Advance care planning in end of life care:
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Oxford [u.a.]
Oxford Univ. Press
2011
|
| Ausgabe: | 1. publ. |
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | XVI, 305 S. Ill., graph. Darst. 25 cm |
| ISBN: | 9780199561636 019956163X |
Internformat
MARC
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Datensatz im Suchindex
| _version_ | 1827103162358562816 |
|---|---|
| adam_text |
Titel: Advance care planning in end of life care
Autor: Thomas, Keri
Jahr: 2011
Contents
Contributors xiv
Abbreviations xvii
Section 1 Introduction to Advance Care
Planning: why do it?
1 Overview and introduction to Advance Care Planning 3
Ken Thomas
An introduction to ACP 4
The underlying purpose and principles of ACP, in response
to patient need 5
Thoughts on the deeper significance of ACP conversations 8
Hope and expectations 8
Suggestions for planning ACP in different settings 9
2 Advance Care Planning for the endoflife: an overview 16
Jane Seymour and Gillian Hörne
Introduction 17
Brief history 18
Outcomes of ACP: the evidence base 19
ACP facilitating a process of shared decision making 20
Philosophical, social, and cultural challenges 21
Changing practice and policy 22
Summary and conclusions 24
Acknowledgement 25
3 Listening to the patient's voice 28
Heidi Macleod, David Oliver, and Don Redding
Introduction: a perspective of the MND Association 28
The professional: expert in listening 33
The expert Organization 34
International comparison and trends over time 36
Shared decision-making 37
Summary 37
Further resources 38
4 Advance Care Planning for older people 39
Simon Conroy
Context 39
How is ACP relevant for oWer people? 39
Where and when should ACP discussions take place? 40
Case managers and ACP 41
Is ACP not just a way of saving the NHS some money? 41
Are you the right person to be initiating ACP discussions? 41
Summary 43
Further resources 43
5 Spiritual aspects of Advance Care Planning 45
Max Watson
Linking spirituality and Advanced Care Planning 46
Fear and Advance Care Planning 46
How thinking about death changes us 47
Religious views of Advance Care Planning 47
Denial and Advance Care Planning 48
Personal control and Advance Care Planning 49
The spiritual work of Advance Care Planning 49
Adaptation and Advance Care Planning 51
Ritual, sacrament, and Advanced Care Planning 51
Further resources 53
6 Advance Care Planning: politically correct, but ethically sound? 55
Rob George and Tim Harlow
Introduction 55
The fundamental question: why are decisions necessary at all? 56
Laying the foundations 57
Building the theory 61
Practical implications 66
Condusion 68
Section 2 Context in the UK
7 Advance Care Planning for the end of life 73
Ciaire Henry and Sheila Joseph
Introduction 73
Background publications 74
Issues surrounding Advance Care Planning 75
Resources to support Advance Care Planning 77
Practicalitiesofimplementation 78
Future developments 80
Condusion 81
Further resources 81
8 The implications of the Mental Capacity Act (MCA) 2005 for
Advance Care Planning and decision making 83
Simon Chapman and Andrew Makin
Summary 84
Nominating people to be consulted 85
Implementing Advance Care Planning: making decisions on behalf
of someone who lacks capacity 87
Who is the decision-maker? 89
Decisions by health and social care Professionals 89
Independent Mental Capacity Advocates (IMCAs) 89
Criminal offences 89
The reverse litigation risk 90
Introduction to Independent Mental Capacity Advocacy (IMCA) 90
Identifying the person's wants and needs 93
Advance decisions and refusals of treatment 93
IMCA: supporting the vulnerable and frail person in a care home 95
Condusion 99
Further resources 100
9 Advance Decisions to Refuse Treatment (ADRT) 101
Ben Lobo
Introduction 102
Background to advance decisions and care planning for end of life 102
What is an advance decision to refuse treatment? 102
Specific context: English law, society, and culture 103
Real choice, real responsibility 105
Related topics 106
Moving forwards 108
Education and professional development 109
Condusion 111
Acknowledgement 111
Further resources 111
10 The tough questions: do not attempt resuscitation discussions 113
Madeline Boss
Introduction 113
TheethicaldilemmaofCPR 114
What about when someone demands CPR? 114
Futility and CPR 115
Patient choice in healthcare 115
Success rates of CPR 116
So who makes the final CPR decision? 118
CPR and ACP for the end of life 118
Facilitating resuscitation decisions 119
Reviewing the decision 120
Condusion 120
Further resources 120
Section 3 The UK experience of ACP: whaf s happening now?
11 Preferred priorMes for care: an Advance Care Pfenning process 125
LesStoreyandAdrienneBetteley
What is the Preferred Priorities of Care (PPC) tool? 126
PPC and Advance Care Planning 126
Evaluation of PPC 126
Using PPC to facilitate difficult discussions between partners 128
Education, training, and mentorship 128
Suggestions for getting started with PPC 130
Condusion 130
Acknowledgements 131
12 Experience of use of Advance Care Planning in care homes 132
Deborah Holman, Nikki Sawkins, and Jo Hockley
Introduction 133
The care home setting 133
Aspects that have an impact on the use of ACP in care homes 134
Communication issues 135
ACP: whose role is it? 136
ACP in the GSFCH programme 137
Training on Advance Care Planning within the GSF care homes
training programme 139
Changing care home culture 142
Caring for people with dementia 144
Developing a learning culture in care homes 145
Condusion 145
13 Advance Care Planning in the Community 148
Bruce Mason, Dierdra Sives, and Scott A Murray
An overview of issues surrounding ACP in the Community 148
Barriers to ACP in the Community 152
Outcomes and benefits for patients, carers, and practitioners 153
Condusion J55
Further resources 156
14 ACP in hospice and specialist palliative care 158
Simon Noble
Introduction 158
The challenges of ACP discussions in the hospice 159
Timing of ACP discussions in the inpatient setting 160
Triggers for discussion 162
Communication issues 162
Practical suggestions 165
Condusion 165
15 Advanced Care Planning: thinking ahead for parents and children 167
Angela Thompson
Introduction 167
Which femilies are thinking ahead? 168
Securing a firm foundation 169
Meeting the spectrum of challenges 169
Planning ahead whilst growing up 169
Tools to engage the family, child, and young person in thinking ahead 170
Putting plans into action 171
When death comes: planning to maintain the care 173
Supporting the family through grief 173
Messages from special journeys 174
Further resources 175
16 Issues around capacity 177
Lynn Gibsort, Dorothy Matthews, and Claud Regnard
Introduction 177
Clinical decisions: are you the right person to do this? 178
Is there an impairment of mind or brain preventing discussion of future plans? 179
Is this the patient's first discussion of their future plans? 181
Does the patient want to discuss their future care? 182
Is the patient ready to discuss end of life care? 182
Does the patient want to refuse treatment? 184
Does the patient want this discussion documented? 184
Summary 185
Section 4 International experience of ACP: what can we
learn from other countries?
17 Advance directives and Advance Care Planning: the US experience 189
Anne M Wilkinson
Time to move on from advanced directives 190
The challenges of end of life medical care 190
A brief history of the foundation of advance directives in the United States 192
The evidence on end of life planning in the US: has the process failed? 193
Advance Care Planning 196
Examplesofgoodpractice 197
Lessons learnt from the failure of the AD process in the
US and the future of ACP 200
Further resources 201
18 A common sense guide to improving Advance Care Planning:
from theory to practice 205
Anne M Wilkinson and Joanne Lynn
Introduction 206
The Plan-Do-Study Act (PDSA) quality improvement process 206
About'Team Delta' 210
Identifying the problem and setting an aim 210
Choosing a team 211
Measuring success 212
Telling your story: time series Charts 213
Identifying and testing changes 213
ChangetdeastoimproveACP 215
Common barriers to ACP 215
Give them something to talk about 216
Communication strategies to initiate Advance Care Planning 217
The PDSA model to improvement 218
Further resources 218
19 Advance Care Planning in Canada: past experience and current strategies 219
AnnMarie Nielsen and Sharon Baxter
Overview 220
Introduction 220
The Canadian landscape 220
Current legislation 221
Professional recognition for Advance Care Plans/directives 222
Professional education 223
Other national activities 224
Public awareness and education 225
Adaptations and specialized Advance Care Planning 227
Condusion 227
Further resources 227
20 The evolution of Advance Care Planning in Australia with a
focus on hospital care 229
William Silvester and Karen M Detering
Synopsis of evolution of Advance Care Planning in Australia 229
Results of a randomized controlled trial of Advance Care Planning
in elderly inpatients 230
The key elements to successful Advance Care Planning 231
21 Advance Care Planning discussions in Australia:
the development of clinical practice guidelines 233
Josephine M Clayton
Introduction 234
ACP in Australia 234
Development of clinical practice guidelines 236
Limitations of the guidelines 237
Key recommendations 237
More specific recommendations 237
More specific recommendations relating to ACP discussions 238
Dissemination of the guidelines 247
Recent developments and future directions 247
Acknowledgements 248
Further resources 248
22 Living and dying in style: Australia-an example of ACP in action 251
Eric Fairbank
Living and dying in style 252
Advance Care Planning (ACP) 252
The Respecting Patient Choices (RPC) program 252
Condusion 258
Acknowledgement 258
Further resources 258
Section 5 PracticalKies and getting going
23 Communication skills and Advance Care Planning 261
Jackie Beavan, Carolyn Fowler, and Sarah Russell
Introduction 261
Defining communication 262
The evidence base for the importance of communication in
Advance Care Planning 262
Points to consider when talking about Advance Care Planning 264
Key communication skills 265
Blocks to effective communication 266
Models of communication 268
Case studies 270
The way forward: developing the workforce 272
Condusion 274
24 Working with local commissioners to deliver Advanced Care Planning 277
Jennifer Stothard
Theroleofthecommissioner 278
Commissioning end of life care Services 279
Commissioning to deliver ACP 279
Engaging commissioners to Support delivery of ACP 280
Challenges for delivery 281
Condusion 281
Further resources 282
Appendix 1 Useful Websites and resources 283
Appendix 2 Aids to communication 286
Appendix 3 Guidance and useful ACP tools 289
Index 299 |
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| language | English |
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| spellingShingle | Advance care planning in end of life care Advance Care Planning Right to Die Patientenorientierte Medizin (DE-588)4303062-2 gnd Vorsorgevollmacht (DE-588)4364903-8 gnd Patientenverfügung (DE-588)4140257-1 gnd Palliativtherapie (DE-588)4115490-3 gnd Sterben (DE-588)4057310-2 gnd Internationaler Vergleich (DE-588)4120509-1 gnd |
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| title | Advance care planning in end of life care |
| title_auth | Advance care planning in end of life care |
| title_exact_search | Advance care planning in end of life care |
| title_full | Advance care planning in end of life care ed. by Keri Thomas ; Ben Lobo |
| title_fullStr | Advance care planning in end of life care ed. by Keri Thomas ; Ben Lobo |
| title_full_unstemmed | Advance care planning in end of life care ed. by Keri Thomas ; Ben Lobo |
| title_short | Advance care planning in end of life care |
| title_sort | advance care planning in end of life care |
| topic | Advance Care Planning Right to Die Patientenorientierte Medizin (DE-588)4303062-2 gnd Vorsorgevollmacht (DE-588)4364903-8 gnd Patientenverfügung (DE-588)4140257-1 gnd Palliativtherapie (DE-588)4115490-3 gnd Sterben (DE-588)4057310-2 gnd Internationaler Vergleich (DE-588)4120509-1 gnd |
| topic_facet | Advance Care Planning Right to Die Patientenorientierte Medizin Vorsorgevollmacht Patientenverfügung Palliativtherapie Sterben Internationaler Vergleich |
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