Conducting biosocial surveys: collecting, storing, accessing, and protecting biospecimens and biodata
Gespeichert in:
| Format: | Elektronisch E-Book |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Washington, D.C.
National Academies Press
c2010
|
| Schriftenreihe: | National Research Council
|
| Schlagworte: | |
| Online-Zugang: | FAW01 FAW02 Volltext |
| Beschreibung: | Title from PDF t.p Includes bibliographical references Introduction -- Collecting, storing, using, and distributing biospecimens -- Protecting privacy and confidentiality: sharing digital representations of biological and social data -- Informed consent -- Findings, conclusions, and recommendations "Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis--all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies."--Society website |
| Beschreibung: | 1 Online-Ressource |
| ISBN: | 0309157064 0309157072 1282787551 9780309157063 9780309157070 9781282787551 |
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| 500 | |a "Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. | ||
| 500 | |a For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis--all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. | ||
| 500 | |a Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies."--Society website | ||
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| 650 | 4 | |a Specimen Handling / ethics | |
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| 650 | 4 | |a Privacy | |
| 650 | 7 | |a SOCIAL SCIENCE / Research |2 bisacsh | |
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| 650 | 7 | |a Biological specimens / Collection and preservation |2 fast | |
| 650 | 7 | |a Social surveys / Methodology |2 fast | |
| 650 | 4 | |a Social surveys |x Methodology | |
| 650 | 4 | |a Biological specimens |x Collection and preservation | |
| 700 | 1 | |a Hauser, Robert Mason |e Sonstige |4 oth | |
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| indexdate | 2024-07-10T07:18:43Z |
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| isbn | 0309157064 0309157072 1282787551 9780309157063 9780309157070 9781282787551 |
| language | English |
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| spelling | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata Robert M. Hauser ... [et al.], editors ; Panel on Collecting, Storing, Accessing and Protecting Biological Specimens and Biodata in Social Surveys, Committee on National Statistics, Committee on Population, Division of Behavioral and Social Sciences, National Research Council of the the National Academies Washington, D.C. National Academies Press c2010 1 Online-Ressource txt rdacontent c rdamedia cr rdacarrier National Research Council Title from PDF t.p Includes bibliographical references Introduction -- Collecting, storing, using, and distributing biospecimens -- Protecting privacy and confidentiality: sharing digital representations of biological and social data -- Informed consent -- Findings, conclusions, and recommendations "Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis--all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies."--Society website Specimen Handling / standards Data Collection / methods Specimen Handling / ethics Biological Specimen Banks / ethics Informed Consent Privacy SOCIAL SCIENCE / Research bisacsh SOCIAL SCIENCE / Methodology bisacsh Biological specimens / Collection and preservation fast Social surveys / Methodology fast Social surveys Methodology Biological specimens Collection and preservation Hauser, Robert Mason Sonstige oth National Research Council (U.S.) Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys Sonstige oth National Academies Press (U.S.) Sonstige oth http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=338807 Aggregator Volltext |
| spellingShingle | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata Specimen Handling / standards Data Collection / methods Specimen Handling / ethics Biological Specimen Banks / ethics Informed Consent Privacy SOCIAL SCIENCE / Research bisacsh SOCIAL SCIENCE / Methodology bisacsh Biological specimens / Collection and preservation fast Social surveys / Methodology fast Social surveys Methodology Biological specimens Collection and preservation |
| title | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata |
| title_auth | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata |
| title_exact_search | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata |
| title_full | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata Robert M. Hauser ... [et al.], editors ; Panel on Collecting, Storing, Accessing and Protecting Biological Specimens and Biodata in Social Surveys, Committee on National Statistics, Committee on Population, Division of Behavioral and Social Sciences, National Research Council of the the National Academies |
| title_fullStr | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata Robert M. Hauser ... [et al.], editors ; Panel on Collecting, Storing, Accessing and Protecting Biological Specimens and Biodata in Social Surveys, Committee on National Statistics, Committee on Population, Division of Behavioral and Social Sciences, National Research Council of the the National Academies |
| title_full_unstemmed | Conducting biosocial surveys collecting, storing, accessing, and protecting biospecimens and biodata Robert M. Hauser ... [et al.], editors ; Panel on Collecting, Storing, Accessing and Protecting Biological Specimens and Biodata in Social Surveys, Committee on National Statistics, Committee on Population, Division of Behavioral and Social Sciences, National Research Council of the the National Academies |
| title_short | Conducting biosocial surveys |
| title_sort | conducting biosocial surveys collecting storing accessing and protecting biospecimens and biodata |
| title_sub | collecting, storing, accessing, and protecting biospecimens and biodata |
| topic | Specimen Handling / standards Data Collection / methods Specimen Handling / ethics Biological Specimen Banks / ethics Informed Consent Privacy SOCIAL SCIENCE / Research bisacsh SOCIAL SCIENCE / Methodology bisacsh Biological specimens / Collection and preservation fast Social surveys / Methodology fast Social surveys Methodology Biological specimens Collection and preservation |
| topic_facet | Specimen Handling / standards Data Collection / methods Specimen Handling / ethics Biological Specimen Banks / ethics Informed Consent Privacy SOCIAL SCIENCE / Research SOCIAL SCIENCE / Methodology Biological specimens / Collection and preservation Social surveys / Methodology Social surveys Methodology Biological specimens Collection and preservation |
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