Ethical issues in governing biobanks: global perspectives
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
Aldershot [u.a.]
Ashgate
2008
|
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | Includes bibliographical references and index |
| Beschreibung: | VI, 257 S. |
| ISBN: | 9780754672555 0754672557 |
Internformat
MARC
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| 245 | 1 | 0 | |a Ethical issues in governing biobanks |b global perspectives |c ed. by Bernice Elger ... |
| 264 | 1 | |a Aldershot [u.a.] |b Ashgate |c 2008 | |
| 300 | |a VI, 257 S. | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 500 | |a Includes bibliographical references and index | ||
| 650 | 4 | |a Génétique humaine - Bases de données - Aspect moral | |
| 650 | 4 | |a Génétique humaine - Bases de données - Droit | |
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Recht | |
| 650 | 4 | |a Human genetics |x Databases |x Moral and ethical aspects | |
| 650 | 4 | |a Human genetics |x Databases |x Law and legislation | |
| 650 | 4 | |a Genome, Human | |
| 650 | 4 | |a Confidentiality | |
| 650 | 4 | |a Databases, Genetic |x ethics | |
| 650 | 4 | |a Databases, Genetic |x legislation & jurisprudence | |
| 650 | 4 | |a Genetic Research |x ethics | |
| 650 | 4 | |a Genetics, Population |x ethics | |
| 650 | 0 | 7 | |a Humangenetik |0 (DE-588)4072653-8 |2 gnd |9 rswk-swf |
| 650 | 0 | 7 | |a Ethik |0 (DE-588)4015602-3 |2 gnd |9 rswk-swf |
| 650 | 0 | 7 | |a Genbibliothek |0 (DE-588)4236160-6 |2 gnd |9 rswk-swf |
| 655 | 7 | |0 (DE-588)4143413-4 |a Aufsatzsammlung |2 gnd-content | |
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| 689 | 0 | 2 | |a Ethik |0 (DE-588)4015602-3 |D s |
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| 943 | 1 | |a oai:aleph.bib-bvb.de:BVB01-017035394 | |
Datensatz im Suchindex
| _version_ | 1811034685983162368 |
|---|---|
| adam_text |
Contents
Notes
on the Contributors
vii
Acknowledgements
ix
1
Introduction:
Biobanks,
Genomics, and Research
—
A Nightmare
for Public Policy Makers?
1
Alex Mauron
PART I RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES
2
Biobanks in the Literature
13
Bartha Maria
Knoppers
and Ma 'n
H. A
bdul-Rahman
3
Guidelines on Biobanks: Emerging Consensus and
Unresolved Controversies
23
Effy Vayena, Agomoni Ganguli-Mitra and Nikola Biller-Andorno
PART II CONSENSUS AND CONTROVERSIES AMONG
INTERNATIONAL EXPERTS CONCERNING ISSUES
RAISED BY GENETIC DATABASES
4
Ethical Issues Regarding Research Biobanks: Aims, Methods,
and Main Results of a Qualitative Study Among International
and US Experts
39
Nikola Biller-Andorno, Andrea Boggio,
Bernice Elger,
Agomoni Ganguli-Mitra, Alex Capron, Alex Mauron
5
Consent and Use of Samples
57
Bernice
Elger
6
Consent to Research Involving Human Biological Samples
Obtained During Medical Care
89
В
er
η
ice Elger
7
Collective Consent
121
Agomoni Ganguli-Mitra
vi
Ethical Issues in Governing Biobanks
8
Withdrawal of Consent and Destruction of Samples
131
Bernice Elger
9
Anonymization and Coding
167
Bernice
Elger
10
Informing Participants about Research Results
189
Andrea Boggio
11
Ownership of Samples and Data and Territorial Restrictions
Concerning Data and Samples beyond National Boundaries
197
Andrea Boggio
12
Public Domain Sharing, Patents, and Fees Resulting from
Research Involving Genetic Databases
207
Andrea Boggio
13
Benefit-sharing and Remuneration
217
Agomoni
Ganguli-
Mitra
14
Transfer of Samples and Sharing of Results: Requirements
Imposed on Researchers
231
Andrea Boggio
PART III SHAPING THE FUTURE LEGAL AND ETHICAL
DEVELOPMENT OF GENETIC DATABASES
1
5
Towards an International Framework: Results of a Meeting of
an International Group of Scholars and Scientists Involved in
Legal and Practical Issues of Biobanks
239
Alex Mauron
16
Biobanks and Genomic Research: What Shape the Future?
247
Alex Capron
Index
253 |
| any_adam_object | 1 |
| building | Verbundindex |
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| dewey-full | 174.2 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 174 - Occupational ethics |
| dewey-raw | 174.2 |
| dewey-search | 174.2 |
| dewey-sort | 3174.2 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Philosophie |
| format | Book |
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| illustrated | Not Illustrated |
| indexdate | 2024-09-24T00:21:05Z |
| institution | BVB |
| isbn | 9780754672555 0754672557 |
| language | English |
| lccn | 2008003427 |
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| physical | VI, 257 S. |
| publishDate | 2008 |
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| spelling | Ethical issues in governing biobanks global perspectives ed. by Bernice Elger ... Aldershot [u.a.] Ashgate 2008 VI, 257 S. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references and index Génétique humaine - Bases de données - Aspect moral Génétique humaine - Bases de données - Droit Ethik Recht Human genetics Databases Moral and ethical aspects Human genetics Databases Law and legislation Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Humangenetik (DE-588)4072653-8 gnd rswk-swf Ethik (DE-588)4015602-3 gnd rswk-swf Genbibliothek (DE-588)4236160-6 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Genbibliothek (DE-588)4236160-6 s Humangenetik (DE-588)4072653-8 s Ethik (DE-588)4015602-3 s DE-604 Elger, Bernice Sonstige oth Digitalisierung UB Augsburg application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=017035394&sequence=000006&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Ethical issues in governing biobanks global perspectives Génétique humaine - Bases de données - Aspect moral Génétique humaine - Bases de données - Droit Ethik Recht Human genetics Databases Moral and ethical aspects Human genetics Databases Law and legislation Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Humangenetik (DE-588)4072653-8 gnd Ethik (DE-588)4015602-3 gnd Genbibliothek (DE-588)4236160-6 gnd |
| subject_GND | (DE-588)4072653-8 (DE-588)4015602-3 (DE-588)4236160-6 (DE-588)4143413-4 |
| title | Ethical issues in governing biobanks global perspectives |
| title_auth | Ethical issues in governing biobanks global perspectives |
| title_exact_search | Ethical issues in governing biobanks global perspectives |
| title_full | Ethical issues in governing biobanks global perspectives ed. by Bernice Elger ... |
| title_fullStr | Ethical issues in governing biobanks global perspectives ed. by Bernice Elger ... |
| title_full_unstemmed | Ethical issues in governing biobanks global perspectives ed. by Bernice Elger ... |
| title_short | Ethical issues in governing biobanks |
| title_sort | ethical issues in governing biobanks global perspectives |
| title_sub | global perspectives |
| topic | Génétique humaine - Bases de données - Aspect moral Génétique humaine - Bases de données - Droit Ethik Recht Human genetics Databases Moral and ethical aspects Human genetics Databases Law and legislation Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Humangenetik (DE-588)4072653-8 gnd Ethik (DE-588)4015602-3 gnd Genbibliothek (DE-588)4236160-6 gnd |
| topic_facet | Génétique humaine - Bases de données - Aspect moral Génétique humaine - Bases de données - Droit Ethik Recht Human genetics Databases Moral and ethical aspects Human genetics Databases Law and legislation Genome, Human Confidentiality Databases, Genetic ethics Databases, Genetic legislation & jurisprudence Genetic Research ethics Genetics, Population ethics Humangenetik Genbibliothek Aufsatzsammlung |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=017035394&sequence=000006&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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