The governance of genetic information: who decides?
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Cambridge [u.a.]
Cambridge Univ. Press
2009
|
| Ausgabe: | 1. publ. |
| Schriftenreihe: | Cambridge law, medicine, and ethics
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | Includes bibliographical references |
| Beschreibung: | XI, 235 S. |
| ISBN: | 9780521509916 |
Internformat
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| 650 | 4 | |a Genetic Privacy |x ethics | |
| 650 | 4 | |a Decision Making |x ethics | |
| 650 | 4 | |a Genetic Privacy |x legislation & jurisprudence | |
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Datensatz im Suchindex
| _version_ | 1811034693863211008 |
|---|---|
| adam_text |
Titel: The governance of genetic information
Autor: Widdows, Heather
Jahr: 2009
CONTENTS
Notes on contributors page ix
Preface xi
Introduction 1
HEATHER WIDDOWS AND CAROLINE MULLEN
SECTION I Problematising governance of genetic
information 13
1 The medium and the message: tissue samples, genetic
information and data protection legislation 15
NEIL C. MANSON, LANCASTER UNIVERSITY
2 Me, myself, I - against narcissism in the governance of
genetic information 37
S0REN HOLM, CARDIFF UNIVERSITY
3 Decisions, consent and expectations of the individual 51
CAROLINE MULLEN, UNIVERSITY OF LEEDS
SECTION II Ethical frameworks of
governance 73
4 Constructing communal models of governance: collectives of
individuals or distinct ethical loci? 75
HEATHER WIDDOWS, UNIVERSITY OF BIRMINGHAM
5 Rights, responsibility and stewardship: beyond
consent 99
ROGER BROWNSWORD, KING'S COLLEGE, LONDON
6 Who decides what? Relational ethics, genetics and
well-being 126
SARAH WILSON, UNIVERSITY OF CENTRAL LANCASHIRE
Vll
Vlll CONTENTS
SECTION III Redesigning governance 149
7 Involving publics in biobank governance: moving beyond
existing approaches 151
KATHRYN G. HUNTER AND GRAEME T. LAURIE,
UNIVERSITY OF EDINBURGH
8 Genetic information and public opinion 178
ANDREW EDGAR, CARDIFF UNIVERSITY
9 Harmonisation and standardisation in ethics and governance:
conceptual and practical challenges 201
RUTH CHADWICK AND HEATHER STRANGE, CARDIFF
UNIVERSITY
Bibliography 214
Index 229 |
| any_adam_object | 1 |
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| discipline | Soziologie Philosophie |
| edition | 1. publ. |
| format | Book |
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| spelling | The governance of genetic information who decides? ed. by Heather Widdows and Caroline Mullen 1. publ. Cambridge [u.a.] Cambridge Univ. Press 2009 XI, 235 S. txt rdacontent n rdamedia nc rdacarrier Cambridge law, medicine, and ethics Includes bibliographical references Ethik Politik Genetic screening Moral and ethical aspects Genetic screening Government policy Privacy, Right of Medical records Access control Genetic Privacy ethics Decision Making ethics Genetic Privacy legislation & jurisprudence Public Policy Genanalyse (DE-588)4200230-8 gnd rswk-swf Eigentumsschutz (DE-588)4013798-3 gnd rswk-swf Privatheit (DE-588)4195103-7 gnd rswk-swf Genetische Information (DE-588)4564377-5 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Genanalyse (DE-588)4200230-8 s Genetische Information (DE-588)4564377-5 s Eigentumsschutz (DE-588)4013798-3 s DE-604 Privatheit (DE-588)4195103-7 s b DE-604 Widdows, Heather 1972- Sonstige (DE-588)139526536 oth Mullen, Caroline Sonstige oth HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=017743612&sequence=000004&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | The governance of genetic information who decides? Ethik Politik Genetic screening Moral and ethical aspects Genetic screening Government policy Privacy, Right of Medical records Access control Genetic Privacy ethics Decision Making ethics Genetic Privacy legislation & jurisprudence Public Policy Genanalyse (DE-588)4200230-8 gnd Eigentumsschutz (DE-588)4013798-3 gnd Privatheit (DE-588)4195103-7 gnd Genetische Information (DE-588)4564377-5 gnd |
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| title | The governance of genetic information who decides? |
| title_auth | The governance of genetic information who decides? |
| title_exact_search | The governance of genetic information who decides? |
| title_full | The governance of genetic information who decides? ed. by Heather Widdows and Caroline Mullen |
| title_fullStr | The governance of genetic information who decides? ed. by Heather Widdows and Caroline Mullen |
| title_full_unstemmed | The governance of genetic information who decides? ed. by Heather Widdows and Caroline Mullen |
| title_short | The governance of genetic information |
| title_sort | the governance of genetic information who decides |
| title_sub | who decides? |
| topic | Ethik Politik Genetic screening Moral and ethical aspects Genetic screening Government policy Privacy, Right of Medical records Access control Genetic Privacy ethics Decision Making ethics Genetic Privacy legislation & jurisprudence Public Policy Genanalyse (DE-588)4200230-8 gnd Eigentumsschutz (DE-588)4013798-3 gnd Privatheit (DE-588)4195103-7 gnd Genetische Information (DE-588)4564377-5 gnd |
| topic_facet | Ethik Politik Genetic screening Moral and ethical aspects Genetic screening Government policy Privacy, Right of Medical records Access control Genetic Privacy ethics Decision Making ethics Genetic Privacy legislation & jurisprudence Public Policy Genanalyse Eigentumsschutz Privatheit Genetische Information Aufsatzsammlung |
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