Rights come to mind: brain injury, ethics, and the struggle for consciousness
Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth fami...
Gespeichert in:
| 1. Verfasser: | |
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| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2015
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| Schlagworte: | |
| Online-Zugang: | BSB01 FHN01 Volltext Inhaltsverzeichnis |
| Zusammenfassung: | Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain. Responding to the dire care provided to these marginalized patients, after heroically being saved, Fins places society's obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy |
| Beschreibung: | Title from publisher's bibliographic system (viewed on 05 Oct 2015) |
| Beschreibung: | 1 online resource (xiv, 379 pages) |
| ISBN: | 9781139051279 |
| DOI: | 10.1017/CBO9781139051279 |
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| 520 | |a Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain. Responding to the dire care provided to these marginalized patients, after heroically being saved, Fins places society's obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy | ||
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| 650 | 4 | |a Brain damage / Patients / Mental health | |
| 650 | 4 | |a Brain damage / Patients / Rehabilitation | |
| 650 | 4 | |a Brain damage / Moral and ethical aspects | |
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Datensatz im Suchindex
| _version_ | 1804176880926982144 |
|---|---|
| adam_text | Titel: Rights come to mind
Autor: Fins, Joseph J
Jahr: 2015
Contents
Acknowledgments page xi
Introduction 1
1 Decisions 12
2 Thelnjury 16
3 Coming to Terms with Brain Injury 26
4 The Origins of the Vegetative State 35
5 A Shift since Quinlan 42
6 Maggie s Wishes 49
7 Something Happened in Arkansas 59
8 From PVS to MCS 69
9 Leaving the Hospital 83
10 Heather s Story 97
11 Neuroimaging and Neuroscience in the Public Mind 111
12 Contractures and Contradictions: Medical Necessity
and the Injured Brain 134
13 Minds, Monuments, and Moments 165
14 Heads and Hearts, Toil and Tears 179
15 What Do Families Want? 196
16 Deep Brain Stimulation in MCS 204
vn
Vlll CONTENTS
17 Mending Our Brains, Minding Our Ethics 216
18 It s Still Freedom 227
19 Maggie Is in Town 248
20 When Consciousness Becomes Prosthetic 272
21 The Rights of Mind 286
22 A Call for Advocacy 309
Epilogue 313
Notes 321
In Memoriam 355
Index 357
|
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| contents | Decisions -- The injury -- Coming to terms with brain injury -- The origins of the vegetative state -- A shift since Quinlan -- Maggie's wishes -- Something happened in Arkansas -- From PVS to MCS -- Leaving the hospital -- Heather's story -- Neuroimaging and neuroscience in the public mind -- Contractures and contradictions : medical necessity and the injured brain -- Minds, monuments, and moments -- Heads and hearts, toil and tears -- What do families want? -- Deep brain stimulation in MCS -- Mending our brains, minding our ethics -- It's still freedom -- Maggie's in town -- When consciousness becomes prosthetic -- The rights of mind -- A call for advocacy |
| ctrlnum | (ZDB-20-CBO)CR9781139051279 (OCoLC)992907747 (DE-599)BVBBV043940420 |
| dewey-full | 617.4/81044 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
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| discipline | Medizin |
| doi_str_mv | 10.1017/CBO9781139051279 |
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| spelling | Fins, Joseph Verfasser aut Rights come to mind brain injury, ethics, and the struggle for consciousness Joseph J. Fins, Weill Cornell Medical College, Cornell University Cambridge Cambridge University Press 2015 1 online resource (xiv, 379 pages) txt rdacontent c rdamedia cr rdacarrier Title from publisher's bibliographic system (viewed on 05 Oct 2015) Decisions -- The injury -- Coming to terms with brain injury -- The origins of the vegetative state -- A shift since Quinlan -- Maggie's wishes -- Something happened in Arkansas -- From PVS to MCS -- Leaving the hospital -- Heather's story -- Neuroimaging and neuroscience in the public mind -- Contractures and contradictions : medical necessity and the injured brain -- Minds, monuments, and moments -- Heads and hearts, toil and tears -- What do families want? -- Deep brain stimulation in MCS -- Mending our brains, minding our ethics -- It's still freedom -- Maggie's in town -- When consciousness becomes prosthetic -- The rights of mind -- A call for advocacy Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain. Responding to the dire care provided to these marginalized patients, after heroically being saved, Fins places society's obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy Ethik Brain damage / Patients / Mental health Brain damage / Patients / Rehabilitation Brain damage / Moral and ethical aspects Erscheint auch als Druckausgabe 978-0-521-71537-9 Erscheint auch als Druckausgabe 978-0-521-88750-2 https://doi.org/10.1017/CBO9781139051279 Verlag URL des Erstveröffentlichers Volltext HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029349390&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Fins, Joseph Rights come to mind brain injury, ethics, and the struggle for consciousness Decisions -- The injury -- Coming to terms with brain injury -- The origins of the vegetative state -- A shift since Quinlan -- Maggie's wishes -- Something happened in Arkansas -- From PVS to MCS -- Leaving the hospital -- Heather's story -- Neuroimaging and neuroscience in the public mind -- Contractures and contradictions : medical necessity and the injured brain -- Minds, monuments, and moments -- Heads and hearts, toil and tears -- What do families want? -- Deep brain stimulation in MCS -- Mending our brains, minding our ethics -- It's still freedom -- Maggie's in town -- When consciousness becomes prosthetic -- The rights of mind -- A call for advocacy Ethik Brain damage / Patients / Mental health Brain damage / Patients / Rehabilitation Brain damage / Moral and ethical aspects |
| title | Rights come to mind brain injury, ethics, and the struggle for consciousness |
| title_auth | Rights come to mind brain injury, ethics, and the struggle for consciousness |
| title_exact_search | Rights come to mind brain injury, ethics, and the struggle for consciousness |
| title_full | Rights come to mind brain injury, ethics, and the struggle for consciousness Joseph J. Fins, Weill Cornell Medical College, Cornell University |
| title_fullStr | Rights come to mind brain injury, ethics, and the struggle for consciousness Joseph J. Fins, Weill Cornell Medical College, Cornell University |
| title_full_unstemmed | Rights come to mind brain injury, ethics, and the struggle for consciousness Joseph J. Fins, Weill Cornell Medical College, Cornell University |
| title_short | Rights come to mind |
| title_sort | rights come to mind brain injury ethics and the struggle for consciousness |
| title_sub | brain injury, ethics, and the struggle for consciousness |
| topic | Ethik Brain damage / Patients / Mental health Brain damage / Patients / Rehabilitation Brain damage / Moral and ethical aspects |
| topic_facet | Ethik Brain damage / Patients / Mental health Brain damage / Patients / Rehabilitation Brain damage / Moral and ethical aspects |
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