Quality of life measurement in neurodegenerative and related conditions:
Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such...
Gespeichert in:
| Weitere Verfasser: | , , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2011
|
| Schlagworte: | |
| Online-Zugang: | BSB01 FHN01 URL des Erstveröffentlichers |
| Zusammenfassung: | Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology |
| Beschreibung: | Title from publisher's bibliographic system (viewed on 05 Oct 2015) |
| Beschreibung: | 1 online resource (xii, 194 pages) |
| ISBN: | 9780511975363 |
| DOI: | 10.1017/CBO9780511975363 |
Internformat
MARC
| LEADER | 00000nmm a2200000zc 4500 | ||
|---|---|---|---|
| 001 | BV043942533 | ||
| 003 | DE-604 | ||
| 005 | 00000000000000.0 | ||
| 007 | cr|uuu---uuuuu | ||
| 008 | 161206s2011 |||| o||u| ||||||eng d | ||
| 020 | |a 9780511975363 |c Online |9 978-0-511-97536-3 | ||
| 024 | 7 | |a 10.1017/CBO9780511975363 |2 doi | |
| 035 | |a (ZDB-20-CBO)CR9780511975363 | ||
| 035 | |a (OCoLC)874190900 | ||
| 035 | |a (DE-599)BVBBV043942533 | ||
| 040 | |a DE-604 |b ger |e rda | ||
| 041 | 0 | |a eng | |
| 049 | |a DE-12 |a DE-92 | ||
| 082 | 0 | |a 616.8/0471 |2 22 | |
| 245 | 1 | 0 | |a Quality of life measurement in neurodegenerative and related conditions |c edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg |
| 246 | 1 | 3 | |a Quality of Life Measurement in Neurodegenerative & Related Conditions |
| 264 | 1 | |a Cambridge |b Cambridge University Press |c 2011 | |
| 300 | |a 1 online resource (xii, 194 pages) | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b c |2 rdamedia | ||
| 338 | |b cr |2 rdacarrier | ||
| 500 | |a Title from publisher's bibliographic system (viewed on 05 Oct 2015) | ||
| 505 | 8 | |a Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders | |
| 520 | |a Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology | ||
| 650 | 4 | |a Nervous system / Degeneration / Patients / Rehabilitation | |
| 650 | 4 | |a Outcome assessment (Medical care) | |
| 650 | 4 | |a Quality of life / Measurement | |
| 700 | 1 | |a Jenkinson, Crispin |d 1962- |4 edt | |
| 700 | 1 | |a Peters, Michele |4 edt | |
| 700 | 1 | |a Bromberg, M. B. |4 edt | |
| 776 | 0 | 8 | |i Erscheint auch als |n Druckausgabe |z 978-0-521-82901-4 |
| 856 | 4 | 0 | |u https://doi.org/10.1017/CBO9780511975363 |x Verlag |z URL des Erstveröffentlichers |3 Volltext |
| 912 | |a ZDB-20-CBO | ||
| 999 | |a oai:aleph.bib-bvb.de:BVB01-029351503 | ||
| 966 | e | |u https://doi.org/10.1017/CBO9780511975363 |l BSB01 |p ZDB-20-CBO |q BSB_PDA_CBO |x Verlag |3 Volltext | |
| 966 | e | |u https://doi.org/10.1017/CBO9780511975363 |l FHN01 |p ZDB-20-CBO |q FHN_PDA_CBO |x Verlag |3 Volltext | |
Datensatz im Suchindex
| _version_ | 1804176885458927616 |
|---|---|
| any_adam_object | |
| author2 | Jenkinson, Crispin 1962- Peters, Michele Bromberg, M. B. |
| author2_role | edt edt edt |
| author2_variant | c j cj m p mp m b b mb mbb |
| author_facet | Jenkinson, Crispin 1962- Peters, Michele Bromberg, M. B. |
| building | Verbundindex |
| bvnumber | BV043942533 |
| collection | ZDB-20-CBO |
| contents | Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders |
| ctrlnum | (ZDB-20-CBO)CR9780511975363 (OCoLC)874190900 (DE-599)BVBBV043942533 |
| dewey-full | 616.8/0471 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 616 - Diseases |
| dewey-raw | 616.8/0471 |
| dewey-search | 616.8/0471 |
| dewey-sort | 3616.8 3471 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| doi_str_mv | 10.1017/CBO9780511975363 |
| format | Electronic eBook |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>03977nmm a2200457zc 4500</leader><controlfield tag="001">BV043942533</controlfield><controlfield tag="003">DE-604</controlfield><controlfield tag="005">00000000000000.0</controlfield><controlfield tag="007">cr|uuu---uuuuu</controlfield><controlfield tag="008">161206s2011 |||| o||u| ||||||eng d</controlfield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9780511975363</subfield><subfield code="c">Online</subfield><subfield code="9">978-0-511-97536-3</subfield></datafield><datafield tag="024" ind1="7" ind2=" "><subfield code="a">10.1017/CBO9780511975363</subfield><subfield code="2">doi</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(ZDB-20-CBO)CR9780511975363</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)874190900</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)BVBBV043942533</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-604</subfield><subfield code="b">ger</subfield><subfield code="e">rda</subfield></datafield><datafield tag="041" ind1="0" ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-12</subfield><subfield code="a">DE-92</subfield></datafield><datafield tag="082" ind1="0" ind2=" "><subfield code="a">616.8/0471</subfield><subfield code="2">22</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">Quality of life measurement in neurodegenerative and related conditions</subfield><subfield code="c">edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg</subfield></datafield><datafield tag="246" ind1="1" ind2="3"><subfield code="a">Quality of Life Measurement in Neurodegenerative & Related Conditions</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Cambridge</subfield><subfield code="b">Cambridge University Press</subfield><subfield code="c">2011</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 online resource (xii, 194 pages)</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="500" ind1=" " ind2=" "><subfield code="a">Title from publisher's bibliographic system (viewed on 05 Oct 2015)</subfield></datafield><datafield tag="505" ind1="8" ind2=" "><subfield code="a">Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders</subfield></datafield><datafield tag="520" ind1=" " ind2=" "><subfield code="a">Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Nervous system / Degeneration / Patients / Rehabilitation</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Outcome assessment (Medical care)</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Quality of life / Measurement</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Jenkinson, Crispin</subfield><subfield code="d">1962-</subfield><subfield code="4">edt</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Peters, Michele</subfield><subfield code="4">edt</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Bromberg, M. B.</subfield><subfield code="4">edt</subfield></datafield><datafield tag="776" ind1="0" ind2="8"><subfield code="i">Erscheint auch als</subfield><subfield code="n">Druckausgabe</subfield><subfield code="z">978-0-521-82901-4</subfield></datafield><datafield tag="856" ind1="4" ind2="0"><subfield code="u">https://doi.org/10.1017/CBO9780511975363</subfield><subfield code="x">Verlag</subfield><subfield code="z">URL des Erstveröffentlichers</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ZDB-20-CBO</subfield></datafield><datafield tag="999" ind1=" " ind2=" "><subfield code="a">oai:aleph.bib-bvb.de:BVB01-029351503</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://doi.org/10.1017/CBO9780511975363</subfield><subfield code="l">BSB01</subfield><subfield code="p">ZDB-20-CBO</subfield><subfield code="q">BSB_PDA_CBO</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield><datafield tag="966" ind1="e" ind2=" "><subfield code="u">https://doi.org/10.1017/CBO9780511975363</subfield><subfield code="l">FHN01</subfield><subfield code="p">ZDB-20-CBO</subfield><subfield code="q">FHN_PDA_CBO</subfield><subfield code="x">Verlag</subfield><subfield code="3">Volltext</subfield></datafield></record></collection> |
| id | DE-604.BV043942533 |
| illustrated | Not Illustrated |
| indexdate | 2024-07-10T07:39:17Z |
| institution | BVB |
| isbn | 9780511975363 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-029351503 |
| oclc_num | 874190900 |
| open_access_boolean | |
| owner | DE-12 DE-92 |
| owner_facet | DE-12 DE-92 |
| physical | 1 online resource (xii, 194 pages) |
| psigel | ZDB-20-CBO ZDB-20-CBO BSB_PDA_CBO ZDB-20-CBO FHN_PDA_CBO |
| publishDate | 2011 |
| publishDateSearch | 2011 |
| publishDateSort | 2011 |
| publisher | Cambridge University Press |
| record_format | marc |
| spelling | Quality of life measurement in neurodegenerative and related conditions edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg Quality of Life Measurement in Neurodegenerative & Related Conditions Cambridge Cambridge University Press 2011 1 online resource (xii, 194 pages) txt rdacontent c rdamedia cr rdacarrier Title from publisher's bibliographic system (viewed on 05 Oct 2015) Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology Nervous system / Degeneration / Patients / Rehabilitation Outcome assessment (Medical care) Quality of life / Measurement Jenkinson, Crispin 1962- edt Peters, Michele edt Bromberg, M. B. edt Erscheint auch als Druckausgabe 978-0-521-82901-4 https://doi.org/10.1017/CBO9780511975363 Verlag URL des Erstveröffentlichers Volltext |
| spellingShingle | Quality of life measurement in neurodegenerative and related conditions Aspects of methodology relevant to patient-reported outcome measures (PROMs) -- Development and validation of the Parkinson's disease questionnaire and related measures -- Multiple sclerosis impact scale (MSIS-29): initial development, subsequent revision, lessons learned -- Patient-reported outcome measurement in motor neuron disease/amyotrophic lateral sclerosis: the ALSAQ and ALSAQ-5 -- Measuring quality of life in progressive supranuclear palsy: the PSP-QoL -- Measuring quality of life in multiple system atrophy -- Health-related quality of life in Huntington's disease -- Measuring quality of life in dementia -- Condition-specific instruments to measure the quality of life (QoL) of children and adolescents with cerebral palsy (CP) -- Outcome measures for informal carers of individuals with neurodegenerative conditions -- Translating patient-reported outcome measures (PROMs) for cross-cultural studies -- Rasch analysis -- Method for inputting missing questionnaire data -- Individualized quality of life measurement in neurodegenerative disorders Nervous system / Degeneration / Patients / Rehabilitation Outcome assessment (Medical care) Quality of life / Measurement |
| title | Quality of life measurement in neurodegenerative and related conditions |
| title_alt | Quality of Life Measurement in Neurodegenerative & Related Conditions |
| title_auth | Quality of life measurement in neurodegenerative and related conditions |
| title_exact_search | Quality of life measurement in neurodegenerative and related conditions |
| title_full | Quality of life measurement in neurodegenerative and related conditions edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg |
| title_fullStr | Quality of life measurement in neurodegenerative and related conditions edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg |
| title_full_unstemmed | Quality of life measurement in neurodegenerative and related conditions edited by Crispin Jenkinson, Michele Peters, Mark B. Bromberg |
| title_short | Quality of life measurement in neurodegenerative and related conditions |
| title_sort | quality of life measurement in neurodegenerative and related conditions |
| topic | Nervous system / Degeneration / Patients / Rehabilitation Outcome assessment (Medical care) Quality of life / Measurement |
| topic_facet | Nervous system / Degeneration / Patients / Rehabilitation Outcome assessment (Medical care) Quality of life / Measurement |
| url | https://doi.org/10.1017/CBO9780511975363 |
| work_keys_str_mv | AT jenkinsoncrispin qualityoflifemeasurementinneurodegenerativeandrelatedconditions AT petersmichele qualityoflifemeasurementinneurodegenerativeandrelatedconditions AT brombergmb qualityoflifemeasurementinneurodegenerativeandrelatedconditions AT jenkinsoncrispin qualityoflifemeasurementinneurodegenerativerelatedconditions AT petersmichele qualityoflifemeasurementinneurodegenerativerelatedconditions AT brombergmb qualityoflifemeasurementinneurodegenerativerelatedconditions |