Genomics and public health: legal and socio-ethical perspectives
Gespeichert in:
| Format: | Elektronisch E-Book |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Leiden
Martinus Nijhoff
©2007
|
| Schlagworte: | |
| Online-Zugang: | FAW01 FAW02 Volltext |
| Beschreibung: | Includes bibliographical references pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. - Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. - Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- - pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state |
| Beschreibung: | 1 Online-Ressource (xi, 329 pages) |
| ISBN: | 9047411714 9789047411710 |
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| 500 | |a Includes bibliographical references | ||
| 500 | |a pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. | ||
| 500 | |a - Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. | ||
| 500 | |a - Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- | ||
| 500 | |a - pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin | ||
| 500 | |a Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state | ||
| 650 | 4 | |a Dépistage génétique / Droit | |
| 650 | 4 | |a Génomique | |
| 650 | 4 | |a Génomique / Aspect moral | |
| 650 | 4 | |a Santé publique | |
| 650 | 7 | |a LAW / Medical Law & Legislation |2 bisacsh | |
| 650 | 4 | |a Genomics / ethics | |
| 650 | 4 | |a Human Rights | |
| 650 | 4 | |a Mass Screening | |
| 650 | 4 | |a Public Health / ethics | |
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Recht | |
| 650 | 4 | |a Genetic screening |x Law and legislation | |
| 650 | 4 | |a Genomics | |
| 650 | 4 | |a Genomics |x Moral and ethical aspects | |
| 650 | 4 | |a Public health | |
| 700 | 1 | |a Knoppers, Bartha Maria |e Sonstige |4 oth | |
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| dewey-full | 344.04/196 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 344 - Labor, social, education & cultural law |
| dewey-raw | 344.04/196 |
| dewey-search | 344.04/196 |
| dewey-sort | 3344.04 3196 |
| dewey-tens | 340 - Law |
| discipline | Rechtswissenschaft |
| format | Electronic eBook |
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| id | DE-604.BV043151695 |
| illustrated | Not Illustrated |
| indexdate | 2024-07-10T07:19:03Z |
| institution | BVB |
| isbn | 9047411714 9789047411710 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-028575886 |
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| physical | 1 Online-Ressource (xi, 329 pages) |
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| publishDate | 2007 |
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| publisher | Martinus Nijhoff |
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| spelling | Genomics and public health legal and socio-ethical perspectives edited by Bartha Maria Knoppers Leiden Martinus Nijhoff ©2007 1 Online-Ressource (xi, 329 pages) txt rdacontent c rdamedia cr rdacarrier Includes bibliographical references pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. - Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. - Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- - pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state Dépistage génétique / Droit Génomique Génomique / Aspect moral Santé publique LAW / Medical Law & Legislation bisacsh Genomics / ethics Human Rights Mass Screening Public Health / ethics Ethik Recht Genetic screening Law and legislation Genomics Genomics Moral and ethical aspects Public health Knoppers, Bartha Maria Sonstige oth http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=232358 Aggregator Volltext |
| spellingShingle | Genomics and public health legal and socio-ethical perspectives Dépistage génétique / Droit Génomique Génomique / Aspect moral Santé publique LAW / Medical Law & Legislation bisacsh Genomics / ethics Human Rights Mass Screening Public Health / ethics Ethik Recht Genetic screening Law and legislation Genomics Genomics Moral and ethical aspects Public health |
| title | Genomics and public health legal and socio-ethical perspectives |
| title_auth | Genomics and public health legal and socio-ethical perspectives |
| title_exact_search | Genomics and public health legal and socio-ethical perspectives |
| title_full | Genomics and public health legal and socio-ethical perspectives edited by Bartha Maria Knoppers |
| title_fullStr | Genomics and public health legal and socio-ethical perspectives edited by Bartha Maria Knoppers |
| title_full_unstemmed | Genomics and public health legal and socio-ethical perspectives edited by Bartha Maria Knoppers |
| title_short | Genomics and public health |
| title_sort | genomics and public health legal and socio ethical perspectives |
| title_sub | legal and socio-ethical perspectives |
| topic | Dépistage génétique / Droit Génomique Génomique / Aspect moral Santé publique LAW / Medical Law & Legislation bisacsh Genomics / ethics Human Rights Mass Screening Public Health / ethics Ethik Recht Genetic screening Law and legislation Genomics Genomics Moral and ethical aspects Public health |
| topic_facet | Dépistage génétique / Droit Génomique Génomique / Aspect moral Santé publique LAW / Medical Law & Legislation Genomics / ethics Human Rights Mass Screening Public Health / ethics Ethik Recht Genetic screening Law and legislation Genomics Genomics Moral and ethical aspects Public health |
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| work_keys_str_mv | AT knoppersbarthamaria genomicsandpublichealthlegalandsocioethicalperspectives |