Solidarity in biomedicine and beyond:
Gespeichert in:
| Hauptverfasser: | , |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Cambridge ; New York ; Melbourne ; Delhi ; Singapore
Cambridge University Press
2017
|
| Schriftenreihe: | Cambridge bioethics and law
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Inhaltsverzeichnis Klappentext |
| Beschreibung: | Hier auch später erschienene, unveränderte Nachdrucke |
| Beschreibung: | xiv, 231 Seiten Illustrationen cm |
| ISBN: | 9781107074248 9781107424784 |
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Datensatz im Suchindex
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|---|---|
| adam_text | SOLIDARITY IN BIOMEDICINE AND BEYOND
/ PRAINSACK, BARBARAYYEAUTHOR
: 2016
TABLE OF CONTENTS / INHALTSVERZEICHNIS
SOLIDARITY : A BRIEF HISTORY OF A CONCEPT, AND A PROJECT
SOLIDARITY : INTELLECTUAL BACKGROUND AND IMPORTANT THEMES
WHAT IS SOLIDARITY?
SOLIDARITY - NORMATIVE APPROACHES
SOLIDARITY IN PRACTICE I : GOVERNING HEALTH DATABASES
SOLIDARITY IN PRACTICE II : PERSONALISED MEDICINE AND HEALTH CARE
SOLIDARITY AND ORGAN DONATION
SOLIDARITY WITH WHOM? CONCLUSIONS AND WAYS FORWARD
DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT.
CONTENTS
Foreword page xi
Hugh Whittall
1 Solidarity: A Brief History of A Concept and A Project 1
1.1 Introduction 1
1.2 A Concise Overview of the History of Solidarity 2
1.3 Why Solidarity? Our Previous Work on Solidarity for the
Nuffield Council on Bioethics 4
1.4 Solidarity as an Emerging Concept in Recent Bioethical Writing 6
1.5 Looking Ahead: Our Working Definition of Solidarity
and Three Case Studies 9
1.6 Overview of this Book: Solidarity, Theory and Practice 10
PART I Theorising Solidarity
2 Solidarity: Intellectual Background and Important
Themes 19
2.1 Introduction 19
2.2 Some Early Sociological Work on Solidarity 19
2.3 Solidarity-Related Themes in Recent and Contemporary
Social and Political Thought 23
2.4 Individuals, Community and the Self: Solidarity
and Communitarianism 24
2.5 Relational Subjectivity, the Ethics of Care and the Role
of Difference: Precursors of, and Influences from Feminist
and Postmodern Scholarship 30
2.6 Solidarity and Rational Choice 33
2.7 Inequalities, the Welfare State and Contractual Solidarity 34
2.8 Nation States and Global Solidarity 36
2.9 Inclusion, Exclusion and Conflict: Agonistic Solidarity 39
2.10 Conclusion 41
3 What is Solidarity? 43
3.1 Introduction 43
3.2 Solidarity as Practice 44
3.3 Personhood as a Relational Concept 48
vii
viii
CONTENTS
3.4 Our Working Definition of Solidarity 52
3.5 Three Tiers of Solidarity 54
3.6 Distinctions and Clarifications 57
3.7 Responses to Our Definition and Critique of Our Approach 62
3.8 Some Political Implications of Our Understanding of Solidarity 70
3.9 Conclusion 71
4 Solidarity: Normative Approaches 73
4.1 Introduction 73
4.2 Solidarity: Descriptive and Crypto-Normative Usage 73
4.3 Solidarity and Normativity 75
4.4 From Axiological to Deontic: The Normativity of Our
Understanding of Solidarity 77
4.5 Normative Solidarity: Three Approaches 80
4.6 Conclusions 93
PART II Solidarity in Practice
5 Solidarity in Practice I: Governing Health Databases 97
5.1 Introduction 97
5.2 Power of Big Data 99
5.3 What Databases are Suitable for Solidarity-Based
Governance? 102
5.4 Our Approach: Solidarity-Based Databank Governance 106
5.5 Distinguishing Features of a Solidarity-Based Database Model 109
5.6 Implications of a Solidarity-Based Approach for Consent
and Returning Findings 113
5.7 Solidarity and Autonomy as Guiding Principles in Health
D atabase Governance 118
5.8 Harm Mitigation and a Focus on‘Fixing the System’ 120
5.9 Conclusion 122
6 Solidarity in Practice II: Personalised Medicine
and Healthcare 123
6.1 Introduction 123
6.2 The Changing Meaning of Difference in Medicine 126
6.3 Personalised Solidaristic Medicine and Healthcare: Four
Examples 129
6.4 Conclusion 142
7 Solidarity and Organ Donation 145
7.1 Introduction 145
7.2 Solidarity and Organ Donation 147
7.3 Live Organ Donation between Strangers: Inter-personal Practice
of Solidarity? 149
CONTENTS
7.4 Donor Clubs and Priority to Donors: Group-based
Solidarity? 156
7.5 Opt-Out Consent to Deceased Organ Donation: An Instance
of Contractual Solidarity? 162
7.6 Conclusions 165
PART III Conclusions
8 Solidarity with Whom? Conclusions and Ways
Forward 169
8.1 Introduction 169
8.2 Solidarity in Biomedical Practice and Policy 170
8.3 Beyond Biomedicine: Theoretical Upshots and Conclusions
8.4 Solidarity with Whom? Conclusions and Recommendations
Afterword 187
Graeme Laurie
Bibliography 193
Index 225
SOLIDARITY IN
BIOMEDICINE AND BEYOND
In times of global economic and political crises, the notion of solidarity is
gaining new currency. This book argues that a solidarity-based perspective
can help us to find new ways to address pressing problems. Exemplified by
three cases studies from the field of biomedicine: databases for health and
disease research, personalised healthcare and organ donation, it explores
how solidarity can make a difference in how we frame problems, and in the
policy solutions that we can offer.
|
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| spelling | Prainsack, Barbara 1975- Verfasser (DE-588)133571939 aut Solidarity in biomedicine and beyond Barbara Prainsack (King's College London, UK), Alena Buyx (University of Kiel, Germany) Cambridge ; New York ; Melbourne ; Delhi ; Singapore Cambridge University Press 2017 xiv, 231 Seiten Illustrationen cm txt rdacontent n rdamedia nc rdacarrier Cambridge bioethics and law Hier auch später erschienene, unveränderte Nachdrucke Biomedical Research Cooperative Behavior Group Processes Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Solidarität (DE-588)4055429-6 gnd rswk-swf Biomedizin (DE-588)4647152-2 gnd rswk-swf Biomedizin (DE-588)4647152-2 s Medizinische Ethik (DE-588)4074672-0 s Solidarität (DE-588)4055429-6 s DE-604 Buyx, Alena 1977- Verfasser (DE-588)130408387 aut LoC Fremddatenuebernahme application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030324461&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030324461&sequence=000005&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Augsburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030324461&sequence=000006&line_number=0003&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
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| title | Solidarity in biomedicine and beyond |
| title_auth | Solidarity in biomedicine and beyond |
| title_exact_search | Solidarity in biomedicine and beyond |
| title_full | Solidarity in biomedicine and beyond Barbara Prainsack (King's College London, UK), Alena Buyx (University of Kiel, Germany) |
| title_fullStr | Solidarity in biomedicine and beyond Barbara Prainsack (King's College London, UK), Alena Buyx (University of Kiel, Germany) |
| title_full_unstemmed | Solidarity in biomedicine and beyond Barbara Prainsack (King's College London, UK), Alena Buyx (University of Kiel, Germany) |
| title_short | Solidarity in biomedicine and beyond |
| title_sort | solidarity in biomedicine and beyond |
| topic | Biomedical Research Cooperative Behavior Group Processes Medizinische Ethik (DE-588)4074672-0 gnd Solidarität (DE-588)4055429-6 gnd Biomedizin (DE-588)4647152-2 gnd |
| topic_facet | Biomedical Research Cooperative Behavior Group Processes Medizinische Ethik Solidarität Biomedizin |
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