-Sustaining Medical Treatment 160 Respiratory -65 Compassionate Extubation of the Alert Patient 166 Compassionate Extubation of the Paralyzed Patient 168 Cardiac 170 Case Study 174 Return to the Case 74 Renal 179 Case Study Return to the Case 189 Nutrition and Hydration ***** Enteral Parenteral ^7 Summary Points 92 7. Pain and Symptom Management at the End of Life 195 Case Study 29-* Historicolegal Background 293 Clinical 29^ Ethical 29 Rule of Double Effect 29 Patient or Surrogate Refusal of Symptom Management ?? Justice Concerns ^14 Return to the Case 2* Summary Points 22 ^ 8. Physician-Assisted Dying 229 Case Study 22^ Terminology 22 ^ Historicolegal Background 223 Global Perspective 22^ Clinical 2* Ethical 232 Arguments in Favor of PAD 234 Arguments Against PAD 234 Conclusions ^38 Return to the Case 2^2 Summary Points 2^ 9. Palliative Sedation 2 6 Case Study 2^ Historical Background 2^* 251 x \| Contents Legal and Professional 253 Clinical 254 Ethical 256 Minimum Requirements 256 Inability to Participate in Decision-Making 258 The Quality of an Unconscious Life 259 Impact on Life Expectancy 260 Return to the Case 265 Special Considerations 265 Palliative Sedation for Existential Distress 265 Pediatric Implications 268 Risk of Heightened Suffering 269 Summary Points 270 SECTION iv Pediatric Ethics and Palliative Care 10. Overview of Pediatric Ethics and Palliative Care 277 Differences between Pediatric and Adult Palliative Care 278 Distinct Diagnoses 278 Trajectory and Nature of Illness 279 Unique Aspects of Treatment of Children 279 Unique Social Contexts and Constructs 280 Children Aren’t Supposed to Die 281 End-of-Life Decision-Making in Pediatrics 281 Differences between Pediatric Ethics and Adult Ethics 283 In General, the Patient Is Not the Decision-Maker 283 The Decision-Maker Is Not Chosen by the Patient 284 Best Interest Standard 285 The Decision-Maker May Have Specific Divided Loyalties 287 The Clinical Relationship Is a Triad 287 Summary Points 288 11. Ethics of Prenatal Palliative Care 291 Case Study 291 Historicolegal Background 292 Clinical 293 Ethical 294 Invasive Testing 294 Continue or Terminate the Pregnancy? 295 Caesarian Section 296 Terminalogy 298 Perinatal Hospice 299 Return to the Case 300 Summary Points 301 Contents \| xi 12. Ethics of Neonatal Palliative Care 305 Case Study 305 Historicolegal Background 305 Clinical 310 Ethical 312 Prognostic Accuracy and Communication of Information 312 Window of Opportunity 317 Medically Administered Nutrition and Hydration 318 Are Newborns Treated Differently than Other Patients? 320 When Parents and Physicians Disagree 322 Groningen Protocol (Netherlands) 326 Return to the Case 328 Summary Points 329 13. Ethics of Child and Adolescent Palliative Care 335 Case Study 335 Historicolegal Background 336 Clinical 339 Ethical 342 Disclosure 342 Case, Continued 345 Refusal of Medical Treatment 346 Advance Care Planning 353 Return to the Case 355 Summary Points 355 section v Other Topics 14. Requests for Nonbeneficial Treatment 363 Case Study 363 Historicolegal Background 364 Clinical 368 Ethical 372 The Special Case of CPR 378 Return to the Case 384 Summary Points 384 15. Neuropalliative Care 391 Clinical 391 Dementia 394 Case Study 394 Prior Advance Directives 395 Spoon-Feeding 399 xii \| Contents Medically Administered Nutrition and Hydration in Dementia 401 Return to the Case 403 Disorders of Consciousness 404 Case Study 404 Return to the Case 408 Amyotrophic Lateral Sclerosis 408 Case Study 408 Return to the Case 410 Acute Spinal Cord Injury 411 Case Study 411 Return to the Case 414 Stroke 414 Case Study 414 Return to the Case 417 Summary Points 418 16. Death and Organ Donation 425 Case Study 425 Historicolegal Background 425 Clinical 429 Death by Neurologic Criteria 429 Death by Circulatory Criteria 430 Ethical 431 Death by Neurologic Criteria 431 Death by Circulatory Criteria 439 Return to the Case 444 Summary Points 445 17. Research in Palliative Care 449 Case Study 449 Historicolegal Background 449 Clinical 451 Ethical 454 Informed Consent 454 Scientific and Social Value 456 Fair Selection 457 Risk/Benefit Ratio 458 The Limits of Evidence-Based Medicine 460 Clinical Trials and Hospice Enrollment 463 The Ethics of Compassionate Use 464 Return to the Case 467 Summary Points 468 Contents \| xiii 18. Clinical Practice of Palliative Care 475 Role of Communication in Palliative Care 476 Case Study 476 Historicolegal Evolution 476 Disclosure 478 Return to the Case 481 Role of Culture in Palliative Care 481 Case Study 481 Communication of Prognosis 483 Locus of Decision-Making 484 Attitudes toward End-of-Life Care and Advance Care Planning 486 Return to the Case 488 Role of Spirituality in Palliative Care 488 Case Study 488 Miracles 490 Religious “Mandates” for Continuing Life Sustaining Medical Treatment 494 Concepts of Suffering 496 Return to the Case 498 Summary Points 499 19. Final Thoughts 505 Access to Palliative Care 506 In the Developed World 507 In the Developing World 511 Maintaining Highly Functioning Teams 512 Moral Distress 514 Frequently Used Abbreviations 523 Glossary 525 Legal Cases 529 Index 531
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title	Ethics in palliative care a complete guide
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title_full	Ethics in palliative care a complete guide Robert C. Macauley
title_fullStr	Ethics in palliative care a complete guide Robert C. Macauley
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title_sort	ethics in palliative care a complete guide
title_sub	a complete guide
topic	Palliative Care Medizinische Ethik (DE-588)4074672-0 gnd Palliativpflege (DE-588)7730204-7 gnd Palliativmedizin (DE-588)7730202-3 gnd Sterbebegleitung (DE-588)4466515-5 gnd Christliche Ethik (DE-588)4069994-8 gnd Sterbehilfe (DE-588)4077877-0 gnd Hospizbewegung (DE-588)4212785-3 gnd
topic_facet	Palliative Care Medizinische Ethik Palliativpflege Palliativmedizin Sterbebegleitung Christliche Ethik Sterbehilfe Hospizbewegung
url	http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030473759&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA
work_keys_str_mv	AT macauleyrobertc ethicsinpalliativecareacompleteguide

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