"The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully....

Ausführliche Beschreibung

Bibliographische Detailangaben

1. Verfasser:	Lowrance, William W. (VerfasserIn)
Format:	Buch
Sprache:	English
Veröffentlicht:	Cambridge (u.a.) Cambridge University Press 2012
Schriftenreihe:	Cambridge bioethics and law
Schlagworte:	Medizin Recht Medical records > Law and legislation Data protection > Law and legislation Medicine > Research > Law and legislation Health Services Research Privacy Computer Security Confidentiality Databases, Factual
Online-Zugang:	Inhaltsverzeichnis
Zusammenfassung:	"The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward"..
Beschreibung:	Includes bibliographical references (pages 160-175) and index; first paperback edition 2013
Beschreibung:	xiv, 188 pages illustrations 24 cm
ISBN:	9781107020870 9781107696631