Verfügbarkeit: The ethics of research biobanking

The ethics of research biobanking:

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Bibliographische Detailangaben
Weitere Verfasser:	Solbakk, Jan Helge (HerausgeberIn)
Format:	Buch
Sprache:	English
Veröffentlicht:	Dordrecht [u.a.] Springer 2009
Ausgabe:	1. ed.
Schlagworte:	Ethik Biobanks > Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks > ethics Biological resource centers > Moral and ethical aspects Biological specimens > Moral and ethical aspects Biomedical Research > ethics Medizinische Ethik Biobank
Online-Zugang:	Inhaltsverzeichnis
Beschreibung:	XVIII, 357 S. 235 mm x 155 mm
ISBN:	9780387938714

Internformat

MARC


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Datensatz im Suchindex

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adam_text	Titel: The ethics of research biobanking Autor: Solbakk, Jan Helge Jahr: 2009 Contents Part I Research Biobanking: The Traditional Approach Consent to Biobank Research: One Size Fits All? 3 Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm What No One Knows Cannot Hurt You: The Limits of Informed Consent in the Emerging World of Biobanking 25 Arthur L. Caplan Users and Uses of the Biopolitics of Consent: A Study of DNA Banks 33 Pascal Ducournau and Anne Cambon-Thomsen Information Rights on the Edge of Ignorance 49 Anne Maria Skrikerud The Dubious Uniqueness of Genetic Information 57 Anne Maria Skrikerud Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy 69 Lars 0ystein Ursin Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition 85 Lynn G. Dressier Biobanks and Our Common Good 101 Erik Christensen vii viii Contents Trust, Distrust and Co-production: The Relationship Between Research Biobanks and Donors 115 Pascal Ducournau and Roger Strand Scientific Citizenship, Benefit, and Protection in Population-Based Research 131 Vilhjalmur Arnason Part II Research Biobanking: Towards a New Conceptual Approach Mapping the Language of Research Biobanking: An Analogical Approach 145 Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking 159 Bj0rn Hofmann, Jan Helge Solbakk, and S0ren Holm The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use 173 Laurie Zoloth The Art of Biocollections 195 Anne Hambro Alnxs The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good 219 Lars 0ystein Ursin and Berge Solberg Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment 237 Klaus Hoeyer Conscription to Biobank Research? 255 S0ren Holm, Bj0rn Hofmann, and Jan Helge Solbakk Ownership Rights in Research Biobanks: Do We Need a New Kind of 'Biological Property'? 263 Paula Lobato de Faria Legal Challenges and Strategies in the Regulation of Research Biobanking 277 Elisabeth Rynning Annexation of Life: The Biopolitics of Industrial Biology 315 Jan Reinert Karlsen and Roger Strand In the Ruins of Babel: Should Biobank Regulations be Harmonized 331 Jan Reinert Karlsen, Jan Helge Solbakk, and Roger Strand Index 345
any_adam_object	1
author2	Solbakk, Jan Helge
author2_role	edt
author2_variant	j h s jh jhs
author_facet	Solbakk, Jan Helge
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dewey-full	174.957
dewey-hundreds	100 - Philosophy & psychology
dewey-ones	174 - Occupational ethics
dewey-raw	174.957
dewey-search	174.957
dewey-sort	3174.957
dewey-tens	170 - Ethics (Moral philosophy)
discipline	Philosophie Medizin
edition	1. ed.
format	Book
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isbn	9780387938714
language	English
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spelling	The ethics of research biobanking Jan H. Solbakk ..., eds. 1. ed. Dordrecht [u.a.] Springer 2009 XVIII, 357 S. 235 mm x 155 mm txt rdacontent n rdamedia nc rdacarrier Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Biobank (DE-588)7517760-2 s Medizinische Ethik (DE-588)4074672-0 s DE-604 Solbakk, Jan Helge edt HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=018625841&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis
spellingShingle	The ethics of research biobanking Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd Biobank (DE-588)7517760-2 gnd
subject_GND	(DE-588)4074672-0 (DE-588)7517760-2
title	The ethics of research biobanking
title_auth	The ethics of research biobanking
title_exact_search	The ethics of research biobanking
title_full	The ethics of research biobanking Jan H. Solbakk ..., eds.
title_fullStr	The ethics of research biobanking Jan H. Solbakk ..., eds.
title_full_unstemmed	The ethics of research biobanking Jan H. Solbakk ..., eds.
title_short	The ethics of research biobanking
title_sort	the ethics of research biobanking
topic	Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik (DE-588)4074672-0 gnd Biobank (DE-588)7517760-2 gnd
topic_facet	Ethik Biobanks Moral and ethical aspects Bioethical Issues Bioethics Biological Specimen Banks ethics Biological resource centers Moral and ethical aspects Biological specimens Moral and ethical aspects Biomedical Research ethics Medizinische Ethik Biobank
url	http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=018625841&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA
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