Patients as policy actors:
Gespeichert in:
| Weitere Verfasser: | |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
New Brunswick, N.J.
Rutgers University Press
2011
|
| Schriftenreihe: | Critical issues in health and medicine
|
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | viii, 309 p. |
| ISBN: | 9780813550503 9780813550510 |
Internformat
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Datensatz im Suchindex
| _version_ | 1804148439088365568 |
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| adam_text | Titel: Patients as policy actors
Autor: Hoffman, Beatrix Rebecca
Jahr: 2011
Contents
Introduction: Patients as Policy Actors 1
Nancy Tomes and Beatrix Hoffman
Parti Voices of the Silent 17
Chapter 1 Solitary Advocates: The Severely Brain Injured
and Their Surrogates 21
Joseph J, Fins and Jennifer Hersh
Chapter 2 Physician-Patient Communication in the Care of
Vulnerable Populations: The Patient s Voice in
Interpersonal Policy 43
M. Robin DiMatteo, Kelly B. Haskard-Zolnierek,
Summer L. Williams, and Desiree Despues
Chapter 3 Is It Time to Push Yet? The Challenges to Advocacy in
U.S. Childbirth 60
Elizabeth Mitchell Armstrong and Eugene Declercq
Chapter 4 A Pound of Flesh: Patient Legal Action for Human
Research Protections in the Biotech Age 83
Lori Andrews and Julie Burger Chronis
Part II From Individual to Collective 109
Chapter 5 From Outsiders to Insiders: The Consumer-Survivor
Movement and Its Impact on U.S. Mental Health Policy 113
Nancy Tomes
Chapter 6 Don t Scream Alone : The Health Care Activism of
Poor Americans in the 1970s 132
Beatrix Hoffman
Chapter 7 The Canary in Gemeinschaft: Using the Public Voice of
Patients to Enhance Health System Performance 148
Mark Schlesinger
Chapter 8 Patient Appeals as Policy Disputes: Individual and
Collective Action in Managed Care 177
Marc A. Rodwin
Part III How Patients Matter 193
Chapter 9 The Power of Us: A New Approach to Advocacy
for Rare Cancers 197
Amy Dockser Marcus
Chapter io Patients and the Rise of the Nurse-Practitioner Profession 215
Julie Fairman
Chapter 11 A House on Fire: Newborn Screening, Parents
Advocacy, and the Discourse of Urgency 231
Rachel Grob
Chapter 12 Measuring Success: Scientific, Institutional, and
Cultural Effects of Patient Advocacy 257
Steven Epstein
Epilogue: Principles for Engaging Patients in U.S. Health
Care and Policy 278
Rachel Grob and Mark Schlesinger
Notes on Contributors 293
Index 297
|
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