Children's palliative care in Africa:
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Oxford [u.a.]
Oxford Univ. Press
2009
|
| Ausgabe: | 1. publ. |
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis Klappentext |
| Beschreibung: | Includes bibliographical references and index |
| Beschreibung: | XXII, 424 S. Ill., graph. Darst. |
| ISBN: | 9780199567966 0199567964 |
Internformat
MARC
| LEADER | 00000nam a2200000zc 4500 | ||
|---|---|---|---|
| 001 | BV036686716 | ||
| 003 | DE-604 | ||
| 005 | 20110111 | ||
| 007 | t | ||
| 008 | 100924s2009 xxkad|| |||| 00||| eng d | ||
| 010 | |a 2010286051 | ||
| 015 | |a GBA938907 |2 dnb | ||
| 020 | |a 9780199567966 |c alk. paper |9 978-0-19-956796-6 | ||
| 020 | |a 0199567964 |c alk. paper |9 0-19-956796-4 | ||
| 035 | |a (OCoLC)705865722 | ||
| 035 | |a (DE-599)HBZHT016022499 | ||
| 040 | |a DE-604 |b ger |e aacr | ||
| 041 | 0 | |a eng | |
| 044 | |a xxk |c GB | ||
| 049 | |a DE-703 |a DE-355 | ||
| 050 | 0 | |a RJ249 | |
| 082 | 0 | |a 362.17/5096 | |
| 084 | |a MS 6300 |0 (DE-625)123749: |2 rvk | ||
| 084 | |a XC 2724 |0 (DE-625)152506:12930 |2 rvk | ||
| 245 | 1 | 0 | |a Children's palliative care in Africa |c ed. by Justin Amery |
| 250 | |a 1. publ. | ||
| 264 | 1 | |a Oxford [u.a.] |b Oxford Univ. Press |c 2009 | |
| 300 | |a XXII, 424 S. |b Ill., graph. Darst. | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 500 | |a Includes bibliographical references and index | ||
| 650 | 4 | |a Terminally ill children |x Care |z Africa | |
| 650 | 4 | |a Palliative treatment |z Africa | |
| 650 | 4 | |a Palliative Care |z Africa | |
| 650 | 4 | |a Adolescent |z Africa | |
| 650 | 4 | |a Child |z Africa | |
| 650 | 4 | |a Child, Preschool |z Africa | |
| 650 | 4 | |a Infant |z Africa | |
| 650 | 4 | |a Terminal Care |z Africa | |
| 650 | 0 | 7 | |a Palliativtherapie |0 (DE-588)4115490-3 |2 gnd |9 rswk-swf |
| 650 | 0 | 7 | |a Afrikanisches Kind |0 (DE-588)4575910-8 |2 gnd |9 rswk-swf |
| 651 | 4 | |a Afrika | |
| 689 | 0 | 0 | |a Afrikanisches Kind |0 (DE-588)4575910-8 |D s |
| 689 | 0 | 1 | |a Palliativtherapie |0 (DE-588)4115490-3 |D s |
| 689 | 0 | |5 DE-604 | |
| 700 | 1 | |a Amery, Justin |e Sonstige |4 oth | |
| 856 | 4 | 2 | |m Digitalisierung UB Regensburg |q application/pdf |u http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000005&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |3 Inhaltsverzeichnis |
| 856 | 4 | 2 | |m Digitalisierung UB Regensburg |q application/pdf |u http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000006&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |3 Klappentext |
| 999 | |a oai:aleph.bib-bvb.de:BVB01-020605447 | ||
Datensatz im Suchindex
| _version_ | 1804143318528950272 |
|---|---|
| adam_text | Contents
The authors
xiii
Acknowledgements
xix
List of abbreviations
xxi
1
Introduction
1
Section
1 :
The basics of children s palliative care
2
Communicating with children and their families
11
Justin Amery, Gillian Chowns, Julia Downing, Eunice Garanganga,
Linda Ganca and Susie Lapwood
3
Play and development
37
Sue Boucher and Justin Amery
4
Assessment and management planning
79
Caroline Rose and Justin Amery
Section
2:
Symptom control in children s palliative care
5
Pain
97
Justin Amery, Michelle Meiring, Renee
Albertyn
and Satjassal
6
Respiratory symptoms
125
Justin Amery and Michelle Meiring
7
Feeding and hydration problems
133
Justin Amery
8
Gastrointestinal symptoms
155
Justin Amery, Michelle Meiring and Caroline Rose
9
Neurological symptoms
171
Justin Amery, Susie Lapwood and Michelle Meiring
10
Skin problems
189
Justin Amery and
Michette
Meiring
11
Urinary symptoms
201
Justin Amery and Michelle Meiring
12 HIV/
AIDS
207
Justin Amery, Jenny Sengooba, Ivy Kasiyre and Michelle Meiring
Section
3:
Holistic care
13
Psychosocial and family care
227
Justin Amery, Nkosazana Ngidi, Caroline Rose,
Collette
Cunningham,
Carla
Horne
and Linda Ganca
X¡¡
CONTENTS
14
Pre-bereavement
and bereavement
249
Justin Amery,
Collette
Cunningham, Nkosazana Ngidi, Eunice Garanganga,
Carla
Home and Jenny Ssengooba
15
Spirituality
271
Justin Amery, Eunice Garanganga and
Carla
Home
16
Palliative care for adolescents
289
Justin Amery, Julia Downing and
Collette
Cunningham
17
Ethics and law
305
Justin Amery, Joan Marston and Nkosazana Ngidi
Section
4:
Bringing it all together
-
caring at the end of life
18
Caring for children at the end of life
327
Michelle Meiring and Justin Amery
Section
5:
Caring for yourself
19
Caring for yourself
351
Justin Amery, Mary Bunn, Susie Lapwood and Gillian Chowns
Section
6:
Children s palliative care formulary for Africa
20
Formulary
377
Justin Amery and Sat Jassal
Further reading
411
Index
415
Children s palliative care has developed rapidly as a discipline, as health care
professionals recognize that the principles of adult palliative care may not always be
applicable to children at the end of life. The unique needs of children with life-limiting
illnesses and dying children are particularly evident across Africa, where the scale
of the problem is overwhelming and the figures so enormous that they are barely
comprehensible: over
400,000
children in Africa died from AIDS in
2003,
and out of the
166,000
children a year diagnosed with cancer,
84%
of these are in the developing world.
Despite the enormous need, provision of children s palliative care in Africa is almost non¬
existent, with very few health workers trained and confident enough to provide care for
dying children. The challenges of providing palliative care in this setting are different to
those in more developed countries, contending with the shortage of physical and human
resources in addition to the vast scope of the care needed.
Written by a group with wide experience of caring for dying children in Africa, this
book provides practical, realistic guidance on improving access to, and the delivery of,
palliative care in this demanding setting. It looks at the themes common to palliative
care—including communication, assessment, symptom management,
psychosocial
issues, ethical dilemmas, end of life care, as well as providing tips for the professional
on compassion and conservation of energy—but always retains the focus on the
particular needs of the health care professional in Africa. Whilst containing some
theory, the emphasis is on practical action throughout. This accessible, evidence-based
text contains cases to link theory to practice, and encourages critical and reflective
thinking. It will provide health care professionals working in Africa, and other resource-
poor settings, with the confidence, knowledge, and capacity to improve care for a
terminally ill child in constrained and demanding environments.
Although focusing on children s palliative care in Africa, and therefore of immediate
relevance to all health professionals working in this environment, this book is also of
interest to a broader audience. Health and social care professionals across the related
fields of HIV/AIDS, general child health, and adult palliative care, will find much of
interest, whilst many of the concepts will be applicable to other resource-poor settings,
as well as to more developed palliative care services.
|
| any_adam_object | 1 |
| building | Verbundindex |
| bvnumber | BV036686716 |
| callnumber-first | R - Medicine |
| callnumber-label | RJ249 |
| callnumber-raw | RJ249 |
| callnumber-search | RJ249 |
| callnumber-sort | RJ 3249 |
| callnumber-subject | RJ - Pediatrics |
| classification_rvk | MS 6300 XC 2724 |
| ctrlnum | (OCoLC)705865722 (DE-599)HBZHT016022499 |
| dewey-full | 362.17/5096 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
| dewey-raw | 362.17/5096 |
| dewey-search | 362.17/5096 |
| dewey-sort | 3362.17 45096 |
| dewey-tens | 360 - Social problems and services; associations |
| discipline | Soziologie Medizin |
| edition | 1. publ. |
| format | Book |
| fullrecord | <?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>02237nam a2200565zc 4500</leader><controlfield tag="001">BV036686716</controlfield><controlfield tag="003">DE-604</controlfield><controlfield tag="005">20110111 </controlfield><controlfield tag="007">t</controlfield><controlfield tag="008">100924s2009 xxkad|| |||| 00||| eng d</controlfield><datafield tag="010" ind1=" " ind2=" "><subfield code="a">2010286051</subfield></datafield><datafield tag="015" ind1=" " ind2=" "><subfield code="a">GBA938907</subfield><subfield code="2">dnb</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9780199567966</subfield><subfield code="c">alk. paper</subfield><subfield code="9">978-0-19-956796-6</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">0199567964</subfield><subfield code="c">alk. paper</subfield><subfield code="9">0-19-956796-4</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)705865722</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)HBZHT016022499</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-604</subfield><subfield code="b">ger</subfield><subfield code="e">aacr</subfield></datafield><datafield tag="041" ind1="0" ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="044" ind1=" " ind2=" "><subfield code="a">xxk</subfield><subfield code="c">GB</subfield></datafield><datafield tag="049" ind1=" " ind2=" "><subfield code="a">DE-703</subfield><subfield code="a">DE-355</subfield></datafield><datafield tag="050" ind1=" " ind2="0"><subfield code="a">RJ249</subfield></datafield><datafield tag="082" ind1="0" ind2=" "><subfield code="a">362.17/5096</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="a">MS 6300</subfield><subfield code="0">(DE-625)123749:</subfield><subfield code="2">rvk</subfield></datafield><datafield tag="084" ind1=" " ind2=" "><subfield code="a">XC 2724</subfield><subfield code="0">(DE-625)152506:12930</subfield><subfield code="2">rvk</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">Children's palliative care in Africa</subfield><subfield code="c">ed. by Justin Amery</subfield></datafield><datafield tag="250" ind1=" " ind2=" "><subfield code="a">1. publ.</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="a">Oxford [u.a.]</subfield><subfield code="b">Oxford Univ. Press</subfield><subfield code="c">2009</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">XXII, 424 S.</subfield><subfield code="b">Ill., graph. Darst.</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="b">n</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="b">nc</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="500" ind1=" " ind2=" "><subfield code="a">Includes bibliographical references and index</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Terminally ill children</subfield><subfield code="x">Care</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Palliative treatment</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Palliative Care</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Adolescent</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Child</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Child, Preschool</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Infant</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1=" " ind2="4"><subfield code="a">Terminal Care</subfield><subfield code="z">Africa</subfield></datafield><datafield tag="650" ind1="0" ind2="7"><subfield code="a">Palliativtherapie</subfield><subfield code="0">(DE-588)4115490-3</subfield><subfield code="2">gnd</subfield><subfield code="9">rswk-swf</subfield></datafield><datafield tag="650" ind1="0" ind2="7"><subfield code="a">Afrikanisches Kind</subfield><subfield code="0">(DE-588)4575910-8</subfield><subfield code="2">gnd</subfield><subfield code="9">rswk-swf</subfield></datafield><datafield tag="651" ind1=" " ind2="4"><subfield code="a">Afrika</subfield></datafield><datafield tag="689" ind1="0" ind2="0"><subfield code="a">Afrikanisches Kind</subfield><subfield code="0">(DE-588)4575910-8</subfield><subfield code="D">s</subfield></datafield><datafield tag="689" ind1="0" ind2="1"><subfield code="a">Palliativtherapie</subfield><subfield code="0">(DE-588)4115490-3</subfield><subfield code="D">s</subfield></datafield><datafield tag="689" ind1="0" ind2=" "><subfield code="5">DE-604</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Amery, Justin</subfield><subfield code="e">Sonstige</subfield><subfield code="4">oth</subfield></datafield><datafield tag="856" ind1="4" ind2="2"><subfield code="m">Digitalisierung UB Regensburg</subfield><subfield code="q">application/pdf</subfield><subfield code="u">http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000005&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA</subfield><subfield code="3">Inhaltsverzeichnis</subfield></datafield><datafield tag="856" ind1="4" ind2="2"><subfield code="m">Digitalisierung UB Regensburg</subfield><subfield code="q">application/pdf</subfield><subfield code="u">http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000006&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA</subfield><subfield code="3">Klappentext</subfield></datafield><datafield tag="999" ind1=" " ind2=" "><subfield code="a">oai:aleph.bib-bvb.de:BVB01-020605447</subfield></datafield></record></collection> |
| geographic | Afrika |
| geographic_facet | Afrika |
| id | DE-604.BV036686716 |
| illustrated | Illustrated |
| indexdate | 2024-07-09T22:45:45Z |
| institution | BVB |
| isbn | 9780199567966 0199567964 |
| language | English |
| lccn | 2010286051 |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-020605447 |
| oclc_num | 705865722 |
| open_access_boolean | |
| owner | DE-703 DE-355 DE-BY-UBR |
| owner_facet | DE-703 DE-355 DE-BY-UBR |
| physical | XXII, 424 S. Ill., graph. Darst. |
| publishDate | 2009 |
| publishDateSearch | 2009 |
| publishDateSort | 2009 |
| publisher | Oxford Univ. Press |
| record_format | marc |
| spelling | Children's palliative care in Africa ed. by Justin Amery 1. publ. Oxford [u.a.] Oxford Univ. Press 2009 XXII, 424 S. Ill., graph. Darst. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references and index Terminally ill children Care Africa Palliative treatment Africa Palliative Care Africa Adolescent Africa Child Africa Child, Preschool Africa Infant Africa Terminal Care Africa Palliativtherapie (DE-588)4115490-3 gnd rswk-swf Afrikanisches Kind (DE-588)4575910-8 gnd rswk-swf Afrika Afrikanisches Kind (DE-588)4575910-8 s Palliativtherapie (DE-588)4115490-3 s DE-604 Amery, Justin Sonstige oth Digitalisierung UB Regensburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000005&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Regensburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000006&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
| spellingShingle | Children's palliative care in Africa Terminally ill children Care Africa Palliative treatment Africa Palliative Care Africa Adolescent Africa Child Africa Child, Preschool Africa Infant Africa Terminal Care Africa Palliativtherapie (DE-588)4115490-3 gnd Afrikanisches Kind (DE-588)4575910-8 gnd |
| subject_GND | (DE-588)4115490-3 (DE-588)4575910-8 |
| title | Children's palliative care in Africa |
| title_auth | Children's palliative care in Africa |
| title_exact_search | Children's palliative care in Africa |
| title_full | Children's palliative care in Africa ed. by Justin Amery |
| title_fullStr | Children's palliative care in Africa ed. by Justin Amery |
| title_full_unstemmed | Children's palliative care in Africa ed. by Justin Amery |
| title_short | Children's palliative care in Africa |
| title_sort | children s palliative care in africa |
| topic | Terminally ill children Care Africa Palliative treatment Africa Palliative Care Africa Adolescent Africa Child Africa Child, Preschool Africa Infant Africa Terminal Care Africa Palliativtherapie (DE-588)4115490-3 gnd Afrikanisches Kind (DE-588)4575910-8 gnd |
| topic_facet | Terminally ill children Care Africa Palliative treatment Africa Palliative Care Africa Adolescent Africa Child Africa Child, Preschool Africa Infant Africa Terminal Care Africa Palliativtherapie Afrikanisches Kind Afrika |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000005&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020605447&sequence=000006&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT ameryjustin childrenspalliativecareinafrica |