Verfügbarkeit: Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks: property, Privacy, Intellectual Property, and the Role of Technology

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Bibliographische Detailangaben
Format:	Buch
Sprache:	English
Veröffentlicht:	Heidelberg [u.a.] Springer 2013
Schlagworte:	Patentrecht Medizin Datenspeicherung Geistiges Eigentum Biobank Bioinformatik Bioethik Aufsatzsammlung
Online-Zugang:	Volltext Inhaltsverzeichnis Abstract
Beschreibung:	VIII, 339 S. Ill.
ISBN:	9783642331152 9783642331169
DOI:	10.1007/978-3-642-33116-9

Internformat

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Datensatz im Suchindex

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adam_text	COMPARATIVE ISSUES IN THE GOVERNANCE OF RESEARCH BIOBANKS / : 2013 TABLE OF CONTENTS / INHALTSVERZEICHNIS FROM THE CONTENTS: PROPERTY AND PRIVACY IN BIOBANKING INTELLECTUAL PROPERTY AND BIOBANKS BIOBANKS: THE PERSPECTIVE OF BIOBANKER'S DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT. COMPARATIVE ISSUES IN THE GOVERNANCE OF RESEARCH BIOBANKS / : 2013 ABSTRACT / INHALTSTEXT IN THE LAST FEW YEARS, THE BOOM IN BIOBANKING HAS PROMPTED A LIVELY DEBATE ON A HOST OF INTERRELATED LEGAL ISSUES, SUCH AS THE GORDIAN KNOT OF THE OWNERSHIP OF BIOLOGICAL MATERIALS, AS WELL AS PRIVACY CONCERNS. THE LATTER ARE DUE TO THE DIFFICULTY OF ACCEPTING THAT BIOLOGICAL SAMPLES MUST BE COMPLETELY ANONYMOUS WITHOUT MAKING IT PRACTICALLY IMPOSSIBLE TO EXPLOIT THEIR INFORMATION POTENTIAL. THE ISSUES ALSO INCLUDE THE DELICATE ROLE AND THE CHANGING CONTENT OF THE DONOR’S “INFORMED CONSENT” AS THE MAIN LEGAL TOOL THAT MAY SERVE TO LINK THE PRIVACY AND PROPERTY INTERESTS OF DONORS WITH THE RESEARCH INTERESTS AND THE SET OF PRINCIPLES THAT SHOULD BE AT THE CORE OF THE BIOBANKING PRACTICE. LASTLY, THE IP ISSUES AND THE PATENTABILITY OF BIOLOGICAL SAMPLES AS WELL AS THE PROTECTION OF DATABASES STORING GENETIC INFORMATION OBTAINED FROM THE SAMPLES ARE COVERED. COLLECTING EIGHTEEN ESSAYS WRITTEN BY EMINENT SCHOLARS FROM ITALY, THE US, THE UK AND CANADA, THIS BOOK PROVIDES NEW SOLUTIONS TO THESE PROBLEMS. FROM A COMPARATIVE VIEWPOINT, IT EXPLORES THE EXTENT TO WHICH DIGITAL TECHNOLOGY MAY ASSIST IN TACKLING THE NUMEROUS REGULATORY ISSUES RAISED BY THE PRACTICE OF BIOBANKING FOR RESEARCH PURPOSES. THESE ISSUES MAY BE CONSIDERED AND ANALYZED UNDER THE TRADITIONAL PARADIGMS OF PROPERTY, PRIVACY, INFORMED CONSENT AND INTELLECTUAL PROPERTY DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT.
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spelling	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology Giovanni Pascuzzi ... (eds.) Heidelberg [u.a.] Springer 2013 VIII, 339 S. Ill. txt rdacontent n rdamedia nc rdacarrier Patentrecht (DE-588)4044884-8 gnd rswk-swf Medizin (DE-588)4038243-6 gnd rswk-swf Datenspeicherung (DE-588)4332175-6 gnd rswk-swf Geistiges Eigentum (DE-588)4136832-0 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Bioinformatik (DE-588)4611085-9 gnd rswk-swf Bioethik (DE-588)4006791-9 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Biobank (DE-588)7517760-2 s Geistiges Eigentum (DE-588)4136832-0 s Bioethik (DE-588)4006791-9 s DE-604 Medizin (DE-588)4038243-6 s Patentrecht (DE-588)4044884-8 s Bioinformatik (DE-588)4611085-9 s Datenspeicherung (DE-588)4332175-6 s 1\p DE-604 Pascuzzi, Giovanni Sonstige oth Erscheint auch als Online-Ausgabe 10.1007/978-3-642-33116-9 https://doi.org/10.1007/978-3-642-33116-9 Verlag Volltext Springer Fremddatenuebernahme application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025734046&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Springer Fremddatenuebernahme application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025734046&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Abstract 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk
spellingShingle	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology Patentrecht (DE-588)4044884-8 gnd Medizin (DE-588)4038243-6 gnd Datenspeicherung (DE-588)4332175-6 gnd Geistiges Eigentum (DE-588)4136832-0 gnd Biobank (DE-588)7517760-2 gnd Bioinformatik (DE-588)4611085-9 gnd Bioethik (DE-588)4006791-9 gnd
subject_GND	(DE-588)4044884-8 (DE-588)4038243-6 (DE-588)4332175-6 (DE-588)4136832-0 (DE-588)7517760-2 (DE-588)4611085-9 (DE-588)4006791-9 (DE-588)4143413-4
title	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology
title_auth	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology
title_exact_search	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology
title_full	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology Giovanni Pascuzzi ... (eds.)
title_fullStr	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology Giovanni Pascuzzi ... (eds.)
title_full_unstemmed	Comparative Issues in the Governance of Research Biobanks property, Privacy, Intellectual Property, and the Role of Technology Giovanni Pascuzzi ... (eds.)
title_short	Comparative Issues in the Governance of Research Biobanks
title_sort	comparative issues in the governance of research biobanks property privacy intellectual property and the role of technology
title_sub	property, Privacy, Intellectual Property, and the Role of Technology
topic	Patentrecht (DE-588)4044884-8 gnd Medizin (DE-588)4038243-6 gnd Datenspeicherung (DE-588)4332175-6 gnd Geistiges Eigentum (DE-588)4136832-0 gnd Biobank (DE-588)7517760-2 gnd Bioinformatik (DE-588)4611085-9 gnd Bioethik (DE-588)4006791-9 gnd
topic_facet	Patentrecht Medizin Datenspeicherung Geistiges Eigentum Biobank Bioinformatik Bioethik Aufsatzsammlung
url	https://doi.org/10.1007/978-3-642-33116-9 http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025734046&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025734046&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA
work_keys_str_mv	AT pascuzzigiovanni comparativeissuesinthegovernanceofresearchbiobankspropertyprivacyintellectualpropertyandtheroleoftechnology

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