Family care for older people in Germany: results from the European project EUROFAMCARE
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| Sprache: | English |
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2008
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| Schriftenreihe: | Supporting family carers of older people in Europe
10 |
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| Online-Zugang: | Inhaltstext Inhaltsverzeichnis |
| Beschreibung: | 273 S. graph. Darst. |
| ISBN: | 9783825811099 3825811093 9783037359075 |
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Datensatz im Suchindex
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Contents
Contents.5
List of Tables.11
List of Figures.18
1 Introduction - Aims and Structure of the EUROFAMCARE Project.19
1.1 Aims and structure of the EUROFAMCARE project.19
1.2 Introduction to the National Survey Report (NASURE).22
2 Literature - State of the Art.25
2.1 Introduction.25
2.2 Literature on family care.25
2.2.1 Sociodemographic surveys.25
2.2.2 Family ethics and expectations.28
2.2.3 The relationship between carers' and older people's interests.30
2.2.4 Well-being and burden of care-giving.31
2.2.5 Violence and abuse.32
2.2.6 Interdependency of labour and care.34
2.2.7 Migrant family carers and domestic workers.38
2.2.8 Rural vs. urban areas.39
2.2.9 The role of services for family carers.40
2.2.10 The grey market of care.45
2.2.11 Models and interventions.45
2.2.12 Case management and integrated care.47
2.3 Conclusions and future research needs.48
2.4 References.51
3 The EUROFAMCARE Common Assessment Tool (CAT).59
3.1 Introduction.59
3.2 CAT items and instruments.60
3.2.1 CAT administration.60
3.2.2 Elder's demographic and background characteristics.61
3.2.3 Elder's disability and need.61
EUROFAMCARE- National Survey Report for Germany
3.2.4 Carer's demographic and background characteristics.63
3.2.5 Carer's care-giving situation.63
3.2.6 Carers' quality of life.65
3.2.7 Financial circumstances.66
3.2.8 Service use.66
3.2.9 Characteristics and quality of services.67
3.3 Item transformation.68
3.3.1 Elder's demographic and background characteristics.70
3.3.2 Elder's disability and need.70
3.3.3 Carer's demographic and background characteristics.70
3.3.4 Carer's care-giving situation.71
3.3.5 Financial circumstances.71
3.3.6 Service use.71
3.4 Scale development.72
3.4.1 Elder disability and need.73
3.4.2 Carer-related scales.74
3.5 The Common Assessment Tool - Follow-Up Questionnaire (CAT-FUQ):
Item and scale development and description.78
3.5.1 Background.78
3.5.2 The CAT Follow-up-Questionnaire (FUQ) development.78
3.5.3 CAT-FUQ items and instruments.79
3.6 References.83
4 Sampling, Recruitment and Representativeness of the German Sample.85
4.1 Sampling strategy for family carers survey.85
4.1.1 Target group.87
4.1.2 Sample distribution in the different regions.88
4.1.3 Planned sample distribution according to metropolitan, urban
and rural differences.88
4.2 Training for local co-ordinators and interviewers.89
4.2.1 Training and tasks for the local co-ordinators.89
4.2.2 Advanced training for the interviewers.90
4.3 Recruitment of family carers.91
Contents 7
4.3.1 Recruitment strategies.92
4.3.2 Authorising a sub contractor.93
4.4 Representativeness of the family caregivers survey concerning family
carer and the cared-for.95
4.5 Quality of the representativeness.105
4.6 References.105
5 Characteristics of the Sample.107
5.1 Characteristics of the cared-for people.107
5.1.1 Socio-demographic characteristics of the cared-for people.107
5.1.2 Place of living and household composition.109
5.1.3 Older persons' health situation and need of support.111
5.2 Characteristics of family carers.115
5.2.1 Socio-demographic characteristics of the family carers.115
5.2.2 Marital status of the family carer.115
5.2.3 Carer's family relationship to the cared-for older persons.116
5.2.4 Employment situation of the family carers.117
5.2.5 Carers' religious dominations.118
5.2.6 Reasons for caring and willingness to care.118
5.2.7 Burden, coping, health status and quality of life.120
5.3 Final remarks.123
6 Typology of Care Situations.125
6.1 Methods.125
6.2 Main results.127
6.2.1 Characteristics of the European care situations.127
6.2.2 Characteristics of the German care situations.128
6.2.3 Needs and support in different care situations.129
6.2.4 Burden of caregivers.132
6.2.5 Future care.133
6.3 Discussion.135
6.4 References.135
7 Service Usage.137
EUROFAMCARE - National Survey Report for Germany
7.1 Aims of the chapter.137
7.2 Methodology used to analyse the data.137
7.3 Main findings.137
7.3.1 Which services are used by family carers and by older people?. 138
7.3.2 Do these services reach the person in need of support?.146
7.3.3 Family carers' experiences of service utilisation.152
7.3.4 Where can such services (measures) be found?.159
7.3.5 Effects of service use on the well-being determinants of the
carers.161
7.3.6 Kind of support and service characteristics.163
7.4 Discussion.166
8 Long-Term Care Insurance.167
8.1 Introduction.167
8.2 Long-term care insurance (LTCI).167
8.3 Utilisation of the benefits of LTCI in the EUROFAMCARE survey.169
8.3.1 Does ELDER currently draw benefits from the LTCI?.170
8.3.2 If no application has been made so far, what is the reason?.171
8.3.3 Is ELDER insured by a statutory or a private LTCI?.172
8.3.4 What is the grade of dependency currently assigned to ELDER?. 172
8.3.5 Are you or ELDER currently planning to apply for a higher
classification of the level of care because of worsening or is
such an application under consideration?.174
8.3.6 Since when is ELDER in need of care?.174
8.3.7 Since when has ELDER been assigned the current grade of
dependency?.175
8.3.8 What types of benefits does ELDER draw from the LTCI?.176
8.3.9 Which other benefits according to SGB XI did you or ELDER
utilise in the course of last year?.179
8.3.10 Are your care or nursing efforts remunerated in any way, e.g.
pro rata benefits in cash or other allowances from ELDER?.184
8.4 Effects of nursing and care-giving on the family carers in consideration
of the input of time and the self-help abilities of the persons in need of
care or nursing.185
Contents 9
8.4.1 Time required for caring or nursing by family carers.186
8.4.2 Self-help abilities of persons in need of care or nursing.188
8.4.3 Family carers' health and quality of life.189
8.5 Kinds of support for family carers.192
8.6 Discussion.195
8.7 References.197
9 The Service Providers Survey.199
9.1 Purpose of this chapter.199
9.2 Method and sample.199
9.2.1 Sample size.199
9.2.2 Pre-test.200
9.2.3 Sampling.200
9.2.4 Representativeness.201
9.2.5 Methods of data analysis.202
9.3 Background information.202
9.3.1 Background on the German situation.202
9.3.2 Sample description.203
9.4 Results.206
9.4.1 Goals and benefits.207
9.4.2 Usage and access.209
9.4.3 Coverage of needs.214
9.4.4 Quality.217
9.4.5 Attitude towards family carers and older persons.223
9.4.6 Costs.225
9.4.7 Future development.225
9.4.8 Analysis of types of support and their importance to service
providers.230
9.4.9 Analysis of characteristics of services and the service providers'
view on their importance to family carers.232
9.5 Final remarks.234
9.6 References.237
10 Preliminary Results of the One Year Follow-up Study in Germany.239
I o EUROFAMCARE - National Survey Report for Germany
10.1 Aims of this chapter.239
10.2 Methods.240
10.2.1 Study design and procedure.240
10.2.2 Subjects, sample size, response rates and reasons for non-
response.240
10.2.3 Representativeness of the T2 sample compared to the T1
sample.242
10.2.4 The follow-up questionnaire and the mode of its administration. 243
10.2.5 Analyses and statistics.245
10.3 Main findings.245
10.3.1 Socio-demographical changes in the care-giving situation.245
10.3.2 Changes in the level of disability of the cared-for.254
10.3.3 Changes in carers subjective situation.259
10.3.4 Impact of services on modifying the carers' situation.261
10.4 Discussion.262
II Summary and Final Remarks.265
11.1 Aim and methodology.265
11.2 Results.265
12 Annex: EUROFAMCARE Publication List.271
Contents
11
List of Tables
Table 1: Main carers of individuals in need of care in private homes
(%).27
Table 2: CAT transformed elder-related variables.69
Table 3: Elder-related scales.72
Table 4: Carer-related scales.73
Table 5: The Cope Index: Items and factor loading.77
Table 6: Distribution of Interviews according to rural, urban and
metropolitan areas.89
Table 7: Total amount of interviews at the end of the own data
collection period.93
Table 8: Distribution of sample by locality type in %.93
Table 9: Mode of recruitment for the final sample in %.94
Table 10: Mode of recruitment by locality type in column %.94
Table 11: Mode of recruitment by locality type in row %.95
Table 12: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by "need of help" / "need of
care" and by gender of the cared-for person in %.96
Table 13: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender and grade of
dependency of the cared-for person in %.97
Table 14: Distribution of older people in need of help and in need of
care in the EUROFAMCARE sample by own interviews and
interviews made by sub-contractor in row % (N = 1,003).97
Table 15: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of the cared-for
person within the groups "need of help" and "need of care"
in%.97
Table 16: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender and grade of
dependency of the cared-for person in %.98
Table 17: Comparison between MuG 111 (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of the cared-for
person and grouped age according to "need of help / care"
in%.98
12
EUROFAMCARE - National Survey Report for Germany
Table 18: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender of the cared-for
person and grouped age according to grade of dependency
in%.99
Table 19: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of main family carer
and gender of cared-for person in %.100
Table 20: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender of primary family carer
and gender of cared-for person in %.100
Table 21: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by age of main family carer
and gender of cared-for person in %.101
Table 22: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by age of main family carer and
gender of cared-for person in %.102
Table 23: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) regarding the average hours of
care per week given to cared-for person according to "need
of help / care" in %.103
Table 24: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) regarding employment of main
family carer by gender of cared-for person according to "need
of help / care" in %.104
Table 25: Mean age of older person by gender (in years), older
person's gender and age groups of older person (in %).108
Table 26: Older person's marital status (in %).108
Table 27: Older person's nationality and ethnic origin (in %).109
Table 28: Place of living and locality type of the cared-for older person
(in%).110
Table 29: Living situation and houshold composition of elder (in %).110
Table 30: The main reason of support / care (in %).111
Table 31: The problems of the cared-for older persons (in %).112
Table 32: The level of dependency of the cared-for older persons (in %). 113
Table 33: Cared-for people who have to rely partially or completely on
others in meeting their needs (in %)*.114
Table 34: Mean age of carer by gender (in years), carers' gender and
age groups (in %).115
Contents
13
Table 35: Marital status of the carers (in %).116
Table 36: Carer's family relationship to the cared-for older persons
(in%).116
Table 37: Distance between the carer's and the cared-for person's
places of living (in %).117
Table 38: Employment situation and sector of work of the family carers
(in%).117
Table 39: Work restrictions due to caring (all carers) (in %)*.118
Table 40: Principle reason for caring (in %).119
Table 41: Willingness to continue to provide care (in %).119
Table 42: Consideration of the placement of the cared-for in a care
home (in %).120
Table 43: COPE Index - How the family carers perceive their caring
situation.121
Table 44: Health status and quality of life of the carers (in %).122
Table 45: WHO-5 Well-being index (dichotomized).122
Table 46: Variables for the cluster analysis.126
Table 47: Care situations in Germany; differences between German
and European care situations (+ /- percentage points).129
Table 48: Care situations, spheres of needs and received support.130
Table 49: Care situations and fields requiring more support.131
Table 50: Cluster specific index scores (means) of "negative impact"
and "positive value" and the correlation between "negative
impact" and "positive value".133
Table 51: Future care: % of answers.134
Table 52: Spheres of needs of care recipient and informal / formal
network.138
Table 53: Services used by carers (%, frequencies, meets needs,
payment, costs) (sorted by nUSE").140
Table 54: Services used by cared-for (%, frequencies, meets needs,
payment, costs) (sorted by "USE").141
Table 55: Total number of services used by the older person and by the
carer in contrast to caring situation clusters.144
Table 56: Utilisation of services for the cared-for according to care
situations.145
14
EUROFAMCARE- National Survey Report for Germany
Table 57: Utilisation of services for the carers differentiated by care
situation.146
Table 58: The use of services by the older people and their carers and
physical and psychological efficiency of the cared-for.147
Table 59: Comparison of the frequency of used services fulfilling
particular areas of the older person's needs among older
persons with and without need in the area of a given sphere
of needs.149
Table 60: Costs of services used by carers during the last 6 months
(Euro).152
Table 61: Costs of services used by the cared-for during the last 6
months.153
Table 62: Greatest help in accessing services / support.154
Table 63: Difficulties in accessing services / support.155
Table 64: Are there any services that you or ELDER need that you
have stopped using?.156
Table 65: Services stopped using and reasons (absolute value, multiple
answers possible).156
Table 66: Are there any services that you or ELDER need but have not
used so far?.157
Table 67: Services that are not used and reasons (%, multiple answers
possible).157
Table 68: Reasons for not accessing services.159
Table 69: Service use by regions.159
Table 70: Service use by settlement area.160
Table 71: Service use by settlement areas and regions.161
Table 72: Regression for negative impact on relevant variables of the
care situation and significant services for elder.162
Table 73: Benefits of the LTCI.170
Table 74: Benefits of the LTCI and grades of dependency.171
Table 75: Type of insurance.172
Table 76: Grades of dependency.174
Table 77: Beginning of the current grade of dependency.175
Table 78: Length of time of care / nursing.176
Table 79: Kind of benefits.178
Contents
15
Table 80: Supplementary benefits and number of recipients (multiple
answers).179
Table 81: Supplementary benefits and grades of dependency, numbers
and percentage (multiple answers).181
Table 82: Supplementary benefits and kinds of benefits (multiple
answers).183
Table 83: Remuneration of care / nursing efforts and kind of benefit.184
Table 84: Kinds of benefits by LTCI grades and average time required
for caring / nursing in hours per week.188
Table 85: Family carers' state of health and need of care
(dichotomised).190
Table 86: Quality of life and LTCI grades in %.191
Table 87: Overview of sample size and response rates.200
Table 88: Number of service providers by locality type and kind of
organisation.203
Table 89: Interviewed person's role in his / her organisation.204
Table 90: Number of service providers by locality type and type of
organisation.204
Table 91: Number of service providers by locality type and number of
employed people.204
Table 92: Number of service providers by type of organisation and
provision of services for family carers.205
Table 93: Number of types of service providers by locality type.205
Table 94: Number of service providers by locality type and percentage
of activity regarding older people.206
Table 95: Number of service providers by locality type and percentage
of activity regarding family carers.206
Table 96: List of specific services provided for family carers.228
Table 97: List of specific services provided for older people.229
Table 98: Importance of types of support for family carers judged by
service providers in absolute numbers.231
Table 99: The three types of support most frequently rated as "most
important1'.232
Table 100: The three types of support most frequently rated as "most
important" by locality type.232
16 EUROFAMCARE - National Survey Report for Germany
Table 101: Importance of characteristics of services in absolute numbers. 233
Table 102: The three characteristics of services most frequently rated as
"most important".234
Table 103: The three characteristics of services most frequently rated as
"most important" by locality type.234
Table 104: Size of T1 and T2 samples: Reasons for non-response, and
response rates.241
Table 105: Transition of the T1 sample into the T2 sample.241
Table 106: Comparison of sample T1 with sample T1' with regard to the
distribution of the chosen CAT characteristics (in %).243
Table 107: Mode of administration of the FU questionnaires and interval
between T1 and T2.245
Table 108: "Continuity" versus "discontinuity" in care-giving over one
year.246
Table 109: Reasons for discontinuation of care, other than older
person's death.247
Table 110: Institutionalisation rates in Germany per year (in % of
category within country).248
Table 111: Living arrangements.249
Table 112: Hours of care per week, changes after one year.250
Table 113: Transition of the employment status between T1 and T2.251
Table 114: Restrictions on professional career in the groups of "current
workers" and "current non-workers" (at T2).252
Table 115: Other restrictions due to caring (atT2).253
Table 116: Changes in the possibilities of taking a break from caring for
older person.254
Table 117: Changes in IADL dependency between T1 and T2 (in % of
columns).255
Table 118: Changes in ADL dependency between T1 and T2 (in % of
columns).255
Table 119: Changes in memory problems (MP) between T1 and T2.256
Table 120: Changes on the Behavioural Disorder Scale (BDS) between
time T1 and T2; average scoring on the BDS (T2) per
category.257
Contents 17
Table 121: Changes in older peoples mental status between T1 and T2
within categories from the baseline study (in % within
categories).258
Table 122: Changes in the COPE Index between T1 and T2 (in % from
columns).259
Table 123: Changes in the quality of life and health status between T1
and T2 (in % from columns).260
Table 124: Change in the possibilities of taking a break from caring for
the older person (T1 percentage, T1 - T2 row percentage).261
Table 125: Effects of "health needs" service utilisation of elders on
changes of "negative impact" from T1 to T2 by elder from T1
to T2 in Germany.262 |
| adam_txt |
Contents
Contents.5
List of Tables.11
List of Figures.18
1 Introduction - Aims and Structure of the EUROFAMCARE Project.19
1.1 Aims and structure of the EUROFAMCARE project.19
1.2 Introduction to the National Survey Report (NASURE).22
2 Literature - State of the Art.25
2.1 Introduction.25
2.2 Literature on family care.25
2.2.1 Sociodemographic surveys.25
2.2.2 Family ethics and expectations.28
2.2.3 The relationship between carers' and older people's interests.30
2.2.4 Well-being and burden of care-giving.31
2.2.5 Violence and abuse.32
2.2.6 Interdependency of labour and care.34
2.2.7 Migrant family carers and domestic workers.38
2.2.8 Rural vs. urban areas.39
2.2.9 The role of services for family carers.40
2.2.10 The grey market of care.45
2.2.11 Models and interventions.45
2.2.12 Case management and integrated care.47
2.3 Conclusions and future research needs.48
2.4 References.51
3 The EUROFAMCARE Common Assessment Tool (CAT).59
3.1 Introduction.59
3.2 CAT items and instruments.60
3.2.1 CAT administration.60
3.2.2 Elder's demographic and background characteristics.61
3.2.3 Elder's disability and need.61
EUROFAMCARE- National Survey Report for Germany
3.2.4 Carer's demographic and background characteristics.63
3.2.5 Carer's care-giving situation.63
3.2.6 Carers' quality of life.65
3.2.7 Financial circumstances.66
3.2.8 Service use.66
3.2.9 Characteristics and quality of services.67
3.3 Item transformation.68
3.3.1 Elder's demographic and background characteristics.70
3.3.2 Elder's disability and need.70
3.3.3 Carer's demographic and background characteristics.70
3.3.4 Carer's care-giving situation.71
3.3.5 Financial circumstances.71
3.3.6 Service use.71
3.4 Scale development.72
3.4.1 Elder disability and need.73
3.4.2 Carer-related scales.74
3.5 The Common Assessment Tool - Follow-Up Questionnaire (CAT-FUQ):
Item and scale development and description.78
3.5.1 Background.78
3.5.2 The CAT Follow-up-Questionnaire (FUQ) development.78
3.5.3 CAT-FUQ items and instruments.79
3.6 References.83
4 Sampling, Recruitment and Representativeness of the German Sample.85
4.1 Sampling strategy for family carers survey.85
4.1.1 Target group.87
4.1.2 Sample distribution in the different regions.88
4.1.3 Planned sample distribution according to metropolitan, urban
and rural differences.88
4.2 Training for local co-ordinators and interviewers.89
4.2.1 Training and tasks for the local co-ordinators.89
4.2.2 Advanced training for the interviewers.90
4.3 Recruitment of family carers.91
Contents 7
4.3.1 Recruitment strategies.92
4.3.2 Authorising a sub contractor.93
4.4 Representativeness of the family caregivers survey concerning family
carer and the cared-for.95
4.5 Quality of the representativeness.105
4.6 References.105
5 Characteristics of the Sample.107
5.1 Characteristics of the cared-for people.107
5.1.1 Socio-demographic characteristics of the cared-for people.107
5.1.2 Place of living and household composition.109
5.1.3 Older persons' health situation and need of support.111
5.2 Characteristics of family carers.115
5.2.1 Socio-demographic characteristics of the family carers.115
5.2.2 Marital status of the family carer.115
5.2.3 Carer's family relationship to the cared-for older persons.116
5.2.4 Employment situation of the family carers.117
5.2.5 Carers' religious dominations.118
5.2.6 Reasons for caring and willingness to care.118
5.2.7 Burden, coping, health status and quality of life.120
5.3 Final remarks.123
6 Typology of Care Situations.125
6.1 Methods.125
6.2 Main results.127
6.2.1 Characteristics of the European care situations.127
6.2.2 Characteristics of the German care situations.128
6.2.3 Needs and support in different care situations.129
6.2.4 Burden of caregivers.132
6.2.5 Future care.133
6.3 Discussion.135
6.4 References.135
7 Service Usage.137
EUROFAMCARE - National Survey Report for Germany
7.1 Aims of the chapter.137
7.2 Methodology used to analyse the data.137
7.3 Main findings.137
7.3.1 Which services are used by family carers and by older people?. 138
7.3.2 Do these services reach the person in need of support?.146
7.3.3 Family carers' experiences of service utilisation.152
7.3.4 Where can such services (measures) be found?.159
7.3.5 Effects of service use on the well-being determinants of the
carers.161
7.3.6 Kind of support and service characteristics.163
7.4 Discussion.166
8 Long-Term Care Insurance.167
8.1 Introduction.167
8.2 Long-term care insurance (LTCI).167
8.3 Utilisation of the benefits of LTCI in the EUROFAMCARE survey.169
8.3.1 Does ELDER currently draw benefits from the LTCI?.170
8.3.2 If no application has been made so far, what is the reason?.171
8.3.3 Is ELDER insured by a statutory or a private LTCI?.172
8.3.4 What is the grade of dependency currently assigned to ELDER?. 172
8.3.5 Are you or ELDER currently planning to apply for a higher
classification of the level of care because of worsening or is
such an application under consideration?.174
8.3.6 Since when is ELDER in need of care?.174
8.3.7 Since when has ELDER been assigned the current grade of
dependency?.175
8.3.8 What types of benefits does ELDER draw from the LTCI?.176
8.3.9 Which other benefits according to SGB XI did you or ELDER
utilise in the course of last year?.179
8.3.10 Are your care or nursing efforts remunerated in any way, e.g.
pro rata benefits in cash or other allowances from ELDER?.184
8.4 Effects of nursing and care-giving on the family carers in consideration
of the input of time and the self-help abilities of the persons in need of
care or nursing.185
Contents 9
8.4.1 Time required for caring or nursing by family carers.186
8.4.2 Self-help abilities of persons in need of care or nursing.188
8.4.3 Family carers' health and quality of life.189
8.5 Kinds of support for family carers.192
8.6 Discussion.195
8.7 References.197
9 The Service Providers Survey.199
9.1 Purpose of this chapter.199
9.2 Method and sample.199
9.2.1 Sample size.199
9.2.2 Pre-test.200
9.2.3 Sampling.200
9.2.4 Representativeness.201
9.2.5 Methods of data analysis.202
9.3 Background information.202
9.3.1 Background on the German situation.202
9.3.2 Sample description.203
9.4 Results.206
9.4.1 Goals and benefits.207
9.4.2 Usage and access.209
9.4.3 Coverage of needs.214
9.4.4 Quality.217
9.4.5 Attitude towards family carers and older persons.223
9.4.6 Costs.225
9.4.7 Future development.225
9.4.8 Analysis of types of support and their importance to service
providers.230
9.4.9 Analysis of characteristics of services and the service providers'
view on their importance to family carers.232
9.5 Final remarks.234
9.6 References.237
10 Preliminary Results of the One Year Follow-up Study in Germany.239
I o EUROFAMCARE - National Survey Report for Germany
10.1 Aims of this chapter.239
10.2 Methods.240
10.2.1 Study design and procedure.240
10.2.2 Subjects, sample size, response rates and reasons for non-
response.240
10.2.3 Representativeness of the T2 sample compared to the T1
sample.242
10.2.4 The follow-up questionnaire and the mode of its administration. 243
10.2.5 Analyses and statistics.245
10.3 Main findings.245
10.3.1 Socio-demographical changes in the care-giving situation.245
10.3.2 Changes in the level of disability of the cared-for.254
10.3.3 Changes in carers subjective situation.259
10.3.4 Impact of services on modifying the carers' situation.261
10.4 Discussion.262
II Summary and Final Remarks.265
11.1 Aim and methodology.265
11.2 Results.265
12 Annex: EUROFAMCARE Publication List.271
Contents
11
List of Tables
Table 1: Main carers of individuals in need of care in private homes
(%).27
Table 2: CAT transformed elder-related variables.69
Table 3: Elder-related scales.72
Table 4: Carer-related scales.73
Table 5: The Cope Index: Items and factor loading.77
Table 6: Distribution of Interviews according to rural, urban and
metropolitan areas.89
Table 7: Total amount of interviews at the end of the own data
collection period.93
Table 8: Distribution of sample by locality type in %.93
Table 9: Mode of recruitment for the final sample in %.94
Table 10: Mode of recruitment by locality type in column %.94
Table 11: Mode of recruitment by locality type in row %.95
Table 12: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by "need of help" / "need of
care" and by gender of the cared-for person in %.96
Table 13: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender and grade of
dependency of the cared-for person in %.97
Table 14: Distribution of older people in need of help and in need of
care in the EUROFAMCARE sample by own interviews and
interviews made by sub-contractor in row % (N = 1,003).97
Table 15: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of the cared-for
person within the groups "need of help" and "need of care"
in%.97
Table 16: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender and grade of
dependency of the cared-for person in %.98
Table 17: Comparison between MuG 111 (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of the cared-for
person and grouped age according to "need of help / care"
in%.98
12
EUROFAMCARE - National Survey Report for Germany
Table 18: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender of the cared-for
person and grouped age according to grade of dependency
in%.99
Table 19: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by gender of main family carer
and gender of cared-for person in %.100
Table 20: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by gender of primary family carer
and gender of cared-for person in %.100
Table 21: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) by age of main family carer
and gender of cared-for person in %.101
Table 22: Comparison between MuG III (N = 936) and
EUROFAMCARE (N = 585) by age of main family carer and
gender of cared-for person in %.102
Table 23: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) regarding the average hours of
care per week given to cared-for person according to "need
of help / care" in %.103
Table 24: Comparison between MuG III (N = 2,649) and
EUROFAMCARE (N = 1,003) regarding employment of main
family carer by gender of cared-for person according to "need
of help / care" in %.104
Table 25: Mean age of older person by gender (in years), older
person's gender and age groups of older person (in %).108
Table 26: Older person's marital status (in %).108
Table 27: Older person's nationality and ethnic origin (in %).109
Table 28: Place of living and locality type of the cared-for older person
(in%).110
Table 29: Living situation and houshold composition of elder (in %).110
Table 30: The main reason of support / care (in %).111
Table 31: The problems of the cared-for older persons (in %).112
Table 32: The level of dependency of the cared-for older persons (in %). 113
Table 33: Cared-for people who have to rely partially or completely on
others in meeting their needs (in %)*.114
Table 34: Mean age of carer by gender (in years), carers' gender and
age groups (in %).115
Contents
13
Table 35: Marital status of the carers (in %).116
Table 36: Carer's family relationship to the cared-for older persons
(in%).116
Table 37: Distance between the carer's and the cared-for person's
places of living (in %).117
Table 38: Employment situation and sector of work of the family carers
(in%).117
Table 39: Work restrictions due to caring (all carers) (in %)*.118
Table 40: Principle reason for caring (in %).119
Table 41: Willingness to continue to provide care (in %).119
Table 42: Consideration of the placement of the cared-for in a care
home (in %).120
Table 43: COPE Index - How the family carers perceive their caring
situation.121
Table 44: Health status and quality of life of the carers (in %).122
Table 45: WHO-5 Well-being index (dichotomized).122
Table 46: Variables for the cluster analysis.126
Table 47: Care situations in Germany; differences between German
and European care situations (+ /- percentage points).129
Table 48: Care situations, spheres of needs and received support.130
Table 49: Care situations and fields requiring more support.131
Table 50: Cluster specific index scores (means) of "negative impact"
and "positive value" and the correlation between "negative
impact" and "positive value".133
Table 51: Future care: % of answers.134
Table 52: Spheres of needs of care recipient and informal / formal
network.138
Table 53: Services used by carers (%, frequencies, meets needs,
payment, costs) (sorted by nUSE").140
Table 54: Services used by cared-for (%, frequencies, meets needs,
payment, costs) (sorted by "USE").141
Table 55: Total number of services used by the older person and by the
carer in contrast to caring situation clusters.144
Table 56: Utilisation of services for the cared-for according to care
situations.145
14
EUROFAMCARE- National Survey Report for Germany
Table 57: Utilisation of services for the carers differentiated by care
situation.146
Table 58: The use of services by the older people and their carers and
physical and psychological efficiency of the cared-for.147
Table 59: Comparison of the frequency of used services fulfilling
particular areas of the older person's needs among older
persons with and without need in the area of a given sphere
of needs.149
Table 60: Costs of services used by carers during the last 6 months
(Euro).152
Table 61: Costs of services used by the cared-for during the last 6
months.153
Table 62: Greatest help in accessing services / support.154
Table 63: Difficulties in accessing services / support.155
Table 64: Are there any services that you or ELDER need that you
have stopped using?.156
Table 65: Services stopped using and reasons (absolute value, multiple
answers possible).156
Table 66: Are there any services that you or ELDER need but have not
used so far?.157
Table 67: Services that are not used and reasons (%, multiple answers
possible).157
Table 68: Reasons for not accessing services.159
Table 69: Service use by regions.159
Table 70: Service use by settlement area.160
Table 71: Service use by settlement areas and regions.161
Table 72: Regression for negative impact on relevant variables of the
care situation and significant services for elder.162
Table 73: Benefits of the LTCI.170
Table 74: Benefits of the LTCI and grades of dependency.171
Table 75: Type of insurance.172
Table 76: Grades of dependency.174
Table 77: Beginning of the current grade of dependency.175
Table 78: Length of time of care / nursing.176
Table 79: Kind of benefits.178
Contents
15
Table 80: Supplementary benefits and number of recipients (multiple
answers).179
Table 81: Supplementary benefits and grades of dependency, numbers
and percentage (multiple answers).181
Table 82: Supplementary benefits and kinds of benefits (multiple
answers).183
Table 83: Remuneration of care / nursing efforts and kind of benefit.184
Table 84: Kinds of benefits by LTCI grades and average time required
for caring / nursing in hours per week.188
Table 85: Family carers' state of health and need of care
(dichotomised).190
Table 86: Quality of life and LTCI grades in %.191
Table 87: Overview of sample size and response rates.200
Table 88: Number of service providers by locality type and kind of
organisation.203
Table 89: Interviewed person's role in his / her organisation.204
Table 90: Number of service providers by locality type and type of
organisation.204
Table 91: Number of service providers by locality type and number of
employed people.204
Table 92: Number of service providers by type of organisation and
provision of services for family carers.205
Table 93: Number of types of service providers by locality type.205
Table 94: Number of service providers by locality type and percentage
of activity regarding older people.206
Table 95: Number of service providers by locality type and percentage
of activity regarding family carers.206
Table 96: List of specific services provided for family carers.228
Table 97: List of specific services provided for older people.229
Table 98: Importance of types of support for family carers judged by
service providers in absolute numbers.231
Table 99: The three types of support most frequently rated as "most
important1'.232
Table 100: The three types of support most frequently rated as "most
important" by locality type.232
16 EUROFAMCARE - National Survey Report for Germany
Table 101: Importance of characteristics of services in absolute numbers. 233
Table 102: The three characteristics of services most frequently rated as
"most important".234
Table 103: The three characteristics of services most frequently rated as
"most important" by locality type.234
Table 104: Size of T1 and T2 samples: Reasons for non-response, and
response rates.241
Table 105: Transition of the T1 sample into the T2 sample.241
Table 106: Comparison of sample T1 with sample T1' with regard to the
distribution of the chosen CAT characteristics (in %).243
Table 107: Mode of administration of the FU questionnaires and interval
between T1 and T2.245
Table 108: "Continuity" versus "discontinuity" in care-giving over one
year.246
Table 109: Reasons for discontinuation of care, other than older
person's death.247
Table 110: Institutionalisation rates in Germany per year (in % of
category within country).248
Table 111: Living arrangements.249
Table 112: Hours of care per week, changes after one year.250
Table 113: Transition of the employment status between T1 and T2.251
Table 114: Restrictions on professional career in the groups of "current
workers" and "current non-workers" (at T2).252
Table 115: Other restrictions due to caring (atT2).253
Table 116: Changes in the possibilities of taking a break from caring for
older person.254
Table 117: Changes in IADL dependency between T1 and T2 (in % of
columns).255
Table 118: Changes in ADL dependency between T1 and T2 (in % of
columns).255
Table 119: Changes in memory problems (MP) between T1 and T2.256
Table 120: Changes on the Behavioural Disorder Scale (BDS) between
time T1 and T2; average scoring on the BDS (T2) per
category.257
Contents 17
Table 121: Changes in older peoples mental status between T1 and T2
within categories from the baseline study (in % within
categories).258
Table 122: Changes in the COPE Index between T1 and T2 (in % from
columns).259
Table 123: Changes in the quality of life and health status between T1
and T2 (in % from columns).260
Table 124: Change in the possibilities of taking a break from caring for
the older person (T1 percentage, T1 - T2 row percentage).261
Table 125: Effects of "health needs" service utilisation of elders on
changes of "negative impact" from T1 to T2 by elder from T1
to T2 in Germany.262 |
| any_adam_object | 1 |
| any_adam_object_boolean | 1 |
| author2 | Döhner, Hanneli 1946- |
| author2_role | edt |
| author2_variant | h d hd |
| author_GND | (DE-588)123952638 |
| author_facet | Döhner, Hanneli 1946- |
| building | Verbundindex |
| bvnumber | BV023344347 |
| classification_rvk | DS 7250 MS 2000 MS 2700 |
| ctrlnum | (OCoLC)239324685 (DE-599)DNB988211912 |
| dewey-full | 362.60943 |
| dewey-hundreds | 300 - Social sciences |
| dewey-ones | 362 - Social problems and services to groups |
| dewey-raw | 362.60943 |
| dewey-search | 362.60943 |
| dewey-sort | 3362.60943 |
| dewey-tens | 360 - Social problems and services; associations |
| discipline | Pädagogik Soziologie Soziale Arbeit |
| discipline_str_mv | Pädagogik Soziologie Soziale Arbeit |
| format | Book |
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| geographic | Deutschland (DE-588)4011882-4 gnd Europa (DE-588)4015701-5 gnd |
| geographic_facet | Deutschland Europa |
| id | DE-604.BV023344347 |
| illustrated | Illustrated |
| index_date | 2024-07-02T21:02:49Z |
| indexdate | 2024-07-20T09:42:02Z |
| institution | BVB |
| isbn | 9783825811099 3825811093 9783037359075 |
| language | English |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-016528066 |
| oclc_num | 239324685 |
| open_access_boolean | |
| owner | DE-12 DE-859 DE-525 DE-M347 |
| owner_facet | DE-12 DE-859 DE-525 DE-M347 |
| physical | 273 S. graph. Darst. |
| publishDate | 2008 |
| publishDateSearch | 2008 |
| publishDateSort | 2008 |
| publisher | Lit-Verl. |
| record_format | marc |
| series | Supporting family carers of older people in Europe |
| series2 | Supporting family carers of older people in Europe |
| spelling | Family care for older people in Germany results from the European project EUROFAMCARE ed. by Hanneli Döhner ... Münster Lit-Verl. 2008 273 S. graph. Darst. txt rdacontent n rdamedia nc rdacarrier Supporting family carers of older people in Europe 10 Ambulanter Hilfs- und Pflegedienst (DE-588)4001654-7 gnd rswk-swf Alter (DE-588)4001446-0 gnd rswk-swf Empirische Sozialforschung (DE-588)4014606-6 gnd rswk-swf Familienbeziehung (DE-588)4133734-7 gnd rswk-swf Angehöriger (DE-588)4142414-1 gnd rswk-swf Hauspflege (DE-588)4023796-5 gnd rswk-swf Pflegeperson (DE-588)4174086-5 gnd rswk-swf Generationsbeziehung (DE-588)4441518-7 gnd rswk-swf Deutschland (DE-588)4011882-4 gnd rswk-swf Europa (DE-588)4015701-5 gnd rswk-swf Deutschland (DE-588)4011882-4 g Alter (DE-588)4001446-0 s Hauspflege (DE-588)4023796-5 s Angehöriger (DE-588)4142414-1 s Pflegeperson (DE-588)4174086-5 s Ambulanter Hilfs- und Pflegedienst (DE-588)4001654-7 s DE-604 Europa (DE-588)4015701-5 g Generationsbeziehung (DE-588)4441518-7 s Familienbeziehung (DE-588)4133734-7 s Empirische Sozialforschung (DE-588)4014606-6 s Döhner, Hanneli 1946- (DE-588)123952638 edt Supporting family carers of older people in Europe 10 (DE-604)BV021571436 10 text/html http://deposit.dnb.de/cgi-bin/dokserv?id=3088170&prov=M&dok_var=1&dok_ext=htm Inhaltstext HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=016528066&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Family care for older people in Germany results from the European project EUROFAMCARE Supporting family carers of older people in Europe Ambulanter Hilfs- und Pflegedienst (DE-588)4001654-7 gnd Alter (DE-588)4001446-0 gnd Empirische Sozialforschung (DE-588)4014606-6 gnd Familienbeziehung (DE-588)4133734-7 gnd Angehöriger (DE-588)4142414-1 gnd Hauspflege (DE-588)4023796-5 gnd Pflegeperson (DE-588)4174086-5 gnd Generationsbeziehung (DE-588)4441518-7 gnd |
| subject_GND | (DE-588)4001654-7 (DE-588)4001446-0 (DE-588)4014606-6 (DE-588)4133734-7 (DE-588)4142414-1 (DE-588)4023796-5 (DE-588)4174086-5 (DE-588)4441518-7 (DE-588)4011882-4 (DE-588)4015701-5 |
| title | Family care for older people in Germany results from the European project EUROFAMCARE |
| title_auth | Family care for older people in Germany results from the European project EUROFAMCARE |
| title_exact_search | Family care for older people in Germany results from the European project EUROFAMCARE |
| title_exact_search_txtP | Family care for older people in Germany results from the European project EUROFAMCARE |
| title_full | Family care for older people in Germany results from the European project EUROFAMCARE ed. by Hanneli Döhner ... |
| title_fullStr | Family care for older people in Germany results from the European project EUROFAMCARE ed. by Hanneli Döhner ... |
| title_full_unstemmed | Family care for older people in Germany results from the European project EUROFAMCARE ed. by Hanneli Döhner ... |
| title_short | Family care for older people in Germany |
| title_sort | family care for older people in germany results from the european project eurofamcare |
| title_sub | results from the European project EUROFAMCARE |
| topic | Ambulanter Hilfs- und Pflegedienst (DE-588)4001654-7 gnd Alter (DE-588)4001446-0 gnd Empirische Sozialforschung (DE-588)4014606-6 gnd Familienbeziehung (DE-588)4133734-7 gnd Angehöriger (DE-588)4142414-1 gnd Hauspflege (DE-588)4023796-5 gnd Pflegeperson (DE-588)4174086-5 gnd Generationsbeziehung (DE-588)4441518-7 gnd |
| topic_facet | Ambulanter Hilfs- und Pflegedienst Alter Empirische Sozialforschung Familienbeziehung Angehöriger Hauspflege Pflegeperson Generationsbeziehung Deutschland Europa |
| url | http://deposit.dnb.de/cgi-bin/dokserv?id=3088170&prov=M&dok_var=1&dok_ext=htm http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=016528066&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| volume_link | (DE-604)BV021571436 |
| work_keys_str_mv | AT dohnerhanneli familycareforolderpeopleingermanyresultsfromtheeuropeanprojecteurofamcare |