Narrating the new predictive genetics: ethics, ethnography, and science
This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiali...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2005
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| Schriftenreihe: | Cambridge studies in society and the life sciences
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| Schlagworte: | |
| Online-Zugang: | BSB01 UBG01 Volltext |
| Zusammenfassung: | This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services |
| Beschreibung: | Title from publisher's bibliographic system (viewed on 05 Oct 2015) |
| Beschreibung: | 1 online resource (xii, 203 pages) |
| ISBN: | 9780511584183 |
| DOI: | 10.1017/CBO9780511584183 |
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| 505 | 8 | |a Thinking futures -- Approaching translocations -- Foretelling foreknowledge -- Tracing genealogies of non-disclosure -- Reproducing exclusion -- Relinquishing exclusion -- Concluding remarks | |
| 520 | |a This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services | ||
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Datensatz im Suchindex
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| author | Konrad, Monica |
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| contents | Thinking futures -- Approaching translocations -- Foretelling foreknowledge -- Tracing genealogies of non-disclosure -- Reproducing exclusion -- Relinquishing exclusion -- Concluding remarks |
| ctrlnum | (ZDB-20-CBO)CR9780511584183 (OCoLC)967408683 (DE-599)BVBBV043922168 |
| dewey-full | 616/.042 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 616 - Diseases |
| dewey-raw | 616/.042 |
| dewey-search | 616/.042 |
| dewey-sort | 3616 242 |
| dewey-tens | 610 - Medicine and health |
| discipline | Soziologie Medizin Sozial-/Kulturanthropologie / Empirische Kulturwissenschaft |
| doi_str_mv | 10.1017/CBO9780511584183 |
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| illustrated | Not Illustrated |
| indexdate | 2024-07-10T07:38:39Z |
| institution | BVB |
| isbn | 9780511584183 |
| language | English |
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| oclc_num | 967408683 |
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| physical | 1 online resource (xii, 203 pages) |
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| publishDate | 2005 |
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| series2 | Cambridge studies in society and the life sciences |
| spelling | Konrad, Monica Verfasser aut Narrating the new predictive genetics ethics, ethnography, and science Monica Konrad Cambridge Cambridge University Press 2005 1 online resource (xii, 203 pages) txt rdacontent c rdamedia cr rdacarrier Cambridge studies in society and the life sciences Title from publisher's bibliographic system (viewed on 05 Oct 2015) Thinking futures -- Approaching translocations -- Foretelling foreknowledge -- Tracing genealogies of non-disclosure -- Reproducing exclusion -- Relinquishing exclusion -- Concluding remarks This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services Ethik Gesellschaft Human chromosome abnormalities / Diagnosis / Social aspects Human chromosome abnormalities / Diagnosis / Moral and ethical aspects Sozialethik (DE-588)4055765-0 gnd rswk-swf Genanalyse (DE-588)4200230-8 gnd rswk-swf Genanalyse (DE-588)4200230-8 s Sozialethik (DE-588)4055765-0 s 1\p DE-604 Erscheint auch als Druckausgabe 978-0-521-54066-7 Erscheint auch als Druckausgabe 978-0-521-83314-1 https://doi.org/10.1017/CBO9780511584183 Verlag URL des Erstveröffentlichers Volltext 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | Konrad, Monica Narrating the new predictive genetics ethics, ethnography, and science Thinking futures -- Approaching translocations -- Foretelling foreknowledge -- Tracing genealogies of non-disclosure -- Reproducing exclusion -- Relinquishing exclusion -- Concluding remarks Ethik Gesellschaft Human chromosome abnormalities / Diagnosis / Social aspects Human chromosome abnormalities / Diagnosis / Moral and ethical aspects Sozialethik (DE-588)4055765-0 gnd Genanalyse (DE-588)4200230-8 gnd |
| subject_GND | (DE-588)4055765-0 (DE-588)4200230-8 |
| title | Narrating the new predictive genetics ethics, ethnography, and science |
| title_auth | Narrating the new predictive genetics ethics, ethnography, and science |
| title_exact_search | Narrating the new predictive genetics ethics, ethnography, and science |
| title_full | Narrating the new predictive genetics ethics, ethnography, and science Monica Konrad |
| title_fullStr | Narrating the new predictive genetics ethics, ethnography, and science Monica Konrad |
| title_full_unstemmed | Narrating the new predictive genetics ethics, ethnography, and science Monica Konrad |
| title_short | Narrating the new predictive genetics |
| title_sort | narrating the new predictive genetics ethics ethnography and science |
| title_sub | ethics, ethnography, and science |
| topic | Ethik Gesellschaft Human chromosome abnormalities / Diagnosis / Social aspects Human chromosome abnormalities / Diagnosis / Moral and ethical aspects Sozialethik (DE-588)4055765-0 gnd Genanalyse (DE-588)4200230-8 gnd |
| topic_facet | Ethik Gesellschaft Human chromosome abnormalities / Diagnosis / Social aspects Human chromosome abnormalities / Diagnosis / Moral and ethical aspects Sozialethik Genanalyse |
| url | https://doi.org/10.1017/CBO9780511584183 |
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