Negotiating bioethics: the governance of UNESCO's Bioethics Programme
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
London [u.a.]
Routledge
2013
|
| Ausgabe: | 1. publ. |
| Schriftenreihe: | Genetics and society
|
| Schlagworte: | |
| Online-Zugang: | Cover image Inhaltsverzeichnis |
| Beschreibung: | "The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO's Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme - deliberation and implementation - at international and national levels, Langlois explores: - how relations between developed and developing countries can be made more equal - who should be involved in global level decision-making and how this should proceed - how overlap between initiatives can be avoided - what can be done to improve the implementation of international norms by sovereign states - how far universal norms can be contextualized - what impact the efficacy of national level governance has at international level Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics"-- Provided by publisher. Includes bibliographical references and index |
| Beschreibung: | XVIII, 192 S. |
| ISBN: | 9780415533461 |
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Datensatz im Suchindex
| _version_ | 1804150696417689600 |
|---|---|
| adam_text | Titel: Negotiating bioethics
Autor: Langlois, Adèle
Jahr: 2013
Contents
List of tables
Foreword
A cknowledgements
Abbreviations
xvi
XIV
XII
XI
1 Introduction
2 Bioethics: human genetic and biomedical research
ethics at UNESCO and beyond
5
Bioethics 5
Genetics and genomics 9
The UNESCO Bioethics Programme 14
UNESCO and human cloning 19
3 Global governance: a conceptual framework for
analysing bioethics at UNESCO 29
Global governance 30
The deliberative process: representation, legitimacy
and accountability 34
The implementation process: realizing and enforcing norms 37
Application to the UNESCO Bioethics Programme 42
4 Deliberating bioethics: UNESCO s standard-setting activities 45
The infrastructure of the UNESCO Bioethics Programme 45
Drafting and negotiating the declarations 47
The human cloning debate 57
x Contents
5 Implementing bioethics: UNESCO s efforts to realize
and enforce the declarations
65
The nature and content of the declarations 65
Implementation and enforcement 71
The lack of universal norms on cloning 93
6 Contextualizing bioethics: the declarations in
Kenya and South Africa
96
Negotiations at national level 96
Perceptions of UNESCO in Kenya and South Africa 101
Adoption of the UNESCO declarations in Kenya
and South Africa 105
7 Contextualizing bioethics: mapping progress in
Kenya and South Africa 120
UNESCO bioethics activities in Kenya 120
Views on UNESCO s capacity-building activities 121
Ongoing ethics issues 124
8 Conclusion 143
Deliberation 143
Implementation 149
Kenya and South Africa 154
The governance of human cloning 155
Pragmatic suggestions 156
Appendix: interviews 157
Notes 160
References 161
Index 185
|
| any_adam_object | 1 |
| author | Langlois, Adèle |
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| dewey-full | 174.2 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 174 - Occupational ethics |
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| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie |
| edition | 1. publ. |
| format | Book |
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| language | English |
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| spelling | Langlois, Adèle Verfasser (DE-588)1042284253 aut Negotiating bioethics the governance of UNESCO's Bioethics Programme Adèle Langlois 1. publ. London [u.a.] Routledge 2013 XVIII, 192 S. txt rdacontent n rdamedia nc rdacarrier Genetics and society "The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO's Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme - deliberation and implementation - at international and national levels, Langlois explores: - how relations between developed and developing countries can be made more equal - who should be involved in global level decision-making and how this should proceed - how overlap between initiatives can be avoided - what can be done to improve the implementation of international norms by sovereign states - how far universal norms can be contextualized - what impact the efficacy of national level governance has at international level Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics"-- Provided by publisher. Includes bibliographical references and index Unesco's Bioethics Programme UNESCO (DE-588)2023755-8 gnd rswk-swf Recht Bioethics International cooperation Medical ethics International cooperation Medical genetics Law and legislation International cooperation POLITICAL SCIENCE / International Relations / General bisacsh SCIENCE / Biotechnology bisacsh SOCIAL SCIENCE / General bisacsh Genomprojekt (DE-588)4324732-5 gnd rswk-swf Global Governance (DE-588)4698151-2 gnd rswk-swf Bioethik (DE-588)4006791-9 gnd rswk-swf UNESCO (DE-588)2023755-8 b Bioethik (DE-588)4006791-9 s Genomprojekt (DE-588)4324732-5 s Global Governance (DE-588)4698151-2 s DE-604 http://jacketsearch.tandf.co.uk/common/jackets/covers/websmall/978041553/9780415533461.jpg Cover image HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=026218699&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Langlois, Adèle Negotiating bioethics the governance of UNESCO's Bioethics Programme Unesco's Bioethics Programme UNESCO (DE-588)2023755-8 gnd Recht Bioethics International cooperation Medical ethics International cooperation Medical genetics Law and legislation International cooperation POLITICAL SCIENCE / International Relations / General bisacsh SCIENCE / Biotechnology bisacsh SOCIAL SCIENCE / General bisacsh Genomprojekt (DE-588)4324732-5 gnd Global Governance (DE-588)4698151-2 gnd Bioethik (DE-588)4006791-9 gnd |
| subject_GND | (DE-588)2023755-8 (DE-588)4324732-5 (DE-588)4698151-2 (DE-588)4006791-9 |
| title | Negotiating bioethics the governance of UNESCO's Bioethics Programme |
| title_auth | Negotiating bioethics the governance of UNESCO's Bioethics Programme |
| title_exact_search | Negotiating bioethics the governance of UNESCO's Bioethics Programme |
| title_full | Negotiating bioethics the governance of UNESCO's Bioethics Programme Adèle Langlois |
| title_fullStr | Negotiating bioethics the governance of UNESCO's Bioethics Programme Adèle Langlois |
| title_full_unstemmed | Negotiating bioethics the governance of UNESCO's Bioethics Programme Adèle Langlois |
| title_short | Negotiating bioethics |
| title_sort | negotiating bioethics the governance of unesco s bioethics programme |
| title_sub | the governance of UNESCO's Bioethics Programme |
| topic | Unesco's Bioethics Programme UNESCO (DE-588)2023755-8 gnd Recht Bioethics International cooperation Medical ethics International cooperation Medical genetics Law and legislation International cooperation POLITICAL SCIENCE / International Relations / General bisacsh SCIENCE / Biotechnology bisacsh SOCIAL SCIENCE / General bisacsh Genomprojekt (DE-588)4324732-5 gnd Global Governance (DE-588)4698151-2 gnd Bioethik (DE-588)4006791-9 gnd |
| topic_facet | Unesco's Bioethics Programme UNESCO Recht Bioethics International cooperation Medical ethics International cooperation Medical genetics Law and legislation International cooperation POLITICAL SCIENCE / International Relations / General SCIENCE / Biotechnology SOCIAL SCIENCE / General Genomprojekt Global Governance Bioethik |
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