Born and made: an ethnography of preimplantation genetic diagnosis
Are new reproductive and genetic technologies racing ahead of a society that is unable to establish limits to their use? Have the "new genetics" outpaced our ability to control their future applications? This book examines the case of preimplantation genetic diagnosis (PGD), the procedure...
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| Hauptverfasser: | , |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Princeton [u.a.]
Princeton Univ. Press
2006
|
| Schriftenreihe: | Information series
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Zusammenfassung: | Are new reproductive and genetic technologies racing ahead of a society that is unable to establish limits to their use? Have the "new genetics" outpaced our ability to control their future applications? This book examines the case of preimplantation genetic diagnosis (PGD), the procedure used to prevent serious genetic disease by embryo selection, and the so-called "designer baby" method. Using detailed empirical evidence, the authors show that far from being a runaway technology, the regulation of PGD over the past fifteen years provides an example of precaution and restraint, as well as continual adaptation to changing social circumstances. Through interviews, media and policy analysis, and participant observation at two PGD centers in the United Kingdom, Born and Made provides an in-depth sociological examination of the competing moral obligations that define the experience of PGD. Among the many novel findings of this pathbreaking ethnography of reproductive biomedicine is the prominence of uncertainty and ambivalence among PGD patients and professionals--a finding characteristic of the emerging "biosociety," in which scientific progress is inherently paradoxical and contradictory. In contrast to much of the speculative futurology that defines this field, Born and Made provides a timely and revealing case study of the on-the-ground decision-making that shapes technological assistance to human heredity. |
| Beschreibung: | XXII, 256 S. Ill. |
| ISBN: | 0691121931 9780691121932 9780691121925 0691121923 |
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| 520 | 3 | |a Are new reproductive and genetic technologies racing ahead of a society that is unable to establish limits to their use? Have the "new genetics" outpaced our ability to control their future applications? This book examines the case of preimplantation genetic diagnosis (PGD), the procedure used to prevent serious genetic disease by embryo selection, and the so-called "designer baby" method. Using detailed empirical evidence, the authors show that far from being a runaway technology, the regulation of PGD over the past fifteen years provides an example of precaution and restraint, as well as continual adaptation to changing social circumstances. Through interviews, media and policy analysis, and participant observation at two PGD centers in the United Kingdom, Born and Made provides an in-depth sociological examination of the competing moral obligations that define the experience of PGD. Among the many novel findings of this pathbreaking ethnography of reproductive biomedicine is the prominence of uncertainty and ambivalence among PGD patients and professionals--a finding characteristic of the emerging "biosociety," in which scientific progress is inherently paradoxical and contradictory. In contrast to much of the speculative futurology that defines this field, Born and Made provides a timely and revealing case study of the on-the-ground decision-making that shapes technological assistance to human heredity. | |
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| 650 | 4 | |a Preimplantation Diagnosis |x ethics |z Great Britain | |
| 650 | 4 | |a Preimplantation genetic diagnosis |x Moral and ethical aspects | |
| 650 | 4 | |a Preimplantation genetic diagnosis |x Social aspects |z Great Britain | |
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Datensatz im Suchindex
| _version_ | 1804138931233488896 |
|---|---|
| adam_text | Contents
List ofFigures ix
Acknowledgments xi
Preface xv
Introduction Babies by Design? 1
Chapter 1 What Is PGD? 25
Chapter 2 Studying PGD 75
Chapter 3 Getting to PGD 94
Chapter 4 Going Through PGD 132
Chapter 5 Moving On from PGD 163
Chapter 6 Accounting for PGD 196
Conclusion PGD Futures? 218
Appendix 231
References 233
Index 249
Figures
Frontispiece Options for couples at risk, reprinted by permission of
Marilyn Monk.
Figure 1.1 Helen Mary Warnock, Baroness Warnock, by Steve Pyke,
1990. Reprinted by permission of Steve Pyke,
© Steve Pyke.
Figure 1.1 David Newton s Proust Baby for the Guardian
Weekend magazine, 2003. Reprinted by permission of
David Newton, Josh Sher, the Guardian, and the Science
Photo Library.
Figure 1.2 David Newton s Nike Baby for the Guardian Weekend
magazine. Reprinted by permission of David Newton,
Josh Sher, the Guardian, and the Science Photo Library.
Figure 1.3 Designer Shoe Säle on Broadway. Photograph by Sarah
Franklin.
Figure 1.4 Dawn of the Made to Order Baby, 2002. Reproduced
by permission of the Daily Mail and Big Pictures.
Figure 1.5 Human Fertilisation and Embryology Act 1990.
Property of Her Majesty s Stationery Office.
Figure 1.6 Robert Edwards, Jean Purdy, Louise Brown, and Patrick
Steptoe. Reproduced by permission of Robert Edwards.
Figure 1.7 Richard Gardner s biopsied embryo. Reprinted by
permission of Richard Gardner.
Figure 1.8 Amplification and analysis of a sequence of interest.
Reproduced by permission of Marilyn Monk.
FIGURES
Figure 1.9 McLaren review article, 1985. Reproduced by
permission of John Wiley Sons Ltd.
Figure 1.10 Preimplantation diagnosis of Lesch-Nyhan in the mouse.
Reprinted by permission of Marilyn Monk.
Figures 1.11 Preimplantation diagnosis for single-gene disorders
and 1.1 2 in mouse and human. Reprinted by permission of
Marilyn Monk.
Figure 1.13 Embryo biopsy. Reprinted by permission of Joyce Harper
and Alpesh Doshi.
Figure 1.14 Removal of the polar body. Reproduced by permission of
Marilyn Monk.
Figure 1.15 How Dare They Say It s Wrong to Save Our Son.
Reprinted by permission of the Sunday Mail and Ross
Parry Pictures Ltd.
Figure 1.16 Designer Baby Could Save Son s Life. Reprinted by
permission of the Daily Telegraph.
Figure 1.17 The Whitaker Case. Reprinted by permission of the
Guardian newspaper.
Figure 3.1 Atlas of PGD. Reprinted by permission of Thomson
publishers.
Figure 3.2 Getting to Guy s St Thomas .
Figure 3.3 Options for couples at risk, reprinted by permission of
Marilyn Monk.
Figure 4.1 Embryo grading. Reproduced by permission of the
Wellcome Trust Photo Library.
Figure 4.2 Textbook embryos, from R. G. Harrison, A Textbook
of Human Embryology (Oxford: Blackwell, 1959).
Figure A. 1 Patient Information Sheet.
Figure A.2 Consent Form.
|
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| isbn | 0691121931 9780691121932 9780691121925 0691121923 |
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| spelling | Franklin, Sarah 1960- Verfasser (DE-588)132768682 aut Born and made an ethnography of preimplantation genetic diagnosis Sarah Franklin and Celia Roberts Princeton [u.a.] Princeton Univ. Press 2006 XXII, 256 S. Ill. txt rdacontent n rdamedia nc rdacarrier Information series Are new reproductive and genetic technologies racing ahead of a society that is unable to establish limits to their use? Have the "new genetics" outpaced our ability to control their future applications? This book examines the case of preimplantation genetic diagnosis (PGD), the procedure used to prevent serious genetic disease by embryo selection, and the so-called "designer baby" method. Using detailed empirical evidence, the authors show that far from being a runaway technology, the regulation of PGD over the past fifteen years provides an example of precaution and restraint, as well as continual adaptation to changing social circumstances. Through interviews, media and policy analysis, and participant observation at two PGD centers in the United Kingdom, Born and Made provides an in-depth sociological examination of the competing moral obligations that define the experience of PGD. Among the many novel findings of this pathbreaking ethnography of reproductive biomedicine is the prominence of uncertainty and ambivalence among PGD patients and professionals--a finding characteristic of the emerging "biosociety," in which scientific progress is inherently paradoxical and contradictory. In contrast to much of the speculative futurology that defines this field, Born and Made provides a timely and revealing case study of the on-the-ground decision-making that shapes technological assistance to human heredity. Diagnostiek gtt Embryo's gtt Genetica gtt In-vitrofertilisatie gtt Sociale aspecten gtt Voortplantingstechnieken gtt Ethik Gesellschaft Genetic Diseases, Inborn diagnosis Great Britain Preimplantation Diagnosis ethics Great Britain Preimplantation genetic diagnosis Moral and ethical aspects Preimplantation genetic diagnosis Social aspects Great Britain Präimplantationsdiagnostik (DE-588)4293797-8 gnd rswk-swf Großbritannien Präimplantationsdiagnostik (DE-588)4293797-8 s DE-604 Roberts, Celia 1968- Verfasser (DE-588)132768739 aut HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=017391585&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Franklin, Sarah 1960- Roberts, Celia 1968- Born and made an ethnography of preimplantation genetic diagnosis Diagnostiek gtt Embryo's gtt Genetica gtt In-vitrofertilisatie gtt Sociale aspecten gtt Voortplantingstechnieken gtt Ethik Gesellschaft Genetic Diseases, Inborn diagnosis Great Britain Preimplantation Diagnosis ethics Great Britain Preimplantation genetic diagnosis Moral and ethical aspects Preimplantation genetic diagnosis Social aspects Great Britain Präimplantationsdiagnostik (DE-588)4293797-8 gnd |
| subject_GND | (DE-588)4293797-8 |
| title | Born and made an ethnography of preimplantation genetic diagnosis |
| title_auth | Born and made an ethnography of preimplantation genetic diagnosis |
| title_exact_search | Born and made an ethnography of preimplantation genetic diagnosis |
| title_full | Born and made an ethnography of preimplantation genetic diagnosis Sarah Franklin and Celia Roberts |
| title_fullStr | Born and made an ethnography of preimplantation genetic diagnosis Sarah Franklin and Celia Roberts |
| title_full_unstemmed | Born and made an ethnography of preimplantation genetic diagnosis Sarah Franklin and Celia Roberts |
| title_short | Born and made |
| title_sort | born and made an ethnography of preimplantation genetic diagnosis |
| title_sub | an ethnography of preimplantation genetic diagnosis |
| topic | Diagnostiek gtt Embryo's gtt Genetica gtt In-vitrofertilisatie gtt Sociale aspecten gtt Voortplantingstechnieken gtt Ethik Gesellschaft Genetic Diseases, Inborn diagnosis Great Britain Preimplantation Diagnosis ethics Great Britain Preimplantation genetic diagnosis Moral and ethical aspects Preimplantation genetic diagnosis Social aspects Great Britain Präimplantationsdiagnostik (DE-588)4293797-8 gnd |
| topic_facet | Diagnostiek Embryo's Genetica In-vitrofertilisatie Sociale aspecten Voortplantingstechnieken Ethik Gesellschaft Genetic Diseases, Inborn diagnosis Great Britain Preimplantation Diagnosis ethics Great Britain Preimplantation genetic diagnosis Moral and ethical aspects Preimplantation genetic diagnosis Social aspects Great Britain Präimplantationsdiagnostik Großbritannien |
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