Trust in biobanking: dealing with ethical, legal and social issues in an emerging field of biotechnology
Gespeichert in:
| Weitere Verfasser: | |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Berlin [u.a.]
Springer
2012
|
| Schriftenreihe: | Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim
33 |
| Schlagworte: | |
| Online-Zugang: | Inhaltstext Inhaltsverzeichnis |
| Beschreibung: | XII, 266 S. 235 mm x 155 mm |
| ISBN: | 9783540788454 9783540788447 |
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Datensatz im Suchindex
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| adam_text |
Table
of
Contents
Preface
.
V
Authors and Editors
.
XI
Framing the Field of
Biobanking
and Trust
Angela Brand, Tobias
Schulte in den Bäumen,
Nicole M. Probst-Hensch
Biobanking
for Public Health
. 3
Klaus Hoeyer
Trading in Cold Blood? Trustworthiness in Face of Commercialized
Biobank Infrastructures
. 21
Cornelia
Richter
Biobanking.
Trust as Basis for Responsibility
. 43
Ethical Issues
Peter Dabrock
Which Duty First? An Ethical Scheme on the Conflict Between Respect for
Autonomy and Common Welfare in Order to Prepare the Moral Grounds
for Trust
. 69
Christian
Lenk
Donors and Users of Human Tissue for Research Purposes.
Conflict of Interests and Balancing of Interests
. 83
Johannes Huber, Esther Herpel, Frank Autschbach,
Stephan
Buse,
Markus Hohenfellner
Collection of
Biospecimen
Resources for Cancer Research.
Ethical Framework and Acceptance from the Patients
'
Point of View
. 97
Legal Issues
Susan Wallace, Stephanie Lazor, Bartha Maria
Knoppers
What is in a Clause? A Comparison of Clauses from Population Biobank
and Disease Biobank Consent Materials
. 113
X Table of
Contents
Mariaelena Salvaterra
Informed Consent to Collect, Store and Use Human Biological Materials
for Research Purposes. An International Framework
. 127
Bianka
Sofìe
Dörr
Once Given
-
Forever in a Biobank? Legal Considerations Concerning
the Protection of Donors and the Handling of Human Body Materials in
Biobanks from a Swiss Perspective
. 139
Kathrin Nitschmann
Biobanks and the Law. Thoughts on the Protection of Self-Determination
with Regards to France and Germany
. 153
Daniel Schneider
Data Protection in Germany. Historical Overview, its Legal Interest
and the Brisance of
Biobanking . 169
Susan Wallace, Bartha Maria
Knoppers
The Role of P3G in Encouraging Public Trust in Biobanks
. 189
Social Issues
Herbert
Gottweis
Biobanks: Success or Failure? Towards a Comparative Model
. 199
Georg Lauss
Sharing Orphan Genes. Governing a European-Biobank-Network for the
Rare Disease Community
. 219
Prasanna Kumar
Patra,
Margaret Sleeboom-Faulkner
Informed Consent and Benefit Sharing in Genetic Research and
Biobanking
in India. Some Common Impediments in Practice
. 237
Agomoni Ganguli-Mitra
Benefit-sharing, Biobanks and Vulnerable Populations
. 257 |
| any_adam_object | 1 |
| author2 | Dabrock, Peter 1964- |
| author2_role | edt |
| author2_variant | p d pd |
| author_GND | (DE-588)114170169 (DE-588)1020440090 |
| author_facet | Dabrock, Peter 1964- |
| building | Verbundindex |
| bvnumber | BV039935139 |
| ctrlnum | (OCoLC)785835992 (DE-599)DNB990866750 |
| dewey-full | 362.1783 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
| dewey-raw | 362.1783 |
| dewey-search | 362.1783 |
| dewey-sort | 3362.1783 |
| dewey-tens | 360 - Social problems and services; associations |
| discipline | Soziologie |
| format | Book |
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| illustrated | Not Illustrated |
| indexdate | 2024-07-21T00:26:37Z |
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| language | English |
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| series | Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim |
| series2 | Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim |
| spelling | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology [authors: Frank Autschbach ...]. Peter Dabrock ... eds. Berlin [u.a.] Springer 2012 XII, 266 S. 235 mm x 155 mm txt rdacontent n rdamedia nc rdacarrier Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim 33 Recht (DE-588)4048737-4 gnd rswk-swf Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Ethik (DE-588)4015602-3 gnd rswk-swf Biomedizin (DE-588)4647152-2 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf (DE-588)1071861417 Konferenzschrift 2007 Marburg gnd-content Biobank (DE-588)7517760-2 s Biomedizin (DE-588)4647152-2 s Medizinische Ethik (DE-588)4074672-0 s Recht (DE-588)4048737-4 s DE-604 Ethik (DE-588)4015602-3 s 1\p DE-604 Dabrock, Peter 1964- (DE-588)114170169 edt Autschbach, Frank 1959- Sonstige (DE-588)1020440090 oth Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim 33 (DE-604)BV013250163 33 text/html http://deposit.dnb.de/cgi-bin/dokserv?id=3167198&prov=M&dok_var=1&dok_ext=htm Inhaltstext Digitalisierung UB Augsburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=024793318&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis 1\p cgwrk 20201028 DE-101 https://d-nb.info/provenance/plan#cgwrk |
| spellingShingle | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology Veröffentlichungen des Instituts für Deutsches, Europäisches und Internationales Medizinrecht, Gesundheitsrecht und Bioethik der Universitäten Heidelberg und Mannheim Recht (DE-588)4048737-4 gnd Medizinische Ethik (DE-588)4074672-0 gnd Ethik (DE-588)4015602-3 gnd Biomedizin (DE-588)4647152-2 gnd Biobank (DE-588)7517760-2 gnd |
| subject_GND | (DE-588)4048737-4 (DE-588)4074672-0 (DE-588)4015602-3 (DE-588)4647152-2 (DE-588)7517760-2 (DE-588)1071861417 |
| title | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology |
| title_auth | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology |
| title_exact_search | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology |
| title_full | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology [authors: Frank Autschbach ...]. Peter Dabrock ... eds. |
| title_fullStr | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology [authors: Frank Autschbach ...]. Peter Dabrock ... eds. |
| title_full_unstemmed | Trust in biobanking dealing with ethical, legal and social issues in an emerging field of biotechnology [authors: Frank Autschbach ...]. Peter Dabrock ... eds. |
| title_short | Trust in biobanking |
| title_sort | trust in biobanking dealing with ethical legal and social issues in an emerging field of biotechnology |
| title_sub | dealing with ethical, legal and social issues in an emerging field of biotechnology |
| topic | Recht (DE-588)4048737-4 gnd Medizinische Ethik (DE-588)4074672-0 gnd Ethik (DE-588)4015602-3 gnd Biomedizin (DE-588)4647152-2 gnd Biobank (DE-588)7517760-2 gnd |
| topic_facet | Recht Medizinische Ethik Ethik Biomedizin Biobank Konferenzschrift 2007 Marburg |
| url | http://deposit.dnb.de/cgi-bin/dokserv?id=3167198&prov=M&dok_var=1&dok_ext=htm http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=024793318&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| volume_link | (DE-604)BV013250163 |
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