Life to be lived: challenges and choices for patients and carers in life-threatening illnesses
Gespeichert in:
| Hauptverfasser: | , |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
New York, NY [u.a.]
Oxford Univ. Press
2014
|
| Ausgabe: | 1. ed. |
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | 2. Verf. auf der Haupttitels. irrtümlich als Michael York bezeichnet Includes bibliographical references and index |
| Beschreibung: | XV, 160 S. 24 cm |
| ISBN: | 9780199685011 |
Internformat
MARC
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| 250 | |a 1. ed. | ||
| 264 | 1 | |a New York, NY [u.a.] |b Oxford Univ. Press |c 2014 | |
| 300 | |a XV, 160 S. |c 24 cm | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 500 | |a 2. Verf. auf der Haupttitels. irrtümlich als Michael York bezeichnet | ||
| 500 | |a Includes bibliographical references and index | ||
| 650 | 4 | |a Terminal care | |
| 650 | 4 | |a Terminally ill |x Psychology | |
| 650 | 4 | |a Bereavement | |
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| 999 | |a oai:aleph.bib-bvb.de:BVB01-027537261 | ||
Datensatz im Suchindex
| _version_ | 1804152557624360960 |
|---|---|
| adam_text | Titel: Life to be lived
Autor: Proot, Catherine
Jahr: 2014
Contents
Foreword v
Preface vii
Acknowledgements ix
Introduction x
Part 1 The patient experience
1 The challenge of illness and pain 3
Help me to live, not to stop dying 3
Pain 4
Curing and healing 5
Stress provoked by treatments 6
Psychological needs in treatment 7
2 All may not be lost 9
Valuing patients as people 9
Some personal sources of strength 10
Absorbing interests 11
Relationship and communication 12
Supportive and/or challenging characteristics 13
3 Trials and adjustment 16
Inner turmoil 16
A cancer journey? 19
Longing for normality and yearning for safety 20
A network of support 23
4 Towards a changed outlook 27
The part of life one has not lived 28
Discovering meaning 30
A sense of achievement 32
Recognising one s identity and status 33
xiv I CONTENTS
Part 2 The impact on family carers
5 Demands on the family 39
Diagnosis and its demands 40
Logistics 42
Finance 43
Teamwork 44
6 Lives taken over 48
Changing experience of time 49
Priorities and decision making 52
The reality of unpredictability 54
7 Coping with change 56
Denial and overprotection 56
Interdependence and mutual impact 59
Facing a new future 62
8 Some personal consequences for the carer 65
Fatigue and self-neglect 65
Guilt 68
Loss 69
Rewards 70
Part 3 The professional carers and their roles
9 Challenges for the professional carer 75
Patient-centred care 75
Finding a common language 77
Creating and holding a safe space 78
Flexibility in approach and response 81
Coping with a backlog of grief 84
Taking care of themselves 86
10 The power and limitations of words 88
Beyond words... metaphor and symbol 88
The metaphorical language of rituals 90
Beyond communication, encounter 92
11 Talking with patients 96
Breaking bad news 96
Sharing information 97
Helping people to be heard 98
Talking about illness in the family 99
12 Chaplaincy and spiritual care 106
The role of the chaplain 106
Caution not to impose 108
Spiritual care as giving meaning 109
Regrets and reparation 110
Needs, spiritual and/or religious 112
Overlap of roles 115
Death and dying 116
Part 4 Boundaries and resources
13 Blurred boundaries 121
Expectations and projections 121
Shared responsibility 123
Individual and institution 125
Information and self-disclosure 125
The challenge of visiting the dying 127
14 A wealth of resources 129
From being the subject of suffering to an observer of pain 129
Professional and peer support 130
Hands-on involvement 132
Ways to express feelings and find new meaning 135
Intimacy 137
Acceptance 139
Part 5 The next step
15 The next step? 145
The last great adventure 146
Grief and bereavement 149
In conclusion 152
Postscript 155
Index 157
|
| any_adam_object | 1 |
| author | Proot, Catherine Yorke, Michael 1939- |
| author_GND | (DE-588)1060039613 |
| author_facet | Proot, Catherine Yorke, Michael 1939- |
| author_role | aut aut |
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| bvnumber | BV042096503 |
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| ctrlnum | (OCoLC)896371246 (DE-599)HBZHT018137764 |
| discipline | Medizin |
| edition | 1. ed. |
| format | Book |
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| id | DE-604.BV042096503 |
| illustrated | Not Illustrated |
| indexdate | 2024-07-10T01:12:37Z |
| institution | BVB |
| isbn | 9780199685011 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-027537261 |
| oclc_num | 896371246 |
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| owner | DE-355 DE-BY-UBR |
| owner_facet | DE-355 DE-BY-UBR |
| physical | XV, 160 S. 24 cm |
| publishDate | 2014 |
| publishDateSearch | 2014 |
| publishDateSort | 2014 |
| publisher | Oxford Univ. Press |
| record_format | marc |
| spelling | Proot, Catherine Verfasser aut Life to be lived challenges and choices for patients and carers in life-threatening illnesses Catherine Proot and Michael Yorke 1. ed. New York, NY [u.a.] Oxford Univ. Press 2014 XV, 160 S. 24 cm txt rdacontent n rdamedia nc rdacarrier 2. Verf. auf der Haupttitels. irrtümlich als Michael York bezeichnet Includes bibliographical references and index Terminal care Terminally ill Psychology Bereavement Palliativpflege (DE-588)7730204-7 gnd rswk-swf Palliativpflege (DE-588)7730204-7 s DE-604 Yorke, Michael 1939- Verfasser (DE-588)1060039613 aut HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=027537261&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Proot, Catherine Yorke, Michael 1939- Life to be lived challenges and choices for patients and carers in life-threatening illnesses Terminal care Terminally ill Psychology Bereavement Palliativpflege (DE-588)7730204-7 gnd |
| subject_GND | (DE-588)7730204-7 |
| title | Life to be lived challenges and choices for patients and carers in life-threatening illnesses |
| title_auth | Life to be lived challenges and choices for patients and carers in life-threatening illnesses |
| title_exact_search | Life to be lived challenges and choices for patients and carers in life-threatening illnesses |
| title_full | Life to be lived challenges and choices for patients and carers in life-threatening illnesses Catherine Proot and Michael Yorke |
| title_fullStr | Life to be lived challenges and choices for patients and carers in life-threatening illnesses Catherine Proot and Michael Yorke |
| title_full_unstemmed | Life to be lived challenges and choices for patients and carers in life-threatening illnesses Catherine Proot and Michael Yorke |
| title_short | Life to be lived |
| title_sort | life to be lived challenges and choices for patients and carers in life threatening illnesses |
| title_sub | challenges and choices for patients and carers in life-threatening illnesses |
| topic | Terminal care Terminally ill Psychology Bereavement Palliativpflege (DE-588)7730204-7 gnd |
| topic_facet | Terminal care Terminally ill Psychology Bereavement Palliativpflege |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=027537261&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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