Biobanks: governance in comparative perspective
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
London [u.a.]
Routledge
2008
|
| Ausgabe: | 1. publ. |
| Schlagworte: | |
| Online-Zugang: | Publisher description Inhaltsverzeichnis |
| Beschreibung: | Includes bibliographical references |
| Beschreibung: | XI, 234 S. graph. Darst. |
| ISBN: | 0415427371 041542738X 9780415427371 9780415427388 |
Internformat
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| 245 | 1 | 0 | |a Biobanks |b governance in comparative perspective |c ed. by Herbert Gottweis ... |
| 250 | |a 1. publ. | ||
| 264 | 1 | |a London [u.a.] |b Routledge |c 2008 | |
| 300 | |a XI, 234 S. |b graph. Darst. | ||
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| 500 | |a Includes bibliographical references | ||
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Politik | |
| 650 | 4 | |a Human genetics |x Databases |x Moral and ethical aspects |v Cross-cultural studies | |
| 650 | 4 | |a Biobanks |x Government policy |v Cross-cultural studies | |
| 650 | 4 | |a Biobanks |x Political aspects |v Cross-cultural studies | |
| 650 | 4 | |a Databases, Genetic |x legislation & jurisprudence | |
| 650 | 4 | |a Confidentiality |x legislation & jurisprudence | |
| 650 | 4 | |a Databases, Genetic |x ethics | |
| 650 | 4 | |a Public Policy | |
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Datensatz im Suchindex
| _version_ | 1804137700424417280 |
|---|---|
| adam_text | Contents
List of contributors vii
Acknowledgements ix
List of abbreviations x
PART 1
Conceptualizing biobanks 1
1 Biobanks and governance: an introduction 3
HERBERT GOTTWEIS AND ALAN PETERSEN
2 Biobanks in action: new strategies in the governance of life 22
HERBERT GOTTWEIS
PART 2
How to build a biobank: comparing different approaches 39
3 The rise and fall of a biobank: the case of Iceland 41
GISLI PALSSON
4 Estonia: ups and downs of a biobank project 56
RAIN EENSAAR
5 Patient organizations as the (un)usual suspects: the biobanking
activities of the Association Francaise contre les Myopathies
and its Genethon DNA and Cell Bank 71
MICHAELA MAYRHOFER
6 This is not a national biobank ... : the politics of local
biobanks in Germany 88
INGRID SCHNEIDER
vi Contents
7 Governing DNA: prospects and problems in the proposed
large United States population cohort 109
AMY FLETCHER
8 Governance by stealth: large-scale pharmacogenomics and
biobanking in Japan 123
ROBERT TRIENDL AND HERBERT GOTTWEIS
PART 3
Biobanks, publics, and citizenship 141
9 UK Biobank: bioethics as a technology of governance 143
OONAGH CORRIGAN AND ALAN PETERSEN
10 Biobanks and the biopolitics of inclusion and representation 159
RICHARD TUTTON
11 The informed consenters: governing biobanks in Scandinavia 177
LARS 0YSTEIN URSIN, KLAUS HOEYER AND
JOHN-ARNE SKOLBEKKEN
12 Framing consent: the politics of engagement in an
Australian biobank project 194
BEVERLEY MCNAMARA AND ALAN PETERSEN
13 Governing through biobanks: research populations in Israel 210
BARBARA PRAINSACK
Index 231
|
| adam_txt |
Contents
List of contributors vii
Acknowledgements ix
List of abbreviations x
PART 1
Conceptualizing biobanks 1
1 Biobanks and governance: an introduction 3
HERBERT GOTTWEIS AND ALAN PETERSEN
2 Biobanks in action: new strategies in the governance of life 22
HERBERT GOTTWEIS
PART 2
How to build a biobank: comparing different approaches 39
3 The rise and fall of a biobank: the case of Iceland 41
GISLI PALSSON
4 Estonia: ups and downs of a biobank project 56
RAIN EENSAAR
5 Patient organizations as the (un)usual suspects: the biobanking
activities of the Association Francaise contre les Myopathies
and its Genethon DNA and Cell Bank 71
MICHAELA MAYRHOFER
6 'This is not a national biobank .': the politics of local
biobanks in Germany 88
INGRID SCHNEIDER
vi Contents
7 Governing DNA: prospects and problems in the proposed
large United States population cohort 109
AMY FLETCHER
8 Governance by stealth: large-scale pharmacogenomics and
biobanking in Japan 123
ROBERT TRIENDL AND HERBERT GOTTWEIS
PART 3
Biobanks, publics, and citizenship 141
9 UK Biobank: bioethics as a technology of governance 143
OONAGH CORRIGAN AND ALAN PETERSEN
10 Biobanks and the biopolitics of inclusion and representation 159
RICHARD TUTTON
11 The informed consenters: governing biobanks in Scandinavia 177
LARS 0YSTEIN URSIN, KLAUS HOEYER AND
JOHN-ARNE SKOLBEKKEN
12 Framing consent: the politics of 'engagement' in an
Australian biobank project 194
BEVERLEY MCNAMARA AND ALAN PETERSEN
13 Governing through biobanks: research populations in Israel 210
BARBARA PRAINSACK
Index 231 |
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| callnumber-raw | QH441.2 |
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| callnumber-subject | QH - Natural History and Biology |
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| dewey-full | 174/.957 |
| dewey-hundreds | 100 - Philosophy & psychology |
| dewey-ones | 174 - Occupational ethics |
| dewey-raw | 174/.957 |
| dewey-search | 174/.957 |
| dewey-sort | 3174 3957 |
| dewey-tens | 170 - Ethics (Moral philosophy) |
| discipline | Biologie Philosophie Medizin |
| discipline_str_mv | Biologie Philosophie Medizin |
| edition | 1. publ. |
| format | Book |
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| index_date | 2024-07-02T21:03:18Z |
| indexdate | 2024-07-09T21:16:28Z |
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| spelling | Biobanks governance in comparative perspective ed. by Herbert Gottweis ... 1. publ. London [u.a.] Routledge 2008 XI, 234 S. graph. Darst. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references Ethik Politik Human genetics Databases Moral and ethical aspects Cross-cultural studies Biobanks Government policy Cross-cultural studies Biobanks Political aspects Cross-cultural studies Databases, Genetic legislation & jurisprudence Confidentiality legislation & jurisprudence Databases, Genetic ethics Public Policy Politische Ethik (DE-588)4129503-1 gnd rswk-swf Persönlichkeitsrecht (DE-588)4045245-1 gnd rswk-swf Biobank (DE-588)7517760-2 gnd rswk-swf Datenschutz (DE-588)4011134-9 gnd rswk-swf (DE-588)4143413-4 Aufsatzsammlung gnd-content Biobank (DE-588)7517760-2 s Persönlichkeitsrecht (DE-588)4045245-1 s Datenschutz (DE-588)4011134-9 s DE-604 Politische Ethik (DE-588)4129503-1 s b DE-604 Gottweis, Herbert 1958-2014 Sonstige (DE-588)111417171 oth Erscheint auch als Online-Ausgabe 0-203-92799-0 Erscheint auch als Online-Ausgabe 978-0-203-92799-1 http://www.loc.gov/catdir/enhancements/fy0806/2007044055-d.html Publisher description HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=016529105&sequence=000006&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Biobanks governance in comparative perspective Ethik Politik Human genetics Databases Moral and ethical aspects Cross-cultural studies Biobanks Government policy Cross-cultural studies Biobanks Political aspects Cross-cultural studies Databases, Genetic legislation & jurisprudence Confidentiality legislation & jurisprudence Databases, Genetic ethics Public Policy Politische Ethik (DE-588)4129503-1 gnd Persönlichkeitsrecht (DE-588)4045245-1 gnd Biobank (DE-588)7517760-2 gnd Datenschutz (DE-588)4011134-9 gnd |
| subject_GND | (DE-588)4129503-1 (DE-588)4045245-1 (DE-588)7517760-2 (DE-588)4011134-9 (DE-588)4143413-4 |
| title | Biobanks governance in comparative perspective |
| title_auth | Biobanks governance in comparative perspective |
| title_exact_search | Biobanks governance in comparative perspective |
| title_exact_search_txtP | Biobanks governance in comparative perspective |
| title_full | Biobanks governance in comparative perspective ed. by Herbert Gottweis ... |
| title_fullStr | Biobanks governance in comparative perspective ed. by Herbert Gottweis ... |
| title_full_unstemmed | Biobanks governance in comparative perspective ed. by Herbert Gottweis ... |
| title_short | Biobanks |
| title_sort | biobanks governance in comparative perspective |
| title_sub | governance in comparative perspective |
| topic | Ethik Politik Human genetics Databases Moral and ethical aspects Cross-cultural studies Biobanks Government policy Cross-cultural studies Biobanks Political aspects Cross-cultural studies Databases, Genetic legislation & jurisprudence Confidentiality legislation & jurisprudence Databases, Genetic ethics Public Policy Politische Ethik (DE-588)4129503-1 gnd Persönlichkeitsrecht (DE-588)4045245-1 gnd Biobank (DE-588)7517760-2 gnd Datenschutz (DE-588)4011134-9 gnd |
| topic_facet | Ethik Politik Human genetics Databases Moral and ethical aspects Cross-cultural studies Biobanks Government policy Cross-cultural studies Biobanks Political aspects Cross-cultural studies Databases, Genetic legislation & jurisprudence Confidentiality legislation & jurisprudence Databases, Genetic ethics Public Policy Politische Ethik Persönlichkeitsrecht Biobank Datenschutz Aufsatzsammlung |
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