New challenges for biobanks: ethics, law and governance ; [conference, Leuven, May 1820, 2009]
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| Format: | Buch |
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| Sprache: | English |
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Antwerpen [u.a.]
Intersentia
2009
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| Online-Zugang: | Inhaltsverzeichnis Inhaltsverzeichnis |
| Beschreibung: | XX, 277 S. graph. Darst. |
| ISBN: | 9789050959742 |
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Datensatz im Suchindex
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| adam_text | IMAGE 1
NEW CHALLENGES FOR
BIOBANKS: ETHICS, LAW AND GOVERNANCE
KRIS DIERICKX PASCAL BORRY
(EDS.)
INTERSENTIA
ANTWERP - OXFORD - PORTLAND
IMAGE 2
TABLE OF CONTENTS
INTRODUCTION V
CHAPTER 1.
BIOBANKS, NETWORKS AND NETWORKS OF NETWORKS DARREN SHICKLE AND MARCUS
GRIFFIN 1
I. INTRODUCTION 1
II. THE RATIONALE FOR BIOBANKS 1
III. THE DIFFICULTIES WITH BIOBANKS 2
IV. THE MOVE TO NETWORKING 3
V. DIFFERENT FORMS OF NETWORK 4
§1. STORAGE NETWORKS 5
§2. BRING AND SHARE STORAGE NETWORKS 6
§3. CATALOGUE NETWORKS 7
§4. ASSOCIATION NETWORKS 10
§5. EXPERTISE AND HARMONISATION NETWORKS 12
VI. NETWORKING OF PROSPECTIVE POPULATION COHORTS 14
VII. DRIVERS AND BARRIERS FOR NETWORKING 15
LITERATURE 17
CHAPTER 2.
EVOLUTION IN RESEARCH BIOBANKS AND ITS LEGAL CONSEQUENCES GERALDINE
FOBELETS AND HERMAN NYS 19
I. INTRODUCTION 19
II. EVOLUTION IN RESEARCH BIOBANKS 19
§1. EVOLUTION IN SCIENCE 19
§2. CRUCIAL CHANGES IN RESEARCH BIOBANKS 20
III. LEGAL CONSEQUENCES 21
§1. RIGHT TO AUTONOMY 22
§2. RIGHTS TO KNOW AND NOT TO KNOW 23
§3. RIGHTS TO PRIVACY 24
§4. RIGHT TO NON-DISCRIMINATION 25
INTERSENTIA XI
IMAGE 3
TABLE OF CONTENTS
IV. REGULATION DIFFICULTIES 26
V. CONCLUSION 26
LITERATURE 27
CHAPTER 3. ASSESSING VALUES TO SET POLICIES FOR CONSENT, STORAGE, AND
USE OF TISSUE AND INFORMATION IN BIOBANKS LORI ANDREWS 31
I. INTRODUCTION 31
II. LEGAL AND ETHICAL ISSUES 32
III. ANALYSIS OF STUDIES OF PEOPLE S ATTITUDES TOWARDS PARTICIPATION IN
RESEARCH, USE OF THEIR MEDICAL INFORMATION IN RESEARCH, AND USE OF THEIR
TISSUE IN RESEARCH 33
§1. THE ABILITY TO CHOOSE THE TYPE OF RESEARCH THEIR SAMPLE OR DATA WILL
BE USED IN 34
§2. ASSURANCE ABOUT ANONYMITY, PRIVACY AND THE LINKING OF ASSOCIATED
INFORMATION 35
§3. THE APPLICABILITY OF THE RESEARCH STUDY TO THEM OR TO THEIR LOVED
ONES 36
§4. WHETHER THEIR SAMPLE WILL BE STORED 36
§5. WHETHER THEIR SAMPLES AND DATA WILL BE SHARED WITH OTHER RESEARCHERS
37
§6. TRUST IN THE RESEARCHER OR RESEARCH INSTITUTION 37
§7. WHETHER OTHER ENTITIES WILL HAVE ACCESS TO THE TISSUE SAMPLES AND
DATA 38
§8. COMMERCIALIZATION OF THE RESEARCH 38
IV. CONCLUSION 40
LITERATURE . . .. 40
CHAPTER 4.
BETWEEN INDIVIDUALISM AND SOLIDARITY: BIOBANKING IN SWEDEN KATHARINA
BEIER 49
I. INTRODUCTION . . .. 49
II. BIOBANKING IN SWEDEN 50
§1. THE BIOBANKS IN MEDICAL CARE ACT: EMPOWERMENT OF THE INDIVIDUAL
PATIENT 51
X11 INTERSENTIA
IMAGE 4
TABLE OF CONTENTS
§2. LIMITATIONS TO A STRICT INDIVIDUALISTIC FRAMEWORK 52
A. VAGUE RELATION BETWEEN SAMPLES AND DATA 52
B. LIMITED SCOPE OF THE BIOBANKS IN MEDICAL CARE ACT 53 C. STRONG
POSITION OF RESEARCH ETHICS COMMITTEES 53 D. POLICE ACCESS TO THE
PKU-REGISTER 54
§3. A NATURAL RECONCILIATION BETWEEN INDIVIDUALISM AND CONCERNS OF THE
COMMON GOOD IN THE FIELD OF BIOBANK RESEARCH? 54 III. SOLIDARISTIC
BIOBANKING IN SWEDEN? 55
§1. FEELING OF BELONGING AND THE SWEDISH STATE INDIVIDUALISM 56 §2.
RECIPROCITY 56
IV. CONCLUSION 57
LITERATURE 59
CHAPTER 5. CULTURE, IDENTITY AND GENOMIC RESEARCH KERRY BOWMAN AND
MAXWELL J. SMITH 65
I. INTRODUCTION 65
II. THE MEANING OF CULTURE IN HUMAN SUBJECTS RESEARCH 66
III. BIOLOGICAL SAMPLES AND RISK TO IDENTITY/PERSONHOOD 69
IV. THREATS TO HISTORICAL IDENTITIES 70
V. THREAT TO ESTABLISHED SOCIAL HARMONY 71
VI. MORAL INTERDEPENDENCE AND INDIVIDUAL OR COLLECTIVE CONSENT 72 VII.
PROFOUND DIFFERENCES IN EXPLANATORY MODELS OF ILLNESS 73 VIII.
CONCLUSIONS 74
LITERATURE 75
CHAPTER 6. CHILDREN, BIOBANKS AND CONSENT KRISTIEN HENS AND KRIS
DIERICKX 77
I. INTRODUCTION: CHILDREN AND BIOBANKS 77
II. CHILDREN, CONSENT AND BIOBANKS: AN OVERVIEW 79
§1. CHILDREN IN BIOMEDICAL RESEARCH 79
§2. WHO SHOULD CONSENT? 80
§3. SCOPE OF PARENTAL CONSENT 81
§4. ASSENT 83
III. CONCLUSION 84
LITERATURE 85
INTERSENTIA XIII
IMAGE 5
TABLE OF CONTENTS
CHAPTER 7.
FROM MEDICAL BIOBANKS TO RESEARCH TOOLS: REUSE OF SAMPLES. GOVERNANCE
AND HUMAN RIGHTS EMMANUELLE RIAL-SEBBAG, ANNE-MARIE DUGUET AND ANNE
CAMBON-THOMSEN * * . .. 87
I. INTRODUCTION 87
II. THE RECOMMENDATION REC (2006)4 OF THE COMMITTEE OF MINISTERS TO
MEMBER STATES ON RESEARCH ON BIOLOGICAL MATERIALS OF HUMAN ORIGIN . . ..
89 §1. THE SCOPE OF THE RECOMMENDATION * * * .. 89
§2. INFORMED CONSENT AT A GLANCE * . .. 90
III. THE FRENCH LEGAL FRAMEWORK TO RE-USE SAMPLES IN RESEARCH 91
§1. FROM MISTRUST TO TRUST * . .. 91
§2. SECONDARY USE OF HUMAN BIOLOGICAL SPECIMENS IN RESEARCH:
CHANGE OF THE PURPOSE OF THE COLLECTION 92
§3. THE PRINCIPLE OF SECONDARY USE IN THE LAW ON BIOETHICS . .. 92
§4. LIMITS OF THE MODEL 93
IV. CONCLUSIONS 94
LITERATURE . .. 94
CHAPTER 8.
PROTECTION OF NON-WELFARE INTERESTS IN THE RESEARCH USES OF ARCHIVED
BIOLOGICAL SAMPLES TOM TOMLINSON 99
I. INTRODUCTION 99
II. BEYOND RISK: THE CONCEPT OF A NON-WELFARE INTEREST *. 101
III. DO SUCH INTERESTS MATTER FOR DECISIONS ABOUT RESEARCH
PARTICIPATION? -.102 IV. THE NORMATIVE DIMENSIONS OF NON-WELFARE
INTERESTS *. 103
V. PRAGMATIC AND PRINCIPLED GROUNDS FOR ACCOMMODATING INTERESTS . . . .
.. 104 VI. ANSWERING THE NORMATIVE QUESTIONS: THE CASE OF COMPLICITY *.
105 §1. THE ETHICAL SIGNIFICANCE OF COMPLICITY * * 105
§2. ACCOMMODATING CONSCIENCE 107
VII. CONCLUSION . JQ9
LITERATURE . 109
X LV
IMAGE 6
TABLE OF CONTENTS
CHAPTER 9.
PRIVACY, CONSENT AND GOVERNANCE LISA AUSTIN AND TRUDO LEMMENS ILL
I. INTRODUCTION ILL
II. INFORMED CONSENT AND THE PROBLEM OF THE UNKNOWN FUTURE 112 III.
INFORMED CONSENT TO BIOBANK PARTICIPATION 114
§1. EXAMPLE 1: HEALTH INFORMATION LEGISLATION 115
§2. EXAMPLE 2: STATISTICS CANADA RESEARCH DATA CENTRES 116 IV. CONSENT
TO FUTURE RESEARCH USES? 118
V. CONCLUSIONS 120
LITERATURE 121
CHAPTER 10.
FROM PRIVATE TO PUBLIC?
LEGAL CONCEPTS OF THE RIGHT TO PRIVACY AND OWNERSHIP IN THE REGULATION
OF BIOBANKS JUDIT SANDOR 123
I. INTRODUCTION 123
II. RIGHT TO PRIVACY 124
III. BODY IN BANK 125
IV. OWNERSHIP 128
V. CONCLUSIONS 132
LITERATURE 133
CHAPTER 11. FROM IDEALISM TO REALISM: COMMERCIAL VENTURES IN PUBLICLY
FUNDED BIOBANKS KRISTIN SOLUM STEINSBEKK, BERGE SOLBERG AND BJERN KARE
MVSKJA . .. 137
I. INTRODUCTION 137
II. NORMATIVE RECRUITMENT AND A POPULAR HEALTH STUDY 138
III. COMMERCIAL RESEARCH - A PRAGMATIC AND MORAL IMPERATIVE? 139 IV.
COMMERCIALISATION: EXPLOITATION OR COMMUNITY-BUILDING 141 V. HUNT
BIOSCIENCES AS A COMMERCIAL COMPANY IN AN UNUSUAL DRESSING.. 142 VI.
DECODE - A CAPITALISTIC BIOBANK RESEARCH MODEL 143
VII. HUNT AND UK BIOBANK - TWO VERSIONS OF A CHARITABLE TRUST? 144 VIII.
TAKING BENEFIT-SHARING SERIOUSLY 145
IX. WEAKNESSES OF A FOR-PROFIT MODEL COMMITTED ON PUBLIC GOODS 146
INTERSENTIA XV
IMAGE 7
TABLE OF CONTENTS
X. CONCLUSION 148
LITERATURE 149
CHAPTER 12. PRIVATE BIOBANKS IN ITALY: AN OVERVIEW OF THE LEGAL
FRAMEWORK MASSIMO D AURIA AND ALESSANDRO SPINA 153
I. INTRODUCTION 153
II. BIOBANKS AND THE STORAGE OF THE UMBILICAL CORD 154
§1. THE CURRENT DISCIPLINE 155
§2. A TIMID OPENING TO AUTOLOGOUS CONSERVATION AND PRIVATE BIOBANKS
INTHELAWN.31 OF THE 28 TH OF FEBRUARY 2008 156
§3. THE ORDER OF THE MINISTRY OF HEALTH OF THE 26 TH OF FEBRUARY 2009.
157 III. A CRITICAL APPRAISAL OF THE CURRENT REGULATION 158
§1. PUBLIC MONOPOLY 158
§2. DIFFERENCE BETWEEN SOLIDARITY AND THE UNPAID CHARACTER OF
TRANSACTIONS 158
§3. INFORMED CONSENT 159
§4. EXPORT OF CORD BLOOD FOR AUTOLOGOUS CONSERVATION 160 IV. TOWARDS
LEGITIMIZING PRIVATE BIOBANKS 161
§1. NON PROFIT PRIVATE INSTITUTIONS 162
§2. FOUNDATIONS 163
V. CONCLUSION 164
LITERATURE . .. 165
CHAPTER 13.
GENETIC DATABASES IN THE FORENSIC CONTEXT: A EUROPEAN PERSPECTIVE PETRA
BARD 167
I. INTRODUCTION 167
II. COMPETING DEFINITIONS OF TERRORISM AND DIFFERING APPROACHES IN
RESPONDING TO TERRORISM 168
III. DATABASES, DATA PROTECTION CONCERNS 169
IV. FORENSIC USE OF GENETIC INFORMATION 169
V. EUROPEAN DATA PROTECTION STANDARDS 171
VI. NATIONAL SENSITIVITIES AND EXCHANGE OF INFORMATION 176
VII. CONCLUSION 177
LITERATURE 178
XVI INTERSENTIA
IMAGE 8
TABLE OF CONTENTS
CHAPTER 14.
LIBERTY AND/OR SECURITY THE MAIN ETHICAL QUESTION REGARDING FORENSIC DNA
DATABASES ANNEMIE PATYN AND KRIS DIERICKX 181
I. INTRODUCTION 181
II. PERSPECTIVE: LIBERTY AND/OR SECURITY? 183
III. FORMULATION OF THE ETHICAL QUESTION 183
§1. RESTRICTION OF LIBERTY FOR THE SAKE OF THE PROMOTION OF SECURITY .
.. 184 A. INDIVIDUAL VS. SOCIETY? LIBERALISM VS. COMMUNITARISM 184 B.
THE RELATIONSHIP BETWEEN LIBERTY AND SECURITY 186
§2. WHICH RESTRICTION OF LIBERTY IS IMPLIED BY A FORENSIC DNA DATABASE?
187
A. DNA SAMPLES AND DNA PROFILES 187
B. GENETIC RELATIONSHIP AND ETHNIC INFORMATION 188
§3. EFFICIENCY 189
IV. CONCLUSION 191
LITERATURE 192
CHAPTER 15.
FORENSIC DNA ANALYSIS AND BIOBANKING IN FRANCE ANNE-MARIE DUGUET,
EMMANUELLE RIAL-SEBBAG, MARIE-CHARLOTTE LACORE AND ANNE CAMBON-THOMSEN
197
I. INTRODUCTION 197
II. BIOMETRICS AND GENETIC ANALYSIS IN FRANCE 198
§1. BIOMETRICS AND FORENSIC MEDICINE EVIDENCE 198
A. PURPOSES OF BIOMETRICS 199
B. DATA COLLECTION FOR POLICE PURPOSES 199
§2. DNA ANALYSIS, LAW AND JUSTICE 200
A. THE CIVIL USE FOR PATERNITY 200
B. THE USE OF DNA IN CRIMINAL EVIDENCE 201
III. DNA BIOBANKS 201
§1. THE FIRST NATIONAL DNA DATABASE 201
A. THE BEGINNING OF THE DNA DATABASE 201
B. THE EXTENSION OF THE DNA DATABASE 201
C. SAMPLING 202
§2. ORGANIZATION OF FNAEG 202
INTERSENTIA X V LI
IMAGE 9
TABLE OF CONTENTS
IV. DNA DATABASES AND HUMAN RIGHTS 203
§1. CONSENT FOR DNA BIOBANKING 203
A. REFUSING TO SUBMIT TO DNA SAMPLING FOR THE FNAEG 203 B. JURISPRUDENCE
BASED ON REFUSAL 204
§2. CONTROL FOR DNA BANKING 204
§3. ETHICAL CONSIDERATIONS 205
A. BREACH OF PRIVACY 205
B. TIME LIMIT FOR DNA STORAGE 206
C. DNA PROFILES OF MINORS 206
D. EXCHANGES OF DATA 206
V. CONCLUSION 207
LITERATURE 207
CHAPTER 16.
DNA DATABASES AND BIOBANKS: THE PORTUGUESE LEGAL AND ETHICAL FRAMEWORK
CINTIA AGUAS, ANA SOFIA CARVALHO, PAULA MARTINHO DA SILVA AND JORGE
SOARES 209
I. INTRODUCTION 209
II. LEGAL BACKGROUND 210
§1. INTERNATIONAL CONTEXT RELEVANT TO PORTUGUESE LAW 210
§2. THE PORTUGUESE LEGAL CONTEXT 211
§3. THE DNA PROFILE DATABASE LEGAL SYSTEM 212
A. GENERAL DEFINITIONS 212
B. THE DNA PROFILE DATABASE 212
C. SAMPLE PROCUREMENT AND ANALYSIS 213
D. INFORMED CONSENT 214
E. QUALITY 215
F. ACCESS AND SECURITY 215
G. SAMPLE AND DNA PROFILE RETENTION AND DISPOSAL 215 H. DATA CONNECTION
WITHIN THE DNA DATABASE 216
I. GUARDIANSHIP AND SUPERVISION 217
J. DATA CONNECTION AND CROSS-BORDER COOPERATION AGAINST CRIME 217 K.
FURTHER USES 218
III. THE CNECV ETHICAL REVIEW - BALANCING SAFETY AND ETHICAL VALUES 218
IV. THE DNA DATABASE IN MOTION 220
V. MEDIA COVERAGE AND PUBLIC AWARENESS 220
VI. CONCLUDING REMARKS 221
LITERATURE 221
XVLLL INTERSENTIA
IMAGE 10
TABLE OF CONTENTS
CHAPTER 17.
VICTORIAN CANCER BIOBANK: A CONSORTIUM SUCCESSFULLY UNITED THROUGH SOUND
PLANNING, GOVERNANCE AND MANAGEMENT M. ANNE THOMPSON 225
I. INTRODUCTION 225
II. GOVERNANCE AND MANAGEMENT STRUCTURE 226
§1. OBJECTIVES 226
§2. GOVERNANCE STRUCTURE 227
A. CENTRAL GOVERNANCE 227
B. LOCAL GOVERNANCE 229
§3. MANAGEMENT STRUCTURE 229
HI. OPERATIONAL MODEL 231
IV. DISTRIBUTING THE FUNDS 232
V. LAW, ETHICS, AND COST RECOVERY 233
VI. FUTURE CHALLENGES AND SUSTAINABILITY 235
VII. CONCLUSION 236
LITERATURE 237
CHAPTER 18. THE UK BIOBANK ETHICS AND GOVERNANCE COUNCIL: HOW VALUABLE
IS AN ETHICS+ APPROACH TO GOVERNANCE?
GRAEME LAURIE 239
I. INTRODUCTION 239
II. UK BIOBANKS AND ITS ETHICS+ APPROACH 240
III. THE REGULATORY BACKGROUND AND THE ETHICS+ APPROACH 241 IV. THE
CHANGING NATURE OF THE WORK OF THE ETHICS AND GOVERNANCE COUNCIL 245 V.
EVALUATING THE ETHICS+ APPROACH 246
VI. THE FUTURE? 246
LITERATURE 247
INTERSENTIA X ]X
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TABLE OF CONTENTS
CHAPTER 19.
ORCHESTRATING THE END OF THE BEGINNING A POLITICAL SCIENCE PERSPECTIVE
ON TRANSNATIONAL BIOBANK INFRASTRUCTURES IN EUROPE GEORG LAUSS 249
I. INTRODUCTION 249
II. ORCHESTRATING BIOBANKS AND THE END OF THE BEGINNING 250
III. ANALYTIC APPROACHES TO BIOBANK GOVERNANCE 253
IV. THE TECHNO-POLITICS OF TRANSNATIONAL BIOSCIENCE INFRASTRUCTURE 255
V. GOVERNING A (BIO-)TECHNOLOGICAL SOCIETY 258
VI. ORCHESTRATING THE PREPARATORY PHASE OF AN EXPENSIVE VISION. A
PROCESS OF CONVERGING MATERIALS, VISIONS, INTERESTS AND RESOURCES 262
VII. CONCLUSION 264
LITERATURE 265
LIST OF CONTRIBUTORS 269
INTERSENTIA
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| genre | (DE-588)1071861417 Konferenzschrift gnd-content |
| genre_facet | Konferenzschrift |
| id | DE-604.BV036547696 |
| illustrated | Illustrated |
| indexdate | 2024-07-09T22:42:35Z |
| institution | BVB |
| isbn | 9789050959742 |
| language | English |
| lccn | 2010288500 |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-020469334 |
| oclc_num | 699770470 |
| open_access_boolean | 1 |
| owner | DE-12 |
| owner_facet | DE-12 |
| physical | XX, 277 S. graph. Darst. |
| publishDate | 2009 |
| publishDateSearch | 2009 |
| publishDateSort | 2009 |
| publisher | Intersentia |
| record_format | marc |
| spelling | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] Kris Dierckx ... [Contributors: Cínti Águas ...] Antwerpen [u.a.] Intersentia 2009 XX, 277 S. graph. Darst. txt rdacontent n rdamedia nc rdacarrier Preservation of organs, tissues, etc / Law and legislation / Congresses Biobanks / Moral and ethical aspects / Congresses Donation of organs, tissues, etc / Law and legislation / Congresses Procurement of organs, tissues, etc / Law and legislation / Congresses Biological specimens / Law and legislation / Congresses Biobanks / Government policy / Congresses Ethik Politik Recht Bioethik (DE-588)4006791-9 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Persönlichkeitsrecht (DE-588)4045245-1 gnd rswk-swf (DE-588)1071861417 Konferenzschrift gnd-content Biobank (DE-588)7517760-2 s Persönlichkeitsrecht (DE-588)4045245-1 s Bioethik (DE-588)4006791-9 s DE-604 Dierickx, Kris 1964- Sonstige (DE-588)141895934 oth Águas, Cínti Sonstige (DE-588)141895977 oth DE-601 pdf/application http://www.gbv.de/dms/spk/sbb/recht/toc/612600785.pdf kostenfrei Inhaltsverzeichnis GBV Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020469334&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] Preservation of organs, tissues, etc / Law and legislation / Congresses Biobanks / Moral and ethical aspects / Congresses Donation of organs, tissues, etc / Law and legislation / Congresses Procurement of organs, tissues, etc / Law and legislation / Congresses Biological specimens / Law and legislation / Congresses Biobanks / Government policy / Congresses Ethik Politik Recht Bioethik (DE-588)4006791-9 gnd Biobank (DE-588)7517760-2 gnd Persönlichkeitsrecht (DE-588)4045245-1 gnd |
| subject_GND | (DE-588)4006791-9 (DE-588)7517760-2 (DE-588)4045245-1 (DE-588)1071861417 |
| title | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] |
| title_auth | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] |
| title_exact_search | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] |
| title_full | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] Kris Dierckx ... [Contributors: Cínti Águas ...] |
| title_fullStr | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] Kris Dierckx ... [Contributors: Cínti Águas ...] |
| title_full_unstemmed | New challenges for biobanks ethics, law and governance ; [conference, Leuven, May 1820, 2009] Kris Dierckx ... [Contributors: Cínti Águas ...] |
| title_short | New challenges for biobanks |
| title_sort | new challenges for biobanks ethics law and governance conference leuven may 1820 2009 |
| title_sub | ethics, law and governance ; [conference, Leuven, May 1820, 2009] |
| topic | Preservation of organs, tissues, etc / Law and legislation / Congresses Biobanks / Moral and ethical aspects / Congresses Donation of organs, tissues, etc / Law and legislation / Congresses Procurement of organs, tissues, etc / Law and legislation / Congresses Biological specimens / Law and legislation / Congresses Biobanks / Government policy / Congresses Ethik Politik Recht Bioethik (DE-588)4006791-9 gnd Biobank (DE-588)7517760-2 gnd Persönlichkeitsrecht (DE-588)4045245-1 gnd |
| topic_facet | Preservation of organs, tissues, etc / Law and legislation / Congresses Biobanks / Moral and ethical aspects / Congresses Donation of organs, tissues, etc / Law and legislation / Congresses Procurement of organs, tissues, etc / Law and legislation / Congresses Biological specimens / Law and legislation / Congresses Biobanks / Government policy / Congresses Ethik Politik Recht Bioethik Biobank Persönlichkeitsrecht Konferenzschrift |
| url | http://www.gbv.de/dms/spk/sbb/recht/toc/612600785.pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=020469334&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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