Fetal alcohol spectrum disorder: management and policy perspectives of FASD
Gespeichert in:
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| Format: | Elektronisch E-Book |
| Sprache: | English |
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Weinheim
Wiley-Blackwell
2010
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| Schriftenreihe: | Health care and disease management
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| Beschreibung: | 1 Online-Ressource (XXIV, 458 S.) Ill., graph. Darst. |
| ISBN: | 9783527632510 9783527632527 |
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CONTENTS
PREFACE XVII LIST OF CONTRIBUTORS XIX
1 PRENATAL ALCOHOL EXPOSURE, FAS, AND FASD:
AN INTRODUCTION 1 TANYA T. NGUYEN, JENNIFER COPPENS, AND EDWARD P. RILEY
1.1 INTRODUCTION 1
1.2 HISTORY 2
1.3 DIAGNOSING THE EFFECTS OF PRENATAL ALCOHOL EXPOSURE 3 1.3.1 FETAL
ALCOHOL SYNDROME 3 1.3.2 FETAL ALCOHOL SPECTRUM DISORDER(S) 4 1.4 RISK
FACTORS INFLUENCING FAS AND FASD CONDITIONS 4 1.5 PREVALENCE AND IMPACT
OF FAS AND FASD 5
1.6 PREVENTION 7
1.7 INTERVENTIONS 8
ACKNOWLEDGMENTS 10 REFERENCES 10
PART ONE INCIDENCE, PREVALENCE, AND ECONOMIC ASPECTS OF FASD 35
2 RESEARCHING THE PREVALENCE AND CHARACTERISTICS OF FASD IN
INTERNATIONAL SETTINGS 17 PHILIP A. MAY 2.1 INTRODUCTION 17
2.2 MATERNAL RISK FACTORS AND FASD 17 2.3 DETERMINING THE PREVALENCE OF
FASD: HOW THE METHODS HAVE INFLUENCED THE RATES 20
2.4 THE PREVALENCE OF FASD FROM IN-SCHOOL STUDIES 21 2.5 SUMMARY RATES
OF FASD AND THEIR MEANING 22 REFERENCES 24
BIBLIOGRAFISCHE INFORMATIONEN HTTP://D-NB.INFO/1002408539
DIGITALISIERT DURCH
IMAGE 2
VI CONTENTS
3 FREQUENCY OF FASD IN CANADA, AND WHAT THIS MEANS
FOR PREVENTION EFFORTS 27 SUZANNE C. TOUGH AND MONICA JACK 3.1
INTRODUCTION 27
3.2 CHALLENGES TO OBTAINING ACCURATE INCIDENCE AND PREVALENCE RATES 27
3.3 INCIDENCE OF FASD 29
3.3.1 NATIONAL RATES IN CANADA (SEE BOX 3.1) 29 3.3.2 PROVINCIAL RATES
IN CANADA 30 3.3.2.1 BRITISH COLUMBIA 30 3.3.2.2 ALBERTA 30 3.3.2.3
SASKATCHEWAN 30 3.3.2.4 MANITOBA 31 3.3.2.5 OTHER PROVINCES 31 3.4
PREVALENCE OF FASD 31
3.4.1 CHILD WELFARE SYSTEMS 31 3.4.2 CORRECTIONS SYSTEMS 33 3.4.3
ABORIGINAL COMMUNITIES 34 3.5 RATE OF EXPOSURE TO RISK 35
3.6 GAPS IN THE DATA 37
3.7 POLICY CONSIDERATIONS 37
3.7.1 ESTABLISH BASELINE RATES OF FAS/FASD AND TRACK THEM OVER TIME 37
3.7.2 CONTINUE WITH INTERVENTION EFFORTS 38 3.7.3 ASSESS AND INTERVENE
IN AREAS WITH HIGHER FAS/FASD
FREQUENCY 38
3.7.4 INTERVENE TO PREVENT FAS/FASD WHERE RISK IS HIGHER 39 3.7.5 WORK
TOWARDS DEVELOPING A CONSISTENT MESSAGE 40 3.7.6 KEY PLAYERS 40
3.8 CONCLUSIONS 41
ACKNOWLEDGMENTS 41 REFERENCES 41
4 COSTS OF FASD 45
NGUYEN XUAN THANH, EGON JONSSON, LIZ DENNETT, AND PHILIP JACOBS 4.1
INTRODUCTION 45
4.2 METHODS 46
4.2.1 LITERATURE SEARCH 46
4.2.2 INCLUSION CRITERIA 46
4.2.3 COST ADJUSTMENT 47
4.3 RESULTS 47
4.3.1 SEARCH RESULTS 47
4.3.2 SUMMARY OF STUDIES INCLUDED IN THE REVIEW 47 4.3.3 SUMMARY OF
METHODS USED IN THE REVIEWED STUDIES 49 4.3.4 SUMMARY OF RESULTS OF THE
REVIEWED STUDIES 51
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CONTENTS VII
4.3.4.1 ANNUAL COST OF FAS/FASD FOR THE US, CANADA, AND THE PROVINCE
OF ALBERTA 51
4.3.4.2 ANNUAL COST PER CASE 55 4.3.4.3 LIFETIME COST PER CASE 56 4.4
DISCUSSION 57
4.5 CONCLUSION 58
4.6 APPENDICES TO CHAPTER 4 59
4.6.1 APPENDIX 1: SEARCH STRATEGY 59 4.6.2 APPENDIX 2: SUMMARY OF
INCLUDED STUDIES 64 4.6.3 APPENDIX 3: EXCLUDED STUDIES THAT CONSIDER THE
COSTS OF FAS/FASD 68
REFERENCES 68
PART TWO CAUSES AND DIAGNOSING OF FASD 71
5 DIRECT AND INDIRECT MECHANISMS OF ALCOHOL TERATOGENESIS: IMPLICATIONS
FOR UNDERSTANDING ALTERATIONS IN BRAIN AND BEHAVIOR IN FASD 73 KRISTINA
A. UBAN, TAMARA BODNAR, KELLY BUTTS, JOANNA H. SLIWOWSKA, WENDY COMEAU,
AND JOANNE WEINBERG 5.1 INTRODUCTION 73
5.1.1 MECHANISMS OF ALCOHOL S TERATOGENIC EFFECTS 73 5.1.2 DIRECT
MECHANISMS OF ALCOHOL S ACTIONS ON THE FETUS 74 5.1.3 INDIRECT
MECHANISMS OF ALCOHOL S ACTIONS ON THE FETUS 75 5.1.3.1 ALCOHOL EFFECTS
ON PROSTAGLANDINS 76
5.1.3.2 ALCOHOL-INDUCED DISRUPTION OF CELL-CELL INTERACTIONS OR CELL
ADHESION 76 5.1.3.3 ALCOHOL AND OXIDATIVE STRESS 76 5.1.3.4 DISRUPTION
OF ENDOCRINE BALANCE 77 5.1.4 NEUROBIOLOGY OF STRESS 78 5.1.5 FASD AND
STRESS RESPONSIVENESS 81 5.2 FETAL PROGRAMMING: PROGRAMMING OF THE H PA
AXIS BY PAE 82 5.3 ALTERED EPIGENETIC REGULATION OF GENE EXPRESSION: A
POSSIBLE
MECHANISM UNDERLYING FETAL PROGRAMMING OF THE HPA AXIS AND ALTERED
NEUROENDOCRINE-IMMUNE INTERACTIONS 84 5.4 PRENATAL ALCOHOL EXPOSURE:
EARLY EXPERIENCE, STRESS RESPONSIVENESS, AND VULNERABILITY TO DEPRESSION
87 5.4.1 INTERACTIONS BETWEEN CENTRAL MONOAMINERGIC NEUROTRANSMITTERS
AND
THE HPA AXIS 88
5.4.2 FASD, STRESS, AND DEPRESSION 89 5.4.3 PREVENTION AND TREATMENT OF
DEPRESSION IN FASD POPULATIONS 90 5.5 FASD AND SUBSTANCE ABUSE 91
5.5.1 NEUROBIOLOGY OF ADDICTION 91 5.5.2 STRESS AND SUBSTANCE USE 92 5.6
SUMMARY AND POLICY CONSIDERATIONS 93 ACKNOWLEDGMENTS 94
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VILI CONTENTS
GLOSSARY 94
ABBREVIATIONS 97 REFERENCES 98
6 GENETIC FACTORS CONTRIBUTING TO FASD 109 ALBERT E. CHUDLEY 6.1
INTRODUCTION 109
6.2 THE EVIDENCE 110
6.3 GENETIC FACTORS IN ALCOHOL METABOLISM 111 6.4 SOME GENETIC FACTORS
115
6.5 EPIGENETICS, THE ENVIRONMENT AND NUTRITION 116 6.6 CONCLUSIONS, AND
SOME POLICY RECOMMENDATIONS 118 6.7 GLOSSARY 119
REFERENCES 123
7 DIAGNOSIS OF FASD: AN OVERVIEW 127 GAIL ANDREW 7.1 HISTORY OF
DIAGNOSING FASD 128
7.2 HOW DOES PRENATAL ALCOHOL EXPOSURE CAUSE DAMAGE? 130 7.3 SCREENING
FOR FASD 131
7.4 THE DIAGNOSTIC PROCESS 133
7.5 FASD ACROSS THE LIFESPAN 136
7.5.1 DIAGNOSIS IN THE NEONATAL PERIOD AND EARLY INFANCY 137 7.5.2
DIAGNOSING IN TODDLERHOOD 138 7.5.3 DIAGNOSING IN SCHOOL AGE 138 7.5.4
DIAGNOSING IN ADOLESCENCE AND ADULTHOOD 140 7.6 IMPLICATIONS OF A
DIAGNOSIS OF FASD 140 7.7 CONCLUSION AND FUTURE DIRECTIONS 141 7.8
POLICY CONSIDERATIONS 142
REFERENCES 142
PART THREE PREVENTION POLICIES AND PROGRAMS 149
8 FASD: A PRECONCEPTION PREVENTION INITIATIVE 151 LOLA BAYDALA,
STEPHANIE WORRELL, AND FAY FLETCHER 8.1 INTRODUCTION 151
8.2 PREVENTION STRATEGIES 151
8.2.1 THE NATIONAL REGISTRY OF EVIDENCE-BASED PROGRAMS AND PRACTICE 152
8.2.2 LIFESKILLS TRAINING 152 8.2.3 THE ALEXIS WORKING COMMITTEE 153
8.2.4 THE ADAPTATIONS COMMITTEE 154 8.2.5 COMMUNITY MEMBER PARTICIPATION
155 8.3 RESEARCH RELATIONSHIPS 155
8.3.1 CAPACITY BUILDING 156 8.4 THE CIHR GUIDELINES FOR RESEARCH
INVOLVING ABORIGINAL PEOPLE 156
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CONTENTS IX
8.5 SUMMARY 157
ACKNOWLEDGMENTS 158 REFERENCES 158
9 BRINGING A WOMEN S HEALTH PERSPECTIVE TO FASD PREVENTION 161 NANCY
POOLE 9.1 INTRODUCTION 161
9.2 APPLYING GENDER-BASED ANALYSIS TO FASD PREVENTION 162 9.3 DEVELOPING
A FRAMEWORK FOR WOMEN-CENTERED PREVENTION PRACTICE 163 9.3.1
WOMEN-CENTERED CARE 165 9.3.2 HARM-REDUCTION ORIENTATION 165 9.3.3
COLLABORATIVE CARE 166 9.4 EVIDENCING THE FRAMEWORK 366 9.4.1 RESEARCH
ON WOMEN-CENTERED, TRAUMA-INFORMED CARE 267
9.4.2 RESEARCH ON HARM-REDUCTION PRACTICE 168 9.4.3 RESEARCH ON
COLLABORATIVE CARE 369 9.5 CONCLUSIONS 270
REFERENCES 3 71
10 NEXT STEPS IN FASD PRIMARY PREVENTION 175 ROBIN THURMEIER, SAMEER
DESHPANDE, ANNE LAVACK, NOREEN AGREY, AND MAGDALENA CISMARA 10.1
INTRODUCTION 175
10.2 CURRENT STATE OF FASD PRIMARY PREVENTION IN NORTH-WESTERN CANADA
276 10.2.1 THE BORN FREE CAMPAIGN 178 10.2.2 THE MOTHER KANGAROO
CAMPAIGN 180 10.2.3 THE WITH CHILD/WITHOUT ALCOHOL CAMPAIGN 282 10.2.4
SUMMARY OF RESULTS 282 10.3 CAMPAIGN EVALUATION: WHAT IS IT AND WHY IT
IS IMPORTANT 282 10.4 INCORPORATING SOCIAL MARKETING STRATEGIES 284 10.5
CREATING BEHAVIORAL CHANGE: PROTECTION MOTIVATION THEORY 185 10.6 FUTURE
CONSIDERATIONS FOR HEALTH PROMOTERS AND POLICY MAKERS 288
REFERENCES 289
11 PREVENTING FASD: THE PARENT-CHILD ASSISTANCE PROGRAM (PCAP)
INTERVENTION WITH HIGH-RISK MOTHERS 193 THERESE M. GRANT 11.1
INTRODUCTION 193
11.2 FASD PREVENTION 293 11.3 BACKGROUND 294
11.4 THE PCAP INTERVENTION 295 11.4.1 RELATIONAL THEORY 295 11.4.2
STAGES-OF-CHANGE 296
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X CONTENTS
11.4.3 HARM REDUCTION 197
11.5 PCAP: A TWO-PRONGED INTERVENTION 297 11.5.1 BETWEEN THE CLIENT AND
THE CASE MANAGER 197 11.5.1.1 ESTABLISHING TRUST 197 11.5.1.2 WORKING
WITH THE FAMILY 197
11.5.1.3 ROLE-MODELING 198 11.5.2 BETWEEN THE CLIENT AND THE COMMUNITY
SERVICE PROVIDERS 198 11.6 PREVENTING ALCOHOL-AND/OR DRUG-EXPOSED BIRTHS
199 11.6.1 SUBSTANCE ABUSE TREATMENT 299 11.6.2 FAMILY PLANNING 199 11.7
PCAP OUTCOMES 200
11.8 PCAP COST EFFECTIVENESS 202 11.9 PCAP INTERVENTION WITH WOMEN WHO
THEMSELVES HAVE FASD 201 11.10 POLICY RECOMMENDATIONS: COLLABORATIVE
APPROACHES FOR PREVENTING
ALCOHOL-EXPOSED PREGNANCIES 202 REFERENCES 204
12 FASD IN THE PERSPECTIVE OF PRIMARY HEALTHCARE 207 JUNE BERGMAN 12.1
PRIMARY CARE APPROACHES TO FASD 208 12.2 BARRIERS TO SCREENING 210
12.3 IMPACT OF HEALTHCARE REFORM 211 REFERENCE 222
PART FOUR FASD AND THE LEGAL SYSTEM 213
13 THE MANITOBA FASD YOUTH JUSTICE PROGRAM: ADDRESSING CRIMINAL JUSTICE
ISSUES 225 MARY KATE HARVIE, SALLY E.A. LONGSTAJFE, AND ALBERT E.
CHUDLEY
13.1 INTRODUCTION 215
13.2 THE LEGISLATIVE CONTEXT 216 13.3 THE INFORMATION GAP 217
13.4 THE MANITOBA FASD YOUTH JUSTICE PROGRAM 220 13.5 SCREENING 221
13.6 THE PREASSESSMENT PERIOD 222 13.7 MEDICAL ASSESSMENT 222 13.8 THE
DOCTOR S REPORT AND ITS USE 223
13.9 SENTENCING CONFERENCES 224 13.10 THE SENTENCING PROCESS 225 13.11
THE STATISTICAL OUTCOMES 225 13.12 ONE-DAY SNAP-SHOT OF AGE OF MAJORITY
YOUTH
(28 FEBRUARY 2010) 226 13.13 OTHER INITIATIVES 226 13.13.1 THIS IS ME
226
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CONTENTS XI
13.13.2 THIS IS ME LIFE BOOKS 227
13.13.3 THE ICONS PROJECT 227 13.13.4 YOUTH ACCOMMODATION COUNSEL 229
13.14 STRENGTHS AND CHALLENGES 229 REFERENCES 231
14 UNDERSTANDING FASD: DISABILITY AND SOCIAL SUPPORTS FOR ADULT
OFFENDERS 233 E. SHARON BRINTNELL, PATRICIA G. BAILEY, ANJILI SAWHNEY,
LAURA KREFIIN
14.1 FETAL ALCOHOL SPECTRUM DISORDER (FASD) IS A DISABILITY 234 14.1.1
PRIMARY DISABILITIES ASSOCIATED WITH FASD 234 14.1.2 SECONDARY
DISABILITIES ASSOCIATED WITH FASD 235 14.1.3 THE SOCIAL DETERMINANTS OF
HEALTH AND FASD 236 14.1.4 HUMAN RIGHTS AND FASD 237 14.1.5
INCARCERATION AND FASD 237 14.2 CORRECTIONAL ENVIRONMENT IN CANADA FOR
ADULTS
WITH FASD 238
14.2.1 TREATMENT PROGRAMS 240 14.2.2 RECIDIVISM AND ALTERNATIVE
SENTENCING 240 14.2.3 RELEASE PLANNING 242 14.2.4 CORRECTIONAL SYSTEM
NEEDS 243 14.3 INTERVENTIONS AND SOCIAL SUPPORTS FOR ADULTS WITH FASD
AFTER
RELEASE 244
14.3.1 CLIENT-CENTERED LIFELONG MULTISECTORAL SUPPORTS 245 14.3.2
EMPLOYMENT AND HOUSING 246 14.3.3 TRAINING AND PROGRAMS 247
14.3.4 EXTERNAL EXECUTIVE FUNCTION SUPPORT 248 14.3.5 FASD COSTS 249
14.3.6 DEVELOPMENTAL DISABILITY ASSISTANCE 250 14.4 POLICY
CONSIDERATIONS FOR ADULTS WITH FASD 252
REFERENCES 253
15 POLICY DEVELOPMENT IN FASD FOR INDIVIDUALS AND FAMILIES ACROSS THE
LIFESPAN 259 DOROTHY BADRY AND AILEEN WIGHT FELSKE 15.1 INTRODUCTION 259
15.2 BIRTH 261
15.3 CHILDHOOD 262
15.4 ADOLESCENCE/TEENAGE YEARS 264 15.5 ADULTHOOD 265
15.6 A DISABILITY PARADIGM FOR FASD 267 15.7 CULTURAL FAIRNESS 268
15.8 LIFE TRAJECTORY POLICY MODEL 269 15.9 CONCLUSIONS 270
REFERENCES 272
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XII CONTENTS
16 THE IMPACT OF FASD: CHILDREN WITH FASD INVOLVED WITH THE MANITOBA
CHILD WELFARE SYSTEM 275 LINDA BURNSIDE, DON FUCHS, SHELAGH MARCHENSKI,
ANDRIA MUDRY, LINDA DE RIVIERE, MARNI BROWNELL, AND MATTHEW DAHL 16.1
INTRODUCTION 275
16.2 STUDY ONE: CHILDREN IN CARE WITH DISABILITIES 277 16.3 STUDY TWO:
THE TRAJECTORY OF CARE FOR CHILDREN WITH FASD 278 16.4 STUDY THREE:
YOUTH WITH FASD LEAVING CARE 280
16.5 STUDY FOUR: THE COST OF CHILD WELFARE CARE FOR CHILDREN WITH FASD
282 16.6 STUDY FIVE: ECONOMIC IMPACT OF FASD FOR CHILDREN IN CARE 284
16.7 CONCLUSIONS 292
REFERENCES 293
17 BRITISH COLUMBIA S KEY WORKER AND PARENT SUPPORT PROGRAM: EVALUATION
HIGHLIGHTS AND IMPLICATIONS FOR PRACTICE AND POLICY 297 DEBORAH RUTMAN,
CAROL HUBBERSTEY, AND SHARON HUME 17.1 INTRODUCTION 297
17.2 BACKGROUND 297
17.3 PROGRAM MODEL AND COMPONENTS 298 17.4 LITERATURE 299
17.5 EVALUATION METHODS 300 17.6 FORMATIVE EVALUATION FINDINGS 301
17.6.1 ACTIVITIES AND ROLE OF THE KEY WORKER 303 17.6.2 REGIONAL AND
PROVINCIAL SUPPORTS FOR KEY WORKERS 305 17.6.3 PARENTS , CAREGIVERS AND
COMMUNITY PARTNERS PERCEPTIONS OF
THE PROGRAM 307
17.6.4 PROGRAM CHALLENGES 308 17.7 SUMMATIVE EVALUATION FINDINGS 309
17.7.1 INCREASED KNOWLEDGE ABOUT FASD 309 17.7.2 SHIFTS IN PARENTING
STRATEGIES AND RESPONSES 310 17.7.3 FEELING SUPPORTED 310
17.7.4 INCREASED ACCESS TO SERVICES AND RESOURCES 311 17.8 DISCUSSION
321
17.8.1 PROMISING PRACTICES 322 17.9 POLICY CONSIDERATIONS 313 17.10
CONCLUSIONS 324 REFERENCES 315
18 FASD AND EDUCATION POLICY: ISSUES AND DIRECTIONS 317 ELIZABETH
BREDBERG 18.1 INTRODUCTION 327
18.2 WHERE DO STUDENTS WITH FASD FIT INTO THE EDUCATION SYSTEM? 318
18.2.1 ELIGIBILITY 329 18.2.2 EXCLUSION AND DISCIPLINE 319
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CONTENTS XIII
18.2.3 ACCOUNTABILITY: CURRICULUM AND LEARNING OUTCOMES 320
18.3 STUDENTS WITH FASD WITHIN SPECIAL EDUCATION SYSTEMS 320 18.4
EDUCATION PROFESSIONALS AND FASD 321 18.5 INTER-AGENCY AND COMMUNITY
SUPPORTS FOR STUDENTS WITH FASD 322 18.6 POLICY INDICATIONS 322 18.7
CONCLUSIONS 325
REFERENCES 325
19 SHIFTING RESPONSIBILITY FROM THE INDIVIDUAL TO THE COMMUNITY 327
AUDREY MCFARLANE 19.1 INTRODUCTION 327
19.2 WHY DO WE NEED TO MAKE A SHIFT? 327 19.3 EXAMPLES OF INDIVIDUAL S
SITUATIONS 328 19 A ONE MODEL OF COMMUNITY OF CARE 330 19.4.1 DIAGNOSIS
330 19.4.2 PREVENTION 332 19.4.3 INTERVENTION 333 19.4.4 OUTCOMES 333
19.5 HISTORY 334
19.6 FUTURE 335
19.7 POLICY CONSIDERATIONS 336 19.8 CONCLUSIONS 337
ACKNOWLEDGMENTS 338 REFERENCES 338
20 A SOCIAL WORK PERSPECTIVE ON POLICIES TO PREVENT ALCOHOL CONSUMPTION
DURING PREGNANCY 339 MARY DIANA (VANDENBRINK) BERUHE REFERENCES 348
APPENDIX TO CHAPTER 20 350
21 A CROSS-MINISTRY APPROACH TO FASD ACROSS THE LIFESPAN IN ALBERTA 353
DENISE MILNE, TIM MOORHOUSE, KESA SHIKAZE, AND CROSS-MINISTRY MEMBERS
21.1 INTRODUCTION 353
21.2 THE IMPACT OF FASD 354
21.3 OVERVIEW OF STRATEGIES 356 21A FASD SERVICE NETWORK PROGRAM 356
21.5 MINISTRY INITIATIVES BASED ON THE STRATEGIC PLAN 357 21.5.1
AWARENESS AND PREVENTION 357 21.5.1.1 PARENT-CHILD ASSISTANCE PROGRAM
357 21.5.1.2 GENERATING AWARENESS/SKILLS DEVELOPMENT IN JUSTICE 358
21.5.2 ASSESSMENT AND DIAGNOSIS 358 21.5.2.1 DEVELOPMENT OF AN
ASSESSMENT AND DIAGNOSIS MODEL FOR ABORIGINAL AND REMOTE COMMUNITIES 358
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XIV CONTENTS
21.5.2.2 ADULT ASSESSMENT AND DIAGNOSIS DEMONSTRATION PROJECT 359
21.5.2.3 DEVELOPMENT OF FASD CLINICAL CAPACITY 359 21.5.3 SUPPORTS FOR
INDIVIDUALS AND CAREGIVERS 360 21.5.3.1 EMPLOYMENT SUPPORTS FOR PEOPLE
AFFECTED BY FASD 360 21.5.3.2 EMPLOYMENT SUPPORTS AND SERVICES 361
21.5.3.3 FASD: SUPPORTING ADULTS GAIN AND MAINTAIN EMPLOYMENT 362
21.5.3.4 AVENTA ADDICTION TREATMENT FOR WOMEN DEMONSTRATION PROJECT 361
21.5.3.5 KALEIDOSCOPE DEMONSTRATION PROJECT 363 21.5.3.6 FASD COMMUNITY
OUTREACH PROGRAM DEMONSTRATION
PROJECT 361
21.5.3.7 STEP-BY-STEP DEMONSTRATION PROJECT 362 21.5.3.8 WELL
COMMUNITIES-WELL FAMILIES DEMONSTRATION PROJECT 362 21.5.3.9 SERVICE
COORDINATION AND MENTORSHIP 362 21.5.3.10 FASD VIDEOCONFERENCE LEARNING
SERIES 362 21.5.3.11 SUPPORTS THROUGH JUSTICE 363 21.5.3.12 FIRST
NATIONS AND INUIT SUPPORTS 363 21.5.3.13 THE WRAP (WELLNESS, RESILIENCY
AND PARTNERSHIPS) COACHING
DEMONSTRATION PROJECT 363 21.5.4 TRAINING AND EDUCATION 364 21.5.4.1
DEVELOPMENT OF E-LEARNING MODULES 364 21.5.4.2 PROMISING PRACTICES,
PROMISING FUTURES: ALBERTA FASD CONFERENCE
2009 AND 2010 364 21.5.4.3 IHE CONSENSUS DEVELOPMENT CONFERENCE ON FASD:
ACROSS THE LIFESPAN 365 21.5.4.4 FASD EDUCATION AND TRAINING 365
21.5.4.5 LEADING PRACTICES WORKSHOPS 365 21.5.4.6 BUILDING AN EDUCATED
WORKFORCE 365 21.5.5 STRATEGIC PLANNING 366 21.5.6 RESEARCH AND
EVALUATION 366 21.5.6.1 CORRECTIONS AND CONNECTIONS TO COMMUNITY 366
21.5.6.2 FASD COMMUNITY OF PRACTICE RESEARCH 367 21.5.6.3 RESEARCH
PROJECT ON SCHOOL EXPERIENCES OF CHILDREN
WITH FASD 367
21.5.7 STAKEHOLDER ENGAGEMENT 367 REFERENCES 368
22 CRITICAL CONSIDERATIONS FOR INTERVENTION PLANNING FOR CHILDREN WITH
FASD 369 JOHN D. MCLENNAN 22.1 INTRODUCTION 369 22.2 THE DEVELOPMENT OF
A RATIONAL SERVICE SYSTEM FOR AT-RISK
CHILDREN 369
22.3 FACTORS SUPPORTING THE DEVELOPMENT OF SEPARATE SPECIALIZED SERVICES
FOR SUBGROUPS OF AT-RISK CHILDREN 370
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CONTENTS XV
22.3.1 WHAT IS THE PREVALENCE OF THE SPECIAL SUBPOPULATION? 370
22.3.2 WHAT IS THE PREVALENCE OF SPECIFIC DIFFICULTIES/NEEDS WITHIN THE
SPECIAL SUBPOPULATION? 372 22.3.3 WHAT IS THE ATTRIBUTABLE RISK OF THE
PARTICULAR DISORDER FOR THESE SPECIFIC DIFFICULTIES? 372
223 A WHAT IS THE EFFECTIVENESS OF INTERVENTIONS FOR THE SUBPOPULATION?
372 22.3.5 IS THERE EVIDENCE FOR UNIQUE BENEFITS TO SUPPORT SEPARATING
OUT SERVICES FOR THE SUBPOPULATION? 372 22.3.6 ARE THERE RISKS IN
DELIVERING SERVICES SEPARATELY FOR THE
SUBPOPULATION? 372 22.4 SHOULD SEPARATE SPECIALIZED SERVICES BE
DEVELOPED FOR CHILDREN WITH FASD? 372 22.4.1 WHAT IS THE PREVALENCE OF
FASD? 372 22.4.2 WHAT IS THE PREVALENCE OF SPECIFIC DIFFICULTIES/NEEDS
WITHIN A
POPULATION OF CHILDREN WITH FASD? 373 22.4.3 WHAT IS THE ATTRIBUTABLE
RISK OF FASD FOR THESE SPECIFIC DIFFICULTIES? 375 22.4.4 WHAT IS THE
EFFECTIVENESS OF INTERVENTIONS FOR FASD? 378 22.4.5 IS THERE EVIDENCE
FOR UNIQUE BENEFITS TO SUPPORT SEPARATING-OUT
SERVICES FOR CHILDREN WITH FASD? 379 22.4.6 ARE THERE RISKS IN
DELIVERING SERVICES SEPARATELY FOR CHILDREN WITH FASD? 382 22.5 POLICY
CONSIDERATIONS: STRENGTHENING THE SERVICE SYSTEM FOR A BROADER
RANGE OF CHILDREN AT-RISK 383 ACKNOWLEDGMENTS 383 REFERENCES 383
PART FIVE RESEARCH NEEDED ON FASD 387
23 FASD RESEARCH IN PRIMARY, SECONDARY, AND TERTIARY PREVENTION:
BUILDING THE NEXT GENERATION OF HEALTH AND SOCIAL POLICY RESPONSES 389
AMY SALMON AND STERLING CLARREN 23.1 INTRODUCTION 389
23.2 MAPPING PREVENTION: WHAT RESEARCH IS NEEDED NOW, AND WHY? 390
23.2.1 PRIMARY PREVENTION: SOCIAL SUPPORT AND DETERMINANTS OF WOMEN S
HEALTH 390 23.2.2 ACCURATE DIAGNOSIS OF FASD: PREVENTING SECONDARY
DISABILITIES AND REACHING OUT TO MOTHERS (AND POTENTIAL MOTHERS) 393
23.3 CONCLUSIONS: DRAWING A ROAD-MAP FOR INTEGRATED, SUPPORTIVE, AND
EFFECTIVE CARE 396
REFERENCES 397
IMAGE 12
XVI CONTENTS
24 FOCUSING RESEARCH EFFORTS: WHAT FURTHER RESEARCH INTO FASD
IS NEEDED? 399 SARA JO NIXON, ROBERT A. PRATHER, AND REBECCA J.
GILBERTSON 24.1 INTRODUCTION 399 24.2 FASD AND HETEROGENEITY: AN
ENCOURAGING OUTCOME 399 24.3 MODELS: MOVING BEYOND DESCRIPTION 402 24.4
APPLYING NEUROSCIENCE: BEYOND THE MOTHER? 403 24.5 SUMMARY 405
REFERENCES 406
PART SIX PERSONAL VIEWS FROM PEOPLE LIVING WITH FASD 42 2
25 LIVING WITH FASD 413
MYLES HIMMELREICH
26 CHARLENE S JOURNEY 439
CHARLENE ORGAN
APPENDIX: FASD CONSENSUS STATEMENT OF THE JURY 433 ACKNOWLEDGMENTS 433
PROCESS 433 CONFERENCE QUESTIONS 434
INTRODUCTION 434 QUESTION 1 434 QUESTION 2 435 QUESTION 3 436 QUESTION 4
438 QUESTION 5 439 QUESTION 6 442 CONCLUSION 442 JURY MEMBERS 443
CONFERENCE SPEAKERS AND TOPICS 443
PLANNING COMMITTEE 446 SCIENTIFIC COMMITTEE 447 COMMUNICATIONS COMMITTEE
448 DISCLOSURE STATEMENT 448
INSTITUTE OF HEALTH ECONOMICS 448 IHE BOARD OF DIRECTORS 448 CHAIR 448
GOVERNMENT 449 ACADEMIA 449
INDUSTRY 449 OTHER 449 CEO 449 FASD RESEARCH AND RESOURCES 450
INDEX 45I
|
| any_adam_object | 1 |
| author2 | Riley, Edward P. |
| author2_role | edt |
| author2_variant | e p r ep epr |
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| author_facet | Riley, Edward P. |
| building | Verbundindex |
| bvnumber | BV036851575 |
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| ctrlnum | (OCoLC)992928680 (DE-599)DNB1002408539 |
| dewey-full | 618.326861 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 618 - Gynecology, obstetrics, pediatrics, geriatrics |
| dewey-raw | 618.326861 |
| dewey-search | 618.326861 |
| dewey-sort | 3618.326861 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| format | Electronic eBook |
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| spelling | Fetal alcohol spectrum disorder management and policy perspectives of FASD ed. by Edward P. Riley ... Weinheim Wiley-Blackwell 2010 1 Online-Ressource (XXIV, 458 S.) Ill., graph. Darst. txt rdacontent c rdamedia cr rdacarrier Health care and disease management Fetale Alkoholspektrumstörung (DE-588)4137391-1 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Fetale Alkoholspektrumstörung (DE-588)4137391-1 s DE-604 Riley, Edward P. (DE-588)142723495 edt Erscheint auch als Druck-Ausgabe 978-3-527-32839-0 https://onlinelibrary.wiley.com/doi/book/10.1002/9783527632510 Verlag URL des Erstveröffentlichers Volltext DNB Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020767531&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Fetal alcohol spectrum disorder management and policy perspectives of FASD Fetale Alkoholspektrumstörung (DE-588)4137391-1 gnd |
| subject_GND | (DE-588)4137391-1 (DE-588)4143413-4 |
| title | Fetal alcohol spectrum disorder management and policy perspectives of FASD |
| title_auth | Fetal alcohol spectrum disorder management and policy perspectives of FASD |
| title_exact_search | Fetal alcohol spectrum disorder management and policy perspectives of FASD |
| title_full | Fetal alcohol spectrum disorder management and policy perspectives of FASD ed. by Edward P. Riley ... |
| title_fullStr | Fetal alcohol spectrum disorder management and policy perspectives of FASD ed. by Edward P. Riley ... |
| title_full_unstemmed | Fetal alcohol spectrum disorder management and policy perspectives of FASD ed. by Edward P. Riley ... |
| title_short | Fetal alcohol spectrum disorder |
| title_sort | fetal alcohol spectrum disorder management and policy perspectives of fasd |
| title_sub | management and policy perspectives of FASD |
| topic | Fetale Alkoholspektrumstörung (DE-588)4137391-1 gnd |
| topic_facet | Fetale Alkoholspektrumstörung Aufsatzsammlung |
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