The birth of a genetics policy: social issues of newborn screening
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | English |
| Veröffentlicht: |
2013
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| Schlagworte: | |
| Online-Zugang: | FAW01 FAW02 |
| Beschreibung: | Based on print version record |
| Beschreibung: | 1 online resource (xi, 228 pages) |
| ISBN: | 1472422732 9781472422736 1472422724 9781472422729 9781472422743 |
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| 240 | 1 | 0 | |a Naissance d'une politique de la génétique |
| 245 | 1 | 0 | |a The birth of a genetics policy |b social issues of newborn screening |c Joëlle Vailly, National Institute for Health and Medical Research, Interdisciplinary Research Institute on Social Issues, France ; Translated by Lucy Garnier |
| 264 | 1 | |c 2013 | |
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| 505 | 8 | |a Cover; Contents; List of Abbreviations; Preface; Introduction; The Importance of Health Issues and How Those Issues Are Evolving; An Analytical Framework; Screening Newborns; Presentation of the Study; 1 The Birth of a Screening Policy (Brittany-France); A Breton Tale; History of a National Debate; 2 On Scientific Grounds; When Conviction Prevails; Looking for Evidence; 3 Governing; Power Relations; Governing in Time and Space; 4 Extending Abnormality; Techniques and Biological Abnormality; Managing Uncertainty; 5 Living with the Disease; Paediatric Semantic Networks | |
| 505 | 8 | |a Social Life and Biological Life6 Maintaining a Quality Life; Gaining Time and Passing Time; The Impact of Newborn Screening on Prenatal Diagnosis; Conclusion; References; Index | |
| 505 | 8 | |a Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values | |
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| 650 | 4 | |a Medizin | |
| 650 | 4 | |a Politik | |
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Datensatz im Suchindex
| _version_ | 1804176621400227840 |
|---|---|
| any_adam_object | |
| author | Vailly, Joëlle |
| author_facet | Vailly, Joëlle |
| author_role | aut |
| author_sort | Vailly, Joëlle |
| author_variant | j v jv |
| building | Verbundindex |
| bvnumber | BV043785815 |
| collection | ZDB-4-EBA |
| contents | Cover; Contents; List of Abbreviations; Preface; Introduction; The Importance of Health Issues and How Those Issues Are Evolving; An Analytical Framework; Screening Newborns; Presentation of the Study; 1 The Birth of a Screening Policy (Brittany-France); A Breton Tale; History of a National Debate; 2 On Scientific Grounds; When Conviction Prevails; Looking for Evidence; 3 Governing; Power Relations; Governing in Time and Space; 4 Extending Abnormality; Techniques and Biological Abnormality; Managing Uncertainty; 5 Living with the Disease; Paediatric Semantic Networks Social Life and Biological Life6 Maintaining a Quality Life; Gaining Time and Passing Time; The Impact of Newborn Screening on Prenatal Diagnosis; Conclusion; References; Index Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values |
| ctrlnum | (ZDB-4-EBA)ocn887963261 (OCoLC)887963261 (DE-599)BVBBV043785815 |
| dewey-full | 618.9237200944 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 618 - Gynecology, obstetrics, pediatrics, geriatrics |
| dewey-raw | 618.9237200944 |
| dewey-search | 618.9237200944 |
| dewey-sort | 3618.9237200944 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| era | Geschichte 1985-2005 gnd |
| era_facet | Geschichte 1985-2005 |
| format | Electronic eBook |
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| spelling | Vailly, Joëlle Verfasser aut Naissance d'une politique de la génétique The birth of a genetics policy social issues of newborn screening Joëlle Vailly, National Institute for Health and Medical Research, Interdisciplinary Research Institute on Social Issues, France ; Translated by Lucy Garnier 2013 1 online resource (xi, 228 pages) txt rdacontent c rdamedia cr rdacarrier Based on print version record Cover; Contents; List of Abbreviations; Preface; Introduction; The Importance of Health Issues and How Those Issues Are Evolving; An Analytical Framework; Screening Newborns; Presentation of the Study; 1 The Birth of a Screening Policy (Brittany-France); A Breton Tale; History of a National Debate; 2 On Scientific Grounds; When Conviction Prevails; Looking for Evidence; 3 Governing; Power Relations; Governing in Time and Space; 4 Extending Abnormality; Techniques and Biological Abnormality; Managing Uncertainty; 5 Living with the Disease; Paediatric Semantic Networks Social Life and Biological Life6 Maintaining a Quality Life; Gaining Time and Passing Time; The Impact of Newborn Screening on Prenatal Diagnosis; Conclusion; References; Index Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values Text in English, translated from French Geschichte 1985-2005 gnd rswk-swf Cystic fibrosis in children / Diagnosis / France Medical genetics / Government policy / France Medical screening / France Newborn infants / Diseases / Diagnosis / France MEDICAL / Gynecology & Obstetrics bisacsh Medizin Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Politik (DE-588)4046514-7 gnd rswk-swf Humangenetik (DE-588)4072653-8 gnd rswk-swf Mukoviszidose (DE-588)4040669-6 gnd rswk-swf Neugeborenes (DE-588)4041781-5 gnd rswk-swf Screening (DE-588)4054045-5 gnd rswk-swf Bioethik (DE-588)4006791-9 gnd rswk-swf Frankreich Frankreich (DE-588)4018145-5 gnd rswk-swf Frankreich (DE-588)4018145-5 g Neugeborenes (DE-588)4041781-5 s Screening (DE-588)4054045-5 s Mukoviszidose (DE-588)4040669-6 s Geschichte 1985-2005 z 1\p DE-604 Humangenetik (DE-588)4072653-8 s Bioethik (DE-588)4006791-9 s Politik (DE-588)4046514-7 s 2\p DE-604 Erscheint auch als Druck-Ausgabe Vailly, Joëlle Birth of a genetics policy 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk 2\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | Vailly, Joëlle The birth of a genetics policy social issues of newborn screening Cover; Contents; List of Abbreviations; Preface; Introduction; The Importance of Health Issues and How Those Issues Are Evolving; An Analytical Framework; Screening Newborns; Presentation of the Study; 1 The Birth of a Screening Policy (Brittany-France); A Breton Tale; History of a National Debate; 2 On Scientific Grounds; When Conviction Prevails; Looking for Evidence; 3 Governing; Power Relations; Governing in Time and Space; 4 Extending Abnormality; Techniques and Biological Abnormality; Managing Uncertainty; 5 Living with the Disease; Paediatric Semantic Networks Social Life and Biological Life6 Maintaining a Quality Life; Gaining Time and Passing Time; The Impact of Newborn Screening on Prenatal Diagnosis; Conclusion; References; Index Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values Cystic fibrosis in children / Diagnosis / France Medical genetics / Government policy / France Medical screening / France Newborn infants / Diseases / Diagnosis / France MEDICAL / Gynecology & Obstetrics bisacsh Medizin Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Politik (DE-588)4046514-7 gnd Humangenetik (DE-588)4072653-8 gnd Mukoviszidose (DE-588)4040669-6 gnd Neugeborenes (DE-588)4041781-5 gnd Screening (DE-588)4054045-5 gnd Bioethik (DE-588)4006791-9 gnd |
| subject_GND | (DE-588)4046514-7 (DE-588)4072653-8 (DE-588)4040669-6 (DE-588)4041781-5 (DE-588)4054045-5 (DE-588)4006791-9 (DE-588)4018145-5 |
| title | The birth of a genetics policy social issues of newborn screening |
| title_alt | Naissance d'une politique de la génétique |
| title_auth | The birth of a genetics policy social issues of newborn screening |
| title_exact_search | The birth of a genetics policy social issues of newborn screening |
| title_full | The birth of a genetics policy social issues of newborn screening Joëlle Vailly, National Institute for Health and Medical Research, Interdisciplinary Research Institute on Social Issues, France ; Translated by Lucy Garnier |
| title_fullStr | The birth of a genetics policy social issues of newborn screening Joëlle Vailly, National Institute for Health and Medical Research, Interdisciplinary Research Institute on Social Issues, France ; Translated by Lucy Garnier |
| title_full_unstemmed | The birth of a genetics policy social issues of newborn screening Joëlle Vailly, National Institute for Health and Medical Research, Interdisciplinary Research Institute on Social Issues, France ; Translated by Lucy Garnier |
| title_short | The birth of a genetics policy |
| title_sort | the birth of a genetics policy social issues of newborn screening |
| title_sub | social issues of newborn screening |
| topic | Cystic fibrosis in children / Diagnosis / France Medical genetics / Government policy / France Medical screening / France Newborn infants / Diseases / Diagnosis / France MEDICAL / Gynecology & Obstetrics bisacsh Medizin Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Politik (DE-588)4046514-7 gnd Humangenetik (DE-588)4072653-8 gnd Mukoviszidose (DE-588)4040669-6 gnd Neugeborenes (DE-588)4041781-5 gnd Screening (DE-588)4054045-5 gnd Bioethik (DE-588)4006791-9 gnd |
| topic_facet | Cystic fibrosis in children / Diagnosis / France Medical genetics / Government policy / France Medical screening / France Newborn infants / Diseases / Diagnosis / France MEDICAL / Gynecology & Obstetrics Medizin Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Humangenetik Mukoviszidose Neugeborenes Screening Bioethik Frankreich |
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