Rethinking informed consent in bioethics:
Gespeichert in:
| Hauptverfasser: | , |
|---|---|
| Format: | Buch |
| Sprache: | English |
| Veröffentlicht: |
Cambridge [u.a.]
Cambridge Univ. Press
2007
|
| Ausgabe: | 1. publ. |
| Schlagworte: | |
| Online-Zugang: | Inhaltsverzeichnis |
| Beschreibung: | XIV, 212 S. |
| ISBN: | 9780521874588 9780521697477 |
Internformat
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| 245 | 1 | 0 | |a Rethinking informed consent in bioethics |c Neil C. Manson and Onora O'Neill |
| 250 | |a 1. publ. | ||
| 264 | 1 | |a Cambridge [u.a.] |b Cambridge Univ. Press |c 2007 | |
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| 650 | 4 | |a Medicine / Research / Moral and ethical aspects | |
| 650 | 4 | |a Ethik | |
| 650 | 4 | |a Medizin | |
| 650 | 4 | |a Informed consent (Medical law) | |
| 650 | 4 | |a Bioethics | |
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Datensatz im Suchindex
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Contents
Preface page vii
Acknowledgements xii
1 Consent: Nuremberg, Helsinki and beyond i
Introduction i
Beginning at Nuremberg 2
Extending scope: from research ethics to clinical ethics 4
Raising standards: explicit and specific consent 6
Improving justifications: the quest for autonomy 16
Regulatory reinforcement: consent requirements 22
Conclusion 24
2 Information and communication: the drift from agency 26
Framing informed consent 27
Two layers of distortion 54
Information and the drift from agency 54
What the conduit and container metaphors hide 38
Conclusion 48
3 Informing and communicating: back to agency 50
Agency 50
Communicative actions C4
Communicative norms I7
Two 'models' of information and communication 64
4 How to rethink informed consent 68
Introduction: two models of informed consent a%
Why consent transactions matter: beyond autonomy 69
Justifying consent transactions: consent as waiver 72
Scope and standards 77
Consent transactions: standards for communication 84
Consent transactions: commitments .; 90
Conclusion: consent in practice 94
V
vi Contents
5 Informational privacy and data protection 97
Informational privacy 100
Informational rights and obligations 101
Informational privacy as a right over content 105
Data protection legislation: second order informational obligations 111
Rethinking informational privacy 121
Confidentiality: regulating communicative action rather than
information content 123
Conclusion 128
6 Genetic information and genetic exceptionalism 130
Questions about genetic information 131
Genetic privacy and genetic exceptionalism 133
Is Genetic information contained within DNA? 145
Conclusion 149
7 Trust, accountability and transparency 154
Consent, paternalism and trust 154
Placing and refusing trust intelligently 159
Accountability and trustworthiness 167
Accountability, trustworthiness and trust in biomedicine 169
Accountability with transparency 177
Appendix: the structure of accountability 181
Some conclusions and proposals 183
Informed consent and epistemic norms 184
Informed consent and individual autonomy 185
Informed consent as waiver 187
Practices and policies for informed consent 189
After rethinking: the possibility of change 198
Bibliography 201
Institutional sources and documents 207
Index 211 |
| adam_txt |
Contents
Preface page vii
Acknowledgements xii
1 Consent: Nuremberg, Helsinki and beyond i
Introduction i
Beginning at Nuremberg 2
Extending scope: from research ethics to clinical ethics 4
Raising standards: explicit and specific consent 6
Improving justifications: the quest for autonomy 16
Regulatory reinforcement: consent requirements 22
Conclusion 24
2 Information and communication: the drift from agency 26
Framing informed consent 27
Two layers of distortion 54
Information and the drift from agency 54
What the conduit and container metaphors hide 38
Conclusion 48
3 Informing and communicating: back to agency 50
Agency 50
Communicative actions C4
Communicative norms I7
Two 'models' of information and communication 64
4 How to rethink informed consent 68
Introduction: two models of informed consent a%
Why consent transactions matter: beyond autonomy 69
Justifying consent transactions: consent as waiver 72
Scope and standards 77
Consent transactions: standards for communication 84
Consent transactions: commitments .; 90
Conclusion: consent in practice 94
V
vi Contents
5 Informational privacy and data protection 97
Informational privacy 100
Informational rights and obligations 101
Informational privacy as a right over content 105
Data protection legislation: second order informational obligations 111
Rethinking informational privacy 121
Confidentiality: regulating communicative action rather than
information content 123
Conclusion 128
6 Genetic information and genetic exceptionalism 130
Questions about genetic information 131
Genetic privacy and genetic exceptionalism 133
Is Genetic information contained within DNA? 145
Conclusion 149
7 Trust, accountability and transparency 154
Consent, paternalism and trust 154
Placing and refusing trust intelligently 159
Accountability and trustworthiness 167
Accountability, trustworthiness and trust in biomedicine 169
Accountability with transparency 177
Appendix: the structure of accountability 181
Some conclusions and proposals 183
Informed consent and epistemic norms 184
Informed consent and individual autonomy 185
Informed consent as waiver 187
Practices and policies for informed consent 189
After rethinking: the possibility of change 198
Bibliography 201
Institutional sources and documents 207
Index 211 |
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| isbn | 9780521874588 9780521697477 |
| language | English |
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| spelling | Manson, Neil C. Verfasser aut Rethinking informed consent in bioethics Neil C. Manson and Onora O'Neill 1. publ. Cambridge [u.a.] Cambridge Univ. Press 2007 XIV, 212 S. txt rdacontent n rdamedia nc rdacarrier Medicine / Research / Moral and ethical aspects Ethik Medizin Informed consent (Medical law) Bioethics Bioethik (DE-588)4006791-9 gnd rswk-swf Bioethik (DE-588)4006791-9 s DE-604 O'Neill, Onora 1941- Verfasser (DE-588)113123612 aut HBZ Datenaustausch application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=015699603&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Manson, Neil C. O'Neill, Onora 1941- Rethinking informed consent in bioethics Medicine / Research / Moral and ethical aspects Ethik Medizin Informed consent (Medical law) Bioethics Bioethik (DE-588)4006791-9 gnd |
| subject_GND | (DE-588)4006791-9 |
| title | Rethinking informed consent in bioethics |
| title_auth | Rethinking informed consent in bioethics |
| title_exact_search | Rethinking informed consent in bioethics |
| title_exact_search_txtP | Rethinking informed consent in bioethics |
| title_full | Rethinking informed consent in bioethics Neil C. Manson and Onora O'Neill |
| title_fullStr | Rethinking informed consent in bioethics Neil C. Manson and Onora O'Neill |
| title_full_unstemmed | Rethinking informed consent in bioethics Neil C. Manson and Onora O'Neill |
| title_short | Rethinking informed consent in bioethics |
| title_sort | rethinking informed consent in bioethics |
| topic | Medicine / Research / Moral and ethical aspects Ethik Medizin Informed consent (Medical law) Bioethics Bioethik (DE-588)4006791-9 gnd |
| topic_facet | Medicine / Research / Moral and ethical aspects Ethik Medizin Informed consent (Medical law) Bioethics Bioethik |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=015699603&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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