Privacy and the past: research, law, archives, ethics
"In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of livin...
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
New Brunswick, New Jersey, and London
Rutgers University Press
[2016]
|
| Schriftenreihe: | Critical issues in health and medicine
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Zusammenfassung: | "In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past. "... |
| Beschreibung: | Literaturverzeichnis (Seiten 153 - 164) und Index |
| Beschreibung: | x, 169 Seiten 24 cm |
| ISBN: | 9780813574363 |
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Datensatz im Suchindex
| _version_ | 1804176430676836352 |
|---|---|
| adam_text | PRIVACY AND THE PAST
/ LAWRENCE, SUSAN C.YYEAUTHOR
: 2016
TABLE OF CONTENTS / INHALTSVERZEICHNIS
INTRODUCTION : THE HISTORIANS, THE COUNTY, AND THE DEAD
RESEARCH, PRIVACY, AND FEDERAL REGULATIONS
HISTORIANS, THE FIRST AMENDMENT, AND INVASION OF PRIVACY
ARCHIVISTS AT THE GATES
MANAGING PRIVACY : HISTORIANS AT WORK
CONCLUSION : RESISTANCE
DIESES SCHRIFTSTCK WURDE MASCHINELL ERZEUGT.
|
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| series2 | Critical issues in health and medicine |
| spelling | Lawrence, Susan C. (DE-588)1075747503 aut Privacy and the past research, law, archives, ethics Susan C. Lawrence New Brunswick, New Jersey, and London Rutgers University Press [2016] x, 169 Seiten 24 cm txt rdacontent n rdamedia nc rdacarrier Critical issues in health and medicine Literaturverzeichnis (Seiten 153 - 164) und Index "In 2006, a HIPAA Compliance Officer in a rural Iowa county wanted to shut down a graduate student's research on a manuscript register of those admitted to a poor farm in the nineteenth century. The reason? It contained sensitive health information that could affect the well-being of living county residents. The 2003 HIPAA Privacy Rule did, in fact, protect this document from historians' prying eyes. In Privacy and the Past, Susan C. Lawrence explores why she found this experience so troubling. In the process, she explores historians' ethical obligations to their research subjects, both the living and the dead. She queries the extent to which we do and should control access to information about people as historical actors and as unwitting participants in past events. She questions who gets to decide what is revealed and what is kept hidden in decades-old records. She examines laws and court cases, and tackles archives and archivists. She looks at how demands to maintain individual privacy both protect and erase the identities of people whose stories make up the historical record. She encourages historians to vigorously resist any expansion of regulatory language that extends privacy protections to the dead. This book offers a critical analysis of the ways that broad privacy concerns shape how and when historians can understand individuals' lives as they created our collective American past. "... Geschichte 1960-2016 gnd rswk-swf MEDICAL / History bisacsh LAW / Privacy bisacsh SCIENCE / History bisacsh MEDICAL / Ethics bisacsh Geschichte Medizin Recht Privacy, Right of United States History Research Law and legislation United States Historians Legal status, laws, etc United States MEDICAL / History LAW / Privacy SCIENCE / History MEDICAL / Ethics Krankenunterlagen (DE-588)4032832-6 gnd rswk-swf Medizinhistoriker (DE-588)1071574930 gnd rswk-swf Privatheit (DE-588)4195103-7 gnd rswk-swf Ethischer Konflikt (DE-588)4153093-7 gnd rswk-swf Recht (DE-588)4048737-4 gnd rswk-swf USA USA (DE-588)4078704-7 gnd rswk-swf USA (DE-588)4078704-7 g Medizinhistoriker (DE-588)1071574930 s Ethischer Konflikt (DE-588)4153093-7 s Krankenunterlagen (DE-588)4032832-6 s Privatheit (DE-588)4195103-7 s Recht (DE-588)4048737-4 s Geschichte 1960-2016 z DE-604 Erscheint auch als Online-Ausgabe, EPUB 978-0-8135-7437-0 Erscheint auch als Online-Ausgabe, PDF 978-0-8135-7438-7 LoC Fremddatenuebernahme application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029083388&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Lawrence, Susan C. Privacy and the past research, law, archives, ethics MEDICAL / History bisacsh LAW / Privacy bisacsh SCIENCE / History bisacsh MEDICAL / Ethics bisacsh Geschichte Medizin Recht Privacy, Right of United States History Research Law and legislation United States Historians Legal status, laws, etc United States MEDICAL / History LAW / Privacy SCIENCE / History MEDICAL / Ethics Krankenunterlagen (DE-588)4032832-6 gnd Medizinhistoriker (DE-588)1071574930 gnd Privatheit (DE-588)4195103-7 gnd Ethischer Konflikt (DE-588)4153093-7 gnd Recht (DE-588)4048737-4 gnd |
| subject_GND | (DE-588)4032832-6 (DE-588)1071574930 (DE-588)4195103-7 (DE-588)4153093-7 (DE-588)4048737-4 (DE-588)4078704-7 |
| title | Privacy and the past research, law, archives, ethics |
| title_auth | Privacy and the past research, law, archives, ethics |
| title_exact_search | Privacy and the past research, law, archives, ethics |
| title_full | Privacy and the past research, law, archives, ethics Susan C. Lawrence |
| title_fullStr | Privacy and the past research, law, archives, ethics Susan C. Lawrence |
| title_full_unstemmed | Privacy and the past research, law, archives, ethics Susan C. Lawrence |
| title_short | Privacy and the past |
| title_sort | privacy and the past research law archives ethics |
| title_sub | research, law, archives, ethics |
| topic | MEDICAL / History bisacsh LAW / Privacy bisacsh SCIENCE / History bisacsh MEDICAL / Ethics bisacsh Geschichte Medizin Recht Privacy, Right of United States History Research Law and legislation United States Historians Legal status, laws, etc United States MEDICAL / History LAW / Privacy SCIENCE / History MEDICAL / Ethics Krankenunterlagen (DE-588)4032832-6 gnd Medizinhistoriker (DE-588)1071574930 gnd Privatheit (DE-588)4195103-7 gnd Ethischer Konflikt (DE-588)4153093-7 gnd Recht (DE-588)4048737-4 gnd |
| topic_facet | MEDICAL / History LAW / Privacy SCIENCE / History MEDICAL / Ethics Geschichte Medizin Recht Privacy, Right of United States History Research Law and legislation United States Historians Legal status, laws, etc United States Krankenunterlagen Medizinhistoriker Privatheit Ethischer Konflikt USA |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029083388&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT lawrencesusanc privacyandthepastresearchlawarchivesethics |