The EuroQol Group after 25 years:
Gespeichert in:
| 1. Verfasser: | |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Dordrecht [u.a.]
Springer
2013
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Klappentext |
| Beschreibung: | Includes bibliographical references and index |
| Beschreibung: | XVI, 288 S. graph. Darst. |
| ISBN: | 9789400751576 9400751575 9789400751583 9400751583 |
Internformat
MARC
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| 100 | 1 | |a Brooks, Richard |e Verfasser |4 aut | |
| 245 | 1 | 0 | |a The EuroQol Group after 25 years |c Richard Brooks |
| 264 | 1 | |a Dordrecht [u.a.] |b Springer |c 2013 | |
| 300 | |a XVI, 288 S. |b graph. Darst. | ||
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| 500 | |a Includes bibliographical references and index | ||
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| 648 | 7 | |a Geschichte 1978-1012 |2 gnd |9 rswk-swf | |
| 650 | 4 | |a GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS | |
| 650 | 4 | |a GESCHICHTE DER MEDIZIN | |
| 650 | 4 | |a SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) | |
| 650 | 4 | |a HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS | |
| 650 | 4 | |a SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ | |
| 650 | 4 | |a HISTOIRE DE LA MÉDECINE | |
| 650 | 4 | |a HISTORY OF MEDICINE | |
| 650 | 4 | |a INTERVIEW ÉCRIT (SCIENCES SOCIALES) | |
| 650 | 4 | |a WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) | |
| 650 | 4 | |a Health status indicators / Research / Europe / History | |
| 650 | 4 | |a Geschichte | |
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Datensatz im Suchindex
| _version_ | 1804149550243381248 |
|---|---|
| adam_text | Contents
1
Introduction
........................................... 1
!.
і
Setting the Scene
.................................... 1
1.2
Pre-history
......................................... 2
1
.3
Outline of the Book
.................................. 3
1
.4
The Narrative
....................................... 4
1.5
Sources and Referencing
.........................,..... 5
1.6
The EuroQol Family
................................ 6
2
The Early Years
........................................ 13
2.
1 Introduction
........................................ 13
2.2
First Meeting May
1987............................... 14
2.3
Second Meeting October
1987.......................... 16
2.4
Third Meeting January
1988............................ 16
2.5
Fourth Meeting July
1988.............................. 18
2.6
Fifth Meeting July
1989............................... 22
Desired Properties of EuroQol Measure
.................... 22
Scaling Method, Validity, and Response Rates
............... 23
Data Reporting
...................................... 23
Presentation of Descriptors
............................. 23
Socio-demographic Data
............................... 24
Treatment of Being Dead*
............................. 24
Data Exchange
...................................... 24
Development Programme, Publications, and Membership
....... 24
Commentary
....................................... 25
2.7
Sixth Meeting January
1990............................ 25
Objectives
......................................... 25
Treatment of Being Dead
............................. 26
Multi-stage Versus Composite Single Stage Valuations
........ 26
viii Contents
Descriptors
........................................ 26
Selection of the Core States, Presentation of the Task,
and Testing the Reliability of the Descriptors
............... 27
Publications
....................................... 27
Organisational and Procedural Matters
.................... 27
Future Meetings
.................................... 27
2.8
Seventh Meeting September
1990....................... 28
Objectives
........................................ 28
Revised Descriptors
................................. 28
Presentation
....................................... 29
Data Handling Arrangements
.......................... 30
Experiments
-
Past, Present and Future
................... 30
Publications
....................................... 30
Membership
....................................... 31
Organisational Matters
............................... 31
Finance
.......................................... 32
2.9
EuroQolus
........................................ 32
2.10
Concluding Remarks
................................ 35
3
Descriptive System
...................................... 37
3.1
The Development of the Descriptive System
............... 37
Objectives
........................................ 38
Requirements
...................................... 38
Selection of Dimensions
.............................. 38
Levels
........................................... 39
Language
......................................... 39
Descriptive System
.................................. 39
3.2
The Descriptive System
1991-2001...................... 42
Lund Plenary Meeting
1991........................... 42
Helsinki Plenary Meeting
1992......................... 42
Liaison Officers Meeting April
1993..................... 43
Rotterdam Plenary Meeting
1993....................... 43
Brunei Plenary Meeting
1994.......................... 43
Barcelona Plenary Meeting
1995........................ 44
Oslo Plenary Meeting
19%............................ 44
Rotterdam Plenary Meeting
1997....................... 45
Hannover Plenary Meeting
1998........................ 46
Sitges
Plenary Meeting
1999........................... 46
3.3 2001
to Date
...................................... 48
Copenhagen Plenary Meeting September
2001.............. 48
York Plenary Meeting
2002........................... 48
Eighth Executive Committee Meeting May
2004............ 49
Chicago Plenary Meeting
2004......................... 49
Contents
Tenta
Executive
Committee
Meeting Chicago
September 2004..................................... 49
Eleventh
Executive
Committee
Meeting
February
2005........ 50
Oslo
Plenary
Meeting 2005............................. 51
Twelfth
Executive
Committee
Meeting Oslo September 2005 .... 52
First EQ-5D
Increased
Level
Task
Force Meeting
November 2005..................................... 53
Fourteenth
Executive
Committee
Meeting
February
2006....... 54
Second Increased
Level
Task
Force Meeting
March
2006....... 54
Third Labelling Sub-task Force Meeting May
2006........... 55
Sixteenth Executive Committee Meeting June
2006........... 55
Fourth Labelling Sub-task Force Meeting September
2006...... 56
Subsequent Meetings of the Task Force
.................... 56
Barcelona Plenary Meeting September
2006................ 56
Netherlands Plenary Meeting September
2007............... 56
Twenty-Second Executive Committee Meeting
December
2007
and 24th Executive Committee Meeting
April
2008......................................... 57
Baveno
Plenary Meeting September
2008.................. 57
Labelling Sub-task Force Consensus Report: The Development
of a Five-Level Version ofEQ-SD
........................ 58
Twenty-Seventh Executive Committee Meeting
November
2008..................................... 61
Final Report of the SL/Labelling Task Force to the Executive
Committee
......................................... 62
Developments from
2009.............................. 63
3.4
Concluding Remarks
................................. 64
Translation, Language and Semantics Issues
.................. 65
4.1
Introduction
........................................ 65
4.2
Translation Issues
1992-1999........................... 65
Brunei Plenary Meeting
1994........................... 66
Translation Guidelines
................................ 67
Barcelona Plenary Meeting
1995......................... 67
Oslo Plenary Meeting
1996............................. 68
Rotterdam Plenary Meeting
1997........................ 70
Hannover Plenary Meeting
1998......................... 71
Sitges
Plenary Meeting
1999............................ 71
4.3
EQ-Net Project
...................................... 71
4.4
Translation Issues After the EQ-Net Project
................. 74
Barcelona Plenary Meeting
2006......................... 75
Twenty-Fourth Executive Committee Meeting Kijkduin
-
The Hague, The Netherlands September
2007............... 75
4.5
Concluding Commentary
.............................. 78
Contents
Valuation
............................................. 79
5.1
The Early Years
1987-1990............................ 79
5.2 1991-1998......................................... 81
Lund Plenary Meeting
1991............................ 81
Helsinki Plenary Meeting
1992.......................... 82
Rotterdam Plenary Meeting
1993........................ 83
Brunei Plenary Meeting
1994........................... 84
State of Play Paper
1996............................... 85
Barcelona Plenary Meeting
1995......................... 87
Oslo Plenary Meeting
1996............................. 88
Rotterdam Plenary Meeting
1997........................ 89
Hannover Plenary Meeting
1998......................... 89
Sitges
Plenary Meeting
1999............................ 90
Pamplona Plenary Meeting
2000......................... 90
5.3
The Biomed EQ-Net Project
1998-2001................... 90
Construction of the EQ-Net
VAS
and TTO Databases
......... 91
Comparison of EQ-5D
VAS
Valuations
.................... 92
A European EQ-5D
VAS
Valuation Set
.................... 93
A Comparison of EQ-5D TTO Values
..................... 95
5.4 2001-2007......................................... 96
Valuation-Related Papers at Plenary Meetings
2001-2007...... 96
Valuation Issues Raised at Association Meetings,
the Executive Committee, the Board, and the Valuation
Task Force
2001-2007................................ 101
First EQ-5D Valuation Task Force (VTF) Meeting June
2006____ 103
Twenty-First Board Meeting October
2006................. 105
Second VTF Meeting November
2006..................... 105
Valuation Task Force DCE Meeting March
2007............. 106
Fourth VTF Meeting March
2007........................ 107
Fifth VTF Meeting May
2007........................... 108
Twenty-Ninth Executive Committee Meeting July
2007........ 109
Kijkduin
—
The Hague, The Netherlands Plenary Meeting
September
2007..................................... 109
Concluding Commentary on the Period
2001-2007........... 109
5.5
Developments After
2008.............................. 110
Baveno
Italy Plenary Meeting
2008....................... 110
Sixth VTF Meeting
Baveno
September
2008................ 110
3L Valuation Protocol
................................ 112
Seventh VTF Meeting February
2009..................... 114
Eighth VTF Meeting May
2009......................... 114
Twenty-Ninth Executive Committee Meeting May
2009....... 115
Thirty-First Executive Committee Meeting Paris
September
2009..................................... 115
Contents xi
Ninth VTF
Meeting Paris September 2009.................. 116
Paris
Plenary
Meeting 2009............................ 116
Tenth VTF
Meeting
October
2009........................ 117
Thirtieth
Board Meeting November 2009................... 117
Eleventh VTF
Meeting
February
2010..................... 118
Twelfth VTF
Meeting 26 April 2010...................... 119
Thirty-Sixth
Executive
Committee
Meeting June 2010......... 119
Thirteenth
VTF Meeting May 2010....................... 120
Athens
Plenary
Meeting 2010........................... 121
Fourteenth VTF
Meeting Athens September 2010............ 121
Thirty-Seventh
Executive
Committee
Meeting
September 2010 Athens............................... 122
Thirty-Eighth
Executive
Committee
Meeting
October
2010..... 122
Thirty-Ninth
Executive
Committee
Meeting November 2010.... 123
Fifteenth VTF
Meeting
December
2010.................... 123
Sixteenth
VTF Meeting
March
2011...................... 123
Fortieth
Executive
Committee
Meeting
March
2011........... 124
4C Pilot
Study Analysis
Team Meeting
May
2011............ 124
VTF Meeting June 2011............................... 125
Forty-Second
Executive
Committee
Meeting June 2011........ 125
Exploratory Analysis to Provide a Common Basis for the
EuroQol Group 5L Multi-country Study September
2011....... 126
Oxford Plenary Meeting September
2011.................. 127
Forty-Fourth Executive Committee Meeting December
2011. ... 128
5.6
Concluding Remarks
................................. 129
6
Applications
........................................... 131
7
EuroQol Organisation and Administration
.................... 145
7.1
The Formative Years
1987-1991......................... 145
7.2
Lund
(1991)
and Helsinki
(1992)
Plenary Meetings
........... 146
7.3
Overall Organisation
1993-2003......................... 147
Rotterdam Plenary Meeting
(1993)....................... 148
Brunei Plenary Meeting
(1994).......................... 148
Barcelona Plenary Meeting
(1995)....................... 149
7.3.1
Biomed EQ-Net Project
.......................... 151
7.4
The Executive Committee, the Board, and Related
Constitutional Issues
.................................. 154
7.5
Copyright and Related Legal Issues
....................... 161
7.6
Finance
........................................... 164
7.7
Plenary Meeting Arrangements
.......................... 171
Concluding Remarks on Plenary Meeting Arrangements
........ 177
7.8
Membership
........................................ 177
xii Contents
Membership
Review Report 2010....................... 181
7.9
Other Issues
....................................... 185
7.9.1 User
Interaction
............................... 186
7.9.2 Publicity.................................... 190
7.9.3
Publications
................................. 192
7.9.4 Data
Archiving
............................... 193
7.10
Concluding Remarks
................................ 195
8
Research, Product Development, and the Work
of the Task Forces
...................................... 197
8.1
Research and Product Development
2001-2011............. 198
Memorandum on Product Development August
2004......... 199
Twelfth Executive Committee Meeting Oslo September
2005... 201
8.2
Youth Task Force
................................... 204
Inaugural Meeting of the Child-Friendly Task Force
January
2006...................................... 206
The Youth Instrument and Its Administration
............... 207
Proxy Versions
..................................... 210
Age Ranges
....................................... 212
Validation
........................................ 213
VAS
............................................ 214
Dimensions
....................................... 214
Expansion to 5L
.................................... 216
Valuations
........................................ 216
Papers and Publications
.............................. 220
8.3
Digital Task Force
.................................. 222
Inaugural Meeting of the Digital Squad May
2008........... 224
Second Meeting
Baveno
September
2008................. 227
Third Digital Task Force Meeting January
2009............. 227
Developments in
2009............................... 228
Digital Task Force Report February
2010................. 229
DTF Meeting March
2011............................. 230
Digital Task Force Report March
2011................... 230
The Latest Position and Concluding Remarks
on Electronic Versions
............................... 231
8.4
Condition Specific Task Force
.......................... 232
Condition-Specific Bolt-Ons/Dimension Extensions
to the Standard EQ-5D
____........................... 233
EQ-5D 5-Level Field Testing and Development
of a Crosswalk
..................................... 235
Concluding Remarks on the CSPTF
...................... 236
8.5
Population Health Task Force
.......................... 237
Contents xiii
First PHTF Meeting November
2007...................... 237
Second PHTF Meeting
Baveno
September
2008............. 239
Third PHTF Meeting Paris September
2009................. 240
Fourth PHTF Meeting Athens September
2010.............. 242
PHTF Report Plenary Meeting Oxford September
2011........ 243
8.6
Concluding Remarks
................................. 244
9
The Future
............................................ 245
Strategy
............................................... 246
The External Environment
................................. 247
Appendices
............................................... 249
References
............................................... 271
Index
................................................... 283
The Eureki
Group after
25
years
Ibe EuroQol Groap first met in Rotterdam in May
1987
determined to· develop a stand¬
ardised non-disease-spedfic instrument for valuing health-related quality of life. The
book traces the activities of the Group over the next
25
years. The instrament constructed,
eventually named the EQ-5D, was translated into many languages and used in a wide
range of countries and settings. The book describes how the instruments descriptive
system was determined, how translation and language issues were handled, and how
valuations were provided. Recent developments, in
particular a 5-Ieveî
version (EQ-5B-
sL), and a youth version (EQ-5D-Y} are covered. The history of the institutional and
administrative framework within which the Groap operated is also treated.
|
| any_adam_object | 1 |
| author | Brooks, Richard |
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| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
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| dewey-search | 362.1094 |
| dewey-sort | 3362.1094 |
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| discipline | Soziologie Medizin |
| era | Geschichte 1978-1012 gnd |
| era_facet | Geschichte 1978-1012 |
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| geographic | Europa |
| geographic_facet | Europa |
| id | DE-604.BV040487927 |
| illustrated | Illustrated |
| indexdate | 2024-07-10T00:24:48Z |
| institution | BVB |
| isbn | 9789400751576 9400751575 9789400751583 9400751583 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-025334999 |
| oclc_num | 813209710 |
| open_access_boolean | |
| owner | DE-12 DE-355 DE-BY-UBR |
| owner_facet | DE-12 DE-355 DE-BY-UBR |
| physical | XVI, 288 S. graph. Darst. |
| publishDate | 2013 |
| publishDateSearch | 2013 |
| publishDateSort | 2013 |
| publisher | Springer |
| record_format | marc |
| spelling | Brooks, Richard Verfasser aut The EuroQol Group after 25 years Richard Brooks Dordrecht [u.a.] Springer 2013 XVI, 288 S. graph. Darst. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references and index EuroQol Group (DE-588)10192546-3 gnd rswk-swf Geschichte 1978-1012 gnd rswk-swf GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte Europa EuroQol Group (DE-588)10192546-3 b Geschichte 1978-1012 z b DE-604 Digitalisierung UB Regensburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Regensburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
| spellingShingle | Brooks, Richard The EuroQol Group after 25 years EuroQol Group (DE-588)10192546-3 gnd GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte |
| subject_GND | (DE-588)10192546-3 |
| title | The EuroQol Group after 25 years |
| title_auth | The EuroQol Group after 25 years |
| title_exact_search | The EuroQol Group after 25 years |
| title_full | The EuroQol Group after 25 years Richard Brooks |
| title_fullStr | The EuroQol Group after 25 years Richard Brooks |
| title_full_unstemmed | The EuroQol Group after 25 years Richard Brooks |
| title_short | The EuroQol Group after 25 years |
| title_sort | the euroqol group after 25 years |
| topic | EuroQol Group (DE-588)10192546-3 gnd GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte |
| topic_facet | EuroQol Group GESUNDHEIT UND HYGIENE VON PERSONEN, GESUNDHEITSSTATUS GESCHICHTE DER MEDIZIN SCHRIFTLICHES INTERVIEW (SOZIALWISSENSCHAFTEN) HEALTH AND HYGIENE OF PERSONS, HEALTH STATUS SANTÉ ET HYGIÈNE DE PERSONNES, ÉTAT DE SANTÉ HISTOIRE DE LA MÉDECINE HISTORY OF MEDICINE INTERVIEW ÉCRIT (SCIENCES SOCIALES) WRITTEN INTERVIEW + QUESTIONNAIRE SCHEDULE (SOCIAL SCIENCES) Health status indicators / Research / Europe / History Geschichte Europa |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=025334999&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT brooksrichard theeuroqolgroupafter25years |