The governance of genetic information: who decides?
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is co...
Gespeichert in:
| Weitere Verfasser: | , |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2009
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| Schriftenreihe: | Cambridge law, medicine, and ethics
9 |
| Schlagworte: | |
| Online-Zugang: | DE-12 DE-473 URL des Erstveröffentlichers |
| Zusammenfassung: | This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere |
| Beschreibung: | Title from publisher's bibliographic system (viewed on 05 Oct 2015) |
| Beschreibung: | 1 online resource (xi, 235 pages) |
| ISBN: | 9780511635274 |
| DOI: | 10.1017/CBO9780511635274 |
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| 505 | 8 | 0 | |t The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson |e , myself, I : against narcissism in the governance of genetic information / Søren Holm |e cisions, consent and expectations of the individual / Caroline Mullen |o nstructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows |i ghts, responsibility and stewardship : beyond consent / Roger Brownsword |h o decides what? : relational ethics, genetics and well-being / Sarah Wilson |r Kathryn G. Hunter and Graeme T. Laurie |n volving publics in biobank governance : moving beyond existing approaches |e netic information and public opinion / Andrew Edgar |
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| author2 | Widdows, Heather 1972- Mullen, Caroline |
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| contents | rmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson |
| ctrlnum | (ZDB-20-CBO)CR9780511635274 (OCoLC)876233163 (DE-599)BVBBV043920209 |
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| discipline | Soziologie Philosophie |
| doi_str_mv | 10.1017/CBO9780511635274 |
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| spelling | The governance of genetic information who decides? edited by Heather Widdows and Caroline Mullen Cambridge Cambridge University Press 2009 1 online resource (xi, 235 pages) txt rdacontent c rdamedia cr rdacarrier Cambridge law, medicine, and ethics 9 Title from publisher's bibliographic system (viewed on 05 Oct 2015) rmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson , myself, I : against narcissism in the governance of genetic information / Søren Holm cisions, consent and expectations of the individual / Caroline Mullen nstructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows ghts, responsibility and stewardship : beyond consent / Roger Brownsword o decides what? : relational ethics, genetics and well-being / Sarah Wilson Kathryn G. Hunter and Graeme T. Laurie volving publics in biobank governance : moving beyond existing approaches netic information and public opinion / Andrew Edgar This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere Ethik Politik Genetic screening / Moral and ethical aspects Genetic screening / Government policy Privacy, Right of Medical records / Access control Genanalyse (DE-588)4200230-8 gnd rswk-swf Eigentumsschutz (DE-588)4013798-3 gnd rswk-swf Privatheit (DE-588)4195103-7 gnd rswk-swf Genetische Information (DE-588)4564377-5 gnd rswk-swf 1\p (DE-588)4143413-4 Aufsatzsammlung gnd-content Genanalyse (DE-588)4200230-8 s Genetische Information (DE-588)4564377-5 s Eigentumsschutz (DE-588)4013798-3 s 2\p DE-604 Privatheit (DE-588)4195103-7 s 3\p DE-604 Widdows, Heather 1972- edt Mullen, Caroline edt Erscheint auch als Druckausgabe 978-0-521-50991-6 Erscheint auch als Druckausgabe 978-1-107-62542-6 https://doi.org/10.1017/CBO9780511635274 Verlag URL des Erstveröffentlichers Volltext 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk 2\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk 3\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | The governance of genetic information who decides? rmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson Ethik Politik Genetic screening / Moral and ethical aspects Genetic screening / Government policy Privacy, Right of Medical records / Access control Genanalyse (DE-588)4200230-8 gnd Eigentumsschutz (DE-588)4013798-3 gnd Privatheit (DE-588)4195103-7 gnd Genetische Information (DE-588)4564377-5 gnd |
| subject_GND | (DE-588)4200230-8 (DE-588)4013798-3 (DE-588)4195103-7 (DE-588)4564377-5 (DE-588)4143413-4 |
| title | The governance of genetic information who decides? |
| title_alt | The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson |
| title_auth | The governance of genetic information who decides? |
| title_exact_search | The governance of genetic information who decides? |
| title_full | The governance of genetic information who decides? edited by Heather Widdows and Caroline Mullen |
| title_fullStr | The governance of genetic information who decides? edited by Heather Widdows and Caroline Mullen |
| title_full_unstemmed | The governance of genetic information who decides? edited by Heather Widdows and Caroline Mullen |
| title_short | The governance of genetic information |
| title_sort | the governance of genetic information who decides |
| title_sub | who decides? |
| topic | Ethik Politik Genetic screening / Moral and ethical aspects Genetic screening / Government policy Privacy, Right of Medical records / Access control Genanalyse (DE-588)4200230-8 gnd Eigentumsschutz (DE-588)4013798-3 gnd Privatheit (DE-588)4195103-7 gnd Genetische Information (DE-588)4564377-5 gnd |
| topic_facet | Ethik Politik Genetic screening / Moral and ethical aspects Genetic screening / Government policy Privacy, Right of Medical records / Access control Genanalyse Eigentumsschutz Privatheit Genetische Information Aufsatzsammlung |
| url | https://doi.org/10.1017/CBO9780511635274 |
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