The ethics of research biobanking:
Saved in:
| Other Authors: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
Dordrecht [u.a.]
Springer
2009
|
| Edition: | 1. ed. |
| Subjects: | |
| Online Access: | Inhaltsverzeichnis |
| Physical Description: | XVIII, 357 S. 235 mm x 155 mm |
| ISBN: | 9780387938714 |
Staff View
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| 650 | 4 | |a Bioethical Issues | |
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Record in the Search Index
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| adam_text |
Titel: The ethics of research biobanking
Autor: Solbakk, Jan Helge
Jahr: 2009
Contents
Part I Research Biobanking: The Traditional Approach
Consent to Biobank Research: One Size Fits All? 3
Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm
What No One Knows Cannot Hurt You: The Limits
of Informed Consent in the Emerging World of Biobanking 25
Arthur L. Caplan
Users and Uses of the Biopolitics of Consent:
A Study of DNA Banks 33
Pascal Ducournau and Anne Cambon-Thomsen
Information Rights on the Edge of Ignorance 49
Anne Maria Skrikerud
The Dubious Uniqueness of Genetic Information 57
Anne Maria Skrikerud
Duties and Rights of Biobank Participants:
Principled Autonomy, Consent, Voluntariness and Privacy 69
Lars 0ystein Ursin
Biobanking and Disclosure of Research Results:
Addressing the Tension Between Professional
Boundaries and Moral Intuition 85
Lynn G. Dressier
Biobanks and Our Common Good 101
Erik Christensen
vii
viii Contents
Trust, Distrust and Co-production:
The Relationship Between Research Biobanks and Donors 115
Pascal Ducournau and Roger Strand
Scientific Citizenship, Benefit, and Protection
in Population-Based Research 131
Vilhjalmur Arnason
Part II Research Biobanking: Towards a New Conceptual Approach
Mapping the Language of Research Biobanking:
An Analogical Approach 145
Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm
The Use of Analogical Reasoning in Umbilical
Cord Blood Biobanking 159
Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm
The Alexandria Plan: Creating Libraries
for Human Tissue Research and Therapeutic Use 173
Laurie Zoloth
The Art of Biocollections 195
Anne Hambro Alnxs
The Health Dugnad: Biobank Participation
as the Solidary Pursuit of the Common Good 219
Lars 0ystein Ursin and Berge Solberg
Embodied Gifting: Reflections on the Role
of Information in Biobank Recruitment 237
Klaus Hoeyer
Conscription to Biobank Research? 255
S0ren Holm, Bj0rn Hofmann, and Jan Helge Solbakk
Ownership Rights in Research Biobanks:
Do We Need a New Kind of 'Biological Property'? 263
Paula Lobato de Faria
Legal Challenges and Strategies in the Regulation
of Research Biobanking 277
Elisabeth Rynning
Annexation of Life: The Biopolitics of Industrial Biology 315
Jan Reinert Karlsen and Roger Strand
In the Ruins of Babel: Should Biobank Regulations be Harmonized 331
Jan Reinert Karlsen, Jan Helge Solbakk, and Roger Strand
Index 345 |
| any_adam_object | 1 |
| author2 | Solbakk, Jan Helge |
| author2_role | edt |
| author2_variant | j h s jh jhs |
| author_facet | Solbakk, Jan Helge |
| building | Verbundindex |
| bvnumber | BV035766053 |
| callnumber-first | Q - Science |
| callnumber-label | QH441 |
| callnumber-raw | QH441.2 |
| callnumber-search | QH441.2 |
| callnumber-sort | QH 3441.2 |
| callnumber-subject | QH - Natural History and Biology |
| classification_rvk | CC 7264 |
| ctrlnum | (OCoLC)297148439 (DE-599)DNB991653637 |
| dewey-full | 174.957 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 174 - Occupational ethics |
| dewey-raw | 174.957 |
| dewey-search | 174.957 |
| dewey-sort | 3174.957 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie Medizin |
| edition | 1. ed. |
| format | Book |
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| id | DE-604.BV035766053 |
| illustrated | Not Illustrated |
| indexdate | 2024-09-24T00:21:14Z |
| institution | BVB |
| isbn | 9780387938714 |
| language | English |
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| owner_facet | DE-12 DE-703 DE-19 DE-BY-UBM DE-29 |
| physical | XVIII, 357 S. 235 mm x 155 mm |
| publishDate | 2009 |
| publishDateSearch | 2009 |
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| publisher | Springer |
| record_format | marc |
| spelling | The ethics of research biobanking Jan H. Solbakk ..., eds. 1. ed. Dordrecht [u.a.] Springer 2009 XVIII, 357 S. 235 mm x 155 mm txt rdacontent n rdamedia nc rdacarrier Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Biobank (DE-588)7517760-2 s Medizinische Ethik (DE-588)4074672-0 s DE-604 Solbakk, Jan Helge edt HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=018625841&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | The ethics of research biobanking Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd Biobank (DE-588)7517760-2 gnd |
| subject_GND | (DE-588)4074672-0 (DE-588)7517760-2 |
| title | The ethics of research biobanking |
| title_auth | The ethics of research biobanking |
| title_exact_search | The ethics of research biobanking |
| title_full | The ethics of research biobanking Jan H. Solbakk ..., eds. |
| title_fullStr | The ethics of research biobanking Jan H. Solbakk ..., eds. |
| title_full_unstemmed | The ethics of research biobanking Jan H. Solbakk ..., eds. |
| title_short | The ethics of research biobanking |
| title_sort | the ethics of research biobanking |
| topic | Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd Biobank (DE-588)7517760-2 gnd |
| topic_facet | Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik Biobank |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=018625841&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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