Profiles in caregiving: the unexpected career
More and more people are being pressed into service as caregivers for their siblings, parents, or spouses with Alzheimer's Disease or other dementia. With this caregiving role comes added stress and a difficult adjustment period for what begins as a part-time role and can become an unexpected c...
Gespeichert in:
| Format: | Buch |
|---|---|
| Sprache: | English |
| Veröffentlicht: |
San Diego [u.a.]
Academic Press
1995
|
| Schlagworte: | |
| Online-Zugang: | Publisher description Table of contents Inhaltsverzeichnis |
| Zusammenfassung: | More and more people are being pressed into service as caregivers for their siblings, parents, or spouses with Alzheimer's Disease or other dementia. With this caregiving role comes added stress and a difficult adjustment period for what begins as a part-time role and can become an unexpected career. Profiles in Caregiving: The Unexpected Career is a practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. It is the first book that provides a research investigation into the factors associated with effective caregiving to dementia patients. This landmark work traces the experiences of husbands, wives, daughters, and sons in the caregiving role, identifying common stress factors and discussing how stress affects the caregiver's physical and emotional well-being. |
| Beschreibung: | Includes bibliographical references (p. 365-373) and index |
| Beschreibung: | xviii, 385 S. Ill. |
| ISBN: | 0120595400 |
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| 245 | 1 | 0 | |a Profiles in caregiving |b the unexpected career |c Carol S. Aneshensel ... [et al.] |
| 264 | 1 | |a San Diego [u.a.] |b Academic Press |c 1995 | |
| 300 | |a xviii, 385 S. |b Ill. | ||
| 336 | |b txt |2 rdacontent | ||
| 337 | |b n |2 rdamedia | ||
| 338 | |b nc |2 rdacarrier | ||
| 500 | |a Includes bibliographical references (p. 365-373) and index | ||
| 520 | 3 | |a More and more people are being pressed into service as caregivers for their siblings, parents, or spouses with Alzheimer's Disease or other dementia. With this caregiving role comes added stress and a difficult adjustment period for what begins as a part-time role and can become an unexpected career. Profiles in Caregiving: The Unexpected Career is a practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. It is the first book that provides a research investigation into the factors associated with effective caregiving to dementia patients. This landmark work traces the experiences of husbands, wives, daughters, and sons in the caregiving role, identifying common stress factors and discussing how stress affects the caregiver's physical and emotional well-being. | |
| 650 | 4 | |a Aidants naturels | |
| 650 | 4 | |a Alzheimer, Maladie d' - Patients - Soins | |
| 650 | 4 | |a Démence sénile - Patients - Soins | |
| 650 | 7 | |a Hulpverlening |2 gtt | |
| 650 | 7 | |a Ziekte van Alzheimer |2 gtt | |
| 650 | 4 | |a Alzheimer Disease |x therapy | |
| 650 | 4 | |a Alzheimer's disease |x Patients |x Care | |
| 650 | 4 | |a Caregivers | |
| 650 | 4 | |a Dementia |x therapy | |
| 650 | 4 | |a Home Nursing | |
| 650 | 4 | |a Senile dementia |x Patients |x Care | |
| 650 | 0 | 7 | |a Altenpflege |0 (DE-588)4001420-4 |2 gnd |9 rswk-swf |
| 689 | 0 | 0 | |a Altenpflege |0 (DE-588)4001420-4 |D s |
| 689 | 0 | |5 DE-604 | |
| 700 | 1 | |a Aneshensel, Carol S. |e Sonstige |4 oth | |
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| 999 | |a oai:aleph.bib-bvb.de:BVB01-016251470 | ||
Datensatz im Suchindex
| _version_ | 1804137279774523392 |
|---|---|
| adam_text | Preface xi
HKSZ^SDi Setting the Stage
Introduction 1
The Aging of the Population and the Need for Family Care 5
The Late Life Dementias 7
The Epidemiology of Late Life Dementia 9
Precursory Commentary 10
J^^^^^QI^^ Caregiving Careers and Strejj Proceeded
Caregiving as a Career 16
Occupational and Informal Careers 18
Characteristics of Careers and Caregiving 18
Points of Divergence 21
Stages and Transitions in Caregiving Careers 23
Pathways to Care: Role Acquisition 23
Perseverance and Resignation: Role Enactment 28
Grief and Readjustment: Role Disengagement 29
Alternative Career Paths for Caregiving 31
Caregiving and the Stress Process 33
The Proliferation of Stressors 35
The Synergistic Convergence of Caregiving Careers and the Stress
Process 39
i U
viii Contents
^H^OSSS^fl An Empirical Inquiry into Caregiving
Origins of the Theoretical Framework and Methods 41
The Formative Phase 41
Implementation of the Fieldwork 42
Caregivers and Their Impaired Relatives 43
Sample Selection 43
Socioeconomic and Demographic Characteristics 44
Transitions over Time 50
Measurement Strategy 55
Developmental Stage 55
Overview of Key Measures 56
Data Analysis Strategies 59
Hazard Models 59
Canonical Correlations 61
Summary 62
^mOQS^^m The Organization of Stre*t tor i
in the Lives of Caregivers
The Onset of Caregiving 66
The Primary Stressors of Caregiving 69
Objective Conditions of Caregiving 70
Subjective Reactions to Caregiving 77
The Link between Objective and Subjective Primary Stressors 81
The Creation of Secondary Stressors 83
The Encroachment of Care Related Stress into Other Social Roles 85
The Independence of Secondary Role Strains 89
The Link between Primary Stressors and Secondary Role Strains 90
The Care Related Erosion of Self Concept 92
The Link between Primary Stressors and Secondary Intrapsychic
Strains 95
The Link between Secondary Role Strains and Intrapsychic Strains 96
Extrinsic Stressors 98
Contents ix
The Social Context of Caregiving 100
Summary 105
Discussion 106
^^^/@^^^^^^ The Natural History of Care Related
StreJd
The Course of Primary Stressors over Time 110
The Course of Secondary Stressors over Time 112
Individual Patterns of Stability and Change 115
Summary 120
Discussion 120
Ull^^^^^ Street) Proliferation
Structural and Interpersonal Foundations of Stress
Proliferation 124
Proliferation over the Short Term 126
The Impact of Objective Primary Stressors on Subjective Primary
Stressors 126
The Impact of Primary Stressors on Secondary Role Strains 130
The Impact of Primary Stressors on Secondary Intrapsychic Strains 132
The Impact of Primary and Secondary Stressors on Depression 136
A Synthesis of the Short Course of Care Related Stress Proliferation 139
Proliferation over the Long Term 140
Summary 146
Discussion 147
|||^^^^^^Q^| The Containment of Care Related
Stre t*tord
Psychosocial Resources: Social Support and Mastery 152
Social Support 152
Mastery 154
The Ebb and Flow of Psychosocial Resources 157
Sustained, Acquired, and Lapsed Resources 157
X Contents
Resources and Their Naturalistic Interventions 158
Resources as Stress Mediators and Moderators 159
Mediating Processes 159
Moderating Processes 161
The Independent Effects of Psychosocial Resources 162
Resources and Subjective Primary Stressors 163
Resources and Secondary Stressors 165
Resources and Depression 168
The Impact of Psychosocial Resources Over 1 Year 169
The Long Term Impact of Psychosocial Resources 171
The Impact of Psychosocial Resources over 3 Years 175
Summary 177
Discussion 177
m^^^QQ^gg The Transition to Institutional Care
The Average Course of In Home Care 185
Peak Periods of Risk 187
Generation and Gender 188
The Timing of Institutionalization 189
Patient Health and the Risk of Placement 190
The Impact of Primary Stressors 190
Characteristics of the Caregiver 192
The Contribution of Secondary Stressors 194
The Impact of Mental and Emotional Distress 196
The Efficacy of Social Psychological Resources 196
Catalysts for Institutionalization 198
The Family Context of Institutionalization 205
Institutionalization as a Stressor 206
Anticipatory Stress 207
Transitional Stress 212
Summary 215
Discussion 216
Contents XI
^|^^S^^|^^| Adaptation Following Institutionalization
Continuity and Change in the Caregiver Role 222
Similarities in Caregiving 223
New Sources of Stress 224
The Impact of Institutionalization 229
Effects of Placement on Subjective Primary Stressors 230
Effects of Placement on Secondary Stressors 232
Effects of Placement on Social Psychological Resources 233
Effects of Placement on Psychological Distress 234
A Synthesis of the Impact of Institutionalization 235
Caregivers Adaptation to Placement 236
What Constitutes Successful Adaptation? 236
What Predicts Successful Adaptation? 238
Effects on Secondary Stressors 238
Effects on Psychosocial Resources 241
Effects on Emotional Well Being 242
A Synthesis of Factors Affecting Adaptation to Placement 244
Long Term Institutionalized Caregiving 245
Change over Time in Elements of the Stress Process 245
Predictors of Successful Emotional Adaptation 248
Summary 249
Discussion 250
^^^^^^g^^2fifl The Timing and Settings
of Patient Death
Patterns of Mortality among Care Recipients 254
Illness Duration and Death 255
Peak Periods of Risk 256
Health Status and Mortality 258
The Impact of Institutionalization 260
Mortality after Nursing Home Admission 262
The Impact of Patient Health on Postadmission Mortality 264
xii Contents
Summary 266
Discussion 267
imOQ^QQ^EH Bereavement
Continuities and Discontinuities in the Stress Process along the
Caregiving Career 271
The Immediate Impact of the Death of the Dementia Patient 272
The Short Term Bereavement Cohort 272
The Impact of the Care Recipient s Death 275
Factors Affecting the Impact of the Death of the Care Recipient 277
The Impact of Time 279
Predeath Factors That Contribute to Postdeath Change 281
A Synthesis of the Immediate Effects of the Death of the Care
Recipient 285
Death and Grief 286
Grief: Its Dimensions and Measurement 287
Factors Affecting Grief Reactions 291
The Long Term Impact of the Death of the Dementia Patient 295
The Long Term Bereavement Cohort 295
Stability and Change over the Long Term 296
The Extended Course of Grief 298
Summary 300
Discussion 301
I^H^^^^^^Efil Clinical Interventions
and Caregiving Careers
Intervention Strategies across the Caregiving Career 306
Clinical Intervention and the Stress Process 308
Basic Premises 310
The Need for Early Intervention: Role Acquisition 312
Core Issues That May Be Addressed during Role Acquisition 312
Contents xiii
Interventions for the Long Haul: Role Enactment 314
Strategies for Alleviating Primary Stressors 315
Strategies for Alleviating Secondary Stressors 317
Obstacles to Intervention 318
Easing the Crisis of Hospitalization 319
Deciding to Place a Relative 320
Facilitating Adaptation to Nursing Home Care 322
Adjustments during Bereavement: Role Disengagement 323
Types of Clinical Approaches 325
Concluding Comments 326
^^^^^^Q^S^^S Implications for Public Policy
and Society
The Policy Conundrum: Addressing Diverging Interests 329
The Individual Focus of Policy 329
Diverging Interests of Patients, Families, and Society 331
Public Policy and the Elusiveness of Establishing Need 336
Directions for Public Policy and Caregiving 337
A Partnership of Families and Support Services 337
Promising Initiatives and Trends 341
The Timing of Placement 342
Ethics and Public Policy 344
Risks Associated with In Home Care and Institutionalization 344
The Trade offs Involved with Dementia Patients 345
The Dilemma of Prolonged Medical Treatment 345
Concluding Comments 346
^^^^Q25^^^^9 A Review and Overview
of Caregiving Careers
The Caregiving Career 350
Role Acquisition 350
xiv Contents
Role Enactment 351
Role Disengagement 353
The Care Related Stress Process 354
The Impact of Primary Stressors 354
The Impact of Secondary Stressors 356
Psychosocial Resources and Stress Containment 358
Interpreting Variation in the Impact of Stressors 360
The Impact of Social Standing 361
In Retrospect 362
Closing Commentary 364
Reference*) 365
Index 375
|
| adam_txt |
Preface xi
HKSZ^SDi Setting the Stage
Introduction 1
The Aging of the Population and the Need for Family Care 5
The Late Life Dementias 7
The Epidemiology of Late Life Dementia 9
Precursory Commentary 10
J^^^^^QI^^ Caregiving Careers and Strejj Proceeded
Caregiving as a Career 16
Occupational and Informal Careers 18
Characteristics of Careers and Caregiving 18
Points of Divergence 21
Stages and Transitions in Caregiving Careers 23
Pathways to Care: Role Acquisition 23
Perseverance and Resignation: Role Enactment 28
Grief and Readjustment: Role Disengagement 29
Alternative Career Paths for Caregiving 31
Caregiving and the Stress Process 33
The Proliferation of Stressors 35
The Synergistic Convergence of Caregiving Careers and the Stress
Process 39
i'U
viii Contents
^H^OSSS^fl An Empirical Inquiry into Caregiving
Origins of the Theoretical Framework and Methods 41
The Formative Phase 41
Implementation of the Fieldwork 42
Caregivers and Their Impaired Relatives 43
Sample Selection 43
Socioeconomic and Demographic Characteristics 44
Transitions over Time 50
Measurement Strategy 55
Developmental Stage 55
Overview of Key Measures 56
Data Analysis Strategies 59
Hazard Models 59
Canonical Correlations 61
Summary 62
^mOQS^^m The Organization of Stre*t tor i
in the Lives of Caregivers
The Onset of Caregiving 66
The Primary Stressors of Caregiving 69
Objective Conditions of Caregiving 70
Subjective Reactions to Caregiving 77
The Link between Objective and Subjective Primary Stressors 81
The Creation of Secondary Stressors 83
The Encroachment of Care Related Stress into Other Social Roles 85
The Independence of Secondary Role Strains 89
The Link between Primary Stressors and Secondary Role Strains 90
The Care Related Erosion of Self Concept 92
The Link between Primary Stressors and Secondary Intrapsychic
Strains 95
The Link between Secondary Role Strains and Intrapsychic Strains 96
Extrinsic Stressors 98
Contents ix
The Social Context of Caregiving 100
Summary 105
Discussion 106
^^^/@^^^^^^ The Natural History of Care Related
StreJd
The Course of Primary Stressors over Time 110
The Course of Secondary Stressors over Time 112
Individual Patterns of Stability and Change 115
Summary 120
Discussion 120
Ull^^^^^ Street) Proliferation
Structural and Interpersonal Foundations of Stress
Proliferation 124
Proliferation over the Short Term 126
The Impact of Objective Primary Stressors on Subjective Primary
Stressors 126
The Impact of Primary Stressors on Secondary Role Strains 130
The Impact of Primary Stressors on Secondary Intrapsychic Strains 132
The Impact of Primary and Secondary Stressors on Depression 136
A Synthesis of the Short Course of Care Related Stress Proliferation 139
Proliferation over the Long Term 140
Summary 146
Discussion 147
|||^^^^^^Q^| The Containment of Care Related
Stre t*tord
Psychosocial Resources: Social Support and Mastery 152
Social Support 152
Mastery 154
The Ebb and Flow of Psychosocial Resources 157
Sustained, Acquired, and Lapsed Resources 157
X Contents
Resources and Their Naturalistic Interventions 158
Resources as Stress Mediators and Moderators 159
Mediating Processes 159
Moderating Processes 161
The Independent Effects of Psychosocial Resources 162
Resources and Subjective Primary Stressors 163
Resources and Secondary Stressors 165
Resources and Depression 168
The Impact of Psychosocial Resources Over 1 Year 169
The Long Term Impact of Psychosocial Resources 171
The Impact of Psychosocial Resources over 3 Years 175
Summary 177
Discussion 177
m^^^QQ^gg The Transition to Institutional Care
The Average Course of In Home Care 185
Peak Periods of Risk 187
Generation and Gender 188
The Timing of Institutionalization 189
Patient Health and the Risk of Placement 190
The Impact of Primary Stressors 190
Characteristics of the Caregiver 192
The Contribution of Secondary Stressors 194
The Impact of Mental and Emotional Distress 196
The Efficacy of Social Psychological Resources 196
Catalysts for Institutionalization 198
The Family Context of Institutionalization 205
Institutionalization as a Stressor 206
Anticipatory Stress 207
Transitional Stress 212
Summary 215
Discussion 216
Contents XI
^|^^S^^|^^| Adaptation Following Institutionalization
Continuity and Change in the Caregiver Role 222
Similarities in Caregiving 223
New Sources of Stress 224
The Impact of Institutionalization 229
Effects of Placement on Subjective Primary Stressors 230
Effects of Placement on Secondary Stressors 232
Effects of Placement on Social Psychological Resources 233
Effects of Placement on Psychological Distress 234
A Synthesis of the Impact of Institutionalization 235
Caregivers' Adaptation to Placement 236
What Constitutes Successful Adaptation? 236
What Predicts Successful Adaptation? 238
Effects on Secondary Stressors 238
Effects on Psychosocial Resources 241
Effects on Emotional Well Being 242
A Synthesis of Factors Affecting Adaptation to Placement 244
Long Term Institutionalized Caregiving 245
Change over Time in Elements of the Stress Process 245
Predictors of Successful Emotional Adaptation 248
Summary 249
Discussion 250
^^^^^^g^^2fifl The Timing and Settings
of Patient Death
Patterns of Mortality among Care Recipients 254
Illness Duration and Death 255
Peak Periods of Risk 256
Health Status and Mortality 258
The Impact of Institutionalization 260
Mortality after Nursing Home Admission 262
The Impact of Patient Health on Postadmission Mortality 264
xii Contents
Summary 266
Discussion 267
imOQ^QQ^EH Bereavement
Continuities and Discontinuities in the Stress Process along the
Caregiving Career 271
The Immediate Impact of the Death of the Dementia Patient 272
The Short Term Bereavement Cohort 272
The Impact of the Care Recipient's Death 275
Factors Affecting the Impact of the Death of the Care Recipient 277
The Impact of Time 279
Predeath Factors That Contribute to Postdeath Change 281
A Synthesis of the Immediate Effects of the Death of the Care
Recipient 285
Death and Grief 286
Grief: Its Dimensions and Measurement 287
Factors Affecting Grief Reactions 291
The Long Term Impact of the Death of the Dementia Patient 295
The Long Term Bereavement Cohort 295
Stability and Change over the Long Term 296
The Extended Course of Grief 298
Summary 300
Discussion 301
I^H^^^^^^Efil Clinical Interventions
and Caregiving Careers
Intervention Strategies across the Caregiving Career 306
Clinical Intervention and the Stress Process 308
Basic Premises 310
The Need for Early Intervention: Role Acquisition 312
Core Issues That May Be Addressed during Role Acquisition 312
Contents xiii
Interventions for the Long Haul: Role Enactment 314
Strategies for Alleviating Primary Stressors 315
Strategies for Alleviating Secondary Stressors 317
Obstacles to Intervention 318
Easing the Crisis of Hospitalization 319
Deciding to Place a Relative 320
Facilitating Adaptation to Nursing Home Care 322
Adjustments during Bereavement: Role Disengagement 323
Types of Clinical Approaches 325
Concluding Comments 326
^^^^^^Q^S^^S Implications for Public Policy
and Society
The Policy Conundrum: Addressing Diverging Interests 329
The Individual Focus of Policy 329
Diverging Interests of Patients, Families, and Society 331
Public Policy and the Elusiveness of Establishing Need 336
Directions for Public Policy and Caregiving 337
A Partnership of Families and Support Services 337
Promising Initiatives and Trends 341
The Timing of Placement 342
Ethics and Public Policy 344
Risks Associated with In Home Care and Institutionalization 344
The Trade offs Involved with Dementia Patients 345
The Dilemma of Prolonged Medical Treatment 345
Concluding Comments 346
^^^^Q25^^^^9 A Review and Overview
of Caregiving Careers
The Caregiving Career 350
Role Acquisition 350
xiv Contents
Role Enactment 351
Role Disengagement 353
The Care Related Stress Process 354
The Impact of Primary Stressors 354
The Impact of Secondary Stressors 356
Psychosocial Resources and Stress Containment 358
Interpreting Variation in the Impact of Stressors 360
The Impact of Social Standing 361
In Retrospect 362
Closing Commentary 364
Reference*) 365
Index 375 |
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| id | DE-604.BV023048044 |
| illustrated | Illustrated |
| index_date | 2024-07-02T19:23:26Z |
| indexdate | 2024-07-09T21:09:46Z |
| institution | BVB |
| isbn | 0120595400 |
| language | English |
| lccn | 95003498 |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-016251470 |
| oclc_num | 31969142 |
| open_access_boolean | |
| owner | DE-29 |
| owner_facet | DE-29 |
| physical | xviii, 385 S. Ill. |
| publishDate | 1995 |
| publishDateSearch | 1995 |
| publishDateSort | 1995 |
| publisher | Academic Press |
| record_format | marc |
| spelling | Profiles in caregiving the unexpected career Carol S. Aneshensel ... [et al.] San Diego [u.a.] Academic Press 1995 xviii, 385 S. Ill. txt rdacontent n rdamedia nc rdacarrier Includes bibliographical references (p. 365-373) and index More and more people are being pressed into service as caregivers for their siblings, parents, or spouses with Alzheimer's Disease or other dementia. With this caregiving role comes added stress and a difficult adjustment period for what begins as a part-time role and can become an unexpected career. Profiles in Caregiving: The Unexpected Career is a practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. It is the first book that provides a research investigation into the factors associated with effective caregiving to dementia patients. This landmark work traces the experiences of husbands, wives, daughters, and sons in the caregiving role, identifying common stress factors and discussing how stress affects the caregiver's physical and emotional well-being. Aidants naturels Alzheimer, Maladie d' - Patients - Soins Démence sénile - Patients - Soins Hulpverlening gtt Ziekte van Alzheimer gtt Alzheimer Disease therapy Alzheimer's disease Patients Care Caregivers Dementia therapy Home Nursing Senile dementia Patients Care Altenpflege (DE-588)4001420-4 gnd rswk-swf Altenpflege (DE-588)4001420-4 s DE-604 Aneshensel, Carol S. Sonstige oth http://www.loc.gov/catdir/description/els032/95003498.html Publisher description http://www.loc.gov/catdir/toc/els032/95003498.html Table of contents HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=016251470&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Profiles in caregiving the unexpected career Aidants naturels Alzheimer, Maladie d' - Patients - Soins Démence sénile - Patients - Soins Hulpverlening gtt Ziekte van Alzheimer gtt Alzheimer Disease therapy Alzheimer's disease Patients Care Caregivers Dementia therapy Home Nursing Senile dementia Patients Care Altenpflege (DE-588)4001420-4 gnd |
| subject_GND | (DE-588)4001420-4 |
| title | Profiles in caregiving the unexpected career |
| title_auth | Profiles in caregiving the unexpected career |
| title_exact_search | Profiles in caregiving the unexpected career |
| title_exact_search_txtP | Profiles in caregiving the unexpected career |
| title_full | Profiles in caregiving the unexpected career Carol S. Aneshensel ... [et al.] |
| title_fullStr | Profiles in caregiving the unexpected career Carol S. Aneshensel ... [et al.] |
| title_full_unstemmed | Profiles in caregiving the unexpected career Carol S. Aneshensel ... [et al.] |
| title_short | Profiles in caregiving |
| title_sort | profiles in caregiving the unexpected career |
| title_sub | the unexpected career |
| topic | Aidants naturels Alzheimer, Maladie d' - Patients - Soins Démence sénile - Patients - Soins Hulpverlening gtt Ziekte van Alzheimer gtt Alzheimer Disease therapy Alzheimer's disease Patients Care Caregivers Dementia therapy Home Nursing Senile dementia Patients Care Altenpflege (DE-588)4001420-4 gnd |
| topic_facet | Aidants naturels Alzheimer, Maladie d' - Patients - Soins Démence sénile - Patients - Soins Hulpverlening Ziekte van Alzheimer Alzheimer Disease therapy Alzheimer's disease Patients Care Caregivers Dementia therapy Home Nursing Senile dementia Patients Care Altenpflege |
| url | http://www.loc.gov/catdir/description/els032/95003498.html http://www.loc.gov/catdir/toc/els032/95003498.html http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=016251470&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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